Re: - Giving infants meds-?'s

February 7, 2004

Which bottle do you use? I was reading some of the other responses and I read that she gagged a lot. We had an awful time getting Grace to drink out of a bottle. Gagging was a huge issue. She was also breastfed, but was unable to tolerate my milk (even with dietary restrictions on my part) and ultimately had to be switched to Neocate. Trust me I made a huge protest, but I eventually realized I was making her sicker by nursing her. Here is a list of some of out success with the bottle.

Playtex, Vent Air........she used this first, this is all she could handle, about 3 months old

Gerber Next Generation (I think that's the name, they are really fat) also at about 3 months

Avent... this is what we use now

I think the Avent bottles are the best, though. They are made for breastfed babies, therefore are structured to what they are used to. The nipple is very large but short, much closer to mommy than the traditional nipple. A tip with the Avent, though. Get the fast feed nipples, Grace had a poor suck and it was impossible for her to get anything out of the slow feed nipples. Actually we ended up poking extra holes in all the nipples, this worked great.

February 7, 2004

Which bottle do you use? I was reading some of the other responses and I read that she gagged a lot. We had an awful time getting Grace to drink out of a bottle. Gagging was a huge issue. She was also breastfed, but was unable to tolerate my milk (even with dietary restrictions on my part) and ultimately had to be switched to Neocate. Trust me I made a huge protest, but I eventually realized I was making her sicker by nursing her. Here is a list of some of out success with the bottle.

Playtex, Vent Air........she used this first, this is all she could handle, about 3 months old

Gerber Next Generation (I think that's the name, they are really fat) also at about 3 months

Avent... this is what we use now

I think the Avent bottles are the best, though. They are made for breastfed babies, therefore are structured to what they are used to. The nipple is very large but short, much closer to mommy than the traditional nipple. A tip with the Avent, though. Get the fast feed nipples, Grace had a poor suck and it was impossible for her to get anything out of the slow feed nipples. Actually we ended up poking extra holes in all the nipples, this worked great.

February 7, 2004

Which bottle do you use? I was reading some of the other responses and I read that she gagged a lot. We had an awful time getting Grace to drink out of a bottle. Gagging was a huge issue. She was also breastfed, but was unable to tolerate my milk (even with dietary restrictions on my part) and ultimately had to be switched to Neocate. Trust me I made a huge protest, but I eventually realized I was making her sicker by nursing her. Here is a list of some of out success with the bottle.

Playtex, Vent Air........she used this first, this is all she could handle, about 3 months old

Gerber Next Generation (I think that's the name, they are really fat) also at about 3 months

Avent... this is what we use now

I think the Avent bottles are the best, though. They are made for breastfed babies, therefore are structured to what they are used to. The nipple is very large but short, much closer to mommy than the traditional nipple. A tip with the Avent, though. Get the fast feed nipples, Grace had a poor suck and it was impossible for her to get anything out of the slow feed nipples. Actually we ended up poking extra holes in all the nipples, this worked great.

February 7, 2004

We use the same COQ10 as you. We get it straight from the Mayo Pharmacy as they will ship it to us and even bill us now that we have been getting it from them for so long with a good paying record. Last night she took it better while lying on her back and squirting it in the back of her right cheek pocket so hopefully this will continue to work also. Thanks for the suggestion I may try the bottle again to see if she will take it. Darla Re: Giving infants meds-?'s When Gracie was little, and before the g tube, we added the medicine to her bottle. I am pretty sure you said you nurse, but if you pump a little and give it to her in a 2 or three ounce bottle it should work. Dr. Cohen actually suggested this, he said almost all meds are pretty safe to mix with feedings. They also sell a pacifier with a medicine syringe attached. As the baby sucks on the pacifier you can give her the meds through the pacifier. I have never tried this, but always thought it was a good idea. Which CoQ10 are you using? We get the one from Tischon, and it tastes pretty good. Please contact mito-owner with any problems or questions. Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

February 7, 2004

We use the same COQ10 as you. We get it straight from the Mayo Pharmacy as they will ship it to us and even bill us now that we have been getting it from them for so long with a good paying record. Last night she took it better while lying on her back and squirting it in the back of her right cheek pocket so hopefully this will continue to work also. Thanks for the suggestion I may try the bottle again to see if she will take it. Darla Re: Giving infants meds-?'s When Gracie was little, and before the g tube, we added the medicine to her bottle. I am pretty sure you said you nurse, but if you pump a little and give it to her in a 2 or three ounce bottle it should work. Dr. Cohen actually suggested this, he said almost all meds are pretty safe to mix with feedings. They also sell a pacifier with a medicine syringe attached. As the baby sucks on the pacifier you can give her the meds through the pacifier. I have never tried this, but always thought it was a good idea. Which CoQ10 are you using? We get the one from Tischon, and it tastes pretty good. Please contact mito-owner with any problems or questions. Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

February 7, 2004

We use the same COQ10 as you. We get it straight from the Mayo Pharmacy as they will ship it to us and even bill us now that we have been getting it from them for so long with a good paying record. Last night she took it better while lying on her back and squirting it in the back of her right cheek pocket so hopefully this will continue to work also. Thanks for the suggestion I may try the bottle again to see if she will take it. Darla Re: Giving infants meds-?'s When Gracie was little, and before the g tube, we added the medicine to her bottle. I am pretty sure you said you nurse, but if you pump a little and give it to her in a 2 or three ounce bottle it should work. Dr. Cohen actually suggested this, he said almost all meds are pretty safe to mix with feedings. They also sell a pacifier with a medicine syringe attached. As the baby sucks on the pacifier you can give her the meds through the pacifier. I have never tried this, but always thought it was a good idea. Which CoQ10 are you using? We get the one from Tischon, and it tastes pretty good. Please contact mito-owner with any problems or questions. Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

February 7, 2004

We mostly tried the 's Healthflow bottles. I really appreciate your suggestions to try the avent bottles. Maybe we will try those. Thanks. Darla: mommy to Asenath, Zipporrah, and the gang Re: Re: - Giving infants meds-?'s Which bottle do you use? I was reading some of the other responses and I read that she gagged a lot. We had an awful time getting Grace to drink out of a bottle. Gagging was a huge issue. She was also breastfed, but was unable to tolerate my milk (even with dietary restrictions on my part) and ultimately had to be switched to Neocate. Trust me I made a huge protest, but I eventually realized I was making her sicker by nursing her. Here is a list of some of out success with the bottle. Playtex, Vent Air........she used this first, this is all she could handle, about 3 months old Gerber Next Generation (I think that's the name, they are really fat) also at about 3 months Avent... this is what we use now I think the Avent bottles are the best, though. They are made for breastfed babies, therefore are structured to what they are used to. The nipple is very large but short, much closer to mommy than the traditional nipple. A tip with the Avent, though. Get the fast feed nipples, Grace had a poor suck and it was impossible for her to get anything out of the slow feed nipples. Actually we ended up poking extra holes in all the nipples, this worked great. Please contact mito-owner with any problems or questions. Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

February 7, 2004

We mostly tried the 's Healthflow bottles. I really appreciate your suggestions to try the avent bottles. Maybe we will try those. Thanks. Darla: mommy to Asenath, Zipporrah, and the gang Re: Re: - Giving infants meds-?'s Which bottle do you use? I was reading some of the other responses and I read that she gagged a lot. We had an awful time getting Grace to drink out of a bottle. Gagging was a huge issue. She was also breastfed, but was unable to tolerate my milk (even with dietary restrictions on my part) and ultimately had to be switched to Neocate. Trust me I made a huge protest, but I eventually realized I was making her sicker by nursing her. Here is a list of some of out success with the bottle. Playtex, Vent Air........she used this first, this is all she could handle, about 3 months old Gerber Next Generation (I think that's the name, they are really fat) also at about 3 months Avent... this is what we use now I think the Avent bottles are the best, though. They are made for breastfed babies, therefore are structured to what they are used to. The nipple is very large but short, much closer to mommy than the traditional nipple. A tip with the Avent, though. Get the fast feed nipples, Grace had a poor suck and it was impossible for her to get anything out of the slow feed nipples. Actually we ended up poking extra holes in all the nipples, this worked great. Please contact mito-owner with any problems or questions. Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

February 7, 2004

We mostly tried the 's Healthflow bottles. I really appreciate your suggestions to try the avent bottles. Maybe we will try those. Thanks. Darla: mommy to Asenath, Zipporrah, and the gang Re: Re: - Giving infants meds-?'s Which bottle do you use? I was reading some of the other responses and I read that she gagged a lot. We had an awful time getting Grace to drink out of a bottle. Gagging was a huge issue. She was also breastfed, but was unable to tolerate my milk (even with dietary restrictions on my part) and ultimately had to be switched to Neocate. Trust me I made a huge protest, but I eventually realized I was making her sicker by nursing her. Here is a list of some of out success with the bottle. Playtex, Vent Air........she used this first, this is all she could handle, about 3 months old Gerber Next Generation (I think that's the name, they are really fat) also at about 3 months Avent... this is what we use now I think the Avent bottles are the best, though. They are made for breastfed babies, therefore are structured to what they are used to. The nipple is very large but short, much closer to mommy than the traditional nipple. A tip with the Avent, though. Get the fast feed nipples, Grace had a poor suck and it was impossible for her to get anything out of the slow feed nipples. Actually we ended up poking extra holes in all the nipples, this worked great. Please contact mito-owner with any problems or questions. Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

February 7, 2004

Thanks for the idea, . I wondered about that but thought it might gag her more. Maybe I will try that tonight at bedtime. Our COQ10 is in liquid form from Mayo Pharmacy so at least we don't have to mess with pills as we have been for Asenath. I plan to ask them to make it liquid for Asenath next month as well now that I know they do it. I noticed your e-mail name is krebscycle. I knew Lily had lactic acid issues and have heard slightly about the kreb cycle through K., but would love to hear any more information you could give me. I have done research on what to look for but really feel uncomfortable with the lack of knowledge I have. Dr. Whiteman thinks Porrah's stroke episode had something to do with her elevated lactic acid. (At least that is what it sounded like to me.) If you get the chance and want to help me understand more about it, I would really appreciate it. It was nice to hear from you again. I hope all is well with you and your family. I always think of you when in Minnesota. Darla - Giving infants meds-?'s Darla,In your post you mentioned that you "squirt" the meds in her cheeck pocket. Do you think she would be able to tolerate small squirts in her throat? The taste of yucky medicine, is not as severe if you by pass the tongue. We used a small syringe (1ml?) and would squirt the med in the way back of Lily's throat. She was on enough carnitine that we used that as the thinner for most of the others. We'd cut open the gel cap of CoQ or whatever other yucky there was, into the syringe, put the plunger in with your finger covering the bottom of the syringe. Slowly push down, then suck up the good tasting carnitine. Then shake it up. We of course were constantly experimenting with better ways to deliver the "whole of it". Seems it was never good and all were glad when it was over. Until a few hours later when we would do it again. My those were trying times- 3 xs a day (40+ doses/day). I was every thankful that Lily was as happy as she was and we could easily re- direct her from her pitching her fit-with a bottle, a snuggle or a song.I hope you are able to find some relief- thinking of you Please contact mito-owner with any problems or questions.

February 7, 2004

We are squirting it into the unaffected cheek pocket. I learned that from therapists when Asenath was dealing with swallowing issues. I have thought of the habermann nipple but unsure where to get it. I like the idea of it not letting Porrah swallow so much air into her tummy. The biggest problem is my pumping breast milk. I need to get an electric pump because I can't relax enough to get a good enough amount with the manual. The sad thing is I think Mayo gave me one at the hospital last month and I forgot it!! I have thought about going to them and asking for it when I am out there next week. The COQ10 we are using isn't very thick thankfully and the Prilosec isn't either like I had thought it was, so all the meds are relatively thin at least. I will keep trying. Thanks for your help. Darla Re: Giving infants meds-?'s Darla, I know that we had to try this with . They actually make bottles that have syringes attached. When they are drinking the formula or whatever, you just press the syringe a little at a time and they suck the med down with the formula I cannot remember the name of the company who makes it though. Another idea we used was to put the nipple of a bottle into their mouth and let them suck on it and put the med into it while they are sucking By the time they realize it is not a bottle, the meds should be down. Other then these two ideas I cannot be more helpful except keep doing what you are doing Good luck. (it's sounds horrible, but thank God for G-tubes!!!) I know meds with my other two are so much more difficult then just sticking them down the tube. & ! nbsp; ; Dawn Myers

February 7, 2004

We are squirting it into the unaffected cheek pocket. I learned that from therapists when Asenath was dealing with swallowing issues. I have thought of the habermann nipple but unsure where to get it. I like the idea of it not letting Porrah swallow so much air into her tummy. The biggest problem is my pumping breast milk. I need to get an electric pump because I can't relax enough to get a good enough amount with the manual. The sad thing is I think Mayo gave me one at the hospital last month and I forgot it!! I have thought about going to them and asking for it when I am out there next week. The COQ10 we are using isn't very thick thankfully and the Prilosec isn't either like I had thought it was, so all the meds are relatively thin at least. I will keep trying. Thanks for your help. Darla Re: Giving infants meds-?'s Darla, I know that we had to try this with . They actually make bottles that have syringes attached. When they are drinking the formula or whatever, you just press the syringe a little at a time and they suck the med down with the formula I cannot remember the name of the company who makes it though. Another idea we used was to put the nipple of a bottle into their mouth and let them suck on it and put the med into it while they are sucking By the time they realize it is not a bottle, the meds should be down. Other then these two ideas I cannot be more helpful except keep doing what you are doing Good luck. (it's sounds horrible, but thank God for G-tubes!!!) I know meds with my other two are so much more difficult then just sticking them down the tube. & ! nbsp; ; Dawn Myers

February 7, 2004

We are squirting it into the unaffected cheek pocket. I learned that from therapists when Asenath was dealing with swallowing issues. I have thought of the habermann nipple but unsure where to get it. I like the idea of it not letting Porrah swallow so much air into her tummy. The biggest problem is my pumping breast milk. I need to get an electric pump because I can't relax enough to get a good enough amount with the manual. The sad thing is I think Mayo gave me one at the hospital last month and I forgot it!! I have thought about going to them and asking for it when I am out there next week. The COQ10 we are using isn't very thick thankfully and the Prilosec isn't either like I had thought it was, so all the meds are relatively thin at least. I will keep trying. Thanks for your help. Darla Re: Giving infants meds-?'s Darla, I know that we had to try this with . They actually make bottles that have syringes attached. When they are drinking the formula or whatever, you just press the syringe a little at a time and they suck the med down with the formula I cannot remember the name of the company who makes it though. Another idea we used was to put the nipple of a bottle into their mouth and let them suck on it and put the med into it while they are sucking By the time they realize it is not a bottle, the meds should be down. Other then these two ideas I cannot be more helpful except keep doing what you are doing Good luck. (it's sounds horrible, but thank God for G-tubes!!!) I know meds with my other two are so much more difficult then just sticking them down the tube. & ! nbsp; ; Dawn Myers

February 7, 2004

Hi Darla:

If you have a medical supply place you should be able to get the Habermann

there. And with a prescription from your doctor insurance should

cover it. They are expensive. I believe $15 to $20 just for

the nipple. I had an electric breast pump. Again, insurance

covered it because of feeding issues with Leah and her cleft palate.

Using a manual one didn't really work for me either. Too much in

a hurry. Our CoQ10 wasn't that thick either when we squeezed it out

of the capsule, but we truly found that microwaving everything for 5 seconds

made it mix so much easier. But I know you will keep trying.

Some times also a place that sells specialize furniture for children (we

have the lullaby shop here in Appleton) some times sells Habermann.

Otherwise I'll find my info with the toll free number and you can call

and order it directly.

Nerenhausen

mom to Leah

Darla Klein wrote:

We are squirting it into the unaffected

cheek pocket. I learned that from therapists when Asenath was dealing

with swallowing issues. I have thought of the habermann nipple but

unsure where to get it. I like the idea of it not letting Porrah

swallow so much air into her tummy. The biggest problem is my pumping

breast milk. I need to get an electric pump because I can't relax

enough to get a good enough amount with the manual. The sad thing

is I think Mayo gave me one at the hospital last month and I forgot it!!

I have thought about going to them and asking for it when I am out there

next week. The COQ10 we are using isn't very thick thankfully and

the Prilosec isn't either like I had thought it was, so all the meds are

relatively thin at least. I will keep trying. Thanks for your

help. Darla

Re: Giving infants

meds-?'s

Darla,

I know that we had to try this with . They actually

make

bottles that have syringes attached. When they are drinking the

formula or whatever, you just press the syringe a little at a time

and they suck the med down with the formula I cannot remember the

name of the company who makes it though. Another idea we used was to

put the nipple of a bottle into their mouth and le! t them suck on

it

and put the med into it while they are sucking By the time they

realize it is not a bottle, the meds should be down. Other then

these two ideas I cannot be more helpful except keep doing what you

are doing Good luck. (it's sounds horrible, but thank God for

G-tubes!!!) I know meds with my other two are so much more difficult

then just sticking them down the tube.

& ! nbsp;

;

Dawn Myers

February 7, 2004