Re: Paxil question/need info

[Guest guest]

Suhad,

Im sorry I don't have any information about paxil for you other that I was one it way before I even thought about having children. My daughter Maggie has T8993G mutation and I was wondering what test that they performed on you in order to see if you had it. I have personally had blood, hair and syliva test done and showed no signs in them but I am curious of how they found yours.

Thank you,

Valina Combs mother of Maggie 27 mos Leigh's syndrome

email vcombs@...suhad1970@... wrote:

I am an adult with 54%mutation at the T8993C mutation of mitochondrial disease. I am symptom free but have 2 girls with the severe form of this. I just recently started Paxil, the antidepressant 4 days ago because of all the difficulties I am dealing with. It just occurred to me that I should consider whether medications are safe for mito before taking them. I am not used to worrying about myself, only my daughter. I am wondering if anyone has been on Paxil and if the doctors consider it safe for mito? I would also like to know what your experience has been regarding side effects, and what they were. I would appreciate any input you may have because I am not under the care of

any specialist for myself at the time. I am not considered sick enough to be under a doctors care for mito, but I do know I have some symptoms, but very minor.

Thank you all,

Suhad Haddad, Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease.

Samya's Memorial Site: www.Samya.org

Email: Suhad1970@...

Alt Email: Suhad@...

AiM Chat: Suhad1970

Please contact mito-owner with any problems or questions.

[Guest guest]

Suhad,

Im sorry I don't have any information about paxil for you other that I was one it way before I even thought about having children. My daughter Maggie has T8993G mutation and I was wondering what test that they performed on you in order to see if you had it. I have personally had blood, hair and syliva test done and showed no signs in them but I am curious of how they found yours.

Thank you,

Valina Combs mother of Maggie 27 mos Leigh's syndrome

email vcombs@...suhad1970@... wrote:

I am an adult with 54%mutation at the T8993C mutation of mitochondrial disease. I am symptom free but have 2 girls with the severe form of this. I just recently started Paxil, the antidepressant 4 days ago because of all the difficulties I am dealing with. It just occurred to me that I should consider whether medications are safe for mito before taking them. I am not used to worrying about myself, only my daughter. I am wondering if anyone has been on Paxil and if the doctors consider it safe for mito? I would also like to know what your experience has been regarding side effects, and what they were. I would appreciate any input you may have because I am not under the care of

any specialist for myself at the time. I am not considered sick enough to be under a doctors care for mito, but I do know I have some symptoms, but very minor.

Thank you all,

Suhad Haddad, Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease.

Samya's Memorial Site: www.Samya.org

Email: Suhad1970@...

Alt Email: Suhad@...

AiM Chat: Suhad1970

Please contact mito-owner with any problems or questions.

[Guest guest]

Suhad,

Im sorry I don't have any information about paxil for you other that I was one it way before I even thought about having children. My daughter Maggie has T8993G mutation and I was wondering what test that they performed on you in order to see if you had it. I have personally had blood, hair and syliva test done and showed no signs in them but I am curious of how they found yours.

Thank you,

Valina Combs mother of Maggie 27 mos Leigh's syndrome

email vcombs@...suhad1970@... wrote:

I am an adult with 54%mutation at the T8993C mutation of mitochondrial disease. I am symptom free but have 2 girls with the severe form of this. I just recently started Paxil, the antidepressant 4 days ago because of all the difficulties I am dealing with. It just occurred to me that I should consider whether medications are safe for mito before taking them. I am not used to worrying about myself, only my daughter. I am wondering if anyone has been on Paxil and if the doctors consider it safe for mito? I would also like to know what your experience has been regarding side effects, and what they were. I would appreciate any input you may have because I am not under the care of

any specialist for myself at the time. I am not considered sick enough to be under a doctors care for mito, but I do know I have some symptoms, but very minor.

Thank you all,

Suhad Haddad, Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease.

Samya's Memorial Site: www.Samya.org

Email: Suhad1970@...

Alt Email: Suhad@...

AiM Chat: Suhad1970

Please contact mito-owner with any problems or questions.

[Guest guest]

Hello Suhad,

My daughter has been on paxil for four monthes and has been fine, see's Dr. Kelley at Hopkins in Baltimore, he is aware she is on it and really never made an issue at all. however does not have the same mutation that you mention, she has carnitine deficiency and possible lipoid myopathy which goes along with the syndrome she has been clinically diagnosed with. As far as side effects, Jess has a history of siezures so we were cautioned that it can lower the seizure threshold. Also diarrhea and sleeplessness. None of which she has (so far that is). She is taking it for severe anxiety, she has PDD and struggles terribly with social anxiety--this has enabled her to sit in school with her aide and they are actually able get her to focus. All the best.

Randee Bates mom to age 6.5yrs. clinical BRR syndrome, ph age 11 and Kerri age9

-- Paxil question/need info

I am an adult with 54%mutation at the T8993C mutation of mitochondrial disease. I am symptom free but have 2 girls with the severe form of this. I just recently started Paxil, the antidepressant 4 days ago because of all the difficulties I am dealing with. It just occurred to me that I should consider whether medications are safe for mito before taking them. I am not used to worrying about myself, only my daughter. I am wondering if anyone has been on Paxil and if the doctors consider it safe for mito? I would also like to know what your experience has been regarding side effects, and what they were. I would appreciate any input you may have because I am not under the care of any specialist for myself at the time. I am not considered sick enough to be under a doctors care for mito, but I do know I have some symptoms, but very minor.

Thank you all,

Suhad Haddad, Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease.

Samya's Memorial Site: www.Samya.org

Email: Suhad1970@...

Alt Email: Suhad@...

AiM Chat: Suhad1970

Please contact mito-owner with any problems or questions.