NG-tube issue

[Guest guest]

I think we are going to need a ng-tube. Zipporrah is really having problems with all her meds. We had to add the steroid today on top of COQ10, Carnitor, Prilosec, and Tri-vi-sol. When I give her the meds she has no idea of how to swallow them. Most of the time she has coughed and sputtered and gasped for air. But it is really getting scary to give it to her lately. The last few days she has been turning blue after taking the meds and is in obvious distress for quite a while after taking them. I am so frustrated as I know this is probably part of the reason she has had two major upper respiratory infections. I know how I feel when I accidentally swallow something down the wrong tube so I can't imagine doing this several times a day! And she has no way of stopping it. I stopped giving her the COQ10 and Carnitor over a week ago because it seemed to worsen her illness. But I continued to give the Prilosec. In the hospital she coughed and sputtered and then threw it and her previous meal up. Now, it's not coming out much, just seems to be staying in and probably aspirating. QUESTION: How long have some of you used the ng-tube before getting the g-tube. Asenath had one for 6 weeks and I was told it wasn't good to go much longer because of possible infections and damage to the internal passageways. Plus the possibility of it moving into the lungs or etc. if not careful. I know how to use them so not too worried about that issue but am worried about a g-tube operation at such a young age and with so many illnesses in her short life. Any help on your experiences is welcome! Darla: mommy to: Asenath (4) Mito, brain vasculitis, strokes, migraines, seizures, g-tube, disautonomia issues, hypotonia, heat/exercise intolerance, oxygen use, asthma.. Zipporrah (5 mon.) Mito, strokes, sensory issues, hypertonia, feeding/breathing issues...Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com