Kim

[Guest guest]

Kim,

If your doctor still doesn't approve of the surgery for you. I would ask

your OB/GYN if he can recommend a doctor for you. I asked my OB/GYN if he

would be the doctor that would follow me and he said he doesn't do that kind

of stuff but he did find a doctor that would support me for the surgery. The

best part about it is I didn't have to go for one doctor to another until I

found one because of my OB/GYN finding me one. So talk to you OB/GYN about it

and see if he/she can recommend one for you.....GOOD LUCK

Joyce

[Guest guest]

Kim,

If your doctor still doesn't approve of the surgery for you. I would ask

your OB/GYN if he can recommend a doctor for you. I asked my OB/GYN if he

would be the doctor that would follow me and he said he doesn't do that kind

of stuff but he did find a doctor that would support me for the surgery. The

best part about it is I didn't have to go for one doctor to another until I

found one because of my OB/GYN finding me one. So talk to you OB/GYN about it

and see if he/she can recommend one for you.....GOOD LUCK

Joyce

[Guest guest]

Kim,

If your doctor still doesn't approve of the surgery for you. I would ask

your OB/GYN if he can recommend a doctor for you. I asked my OB/GYN if he

would be the doctor that would follow me and he said he doesn't do that kind

of stuff but he did find a doctor that would support me for the surgery. The

best part about it is I didn't have to go for one doctor to another until I

found one because of my OB/GYN finding me one. So talk to you OB/GYN about it

and see if he/she can recommend one for you.....GOOD LUCK

Joyce

[Guest guest]

Kim,

HI, I was wondering if you have been to clinic yet or if you have a date??

Let me know, you can pick me up on your way LOL Margie SC Still praying for

Theresa

[Guest guest]

Kim,

HI, I was wondering if you have been to clinic yet or if you have a date??

Let me know, you can pick me up on your way LOL Margie SC Still praying for

Theresa

[Guest guest]

Kim,

HI, I was wondering if you have been to clinic yet or if you have a date??

Let me know, you can pick me up on your way LOL Margie SC Still praying for

Theresa

[Guest guest]

Seems to be a corrolation between mono and fibro. The

immune system is compromised and sets up the body for

toxin retension in muscles. Then when there is no

sleep, this exascerabates the problems. We understand

, we have similar problesm. We're here, ask away or

just talk. Star

--- ksruscher txswtthang@...> wrote:

> Hi, My name is Kim. I am 38 years old and have 2

> children. I have

> been diagnosed with CFS and Fibro for 8 years now.

> I have tested

> positive for RA, but the doctor told me that if it

> was RA I would be

> crippled by now. I have had several other doctors

> tell me that it

> was Fibro also. I have alot of pain and do not

> sleep well at night.

> I also have had a disc removed in my lower back. I

> am exhausted

> through the day and feel like I am lugging heavy

> bricks around. I

> am 5'10 " and weigh 300 pounds. I want to do so many

> things, but " My

> get up and go, went a LONG time ago! " . I was

> diagnosed with

> Mononucleosis approx. 15 years ago. Can anyone tell

> me what the tie

> between Mono and Fibro is? Just trying to do some

> research to see

> if there is anyway I can fight this. Hope to hear

> from you!!

>

> Thanks for letting me share my story.

>

>

=====

__________________________________________________

[Guest guest]

Seems to be a corrolation between mono and fibro. The

immune system is compromised and sets up the body for

toxin retension in muscles. Then when there is no

sleep, this exascerabates the problems. We understand

, we have similar problesm. We're here, ask away or

just talk. Star

--- ksruscher txswtthang@...> wrote:

> Hi, My name is Kim. I am 38 years old and have 2

> children. I have

> been diagnosed with CFS and Fibro for 8 years now.

> I have tested

> positive for RA, but the doctor told me that if it

> was RA I would be

> crippled by now. I have had several other doctors

> tell me that it

> was Fibro also. I have alot of pain and do not

> sleep well at night.

> I also have had a disc removed in my lower back. I

> am exhausted

> through the day and feel like I am lugging heavy

> bricks around. I

> am 5'10 " and weigh 300 pounds. I want to do so many

> things, but " My

> get up and go, went a LONG time ago! " . I was

> diagnosed with

> Mononucleosis approx. 15 years ago. Can anyone tell

> me what the tie

> between Mono and Fibro is? Just trying to do some

> research to see

> if there is anyway I can fight this. Hope to hear

> from you!!

>

> Thanks for letting me share my story.

>

>

=====

__________________________________________________

[Guest guest]

Seems to be a corrolation between mono and fibro. The

immune system is compromised and sets up the body for

toxin retension in muscles. Then when there is no

sleep, this exascerabates the problems. We understand

, we have similar problesm. We're here, ask away or

just talk. Star

--- ksruscher txswtthang@...> wrote:

> Hi, My name is Kim. I am 38 years old and have 2

> children. I have

> been diagnosed with CFS and Fibro for 8 years now.

> I have tested

> positive for RA, but the doctor told me that if it

> was RA I would be

> crippled by now. I have had several other doctors

> tell me that it

> was Fibro also. I have alot of pain and do not

> sleep well at night.

> I also have had a disc removed in my lower back. I

> am exhausted

> through the day and feel like I am lugging heavy

> bricks around. I

> am 5'10 " and weigh 300 pounds. I want to do so many

> things, but " My

> get up and go, went a LONG time ago! " . I was

> diagnosed with

> Mononucleosis approx. 15 years ago. Can anyone tell

> me what the tie

> between Mono and Fibro is? Just trying to do some

> research to see

> if there is anyway I can fight this. Hope to hear

> from you!!

>

> Thanks for letting me share my story.

>

>

=====

__________________________________________________

[Guest guest]

Hi Kim….

Your doctor telling you that if you had RA you would be crippled by now

is the most hideous piece of medican advice I have ever heard…

Both my husband and I have sero negative RA and fibro…our sero negative

RA is currently going into remission because of treatment

You hear all kinds of stories of people getting their lives back through

the new biologics and the fact your doctor is not treating you for the

RA is simply leaving your bones to further advance to a degree they

don’t need to advance to,

I would see a referral to a rheumatologist assuming you don’t have one

and get put on a DMARD, which is a disease modifying agent to stop the

destruction..

I am sorry but that is horrible if you have tested positive for RA and

not been treated..

There is a site I will give you the link to that suggests the connection

between infection and other chronic disease..such as chronic fatigue

syndrome and fibro and RA.

http://www.ra-infection-connection.com/

The author’s email address is listed there and she replies to all

emails…The reason I suggest browsing the web page is that after so much

research that my husband and I did and trying to find a doctor who would

treat us with the protocol was no easy task, but we did it and we are

both in remission at this point in time..the joint destruction is being

held at bay….and we have a big part of our lives back..

The book is for the intelligent reader and suggests the infection

connection to these chronic diseases..

Please if you have a positive RA seek treatment before he allows you to

become disabled via ommisiom

With fibro the main criteria to being well is sleeping…we are given

imovane to sleep ..it is a non benzodiazepame type drug and guarantees

us 7 hours of sleep no matter the pain…and if necessary we will be given

a certain type of anti depressant (amitriptiline) to enhance the

feelings of the medication to help you sleep….which is so necessary

I strongly urge a positive RA test be treated by what method of DMARD

your family and rheumatologist suggest.

Please consider what he is allowing to be done to your body without

dealing with the disease..

RA and fibro are grouped under arthritic conditions and can co mingle as

the same disease or two diseases with parallel symptoms…

Your pain will dissipate over time if treatment is begun…the philosophy

is now that you treat a positive RA with aggressive treatments and

people are getting their lives back in many cases.

Please consider not accepting your doctor’s most inappropriate

determinations…I think we all have this preconceived notion that if you

have RA you are wheelchair bound..the lady that wrote that book also

suffered from RA and now she does everything as she is in remission

Her book is well documented and speaks of the viral, bacterial, or

fungal infection that leads to fibro, chronic fatigue and ra and other

rheumatic diseases.

Her protocol she followed was set up by a dr brown www.roadback.org

http://www.roadback.org/> who died in the late 80’s at a very old age,

but helped over 10,000 people get well again on the road back..he was

also medical counsel to the white house …

Please get your doctor to attend to your positive RA result so you can

gain some of your life back and get something for sleep so you may heal

over night

Hugs and I hope in some way I have helped…and that my opinions are but

my opinions and I am not trying to force a determination upon you..just

give you some hope to get away from your pain with treatment

Sincerely

Re: Kim

Seems to be a corrolation between mono and fibro. The

immune system is compromised and sets up the body for

toxin retension in muscles. Then when there is no

sleep, this exascerabates the problems. We understand

, we have similar problesm. We're here, ask away or

just talk. Star

--- ksruscher txswtthang@...> wrote:

> Hi, My name is Kim. I am 38 years old and have 2

> children. I have

> been diagnosed with CFS and Fibro for 8 years now.

> I have tested

> positive for RA, but the doctor told me that if it

> was RA I would be

> crippled by now. I have had several other doctors

> tell me that it

> was Fibro also. I have alot of pain and do not

> sleep well at night.

> I also have had a disc removed in my lower back. I

> am exhausted

> through the day and feel like I am lugging heavy

> bricks around. I

> am 5'10 " and weigh 300 pounds. I want to do so many

> things, but " My

> get up and go, went a LONG time ago! " . I was

> diagnosed with

> Mononucleosis approx. 15 years ago. Can anyone tell

> me what the tie

> between Mono and Fibro is? Just trying to do some

> research to see

> if there is anyway I can fight this. Hope to hear

> from you!!

>

> Thanks for letting me share my story.

>

>

=====

__________________________________________________

[Guest guest]

Hi Kim….

Your doctor telling you that if you had RA you would be crippled by now

is the most hideous piece of medican advice I have ever heard…

Both my husband and I have sero negative RA and fibro…our sero negative

RA is currently going into remission because of treatment

You hear all kinds of stories of people getting their lives back through

the new biologics and the fact your doctor is not treating you for the

RA is simply leaving your bones to further advance to a degree they

don’t need to advance to,

I would see a referral to a rheumatologist assuming you don’t have one

and get put on a DMARD, which is a disease modifying agent to stop the

destruction..

I am sorry but that is horrible if you have tested positive for RA and

not been treated..

There is a site I will give you the link to that suggests the connection

between infection and other chronic disease..such as chronic fatigue

syndrome and fibro and RA.

http://www.ra-infection-connection.com/

The author’s email address is listed there and she replies to all

emails…The reason I suggest browsing the web page is that after so much

research that my husband and I did and trying to find a doctor who would

treat us with the protocol was no easy task, but we did it and we are

both in remission at this point in time..the joint destruction is being

held at bay….and we have a big part of our lives back..

The book is for the intelligent reader and suggests the infection

connection to these chronic diseases..

Please if you have a positive RA seek treatment before he allows you to

become disabled via ommisiom

With fibro the main criteria to being well is sleeping…we are given

imovane to sleep ..it is a non benzodiazepame type drug and guarantees

us 7 hours of sleep no matter the pain…and if necessary we will be given

a certain type of anti depressant (amitriptiline) to enhance the

feelings of the medication to help you sleep….which is so necessary

I strongly urge a positive RA test be treated by what method of DMARD

your family and rheumatologist suggest.

Please consider what he is allowing to be done to your body without

dealing with the disease..

RA and fibro are grouped under arthritic conditions and can co mingle as

the same disease or two diseases with parallel symptoms…

Your pain will dissipate over time if treatment is begun…the philosophy

is now that you treat a positive RA with aggressive treatments and

people are getting their lives back in many cases.

Please consider not accepting your doctor’s most inappropriate

determinations…I think we all have this preconceived notion that if you

have RA you are wheelchair bound..the lady that wrote that book also

suffered from RA and now she does everything as she is in remission

Her book is well documented and speaks of the viral, bacterial, or

fungal infection that leads to fibro, chronic fatigue and ra and other

rheumatic diseases.

Her protocol she followed was set up by a dr brown www.roadback.org

http://www.roadback.org/> who died in the late 80’s at a very old age,

but helped over 10,000 people get well again on the road back..he was

also medical counsel to the white house …

Please get your doctor to attend to your positive RA result so you can

gain some of your life back and get something for sleep so you may heal

over night

Hugs and I hope in some way I have helped…and that my opinions are but

my opinions and I am not trying to force a determination upon you..just

give you some hope to get away from your pain with treatment

Sincerely

Re: Kim

Seems to be a corrolation between mono and fibro. The

immune system is compromised and sets up the body for

toxin retension in muscles. Then when there is no

sleep, this exascerabates the problems. We understand

, we have similar problesm. We're here, ask away or

just talk. Star

--- ksruscher txswtthang@...> wrote:

> Hi, My name is Kim. I am 38 years old and have 2

> children. I have

> been diagnosed with CFS and Fibro for 8 years now.

> I have tested

> positive for RA, but the doctor told me that if it

> was RA I would be

> crippled by now. I have had several other doctors

> tell me that it

> was Fibro also. I have alot of pain and do not

> sleep well at night.

> I also have had a disc removed in my lower back. I

> am exhausted

> through the day and feel like I am lugging heavy

> bricks around. I

> am 5'10 " and weigh 300 pounds. I want to do so many

> things, but " My

> get up and go, went a LONG time ago! " . I was

> diagnosed with

> Mononucleosis approx. 15 years ago. Can anyone tell

> me what the tie

> between Mono and Fibro is? Just trying to do some

> research to see

> if there is anyway I can fight this. Hope to hear

> from you!!

>

> Thanks for letting me share my story.

>

>

=====

__________________________________________________

[Guest guest]

Hi Kim….

Your doctor telling you that if you had RA you would be crippled by now

is the most hideous piece of medican advice I have ever heard…

Both my husband and I have sero negative RA and fibro…our sero negative

RA is currently going into remission because of treatment

You hear all kinds of stories of people getting their lives back through

the new biologics and the fact your doctor is not treating you for the

RA is simply leaving your bones to further advance to a degree they

don’t need to advance to,

I would see a referral to a rheumatologist assuming you don’t have one

and get put on a DMARD, which is a disease modifying agent to stop the

destruction..

I am sorry but that is horrible if you have tested positive for RA and

not been treated..

There is a site I will give you the link to that suggests the connection

between infection and other chronic disease..such as chronic fatigue

syndrome and fibro and RA.

http://www.ra-infection-connection.com/

The author’s email address is listed there and she replies to all

emails…The reason I suggest browsing the web page is that after so much

research that my husband and I did and trying to find a doctor who would

treat us with the protocol was no easy task, but we did it and we are

both in remission at this point in time..the joint destruction is being

held at bay….and we have a big part of our lives back..

The book is for the intelligent reader and suggests the infection

connection to these chronic diseases..

Please if you have a positive RA seek treatment before he allows you to

become disabled via ommisiom

With fibro the main criteria to being well is sleeping…we are given

imovane to sleep ..it is a non benzodiazepame type drug and guarantees

us 7 hours of sleep no matter the pain…and if necessary we will be given

a certain type of anti depressant (amitriptiline) to enhance the

feelings of the medication to help you sleep….which is so necessary

I strongly urge a positive RA test be treated by what method of DMARD

your family and rheumatologist suggest.

Please consider what he is allowing to be done to your body without

dealing with the disease..

RA and fibro are grouped under arthritic conditions and can co mingle as

the same disease or two diseases with parallel symptoms…

Your pain will dissipate over time if treatment is begun…the philosophy

is now that you treat a positive RA with aggressive treatments and

people are getting their lives back in many cases.

Please consider not accepting your doctor’s most inappropriate

determinations…I think we all have this preconceived notion that if you

have RA you are wheelchair bound..the lady that wrote that book also

suffered from RA and now she does everything as she is in remission

Her book is well documented and speaks of the viral, bacterial, or

fungal infection that leads to fibro, chronic fatigue and ra and other

rheumatic diseases.

Her protocol she followed was set up by a dr brown www.roadback.org

http://www.roadback.org/> who died in the late 80’s at a very old age,

but helped over 10,000 people get well again on the road back..he was

also medical counsel to the white house …

Please get your doctor to attend to your positive RA result so you can

gain some of your life back and get something for sleep so you may heal

over night

Hugs and I hope in some way I have helped…and that my opinions are but

my opinions and I am not trying to force a determination upon you..just

give you some hope to get away from your pain with treatment

Sincerely

Re: Kim

Seems to be a corrolation between mono and fibro. The

immune system is compromised and sets up the body for

toxin retension in muscles. Then when there is no

sleep, this exascerabates the problems. We understand

, we have similar problesm. We're here, ask away or

just talk. Star

--- ksruscher txswtthang@...> wrote:

> Hi, My name is Kim. I am 38 years old and have 2

> children. I have

> been diagnosed with CFS and Fibro for 8 years now.

> I have tested

> positive for RA, but the doctor told me that if it

> was RA I would be

> crippled by now. I have had several other doctors

> tell me that it

> was Fibro also. I have alot of pain and do not

> sleep well at night.

> I also have had a disc removed in my lower back. I

> am exhausted

> through the day and feel like I am lugging heavy

> bricks around. I

> am 5'10 " and weigh 300 pounds. I want to do so many

> things, but " My

> get up and go, went a LONG time ago! " . I was

> diagnosed with

> Mononucleosis approx. 15 years ago. Can anyone tell

> me what the tie

> between Mono and Fibro is? Just trying to do some

> research to see

> if there is anyway I can fight this. Hope to hear

> from you!!

>

> Thanks for letting me share my story.

>

>

=====

__________________________________________________

[Guest guest]

Hi ,

Yes, certainly you may email me privately. Gosh, I hope by my post you

wouldn't think I'm unapproachable. I hope I can answer your questions.

By the way, I love the names of your children!

Kim

> Kim,

>

>I have a few questions about the nutrients you described for your

son. Could I e-mail you privately and ask a few questions? I don't

know anything about Nanotech and probably cant get it in Australia

anyway, but I'm very interested in talking with you.

>

>Thanks

> (Australia)

>Liam 8 wocf & Eilish 5 wcf

[Guest guest]

Hi ,

Yes, certainly you may email me privately. Gosh, I hope by my post you

wouldn't think I'm unapproachable. I hope I can answer your questions.

By the way, I love the names of your children!

Kim

> Kim,

>

>I have a few questions about the nutrients you described for your

son. Could I e-mail you privately and ask a few questions? I don't

know anything about Nanotech and probably cant get it in Australia

anyway, but I'm very interested in talking with you.

>

>Thanks

> (Australia)

>Liam 8 wocf & Eilish 5 wcf

[Guest guest]

Hi ,

Yes, certainly you may email me privately. Gosh, I hope by my post you

wouldn't think I'm unapproachable. I hope I can answer your questions.

By the way, I love the names of your children!

Kim

> Kim,

>

>I have a few questions about the nutrients you described for your

son. Could I e-mail you privately and ask a few questions? I don't

know anything about Nanotech and probably cant get it in Australia

anyway, but I'm very interested in talking with you.

>

>Thanks

> (Australia)

>Liam 8 wocf & Eilish 5 wcf

[Guest guest]

,

You're welcome and I'm envious you have this available. Lucky you! If

I bought bottled water it would be very expensive and probably still

not match the magnesium content of yours.

The measurement term might be " parts per million " (ppm). In the US,

that's how they measure both good and bad things in the water.

I just thought of this so I'm thinking out loud... almost all

antibiotics (there are few exceptions) are incompatiable with

magnesium; they compete to bind to the same receptor site. That's why

you shouldn't take multivitamin/mineral supplements or magnesium (and

some calcium) supplements along with oral antibiotics.

Since so many people with CF are now taking Zithromax daily or on the

three-days a week protocol, they must be careful to space magnesium at

least two - four hours apart from the antibiotic.

But now I'm very curious about taking antibiotics with water rich in

natural minerals. There are huge differences in water content around

the world, so I wonder if anyone has studied this? My guess is since

we're talking about magnesium in ppm in water the effect on the

antibiotics is small to none. But I think I'm going to do some

scouting around to see what the magnesium experts say!

Kim

Kim,

I took your advice and have order a different bottled water. One

with a higher Magnesium level. Our old one was 44....(not sure of the

measurement term) and this new one is 154. Thanks for the advise.

[Guest guest]

,

You're welcome and I'm envious you have this available. Lucky you! If

I bought bottled water it would be very expensive and probably still

not match the magnesium content of yours.

The measurement term might be " parts per million " (ppm). In the US,

that's how they measure both good and bad things in the water.

I just thought of this so I'm thinking out loud... almost all

antibiotics (there are few exceptions) are incompatiable with

magnesium; they compete to bind to the same receptor site. That's why

you shouldn't take multivitamin/mineral supplements or magnesium (and

some calcium) supplements along with oral antibiotics.

Since so many people with CF are now taking Zithromax daily or on the

three-days a week protocol, they must be careful to space magnesium at

least two - four hours apart from the antibiotic.

But now I'm very curious about taking antibiotics with water rich in

natural minerals. There are huge differences in water content around

the world, so I wonder if anyone has studied this? My guess is since

we're talking about magnesium in ppm in water the effect on the

antibiotics is small to none. But I think I'm going to do some

scouting around to see what the magnesium experts say!

Kim

Kim,

I took your advice and have order a different bottled water. One

with a higher Magnesium level. Our old one was 44....(not sure of the

measurement term) and this new one is 154. Thanks for the advise.

[Guest guest]

Kim,

It's not that expensive here. It's $4.80 for 11 litres. And it's

delivered to your door.

Re: KIM

,

You're welcome and I'm envious you have this available. Lucky you! If

I bought bottled water it would be very expensive and probably still

not match the magnesium content of yours.

The measurement term might be " parts per million " (ppm). In the US,

that's how they measure both good and bad things in the water.

I just thought of this so I'm thinking out loud... almost all

antibiotics (there are few exceptions) are incompatiable with

magnesium; they compete to bind to the same receptor site. That's why

you shouldn't take multivitamin/mineral supplements or magnesium (and

some calcium) supplements along with oral antibiotics.

Since so many people with CF are now taking Zithromax daily or on the

three-days a week protocol, they must be careful to space magnesium at

least two - four hours apart from the antibiotic.

But now I'm very curious about taking antibiotics with water rich in

natural minerals. There are huge differences in water content around

the world, so I wonder if anyone has studied this? My guess is since

we're talking about magnesium in ppm in water the effect on the

antibiotics is small to none. But I think I'm going to do some

scouting around to see what the magnesium experts say!

Kim

Kim,

I took your advice and have order a different bottled water. One

with a higher Magnesium level. Our old one was 44....(not sure of the

measurement term) and this new one is 154. Thanks for the advise.

[Guest guest]

Kim,

It's not that expensive here. It's $4.80 for 11 litres. And it's

delivered to your door.

Re: KIM

,

You're welcome and I'm envious you have this available. Lucky you! If

I bought bottled water it would be very expensive and probably still

not match the magnesium content of yours.

The measurement term might be " parts per million " (ppm). In the US,

that's how they measure both good and bad things in the water.

I just thought of this so I'm thinking out loud... almost all

antibiotics (there are few exceptions) are incompatiable with

magnesium; they compete to bind to the same receptor site. That's why

you shouldn't take multivitamin/mineral supplements or magnesium (and

some calcium) supplements along with oral antibiotics.

Since so many people with CF are now taking Zithromax daily or on the

three-days a week protocol, they must be careful to space magnesium at

least two - four hours apart from the antibiotic.

But now I'm very curious about taking antibiotics with water rich in

natural minerals. There are huge differences in water content around

the world, so I wonder if anyone has studied this? My guess is since

we're talking about magnesium in ppm in water the effect on the

antibiotics is small to none. But I think I'm going to do some

scouting around to see what the magnesium experts say!

Kim

Kim,

I took your advice and have order a different bottled water. One

with a higher Magnesium level. Our old one was 44....(not sure of the

measurement term) and this new one is 154. Thanks for the advise.

[Guest guest]

Thanks Kim and all the others for the explanations!! I have found a water

soluble A as well and I will give that to Liam just to make sure he dosent get

low on it because he is in the lower part of the normal for A

Re: Vitamin Levels LIAM

Hi ,

Vitamins A, D, E, and K are all fat soluble vitamins. This *fat

soluble* tells you that these are stored in your body fat (i.e., they

*need* fat in order to be soluble in the body).

This is why people with cf need A, D, E, and K in water soluble forms.

If people with cf don't absorb fat well then they don't have adequate

fat storage and these particular vitamins have no where to go.

In people who don't have malabsorption problems (and before the

Western diet got so bad), the USDA recommended eating vegetables rich

in vitamin A every other day, since it's stored in the fat it builds

up in the body. (But now that Western diets are mostly junk and

processed foods and our soils are depleted of minerals, I wouldn't

hold to that old standard.)

All other vitamins aren't stored in body fat, which is why they need

to be replaced daily. Vitamin C especially is a good example; it's

shed from the body each time you urinate, so if you have a cold or flu

or under stress, it's a helpful habit to remember to take more Vitamin

C each time you urinate.

To answer your other question, eating carrots or drinking carrot juice

(or other vitamin A rich foods such as pumpkin, sweet potato and acorn

squash) replenishes the body with vitamin A, which gets stored in your

body fat. It has nothing to do with the foods containing fat or not.

I hope this makes sense; I haven't had a full cup of coffee yet!

Kim

Mom to (23 with cf and asthma) and (20 asthma no cf)

> Hi all

> Got Liams vitamin levels back

> A is Fine

> E is below normal

> D is Below normal

>

> He is going to get supplemented on Micell E to correct the E

imbalance and we will put him in the sun more for the D

> Hopefully this will work

> Has anyone got some more suggestions he is only 3 months old and

still fully breastfeed

>

> I do have aquestion though: If vitamin A is a fat soluble vitamin

then when giving carrot juice or eating a carrort is this turned into

a fat soluble substance in the body?? Or is this betacarotene in the

carrot water soluble and the vit A is still fat soluble, so confused

about that. There is no fat in a carrot????? HELPPP

> thanks for your time

> mum to baby Liam

>

>

[Guest guest]

Thanks Kim and all the others for the explanations!! I have found a water

soluble A as well and I will give that to Liam just to make sure he dosent get

low on it because he is in the lower part of the normal for A

Re: Vitamin Levels LIAM

Hi ,

Vitamins A, D, E, and K are all fat soluble vitamins. This *fat

soluble* tells you that these are stored in your body fat (i.e., they

*need* fat in order to be soluble in the body).

This is why people with cf need A, D, E, and K in water soluble forms.

If people with cf don't absorb fat well then they don't have adequate

fat storage and these particular vitamins have no where to go.

In people who don't have malabsorption problems (and before the

Western diet got so bad), the USDA recommended eating vegetables rich

in vitamin A every other day, since it's stored in the fat it builds

up in the body. (But now that Western diets are mostly junk and

processed foods and our soils are depleted of minerals, I wouldn't

hold to that old standard.)

All other vitamins aren't stored in body fat, which is why they need

to be replaced daily. Vitamin C especially is a good example; it's

shed from the body each time you urinate, so if you have a cold or flu

or under stress, it's a helpful habit to remember to take more Vitamin

C each time you urinate.

To answer your other question, eating carrots or drinking carrot juice

(or other vitamin A rich foods such as pumpkin, sweet potato and acorn

squash) replenishes the body with vitamin A, which gets stored in your

body fat. It has nothing to do with the foods containing fat or not.

I hope this makes sense; I haven't had a full cup of coffee yet!

Kim

Mom to (23 with cf and asthma) and (20 asthma no cf)

> Hi all

> Got Liams vitamin levels back

> A is Fine

> E is below normal

> D is Below normal

>

> He is going to get supplemented on Micell E to correct the E

imbalance and we will put him in the sun more for the D

> Hopefully this will work

> Has anyone got some more suggestions he is only 3 months old and

still fully breastfeed

>

> I do have aquestion though: If vitamin A is a fat soluble vitamin

then when giving carrot juice or eating a carrort is this turned into

a fat soluble substance in the body?? Or is this betacarotene in the

carrot water soluble and the vit A is still fat soluble, so confused

about that. There is no fat in a carrot????? HELPPP

> thanks for your time

> mum to baby Liam

>

>

[Guest guest]

Kim

Hello Kim,

I really appreciate you taking the time to relay all of that information. I

really didn't know a lot about Zithromax. I've just heard a lot of people on

Cystic-L saying how much it has helped. At this point, I'm willing to try

anything. Please send me any information that you have that will help me be

better informed about the choices we have.

I've already saved this e-mail in my computer and printed a back up " just in

case " .

At this point Josh's lungs are in fairly good shape. I want all the information

that I can get that will help us keep them that way. You can send the papers

that you wrote to ddecell@.... I am very interested in both your

experiences and those of anyone else. I want to be well informed when I speak to

the doctor.

Thanks again,

[Guest guest]

Kim

Hello Kim,

I really appreciate you taking the time to relay all of that information. I

really didn't know a lot about Zithromax. I've just heard a lot of people on

Cystic-L saying how much it has helped. At this point, I'm willing to try

anything. Please send me any information that you have that will help me be

better informed about the choices we have.

I've already saved this e-mail in my computer and printed a back up " just in

case " .

At this point Josh's lungs are in fairly good shape. I want all the information

that I can get that will help us keep them that way. You can send the papers

that you wrote to ddecell@.... I am very interested in both your

experiences and those of anyone else. I want to be well informed when I speak to

the doctor.

Thanks again,

[Guest guest]

Kim

Hello Kim,

I really appreciate you taking the time to relay all of that information. I

really didn't know a lot about Zithromax. I've just heard a lot of people on

Cystic-L saying how much it has helped. At this point, I'm willing to try

anything. Please send me any information that you have that will help me be

better informed about the choices we have.

I've already saved this e-mail in my computer and printed a back up " just in

case " .

At this point Josh's lungs are in fairly good shape. I want all the information

that I can get that will help us keep them that way. You can send the papers

that you wrote to ddecell@.... I am very interested in both your

experiences and those of anyone else. I want to be well informed when I speak to

the doctor.

Thanks again,

[Guest guest]

Kim,

I had to laugh with your ear story. I think maybe when we took her to

the hsp. it was the beginning and maybe nothing was noticeable then.

She has only complained of a sore ear once today and no fever. I took

them to a birthday party today, 2 hours in a video arcade, all games

free. I had a ball let alone the kids. I found out I'm no good skiing,

motor bike riding or even racing in Daytona, I came last in all of them

Lol!

(Australia)

Re: results

Dear ,

I'm so happy to find an update about Eilish, and I'm glad your doctor

found the cause.

We've had some screw ups with our emergency room doctors too... but

reading Eilish's experience, I'm convinced that some people are very

sensitive to what's going on in their bodies even before medical

personnel can " see " it -- and also, I wonder if sometimes ear problems

just take a while to fully manifest themselves.

The summer I was 14-years old, I became very ill: severe left ear

pain, dizziness, vomiting, fevers hovering around 99 F (I tried

converting that to degrees centigrade for you but failed horribly. My

kids and I have a normal temp of 97.6, so when any of us hit 99, we

feel awful.)

My mom took me to our GP but he couldn't find anything wrong; he said

it was probably a virus. Later, she took me to the emergency room;

same story, must be a virus. During a two-week time span I saw my GP

twice, and went to the ER twice, and I lost over 15 pounds because I

couldn't keep anything down. I remember those two weeks, just lying

weak as a kitten on the living room rug watching the ceiling spin,

crying hot tears that trickled down into my painful ear, and vomiting

green bile whenever I ate or moved too quickly.

Finally, on my third visit to the GP, he looked in my left ear again

and this time said, " Ahhh, hah. " He told my mom there was a cyst

growing on my ear drum. He told me to hold still, and he lanced the

cyst then gave me a shot of penicillin in the rump; I fainted dead

away to the floor. He sent me home with a prescription for more

penicillin and I quickly got better.

The doctor told my mom that of course they knew now that the cyst had

brewing all this time but just wasn't yet big enough for anyone to

see. And because my eardrum never looked inflammed no one suspected an

infection.

I'm wondering if something similar happened to Eilish -- her body was

sensitive to the beginning of a middle ear infection, but it just

hadn't turned her eardrum pink enough to confirm the diagnosis until

she saw her GP.

My ears and sinuses are still sensitive creatures. I have to take high

doses (1,000 mg.) of guaifenesin starting about 3 days before I fly,

and 3 days after flying to prevent sinus and ear infections.

One time I'd sat up all night with dizziness, fever, and the feeling

my ear drum was bulging down the canal. In the morning I went to my

GP's office but he was out, so his associate saw me; that doctor

wasn't familiar with my long history or ear problems. He took one look

in my ear and I swear he was going to bolt straight for the door. I

begged him to lance the ear drum before it ruptured. I figured a

straight cut from a lance would heal better than the jagged tear of a

rupture, but he wouldn't touch my eardrum.

Anyway, I'm happy Eilish is doing better and will be able to enjoy the

family Harry Potter outing today!

Kim

Mom to (23 with asthma and cf) and (20 asthma no cf)

Eilish's Gp, who is a lovely guy, said he didn't think she had

glandular fever. He check her ears and said she had a bad middle ear

infection. The hsp. checked her ears on Tuesday night and said they

were fine. HE asked what antibiotics we had at home seeing we always

have a stockpile and said to start her on Cipro. but only half the

does she takes for PA. Anyway she has been fine today. He said her

temps. were due to the infection. IF only the hsp. had said that 3

days ago we could be on the recovery rd. So ive just been to the

school pool/fitness complex and bought her ear plugs for swimming.

She swims alot so that probably doesnt help her ears but is good for

her lungs. She sees the ENT guy Tuesday so UI'll mention to him about

all this. Thanks for listening all week.

Were now off the see Harry Potter and the Chamber of Secrets. Liam

has been reading the novel and frantically had to finish it last night

before we went to see the movie today. He tells everyone " I know

who opened the chamber of secrets " . We all love H.P and cant wait to

see it. Liams going in his HP Robe with glasses and wand and Eilish

is wearing a Gryffindor top.

(Australia)

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