Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 Happy Birthday ,Lucas and Alison. I hope all those who have been in a crash are feeling better. has had a rough month or so.First she had a sinus infection,treated that with antibiotics.Then she got a cold and had congestion in her lungs,thought it was pnemonia,thank goodness it wasn't,but she spent a day and night in the hospital.This was treated with breathing treatments,they make her very jumpy,but they work.Next her g-tube stopped up,after working on it for several hours we went in to have it replaced.It was stuck and the doc had a really hard time getting it out. Of course just lays there like nothing is happening.Another thank goodness!! The new one stopped up 5 days later,after I worked on it for a couple of hours I gave up and took her back for another one,but as luck would have it by the time we got to the hospital it was working fine. That was 3 trips in 10 days and really doesn't travel well. Then last Thursday the nurse flushed her port,she does this once a month and everytime it seems to take a few days to get over (this really doesn't make any sense because it doesn't seem to bother her at all while she's doing it) sleeps most of the time anyway but this week it has even been more so,she has not been eating,does not want to get out bed,actually just doesn't want to be bothered at all. She is also still coughing a bit. Reflux??? Taking Zantac. We have the percussion vest,which we use when will let us,so far this week that has been 71 mins.Supposed to be 40 mins daily.When she doesn't want to do it,she just fights until you take it off.Other times she doesn't mind it at all. ????? Any way I can't see where it is doing any good when she is using ALL her energy fighting. The good news is we have a new wheelchair ordered. It's the tilt-in- space so maybe she will feel more secure in it. It is also Kentucky "Wildcat" blue and that should make anybody feel better. Speaking of feeling more secure, I ordered a 6 lb "lap" weight. ,I just lay it across her lap when she's in her chair.It give her more of an idea of where she is in space and has made a tremendous difference in how well she sits up. I hope everyone has a wonderful week-end. , Mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 Sorry you have been having a bad time lately. It seems as though things come in spurts. When it rains, it pours. Hope things start to calm down for you. Asenath's new wheelchair (getting it in about two weeks) is the Invacare Tilt-In Spcae too and has a red frame, red cushions, and a black tray. It looks really cool and very comfortable. We are really looking forward to having it! Darla: mommy to Asenath, Zipporrah, and the gang Update from our house Happy Birthday ,Lucas and Alison. I hope all those who have been in a crash are feeling better. has had a rough month or so.First she had a sinus infection,treated that with antibiotics.Then she got a cold and had congestion in her lungs,thought it was pnemonia,thank goodness it wasn't,but she spent a day and night in the hospital.This was treated with breathing treatments,they make her very jumpy,but they work.Next her g-tube stopped up,after working on it for several hours we went in to have it replaced.It was stuck and the doc had a really hard time getting it out. Of course just lays there like nothing is happening.Another thank goodness!! The new one stopped up 5 days later,after I worked on it for a couple of hours I gave up and took her back for another one,but as luck would have it by the time we got to the hospital it was working fine. That was 3 trips in 10 days and really doesn't travel well. Then last Thursday the nurse flushed her port,she does this once a month and everytime it seems to take a few days to get over (this really doesn't make any sense because it doesn't seem to bother her at all while she's doing it) sleeps most of the time anyway but this week it has even been more so,she has not been eating,does not want to get out bed,actually just doesn't want to be bothered at all. She is also still coughing a bit. Reflux??? Taking Zantac. We have the percussion vest,which we use when will let us,so far this week that has been 71 mins.Supposed to be 40 mins daily.When she doesn't want to do it,she just fights until you take it off.Other times she doesn't mind it at all. ????? Any way I can't see where it is doing any good when she is using ALL her energy fighting. The good news is we have a new wheelchair ordered. It's the tilt-in- space so maybe she will feel more secure in it. It is also Kentucky "Wildcat" blue and that should make anybody feel better. Speaking of feeling more secure, I ordered a 6 lb "lap" weight. ,I just lay it across her lap when she's in her chair.It give her more of an idea of where she is in space and has made a tremendous difference in how well she sits up. I hope everyone has a wonderful week-end. , Mom to Please contact mito-owner with any problems or questions. Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 Sorry you have been having a bad time lately. It seems as though things come in spurts. When it rains, it pours. Hope things start to calm down for you. Asenath's new wheelchair (getting it in about two weeks) is the Invacare Tilt-In Spcae too and has a red frame, red cushions, and a black tray. It looks really cool and very comfortable. We are really looking forward to having it! Darla: mommy to Asenath, Zipporrah, and the gang Update from our house Happy Birthday ,Lucas and Alison. I hope all those who have been in a crash are feeling better. has had a rough month or so.First she had a sinus infection,treated that with antibiotics.Then she got a cold and had congestion in her lungs,thought it was pnemonia,thank goodness it wasn't,but she spent a day and night in the hospital.This was treated with breathing treatments,they make her very jumpy,but they work.Next her g-tube stopped up,after working on it for several hours we went in to have it replaced.It was stuck and the doc had a really hard time getting it out. Of course just lays there like nothing is happening.Another thank goodness!! The new one stopped up 5 days later,after I worked on it for a couple of hours I gave up and took her back for another one,but as luck would have it by the time we got to the hospital it was working fine. That was 3 trips in 10 days and really doesn't travel well. Then last Thursday the nurse flushed her port,she does this once a month and everytime it seems to take a few days to get over (this really doesn't make any sense because it doesn't seem to bother her at all while she's doing it) sleeps most of the time anyway but this week it has even been more so,she has not been eating,does not want to get out bed,actually just doesn't want to be bothered at all. She is also still coughing a bit. Reflux??? Taking Zantac. We have the percussion vest,which we use when will let us,so far this week that has been 71 mins.Supposed to be 40 mins daily.When she doesn't want to do it,she just fights until you take it off.Other times she doesn't mind it at all. ????? Any way I can't see where it is doing any good when she is using ALL her energy fighting. The good news is we have a new wheelchair ordered. It's the tilt-in- space so maybe she will feel more secure in it. It is also Kentucky "Wildcat" blue and that should make anybody feel better. Speaking of feeling more secure, I ordered a 6 lb "lap" weight. ,I just lay it across her lap when she's in her chair.It give her more of an idea of where she is in space and has made a tremendous difference in how well she sits up. I hope everyone has a wonderful week-end. , Mom to Please contact mito-owner with any problems or questions. Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 Sorry you have been having a bad time lately. It seems as though things come in spurts. When it rains, it pours. Hope things start to calm down for you. Asenath's new wheelchair (getting it in about two weeks) is the Invacare Tilt-In Spcae too and has a red frame, red cushions, and a black tray. It looks really cool and very comfortable. We are really looking forward to having it! Darla: mommy to Asenath, Zipporrah, and the gang Update from our house Happy Birthday ,Lucas and Alison. I hope all those who have been in a crash are feeling better. has had a rough month or so.First she had a sinus infection,treated that with antibiotics.Then she got a cold and had congestion in her lungs,thought it was pnemonia,thank goodness it wasn't,but she spent a day and night in the hospital.This was treated with breathing treatments,they make her very jumpy,but they work.Next her g-tube stopped up,after working on it for several hours we went in to have it replaced.It was stuck and the doc had a really hard time getting it out. Of course just lays there like nothing is happening.Another thank goodness!! The new one stopped up 5 days later,after I worked on it for a couple of hours I gave up and took her back for another one,but as luck would have it by the time we got to the hospital it was working fine. That was 3 trips in 10 days and really doesn't travel well. Then last Thursday the nurse flushed her port,she does this once a month and everytime it seems to take a few days to get over (this really doesn't make any sense because it doesn't seem to bother her at all while she's doing it) sleeps most of the time anyway but this week it has even been more so,she has not been eating,does not want to get out bed,actually just doesn't want to be bothered at all. She is also still coughing a bit. Reflux??? Taking Zantac. We have the percussion vest,which we use when will let us,so far this week that has been 71 mins.Supposed to be 40 mins daily.When she doesn't want to do it,she just fights until you take it off.Other times she doesn't mind it at all. ????? Any way I can't see where it is doing any good when she is using ALL her energy fighting. The good news is we have a new wheelchair ordered. It's the tilt-in- space so maybe she will feel more secure in it. It is also Kentucky "Wildcat" blue and that should make anybody feel better. Speaking of feeling more secure, I ordered a 6 lb "lap" weight. ,I just lay it across her lap when she's in her chair.It give her more of an idea of where she is in space and has made a tremendous difference in how well she sits up. I hope everyone has a wonderful week-end. , Mom to Please contact mito-owner with any problems or questions. Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
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