[mito] what do you about reflux?

[Guest guest]

Hi,

I"m trying to figure out what more we can do about reflux in Asher (almost 3, muscle weakness, hypotonia, loss of weight (at times), little appetite). I'm fairly certain his vomiting episodes (it doesn't seem like cyclical vomiting b/c he vomits only 1x and seems to feel okay) that occurred about 5 in the past 8 weeks are reflux. I thought I'd figured out that it was carbonated beverages (i.e. Sprite - we try to keep the calories up) and so I got rid of the bubbles. But, tonight, he threw up again. He takes Pepcid every evening for the reflux. He also takes Periactin for appetite stimulation and Milk of Magnesia for constipation.

Any ideas?

Anne R

mom of Asher who just had a muscle biopsy looking for mito, FOD, myopathies