Guest guest Posted February 7, 2004 Report Share Posted February 7, 2004 Thanks for the idea, . I wondered about that but thought it might gag her more. Maybe I will try that tonight at bedtime. Our COQ10 is in liquid form from Mayo Pharmacy so at least we don't have to mess with pills as we have been for Asenath. I plan to ask them to make it liquid for Asenath next month as well now that I know they do it. I noticed your e-mail name is krebscycle. I knew Lily had lactic acid issues and have heard slightly about the kreb cycle through K., but would love to hear any more information you could give me. I have done research on what to look for but really feel uncomfortable with the lack of knowledge I have. Dr. Whiteman thinks Porrah's stroke episode had something to do with her elevated lactic acid. (At least that is what it sounded like to me.) If you get the chance and want to help me understand more about it, I would really appreciate it. It was nice to hear from you again. I hope all is well with you and your family. I always think of you when in Minnesota. Darla - Giving infants meds-?'s Darla,In your post you mentioned that you "squirt" the meds in her cheeck pocket. Do you think she would be able to tolerate small squirts in her throat? The taste of yucky medicine, is not as severe if you by pass the tongue. We used a small syringe (1ml?) and would squirt the med in the way back of Lily's throat. She was on enough carnitine that we used that as the thinner for most of the others. We'd cut open the gel cap of CoQ or whatever other yucky there was, into the syringe, put the plunger in with your finger covering the bottom of the syringe. Slowly push down, then suck up the good tasting carnitine. Then shake it up. We of course were constantly experimenting with better ways to deliver the "whole of it". Seems it was never good and all were glad when it was over. Until a few hours later when we would do it again. My those were trying times- 3 xs a day (40+ doses/day). I was every thankful that Lily was as happy as she was and we could easily re- direct her from her pitching her fit-with a bottle, a snuggle or a song.I hope you are able to find some relief- thinking of you Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
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