Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 I dont know if my other post went thru. We have not seen Sansaricq--we spoke by phone. I have alot of info regarding different docs at Columbia and at Sinai. Vockley made Matts diagnosis--his gene had to be studied by Dr. gregerson in Denmark. Please write and I will help in any way that I can. Jill, Matts mom, scad Quote Link to comment Share on other sites More sharing options...
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