Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 One more thing Darla. I hate to be the bearer of troubling news, but had these issues too. He always held his head one direction and it seemed that his neck was tight (did they call it torticolis? not sure. . . .) He was also jaundiced at birth. So many similarities. I hope she does not have mito. Take good care, Lori Re: eyelashes and other characteristics> > > > When Dr. Cohen did his first evaluation of Grace they spent a long > time studying her facial features. They made many comments about > her eyes/eyelashes, and other features. The Drs. commented that her > ears were flat and had a nic at the top. At first I thought they > were crazy, but I guess it is some of the hereditary signs. I am > learning new every day about this crazy disease. > > > > > > > > Please contact mito-owner with any problems or > questions. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 Thank you for such kind words. I know that you were one of the first to speak to me on this list and have meant a lot to me as well. You were in a very hard time of your life with just losing your daughter and yet you helped me to understand Mito issues and to find dr. Whiteman at Mayo. Darla: mommy to Asenath and the other 8 munchkins Darla Darla,I would say that God has been gracious with us also, by sharing you withall of us. I'm glad you got an unexpectedly soon appointment with Dr.Whiteman. It seems unfortunately that his expertise may be needed forZipporrah. I will be keeping you all in my thoughts and prayers.Mom to Red, Ada & Angel Lily________________________________________________________________The best thing to hit the internet in years - Juno SpeedBand!Surf the web up to FIVE TIMES FASTER!Only $14.95/ month - visit www.juno.com to sign up today!Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 Thank you for such kind words. I know that you were one of the first to speak to me on this list and have meant a lot to me as well. You were in a very hard time of your life with just losing your daughter and yet you helped me to understand Mito issues and to find dr. Whiteman at Mayo. Darla: mommy to Asenath and the other 8 munchkins Darla Darla,I would say that God has been gracious with us also, by sharing you withall of us. I'm glad you got an unexpectedly soon appointment with Dr.Whiteman. It seems unfortunately that his expertise may be needed forZipporrah. I will be keeping you all in my thoughts and prayers.Mom to Red, Ada & Angel Lily________________________________________________________________The best thing to hit the internet in years - Juno SpeedBand!Surf the web up to FIVE TIMES FASTER!Only $14.95/ month - visit www.juno.com to sign up today!Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.