RE: Good Doctor in MN? I am desperate!

May 9, 2006

Kim, I'm afraid I don't know anybody in Minnesota. Hopefully someone else will have some suggestions. One thing to consider is an internist/internal medicine specialist. They do primary care. I switched from a family medicine clinic because the only provider there that I really trusted was the nurse-practitioner, and I couldn't always get an appt with her. The first internal med guy I tried was a dud. He was knowledgeable enough, but no personality, no sense of humor, his office staff & nurses were on the rude side. I bombarded my neuro with guilt trips and pressure until he personally called the doctor that I really wanted & convinced him to take me, even though he wasn't taking any new patients. So far I've been happy with him & his staff. Good luck!

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Good Doctor in MN? I am desperate!Date: Wed, 10 May 2006 00:50:29 -0000Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor who seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

May 10, 2006

Hi Kim, Unfortunately, I am from New England so I don't know of any doctors in your area, but I can sympathize with doctors that can't and won't help you. I have been through about twelve doctors in my time and its been a tough journey. You just have to keep plodding along until you find the right one to help you. I finally found a PCP who is very good and understanding and has referred me to some good specialists who have helped me as well. I wish you good luck and hope you find the same in the future. Hang in there, Hugs, Debbiekimpellett wrote: Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being

just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor who seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where

ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim

May 10, 2006

Hi Kim, Unfortunately, I am from New England so I don't know of any doctors in your area, but I can sympathize with doctors that can't and won't help you. I have been through about twelve doctors in my time and its been a tough journey. You just have to keep plodding along until you find the right one to help you. I finally found a PCP who is very good and understanding and has referred me to some good specialists who have helped me as well. I wish you good luck and hope you find the same in the future. Hang in there, Hugs, Debbiekimpellett wrote: Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being

just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor who seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where

ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim

May 10, 2006

Connie, I love your expression "been there, done that, bought a t-shirt." I hope I can remember it when the occasion arises!

Ramblin' Rose

Moderator Get MSN Messenger with FREE Video Conversation - the next best thing to being there!

May 11, 2006

Hi Kim, Another piece of advice, if you aren't doing this already, for each of your appointments ask for a copy of each of the records of notes, lab tests , etc. from each doctor . That way you can keep your on file on yourself from each doctor especially if they give you conflicting diagnosis'. If they don't have them right then and there, ask for them to send you copies as soon as they can. (You may have to call and remind them after a week or so.) I found this helpful because I couldn't remember what each doctor said and the results of each test on my own. Too much information for my brain!!!!! DebbieKim Pellett wrote: Hi Debbie, Thank you for your email. I have an appointment on

Tuesday with a new doctor at a new clinic. Believe it or not, I picked by name. I liked the name, it was outside the clinic that probably has notes to the effect of "she's crazy" in their files, so I picked it. I'm keeping my fingers crossed!! Thanks again, Kim Debbie wrote: Hi Kim, Unfortunately, I am from New England so I don't know of any doctors in your area, but I can sympathize with doctors that can't and won't help you. I have been through about twelve doctors in my time and its been a tough journey. You just have to keep plodding along until you find the right one to help you. I finally found a PCP who is very good and understanding and has referred me to some good

specialists who have helped me as well. I wish you good luck and hope you find the same in the future. Hang in there, Hugs, Debbiekimpellett wrote: Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor who seemed to be interested in helping me, and after having to

fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim

May 11, 2006

Hi Kim, Another piece of advice, if you aren't doing this already, for each of your appointments ask for a copy of each of the records of notes, lab tests , etc. from each doctor . That way you can keep your on file on yourself from each doctor especially if they give you conflicting diagnosis'. If they don't have them right then and there, ask for them to send you copies as soon as they can. (You may have to call and remind them after a week or so.) I found this helpful because I couldn't remember what each doctor said and the results of each test on my own. Too much information for my brain!!!!! DebbieKim Pellett wrote: Hi Debbie, Thank you for your email. I have an appointment on

Tuesday with a new doctor at a new clinic. Believe it or not, I picked by name. I liked the name, it was outside the clinic that probably has notes to the effect of "she's crazy" in their files, so I picked it. I'm keeping my fingers crossed!! Thanks again, Kim Debbie wrote: Hi Kim, Unfortunately, I am from New England so I don't know of any doctors in your area, but I can sympathize with doctors that can't and won't help you. I have been through about twelve doctors in my time and its been a tough journey. You just have to keep plodding along until you find the right one to help you. I finally found a PCP who is very good and understanding and has referred me to some good

specialists who have helped me as well. I wish you good luck and hope you find the same in the future. Hang in there, Hugs, Debbiekimpellett wrote: Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor who seemed to be interested in helping me, and after having to

fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim

May 11, 2006

Grief reading this made me mad. As bad as I hate to say this, those people better remember.....they aren't dead yet, and I believe how you treat people will come back around and bite you in the back. No one and I mean no one should ever put up with this arrogant, insensitive, treatment. EEEEhhh, don't get me started. I so sorry that you were treated that way Rose///Connie (Kim, don't you dare put up with it//Connie)Rose wrote: Kim, I can deal with some rudeness, but these people were snotty to me about stuff that was part of my illness! They threatened to drop me after I was late to 3 appts. I tried to explain how difficult it is for me to remember the appt to start with, get

ready on time, get a ride on time. During this time I was not driving & had to depend on other transportation. When I go to an appt, I have my tote bag with my little fan (very necessary), my water bottle, my camp stool to elevate my feet, usually a pillow for my back, and something to read. So when it's my turn it takes a little while to gather everything up. The main nurse would stand there sighing, never offer to help. Most of my other docs, dentist, etc. call me the day before, even the morning of the appt. And they are very nice about it. The other thing this nurse did was act very annoyed that I didn't hear my name called. She knew I was hard of hearing! Instead of coming over to me, she just stood at the door, regally, waiting until I would look up in confusion & ask if she had called my name. Now I know anybody can have an off day, but this was over 2 years. And the doctor seemed to be

annoyed about everything I reported. Lots of big sighs. I'm glad I found another PCP. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: RE: Good Doctor in MN? I am desperate!Date: Tue, 9 May 2006 22:40:30 -0700 (PDT) Thanks Rose. I appreciate you taking the time to

email me. I am starting to feel this is like a match.com kind of thing... only with doctors and patients. They have to have the knowledge, but personality and family (being the nurses) are also very important factors. How absurd that we should pay so much money to find a doctor to take on our case though. I'll keep trying. Someone, somewhere must have at least enough curiosity to take me on... :)Rose wrote: Kim, I'm afraid I don't know anybody in Minnesota. Hopefully someone else will have some suggestions. One thing to consider is an internist/internal medicine specialist. They do primary care. I switched from a family medicine clinic because the only provider there that I really trusted was the

nurse-practitioner, and I couldn't always get an appt with her. The first internal med guy I tried was a dud. He was knowledgeable enough, but no personality, no sense of humor, his office staff & nurses were on the rude side. I bombarded my neuro with guilt trips and pressure until he personally called the doctor that I really wanted & convinced him to take me, even though he wasn't taking any new patients. So far I've been happy with him & his staff. Good luck! Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Good Doctor in MN? I am desperate!Date: Wed, 10 May 2006 00:50:29 -0000Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor who seemed to be

interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

May 11, 2006

CHF is an annoyance called heart failure....no biggy///I hope the appointment goes great. Take care, and hopefully I'll be reading a glowing email about how great your new doctor is. Take care,ConnieKim Pellett wrote: Hi Connie, Thanks for your email. I have Medica Choice insurance. That is a very good suggestion - I will contact my insurance and see what they suggest. What is CHF? I do have an appointment with a new doctor at a new clinic on Tuesday. I am excited about that because they will not have any notes from my previous doctors indicating that this is all in my mind. Thanks for the suggestion and prayer. Kim PS.... "Been there, done that, bought a

T-shirt"... love it. Connie Griffis wrote: Kim, I don't know what insurance you have, I have AvMed; but sometimes they can help with the doctor thing. Believe it or not I have a CHF case manager and a complex case manager. They are there if I have trouble with doctor's, etc. See if maybe they can help find a doctor who can help. The only other thing I can suggest is make up a short computer print out of your info, diagnoses, current meds, etc. and go down the list of providers offered by your insurance company and see if any of them first of all know how to spell sarcoidosis, knows what it means, and are will to help. I wish you all the best - been there, done that, bought a t-shirt. I'm so

sorry, but you'll find one, I'll be praying till you tell me you've found one. Conniekimpellett wrote: Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor who seemed to be interested in helping me, and after having to fill out FMLA info and

doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim

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May 11, 2006

How much trouble did they give you when you asked for the notes Debbie? I'm not being sarcastic, I'm sincerely asking///ConnieDebbie wrote: Hi Kim, Another piece of advice, if you aren't doing this already, for each of your appointments ask for a copy of each of the records of notes, lab tests , etc. from each doctor . That way you can keep your on file on yourself from each doctor especially if they give you conflicting diagnosis'. If they don't have them right then and there, ask for them to send you copies as soon as they can. (You may have to call and remind them after a week or so.) I found this helpful because I couldn't remember what each doctor said and the results of each test on my own. Too much information for my

brain!!!!! DebbieKim Pellett wrote: Hi Debbie, Thank you for your email. I have an appointment on Tuesday with a new doctor at a new clinic. Believe it or not, I picked by name. I liked the name, it was outside the clinic that probably has notes to the effect of "she's crazy" in their files, so I picked it. I'm keeping my fingers crossed!! Thanks again, Kim Debbie wrote: Hi Kim, Unfortunately, I am from New England so I don't know of any doctors in your area, but I can sympathize with doctors that

can't and won't help you. I have been through about twelve doctors in my time and its been a tough journey. You just have to keep plodding along until you find the right one to help you. I finally found a PCP who is very good and understanding and has referred me to some good specialists who have helped me as well. I wish you good luck and hope you find the same in the future. Hang in there, Hugs, Debbiekimpellett wrote: Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for

information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor who seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in

MN. Kim

May 11, 2006

How much trouble did they give you when you asked for the notes Debbie? I'm not being sarcastic, I'm sincerely asking///ConnieDebbie wrote: Hi Kim, Another piece of advice, if you aren't doing this already, for each of your appointments ask for a copy of each of the records of notes, lab tests , etc. from each doctor . That way you can keep your on file on yourself from each doctor especially if they give you conflicting diagnosis'. If they don't have them right then and there, ask for them to send you copies as soon as they can. (You may have to call and remind them after a week or so.) I found this helpful because I couldn't remember what each doctor said and the results of each test on my own. Too much information for my

brain!!!!! DebbieKim Pellett wrote: Hi Debbie, Thank you for your email. I have an appointment on Tuesday with a new doctor at a new clinic. Believe it or not, I picked by name. I liked the name, it was outside the clinic that probably has notes to the effect of "she's crazy" in their files, so I picked it. I'm keeping my fingers crossed!! Thanks again, Kim Debbie wrote: Hi Kim, Unfortunately, I am from New England so I don't know of any doctors in your area, but I can sympathize with doctors that

can't and won't help you. I have been through about twelve doctors in my time and its been a tough journey. You just have to keep plodding along until you find the right one to help you. I finally found a PCP who is very good and understanding and has referred me to some good specialists who have helped me as well. I wish you good luck and hope you find the same in the future. Hang in there, Hugs, Debbiekimpellett wrote: Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for

information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor who seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in

MN. Kim

May 11, 2006

Too bad he didn't have a sense of humor, especially since you were so long. I have laughed and laughed. I have a very visual mind, and I could just see a young girl standing at the door call out what she thought was this man's name. Thanks, I needed that..........ConnieMarla Bramer wrote: Wow Rose, I’m glad you found a new PCP too. I worked in Doctors offices for years, and would never even think to be that rude! I did make one guy mad once when I was just starting out in the Doctors office I was 19, and this pt’s name was

“Jesus” OK now I know how to say Jesus in the Hispanic culture way, like hasus, but not me I stood there and rather loud said “JESUS”, he was upset with me, called me dumb etc… Wow that was a long time ago, but good early lesson to learn, I thought in my mind that is strange that someone would actually name their kid that?? Life’s little lessons. Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Connie GriffisSent: Thursday, May 11, 2006 10:02 AMTo: Neurosarcoidosis Subject: RE: Good Doctor in MN? I am desperate! Grief reading this made me mad. As bad as I hate to say this, those people better remember.....they aren't dead yet, and I believe how you treat people will come back around and bite you in the back. No one and I mean no one should ever put up with this arrogant, insensitive, treatment. EEEEhhh, don't get me started. I so sorry that you were treated that way

Rose///Connie (Kim, don't you dare put up with it//Connie)Rose wrote: Kim, I can deal with some rudeness, but these people were snotty to me about stuff that was part of my illness! They threatened to drop me after I was late to 3 appts. I tried to explain how difficult it is for me to remember the appt to start with, get ready on time, get a ride on time. During this time I was not driving & had to depend on other transportation. When I go to an appt, I

have my tote bag with my little fan (very necessary), my water bottle, my camp stool to elevate my feet, usually a pillow for my back, and something to read. So when it's my turn it takes a little while to gather everything up. The main nurse would stand there sighing, never offer to help. Most of my other docs, dentist, etc. call me the day before, even the morning of the appt. And they are very nice about it. The other thing this nurse did was act very annoyed that I didn't hear my name called. She knew I was hard of hearing! Instead of coming over to me, she just stood at the door, regally, waiting until I would look up in confusion & ask if she had called my name. Now I know anybody can have an off day, but this was over 2 years. And the doctor seemed to be annoyed about everything I reported. Lots of big sighs. I'm glad I found another PCP. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: RE: Good Doctor in MN? I am desperate!Date: Tue, 9 May 2006 22:40:30 -0700 (PDT) Thanks Rose. I appreciate you taking the time to email me. I am starting to feel this is like a match.com kind of thing... only with doctors and patients. They have to have the knowledge, but personality and family (being the nurses) are also very important factors. How

absurd that we should pay so much money to find a doctor to take on our case though. I'll keep trying. Someone, somewhere must have at least enough curiosity to take me on... :)Rose wrote: Kim, I'm afraid I don't know anybody in Minnesota. Hopefully someone else will have some

suggestions. One thing to consider is an internist/internal medicine specialist. They do primary care. I switched from a family medicine clinic because the only provider there that I really trusted was the nurse-practitioner, and I couldn't always get an appt with her. The first internal med guy I tried was a dud. He was knowledgeable enough, but no personality, no sense of humor, his office staff & nurses were on the rude side. I bombarded my neuro with guilt trips and pressure until he personally called the doctor that I really wanted & convinced him to take me, even though he wasn't taking any new patients. So far I've been happy with him & his staff. Good luck! Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Good Doctor in MN? I am desperate!Date: Wed, 10 May 2006 00:50:29 -0000Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments.

However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor who seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank

you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

May 12, 2006

Hi Connie, They didn't give me any trouble at all. It is your right to have copies of everything. After you request them, it may take awhile to get them. (The dr has to transcribe and everything), but they send them along usually. (Sometimes you may have to call and remind, of course with drs offices!) Occasionally depending on the dr. they may charge a small fee for if there is a large amount of copies that you are looking for. I only ran across that once though. So good luck if you plan on doing that. DebbieConnie Griffis wrote: How much trouble did they give you when you asked for the notes Debbie? I'm not being sarcastic, I'm sincerely asking///ConnieDebbie wrote: Hi Kim, Another piece of advice, if you aren't doing this already, for each of your appointments ask for a copy of each of the records of notes, lab tests , etc. from each doctor . That way you can keep your on file on yourself from each doctor especially if they give you conflicting diagnosis'. If they don't have them right then and there, ask for them to send you copies as soon as they can. (You may have to call and remind them after a week or so.) I found this helpful because I couldn't remember what each doctor said and the results of each test on my own. Too much information for my brain!!!!! DebbieKim Pellett wrote: Hi Debbie, Thank you for your email. I have an appointment on Tuesday with a new doctor at a new clinic. Believe it or not, I picked by name. I liked the name, it was outside the clinic that probably has notes to the effect of "she's crazy" in their files, so I picked it. I'm keeping my fingers crossed!! Thanks again, Kim Debbie wrote: Hi Kim, Unfortunately, I am from New England so I don't know of any doctors in your area, but I can sympathize with doctors that can't and won't help you. I have been through about twelve doctors in my time and its been a tough journey. You just have to keep plodding along until you find the right

one to help you. I finally found a PCP who is very good and understanding and has referred me to some good specialists who have helped me as well. I wish you good luck and hope you find the same in the future. Hang in there, Hugs, Debbiekimpellett wrote: Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even

have a GP. Finally, I found a Pulmonary doctor who seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim

May 12, 2006

Hi Connie, They didn't give me any trouble at all. It is your right to have copies of everything. After you request them, it may take awhile to get them. (The dr has to transcribe and everything), but they send them along usually. (Sometimes you may have to call and remind, of course with drs offices!) Occasionally depending on the dr. they may charge a small fee for if there is a large amount of copies that you are looking for. I only ran across that once though. So good luck if you plan on doing that. DebbieConnie Griffis wrote: How much trouble did they give you when you asked for the notes Debbie? I'm not being sarcastic, I'm sincerely asking///ConnieDebbie wrote: Hi Kim, Another piece of advice, if you aren't doing this already, for each of your appointments ask for a copy of each of the records of notes, lab tests , etc. from each doctor . That way you can keep your on file on yourself from each doctor especially if they give you conflicting diagnosis'. If they don't have them right then and there, ask for them to send you copies as soon as they can. (You may have to call and remind them after a week or so.) I found this helpful because I couldn't remember what each doctor said and the results of each test on my own. Too much information for my brain!!!!! DebbieKim Pellett wrote: Hi Debbie, Thank you for your email. I have an appointment on Tuesday with a new doctor at a new clinic. Believe it or not, I picked by name. I liked the name, it was outside the clinic that probably has notes to the effect of "she's crazy" in their files, so I picked it. I'm keeping my fingers crossed!! Thanks again, Kim Debbie wrote: Hi Kim, Unfortunately, I am from New England so I don't know of any doctors in your area, but I can sympathize with doctors that can't and won't help you. I have been through about twelve doctors in my time and its been a tough journey. You just have to keep plodding along until you find the right

one to help you. I finally found a PCP who is very good and understanding and has referred me to some good specialists who have helped me as well. I wish you good luck and hope you find the same in the future. Hang in there, Hugs, Debbiekimpellett wrote: Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even

have a GP. Finally, I found a Pulmonary doctor who seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim

May 13, 2006

Mayo Clinic is in MN Mommer and Debbie have gone thereRose wrote: Kim, I'm afraid I don't know anybody in Minnesota. Hopefully someone else will have some suggestions. One thing to consider is an internist/internal medicine specialist. They do primary care. I switched from a family medicine clinic because the only provider there that I really trusted was the nurse-practitioner, and I couldn't always get an appt with her. The first internal med guy I tried was a dud. He was knowledgeable enough, but no personality, no sense of humor, his office staff & nurses were on the rude side. I bombarded my neuro with guilt trips and pressure until he personally called the doctor that I really

wanted & convinced him to take me, even though he wasn't taking any new patients. So far I've been happy with him & his staff. Good luck! Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Good Doctor in MN? I am desperate!Date: Wed, 10 May 2006 00:50:29

-0000Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor who seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO

frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

May 14, 2006

Hi , Thank you for your suggestion. I am in the process of trying to get a referral to May so that my insurance covers it. Thanks again! Kim Solberg wrote: Mayo Clinic is in MN Mommer and Debbie have gone thereRose wrote: Kim, I'm afraid I don't know anybody in Minnesota. Hopefully someone else will have some suggestions. One thing to consider is an internist/internal medicine specialist. They do primary care. I switched from a family medicine clinic because the only provider there that I really

trusted was the nurse-practitioner, and I couldn't always get an appt with her. The first internal med guy I tried was a dud. He was knowledgeable enough, but no personality, no sense of humor, his office staff & nurses were on the rude side. I bombarded my neuro with guilt trips and pressure until he personally called the doctor that I really wanted & convinced him to take me, even though he wasn't taking any new patients. So far I've been happy with him & his staff. Good luck! Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Good Doctor in MN? I am desperate!Date: Wed, 10 May 2006 00:50:29 -0000Hi everyone, I hope this email finds everyone in good health. As some of you know, I was only recently diagnosed with Sarc, neurosarc diagnosis pending. Being just recently diagnosed, I have been very dependent on my doctors for information and treatments. However, I now realize, I cannot depend on the doctors for information, as I have found more information from this group than any doctor I have seen. I have been "abandoned" by every doctor I have seen thus far. I don't even have a GP. Finally, I found a Pulmonary doctor who

seemed to be interested in helping me, and after having to fill out FMLA info and doctors notes for my absences from work, her nurse called today and suggested I seek the care of a GP because this was not the "job" of pulmonary specialists. Well... that's fine, except, 2 of 2 GPs have turned me away too. I am SOOO frustrated. I am sure many of you know this feeling. I thought I was lucky to live only an hour away from the Mayo clinic, but go figure, my insurance won't cover it. If anyone knows of a good GP in MN, I will drive where ever I need to in MN to find a good one. Thank you for taking the time to read my "vent" session here, and in advance for any doctors you may know about in MN. Kim ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

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