Re: Ann- CONTACTING WHITEMAN

[Guest guest]

Sorry to hear he isn't taking new patients but I did know he has been swamped. He told me a couple weeks ago that one partner had moved and so the others had to pick up his case loads as well as the ones they already had. I feel very privileged to be able to see him. He told me there are only 3-4 docs who will see adults as well as children. Hopefully those that want to see him will get a chance later on when things lighten up a bit. Darla Re: CONTACTING WHITEMAN confirmed that Dr. Whiteman is not taking any new patients. Possibly in September he will be. They are referring people to other docs in the genetics dept who she says are not mito experts. This request was not for me but for another family. I feel sad that there are so few choices for families to go to get expert advice once the diagnosis is made. We are fortunate to have a local doctor that is not afraid of the disease and not too proud to listen to me and to national mito experts who he consults by phone. But there seems to be such a paucity of physicians who are willing to dive in and learn and care for kids like ours....they fall back on "i'm not a metabolic expert" and I guess just assume someone else will care for the child. Makes me feel blessed for the doctor we have but angry and sad that now another practice is closed for families who despertaley need help.We desperately need more primary physicians to come forward and be willing to learn along side the family and not be so scared of the disease!AnneAnne> Hi Anne,> Not sure about new patients - we were new just this month. Never know unless you call. I found everyone helpful. Carla had a baby girl the week before we got there. Just got the 14-page report yesterday. We were there 2/4-6/04.> Here is the phone number: > I do know that a typed letter with condensing J.D.'s years helped tremendously. Plus I scanned pictures throughout his years and placed on one page to see the growth pattern.> We go back in May.> Good luck.> Darlene

[Guest guest]

Sorry to hear he isn't taking new patients but I did know he has been swamped. He told me a couple weeks ago that one partner had moved and so the others had to pick up his case loads as well as the ones they already had. I feel very privileged to be able to see him. He told me there are only 3-4 docs who will see adults as well as children. Hopefully those that want to see him will get a chance later on when things lighten up a bit. Darla Re: CONTACTING WHITEMAN confirmed that Dr. Whiteman is not taking any new patients. Possibly in September he will be. They are referring people to other docs in the genetics dept who she says are not mito experts. This request was not for me but for another family. I feel sad that there are so few choices for families to go to get expert advice once the diagnosis is made. We are fortunate to have a local doctor that is not afraid of the disease and not too proud to listen to me and to national mito experts who he consults by phone. But there seems to be such a paucity of physicians who are willing to dive in and learn and care for kids like ours....they fall back on "i'm not a metabolic expert" and I guess just assume someone else will care for the child. Makes me feel blessed for the doctor we have but angry and sad that now another practice is closed for families who despertaley need help.We desperately need more primary physicians to come forward and be willing to learn along side the family and not be so scared of the disease!AnneAnne> Hi Anne,> Not sure about new patients - we were new just this month. Never know unless you call. I found everyone helpful. Carla had a baby girl the week before we got there. Just got the 14-page report yesterday. We were there 2/4-6/04.> Here is the phone number: > I do know that a typed letter with condensing J.D.'s years helped tremendously. Plus I scanned pictures throughout his years and placed on one page to see the growth pattern.> We go back in May.> Good luck.> Darlene