Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 My name is , and my daughter is 8. She has a lot of health problems and now we are being sent to a Genetic doctor. Kierra is almost 9, she weighs 46 lbs. She has been off of her feeding tube since the end of Dec. Her body would not heal after the placement (June) She has gastroparesis,gerd,dysmotility disorder,chronic constipation,carntine deficiency syndrome(but Lconator makes her sick) ,now her PT levels are elevated and oral vit.k was not being absorbed so tomorrow we start vit k shots. She has been falling a lot lately, has problems remembering, eats very little, foods high in fat make her sick. All of her sweat tests have come back normal. (she has had 3) I tried to read about mitocondrial disease, but it was so much. Oh another thing is, she has a problem with heat. She gets very red, almost like a sun burn and sweats very bad. She didn't even go out much last summer. Does any of this sound simular to any of your problems. She looks normal, she is in the 3rd grade. I just know that at the rate she is going she will be on tnp in no time. Thank you for any help you can offer. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.