Re: urinary retention

[Guest guest]

Kass,

I'm glad you jumped in to explain a little about Ditropan. You know more about than I do and I'm glad to hear that it is working well. I hope we have the same result.

Thanks

Kass wrote:

Hey Kerry....hope you don't mind me jumping in here!! Ditropan is an anti-spasmodic and works well for kids with incontinence issues (like my Chance and Abby). In their case, rather than holding too much urine, they both begin having bladder spasms, such that they would wet themselves if they laughed or coughed long before they have as much in their bladder as they should. The only options our urologist gave us for Madison holding too much was a med called Cardura, which relaxes the bladder neck (and theoretically we hoped might allow her to release more easily) and an attempt at an every two hour schedule....atleast having her try that frequently. Course your girls are much younger so I am suspecting this part might be impossible. Have they checked the girls for constipation by any chance?? This can apparently play a big part in urological issues (in both directions, those that hold too much AND those with incontinence issues). Along with the meds my guys were given to try and address the urological issues, 2 of them are also now being treated for constipation as a part of our effort to get some control. We're honestly getting mixed results over here from what we're trying. Chance (spasming bladder/incontinence issues) we're seeing very nice results with the increased Ditropan and continuing the every 2 hour schedule. As long as he gets his Ditropan he almost never has accidents, though we have found that if a dose is missed, it comes back full force. He IS back to having some days of burning and feeling like he needs to go but cannot, so we'll need to address this when we get back to Mayo in March, but so far its been pretty manageable. Abby (spasming bladder/incontinence issues) we're seeing no change in with the Ditropan and the schedule unfortunatly, though we might be able to increase the ditropan and see something more so will discuss this in March. And finally, Miss Madison (holds too much/goes infrequently/thickened bladder wall/frequent infections) we've seen no improvements in with the med and schedule. She tries every 2 hours but

there is just nothing coming out and while we were on Abby's Wish trip this last week she went 24+ hours on a couple of occasions in between going. This with major amounts of hydration too as I was trying to avoid altitude sickness in all of us and was seriously pushing the gatorade. I knew the stress of the trip might set things back, and normally she doesn't go quite that long in between urinations, but it was still not what I wanted to see. Probably silly, but I am still holding out hope maybe we can come up with something that helps her. Promise to share if we do!!!! Just wondering, did the doctor say what his concerns were with the girls retaining?? Wondering what damage could be caused if they are not in pain ya know?? I think I (blindly) keep thinking that if Madison is not hurting, maybe its not doing damage. Course, I know better to some extent, but cannot help myself at the moment. Good luck hun and know your in my thoughts and prayers. -- BIG hugs, Kass, proud mom to Chance(10-Mito), Madison(7-Mito), and Abby(6-Mito) Home Page (http://home.swbell.net/mcpoop/index1.htm) Updates (http://www.caringbridge.org/tx/mitowhat/) United Mitochondrial Disease Foundation (http://www.umdf.org) "Life is not about the breaths we take, but the moments that take our breath away" Unknown kerry.tobin@... wrote: : What do they expect from using dytropan? I have asked if there is anything else besides having to cath after 12 hr without urine and was told there was nothing and this was what needed to be done. We have been able to avoid doing it at home until now, we actually have a nurse on her way to our house now because Brenna has not gone in 15 hrs. I still am holding out hope that she will go before she gets here. Best of luck trying this med ~ Please let me/us know how it goes and thanks for sharing this info. KerryPlease contact mito-owner with any problems or questions.