Re: CARRIE Diagnosis-Answers?-Better 2004

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:have you found a center willing to transplant with her diagnosis? Does she have any involvement other than her liver? We pursued multi organ tx for my son Sam a few years ago but every center we went to said that they would not do it given his diagnosis. In his case he is multi organ affected and does not tolerate the shortest of surgeries so I do believe it would have been the wrong choice for him. However, I know of another young woman with the mito dx who did have a liver tx - while her disease is slowly progressive - the transplant has given her at least 5 if not 6 years now that she would not have had and I expect her to continue to have a good life. Annewww.caringbridge.org/wi/zachsam Re: Diagnosis-Answers?-Better 2004I understand your frustration very well. My daughter Grace is also one of her own. I have been told by Cohen that we will probably never fully understand her problems exactly. He also told us that we cannot predict her outcome. He does not think her case is fatal, with treatment, but as far as liver transplants, diminishing muscle ability ect. we will only know when it happens. I wish I could know what to expect, but I am confident she is in good hands