Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 I was wondering if anyone knows what can cause sudden swallowing problems Some medications can cause swallowing dysfunction. Phenobarb is one I know for sure. We knew my daughter had severe silent aspiration prior to starting it, but she was not ill at all. The phenobarb made her swallow go from bad to worse immediatly. After 3 mos, she crashed and needed a gtube. Besides that, I feel her dyspagia was a slow, gradual loss due to her mito. It was so subtle, no one was sure she even sure she had a problem until a swallow study was done. also a note does anyones child have large tonsils? my non affected daughter has super huge tonsils. Ent thinks that she probably has sleep apnea since she is snoring and we have heard some gasping pausing thing Chelsea was evaluated for a T & A after she was dx'd with sleep apnea via sleep study. She snored quire a bit and had many arousals with little REM sleep(also a phenobarb side effect). The ENT we saw then said her tonsils were slightly enlarged, but he did not feel they were her main problem (floppy soft palette), and said he would never do a T & A on her because of her condition. This was 4 years ago, and we never saw that ENT again. Last summer, she contracted mono and her tonsils swelled enormously and she had significant breathing issues. After, she recovered, she had a T & A and it was the best thing we could have done for her. She no longer snores, unless she is sick or had a seizure, and also with valium. Her recovery went much better than expected, although the 1st couple of days were pretty rough. They tested her at her preschool (report card) and found that she has slight gross motor delays. if her sleep apnea is bad enough, it could be affecting her developement, because she is not getting good, quality sleep. I would ask your pulm about doing a sleep study with her. They are a real pain, but the only way you will know for sure if she has sleep apnea. Hope you feel better soon, I knwo how scary swallowing difficulties are, just not from personal experience=) Take care ! e, Chelsea's mom(nonspecific mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 I was wondering if anyone knows what can cause sudden swallowing problems Some medications can cause swallowing dysfunction. Phenobarb is one I know for sure. We knew my daughter had severe silent aspiration prior to starting it, but she was not ill at all. The phenobarb made her swallow go from bad to worse immediatly. After 3 mos, she crashed and needed a gtube. Besides that, I feel her dyspagia was a slow, gradual loss due to her mito. It was so subtle, no one was sure she even sure she had a problem until a swallow study was done. also a note does anyones child have large tonsils? my non affected daughter has super huge tonsils. Ent thinks that she probably has sleep apnea since she is snoring and we have heard some gasping pausing thing Chelsea was evaluated for a T & A after she was dx'd with sleep apnea via sleep study. She snored quire a bit and had many arousals with little REM sleep(also a phenobarb side effect). The ENT we saw then said her tonsils were slightly enlarged, but he did not feel they were her main problem (floppy soft palette), and said he would never do a T & A on her because of her condition. This was 4 years ago, and we never saw that ENT again. Last summer, she contracted mono and her tonsils swelled enormously and she had significant breathing issues. After, she recovered, she had a T & A and it was the best thing we could have done for her. She no longer snores, unless she is sick or had a seizure, and also with valium. Her recovery went much better than expected, although the 1st couple of days were pretty rough. They tested her at her preschool (report card) and found that she has slight gross motor delays. if her sleep apnea is bad enough, it could be affecting her developement, because she is not getting good, quality sleep. I would ask your pulm about doing a sleep study with her. They are a real pain, but the only way you will know for sure if she has sleep apnea. Hope you feel better soon, I knwo how scary swallowing difficulties are, just not from personal experience=) Take care ! e, Chelsea's mom(nonspecific mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 I was wondering if anyone knows what can cause sudden swallowing problems Some medications can cause swallowing dysfunction. Phenobarb is one I know for sure. We knew my daughter had severe silent aspiration prior to starting it, but she was not ill at all. The phenobarb made her swallow go from bad to worse immediatly. After 3 mos, she crashed and needed a gtube. Besides that, I feel her dyspagia was a slow, gradual loss due to her mito. It was so subtle, no one was sure she even sure she had a problem until a swallow study was done. also a note does anyones child have large tonsils? my non affected daughter has super huge tonsils. Ent thinks that she probably has sleep apnea since she is snoring and we have heard some gasping pausing thing Chelsea was evaluated for a T & A after she was dx'd with sleep apnea via sleep study. She snored quire a bit and had many arousals with little REM sleep(also a phenobarb side effect). The ENT we saw then said her tonsils were slightly enlarged, but he did not feel they were her main problem (floppy soft palette), and said he would never do a T & A on her because of her condition. This was 4 years ago, and we never saw that ENT again. Last summer, she contracted mono and her tonsils swelled enormously and she had significant breathing issues. After, she recovered, she had a T & A and it was the best thing we could have done for her. She no longer snores, unless she is sick or had a seizure, and also with valium. Her recovery went much better than expected, although the 1st couple of days were pretty rough. They tested her at her preschool (report card) and found that she has slight gross motor delays. if her sleep apnea is bad enough, it could be affecting her developement, because she is not getting good, quality sleep. I would ask your pulm about doing a sleep study with her. They are a real pain, but the only way you will know for sure if she has sleep apnea. Hope you feel better soon, I knwo how scary swallowing difficulties are, just not from personal experience=) Take care ! e, Chelsea's mom(nonspecific mito) Quote Link to comment Share on other sites More sharing options...
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