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Re: crash and burn/ advice requested

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Dawn,

You hang in there girl!!!!!! You have one of the hardest paths to walk down and you are doing! You hold your head up high and you smile girl with pride for all that you are doing, and for those beautiful children/God gives special kids only to special moms. I firmly believe this. It is not just anyone who can be a Mom of special kids. You are one of the special people. I am sending you a huge hug! Let your Mom continue to help you as much as she can, and try to take a rest when you can. And remember you are not a failure, you are fantastic, full of love, and loved by children who need YOU!

big hugs to you,

O

When the door of happiness closes, another opens, but often times we spend so much time looking at the closed door, we don't see the open door. Look for the open doors!

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Dawn,

You hang in there girl!!!!!! You have one of the hardest paths to walk down and you are doing! You hold your head up high and you smile girl with pride for all that you are doing, and for those beautiful children/God gives special kids only to special moms. I firmly believe this. It is not just anyone who can be a Mom of special kids. You are one of the special people. I am sending you a huge hug! Let your Mom continue to help you as much as she can, and try to take a rest when you can. And remember you are not a failure, you are fantastic, full of love, and loved by children who need YOU!

big hugs to you,

O

When the door of happiness closes, another opens, but often times we spend so much time looking at the closed door, we don't see the open door. Look for the open doors!

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Dawn,

You hang in there girl!!!!!! You have one of the hardest paths to walk down and you are doing! You hold your head up high and you smile girl with pride for all that you are doing, and for those beautiful children/God gives special kids only to special moms. I firmly believe this. It is not just anyone who can be a Mom of special kids. You are one of the special people. I am sending you a huge hug! Let your Mom continue to help you as much as she can, and try to take a rest when you can. And remember you are not a failure, you are fantastic, full of love, and loved by children who need YOU!

big hugs to you,

O

When the door of happiness closes, another opens, but often times we spend so much time looking at the closed door, we don't see the open door. Look for the open doors!

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((Dawn))

You know I'm here for you and vent all you need to.

Anyone would be stressed, strained, and physically and emotionally ill with all that you have endured in the last year.

I'm praying for you and your children and wishing you a happy and healthy weekend.

You know where I'll be next week and the week after that as far I know right now.

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((Dawn))

You know I'm here for you and vent all you need to.

Anyone would be stressed, strained, and physically and emotionally ill with all that you have endured in the last year.

I'm praying for you and your children and wishing you a happy and healthy weekend.

You know where I'll be next week and the week after that as far I know right now.

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Hi Dawn,

I'm sorry that you are having such a difficult time. I can't

imagine the emotional rollercoaster that you must be going through.

I'm sorry that I don't have any answers or advice other than to lean

on God, and He'll get you through this. I wish I lived closer so I

could help in some way!! Please feel free to email me if you need

anything! You're in my thoughts and prayers...

Take care of yourself,

Tina

>

> As most of you know This has been a long yr. for me. I have

-

> 4 (bone marrow failure, mito, dysautonomia etc) and Molly-2.7

(food

> senstivities to wheat, peanut, milk and egg, 2 yr. attitude going

on

> 16) and Drew -13 (mild dysautonomic sx). I, myself have

dysautonomia

> (POTS, syncope, neuorpathy, immuno def,migraines, on and on). On

top

> of this I have been going through the divorce from ---- for 14

> months.

> I feel as though I have reached the end of my rope. I feel like

I

> have just crashed and burned. I have lost all energy and like I am

> in a tunnel. I am exhausted but cannot sleep at night. I am a

single

> mom of these three wonderful kids. My mom does help but she is 64

> and these are not her kids. Their dad just doesn't care for them

> right and has numerous times put 's health at risk. He is

not

> allowed to take her out of the house, so he visits with her here

at

> my home 2 x wk (he was physically abusive to me during our marrige

> so this is not fun for me to have him here)

> I know when I complain I feel horrible. I know there are people

> out there with more problems then mine. I don't like to complain,

I

> just don't know what to do. I just want to cry but I don't like to

> feel sorry for myself. It gets you no where. I do not get a break

> and as most of those with young children can relate to, I cannot

> even go to the bathroom by myself. The phone rings off the hook

> (therapists, durable medi. equip, doctors, lawyers etc).

> I guess as I type this, I know there is no answer to my problem.

I

> love my children with every ounce of my being, I am just tired. I

> just needed to vent. Thanks for being there for me to do this and

> not judging me. I don't know what I would do without you all.

>

> Thanks for letting me ramble! Dawn

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Hi Dawn,

I'm sorry that you are having such a difficult time. I can't

imagine the emotional rollercoaster that you must be going through.

I'm sorry that I don't have any answers or advice other than to lean

on God, and He'll get you through this. I wish I lived closer so I

could help in some way!! Please feel free to email me if you need

anything! You're in my thoughts and prayers...

Take care of yourself,

Tina

>

> As most of you know This has been a long yr. for me. I have

-

> 4 (bone marrow failure, mito, dysautonomia etc) and Molly-2.7

(food

> senstivities to wheat, peanut, milk and egg, 2 yr. attitude going

on

> 16) and Drew -13 (mild dysautonomic sx). I, myself have

dysautonomia

> (POTS, syncope, neuorpathy, immuno def,migraines, on and on). On

top

> of this I have been going through the divorce from ---- for 14

> months.

> I feel as though I have reached the end of my rope. I feel like

I

> have just crashed and burned. I have lost all energy and like I am

> in a tunnel. I am exhausted but cannot sleep at night. I am a

single

> mom of these three wonderful kids. My mom does help but she is 64

> and these are not her kids. Their dad just doesn't care for them

> right and has numerous times put 's health at risk. He is

not

> allowed to take her out of the house, so he visits with her here

at

> my home 2 x wk (he was physically abusive to me during our marrige

> so this is not fun for me to have him here)

> I know when I complain I feel horrible. I know there are people

> out there with more problems then mine. I don't like to complain,

I

> just don't know what to do. I just want to cry but I don't like to

> feel sorry for myself. It gets you no where. I do not get a break

> and as most of those with young children can relate to, I cannot

> even go to the bathroom by myself. The phone rings off the hook

> (therapists, durable medi. equip, doctors, lawyers etc).

> I guess as I type this, I know there is no answer to my problem.

I

> love my children with every ounce of my being, I am just tired. I

> just needed to vent. Thanks for being there for me to do this and

> not judging me. I don't know what I would do without you all.

>

> Thanks for letting me ramble! Dawn

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(((((((Dawn))))))), Big Hugs!!! You have been there for me and have

helped me so much. I wish I was closer so I could take the kids for

a weekend. Vent as much as you want, scream from the roof top if

you have to and let your self cry. It is okay to feel sorry for

yourself. It is okay to cry. Sometimes we have to do that so we

can move on. Know that we are hear to listen.

Geri-Anne and Wyatt, Complex I

>

> As most of you know This has been a long yr. for me. I have

-

> 4 (bone marrow failure, mito, dysautonomia etc) and Molly-2.7

(food

> senstivities to wheat, peanut, milk and egg, 2 yr. attitude going

on

> 16) and Drew -13 (mild dysautonomic sx). I, myself have

dysautonomia

> (POTS, syncope, neuorpathy, immuno def,migraines, on and on). On

top

> of this I have been going through the divorce from ---- for 14

> months.

> I feel as though I have reached the end of my rope. I feel like

I

> have just crashed and burned. I have lost all energy and like I am

> in a tunnel. I am exhausted but cannot sleep at night. I am a

single

> mom of these three wonderful kids. My mom does help but she is 64

> and these are not her kids. Their dad just doesn't care for them

> right and has numerous times put 's health at risk. He is

not

> allowed to take her out of the house, so he visits with her here

at

> my home 2 x wk (he was physically abusive to me during our marrige

> so this is not fun for me to have him here)

> I know when I complain I feel horrible. I know there are people

> out there with more problems then mine. I don't like to complain,

I

> just don't know what to do. I just want to cry but I don't like to

> feel sorry for myself. It gets you no where. I do not get a break

> and as most of those with young children can relate to, I cannot

> even go to the bathroom by myself. The phone rings off the hook

> (therapists, durable medi. equip, doctors, lawyers etc).

> I guess as I type this, I know there is no answer to my problem.

I

> love my children with every ounce of my being, I am just tired. I

> just needed to vent. Thanks for being there for me to do this and

> not judging me. I don't know what I would do without you all.

>

> Thanks for letting me ramble! Dawn

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Guest guest

(((((((Dawn))))))), Big Hugs!!! You have been there for me and have

helped me so much. I wish I was closer so I could take the kids for

a weekend. Vent as much as you want, scream from the roof top if

you have to and let your self cry. It is okay to feel sorry for

yourself. It is okay to cry. Sometimes we have to do that so we

can move on. Know that we are hear to listen.

Geri-Anne and Wyatt, Complex I

>

> As most of you know This has been a long yr. for me. I have

-

> 4 (bone marrow failure, mito, dysautonomia etc) and Molly-2.7

(food

> senstivities to wheat, peanut, milk and egg, 2 yr. attitude going

on

> 16) and Drew -13 (mild dysautonomic sx). I, myself have

dysautonomia

> (POTS, syncope, neuorpathy, immuno def,migraines, on and on). On

top

> of this I have been going through the divorce from ---- for 14

> months.

> I feel as though I have reached the end of my rope. I feel like

I

> have just crashed and burned. I have lost all energy and like I am

> in a tunnel. I am exhausted but cannot sleep at night. I am a

single

> mom of these three wonderful kids. My mom does help but she is 64

> and these are not her kids. Their dad just doesn't care for them

> right and has numerous times put 's health at risk. He is

not

> allowed to take her out of the house, so he visits with her here

at

> my home 2 x wk (he was physically abusive to me during our marrige

> so this is not fun for me to have him here)

> I know when I complain I feel horrible. I know there are people

> out there with more problems then mine. I don't like to complain,

I

> just don't know what to do. I just want to cry but I don't like to

> feel sorry for myself. It gets you no where. I do not get a break

> and as most of those with young children can relate to, I cannot

> even go to the bathroom by myself. The phone rings off the hook

> (therapists, durable medi. equip, doctors, lawyers etc).

> I guess as I type this, I know there is no answer to my problem.

I

> love my children with every ounce of my being, I am just tired. I

> just needed to vent. Thanks for being there for me to do this and

> not judging me. I don't know what I would do without you all.

>

> Thanks for letting me ramble! Dawn

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(((((((Dawn))))))), Big Hugs!!! You have been there for me and have

helped me so much. I wish I was closer so I could take the kids for

a weekend. Vent as much as you want, scream from the roof top if

you have to and let your self cry. It is okay to feel sorry for

yourself. It is okay to cry. Sometimes we have to do that so we

can move on. Know that we are hear to listen.

Geri-Anne and Wyatt, Complex I

>

> As most of you know This has been a long yr. for me. I have

-

> 4 (bone marrow failure, mito, dysautonomia etc) and Molly-2.7

(food

> senstivities to wheat, peanut, milk and egg, 2 yr. attitude going

on

> 16) and Drew -13 (mild dysautonomic sx). I, myself have

dysautonomia

> (POTS, syncope, neuorpathy, immuno def,migraines, on and on). On

top

> of this I have been going through the divorce from ---- for 14

> months.

> I feel as though I have reached the end of my rope. I feel like

I

> have just crashed and burned. I have lost all energy and like I am

> in a tunnel. I am exhausted but cannot sleep at night. I am a

single

> mom of these three wonderful kids. My mom does help but she is 64

> and these are not her kids. Their dad just doesn't care for them

> right and has numerous times put 's health at risk. He is

not

> allowed to take her out of the house, so he visits with her here

at

> my home 2 x wk (he was physically abusive to me during our marrige

> so this is not fun for me to have him here)

> I know when I complain I feel horrible. I know there are people

> out there with more problems then mine. I don't like to complain,

I

> just don't know what to do. I just want to cry but I don't like to

> feel sorry for myself. It gets you no where. I do not get a break

> and as most of those with young children can relate to, I cannot

> even go to the bathroom by myself. The phone rings off the hook

> (therapists, durable medi. equip, doctors, lawyers etc).

> I guess as I type this, I know there is no answer to my problem.

I

> love my children with every ounce of my being, I am just tired. I

> just needed to vent. Thanks for being there for me to do this and

> not judging me. I don't know what I would do without you all.

>

> Thanks for letting me ramble! Dawn

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Dawn

Bless your heart! If there's ever a place to vent it is here. It sounds like your in a horrible situation, and it really doesn't matter if someone has it rougher than you. My prayers will be for you tonight. I wish I could say something to make you feel better, but just know I've been in that tunnel, not the same as yours, but in that tunnel. Take care and know there are hundreds of people who do care about you and will listen.

Peace be with you

mom to Colby,13,COXIV,LCHAD,ACC,ADHD ,hypothroidism and osteopenia. Chad, 16, healthy, Caleb, 10, also healthy> >Reply-To: Mito >To: Mito >Subject: Re: crash and burn/ advice requested >Date: Sat, 27 Mar 2004 04:00:18 -0000 > >(((((((Dawn))))))), Big Hugs!!! You have been there for me and have >helped me so much. I wish I was closer so I could take the kids for >a weekend. Vent as much as you want, scream from the roof top if >you have to and let your self cry. It is okay to feel sorry for >yourself. It is okay to cry. Sometimes we have to do that so we >can move on. Know that we are hear to listen. > >Geri-Anne and Wyatt, Complex I > > > > > > As most of you know This has been a long yr. for me. I have >- > > 4 (bone marrow failure, mito, dysautonomia etc) and Molly-2.7 >(food > > senstivities to wheat, peanut, milk and egg, 2 yr. attitude going >on > > 16) and Drew -13 (mild dysautonomic sx). I, myself have >dysautonomia > > (POTS, syncope, neuorpathy, immuno def,migraines, on and on). On >top > > of this I have been going through the divorce from ---- for 14 > > months. > > I feel as though I have reached the end of my rope. I feel like >I > > have just crashed and burned. I have lost all energy and like I am > > in a tunnel. I am exhausted but cannot sleep at night. I am a >single > > mom of these three wonderful kids. My mom does help but she is 64 > > and these are not her kids. Their dad just doesn't care for them > > right and has numerous times put 's health at risk. He is >not > > allowed to take her out of the house, so he visits with her here >at > > my home 2 x wk (he was physically abusive to me during our marrige > > so this is not fun for me

_________________________________________________________________

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Dawn

Bless your heart! If there's ever a place to vent it is here. It sounds like your in a horrible situation, and it really doesn't matter if someone has it rougher than you. My prayers will be for you tonight. I wish I could say something to make you feel better, but just know I've been in that tunnel, not the same as yours, but in that tunnel. Take care and know there are hundreds of people who do care about you and will listen.

Peace be with you

mom to Colby,13,COXIV,LCHAD,ACC,ADHD ,hypothroidism and osteopenia. Chad, 16, healthy, Caleb, 10, also healthy> >Reply-To: Mito >To: Mito >Subject: Re: crash and burn/ advice requested >Date: Sat, 27 Mar 2004 04:00:18 -0000 > >(((((((Dawn))))))), Big Hugs!!! You have been there for me and have >helped me so much. I wish I was closer so I could take the kids for >a weekend. Vent as much as you want, scream from the roof top if >you have to and let your self cry. It is okay to feel sorry for >yourself. It is okay to cry. Sometimes we have to do that so we >can move on. Know that we are hear to listen. > >Geri-Anne and Wyatt, Complex I > > > > > > As most of you know This has been a long yr. for me. I have >- > > 4 (bone marrow failure, mito, dysautonomia etc) and Molly-2.7 >(food > > senstivities to wheat, peanut, milk and egg, 2 yr. attitude going >on > > 16) and Drew -13 (mild dysautonomic sx). I, myself have >dysautonomia > > (POTS, syncope, neuorpathy, immuno def,migraines, on and on). On >top > > of this I have been going through the divorce from ---- for 14 > > months. > > I feel as though I have reached the end of my rope. I feel like >I > > have just crashed and burned. I have lost all energy and like I am > > in a tunnel. I am exhausted but cannot sleep at night. I am a >single > > mom of these three wonderful kids. My mom does help but she is 64 > > and these are not her kids. Their dad just doesn't care for them > > right and has numerous times put 's health at risk. He is >not > > allowed to take her out of the house, so he visits with her here >at > > my home 2 x wk (he was physically abusive to me during our marrige > > so this is not fun for me

_________________________________________________________________

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Dawn

Bless your heart! If there's ever a place to vent it is here. It sounds like your in a horrible situation, and it really doesn't matter if someone has it rougher than you. My prayers will be for you tonight. I wish I could say something to make you feel better, but just know I've been in that tunnel, not the same as yours, but in that tunnel. Take care and know there are hundreds of people who do care about you and will listen.

Peace be with you

mom to Colby,13,COXIV,LCHAD,ACC,ADHD ,hypothroidism and osteopenia. Chad, 16, healthy, Caleb, 10, also healthy> >Reply-To: Mito >To: Mito >Subject: Re: crash and burn/ advice requested >Date: Sat, 27 Mar 2004 04:00:18 -0000 > >(((((((Dawn))))))), Big Hugs!!! You have been there for me and have >helped me so much. I wish I was closer so I could take the kids for >a weekend. Vent as much as you want, scream from the roof top if >you have to and let your self cry. It is okay to feel sorry for >yourself. It is okay to cry. Sometimes we have to do that so we >can move on. Know that we are hear to listen. > >Geri-Anne and Wyatt, Complex I > > > > > > As most of you know This has been a long yr. for me. I have >- > > 4 (bone marrow failure, mito, dysautonomia etc) and Molly-2.7 >(food > > senstivities to wheat, peanut, milk and egg, 2 yr. attitude going >on > > 16) and Drew -13 (mild dysautonomic sx). I, myself have >dysautonomia > > (POTS, syncope, neuorpathy, immuno def,migraines, on and on). On >top > > of this I have been going through the divorce from ---- for 14 > > months. > > I feel as though I have reached the end of my rope. I feel like >I > > have just crashed and burned. I have lost all energy and like I am > > in a tunnel. I am exhausted but cannot sleep at night. I am a >single > > mom of these three wonderful kids. My mom does help but she is 64 > > and these are not her kids. Their dad just doesn't care for them > > right and has numerous times put 's health at risk. He is >not > > allowed to take her out of the house, so he visits with her here >at > > my home 2 x wk (he was physically abusive to me during our marrige > > so this is not fun for me

_________________________________________________________________

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Hi Dawn:

No it's ok to ramble and vent. And there are answers to your problems.

I don't know if you would want to do this; but do you have an answering

maching to pick up part of your messages to get a little break and then

answer them later? Sort of like if you have a home business; some times

you let a service pick up the messages if you are too busy. Don't know

if you could afford this being a single mom now; but respite care so you

can get out of the house and just go to the library to unwind. I know I

have a husband so I can get out every now and then without the kids. I

know that is what my walks are for. That 15 to 20 minutes rejuvinates

me to no end. I'm sorry to hear about the abuse. I have a friend who

just got out of a marriage because of control/abuse issues. But her

husband isn't allowed to be at her house when he gets the kids. They

meet at a neutral location. But it sounds like that isn't possible for

you because of what is happening with . I look at it his way of

control. And who cares who it hurts. You must know when he is coming

over; would you feel better having a friend be at the house at the same

time. Not each time, but when you are in a tense mood and don't want to

deal with his pettiness. It sounds like you need a break and it might

not be just calgon. Do you have any family services in your area to

contact for financial help? I'm wondering if some thing could be put in

your divorce agreement about extra money to go toward respite care for

your kids so you can get out? Yeah your ex may blow a fuse; but tough,

he can come and go as he wishes and doesn't have to deal with kids on a

daily basis or what they need medically. I'm sure you will get lots of

support from this group and a few ideas. And that helps for others to

think outside the box for you and to boost you up. Hope you are having

a better day and got a little rest. Thinking of you.

Nerenhausen

mom to Leah

thefiveofus02 wrote:

> As most of you know This has been a long yr. for me. I have -

>4 (bone marrow failure, mito, dysautonomia etc) and Molly-2.7 (food

>senstivities to wheat, peanut, milk and egg, 2 yr. attitude going on

>16) and Drew -13 (mild dysautonomic sx). I, myself have dysautonomia

>(POTS, syncope, neuorpathy, immuno def,migraines, on and on). On top

>of this I have been going through the divorce from ---- for 14

>months.

> I feel as though I have reached the end of my rope. I feel like I

>have just crashed and burned. I have lost all energy and like I am

>in a tunnel. I am exhausted but cannot sleep at night. I am a single

>mom of these three wonderful kids. My mom does help but she is 64

>and these are not her kids. Their dad just doesn't care for them

>right and has numerous times put 's health at risk. He is not

>allowed to take her out of the house, so he visits with her here at

>my home 2 x wk (he was physically abusive to me during our marrige

>so this is not fun for me to have him here)

> I know when I complain I feel horrible. I know there are people

>out there with more problems then mine. I don't like to complain, I

>just don't know what to do. I just want to cry but I don't like to

>feel sorry for myself. It gets you no where. I do not get a break

>and as most of those with young children can relate to, I cannot

>even go to the bathroom by myself. The phone rings off the hook

>(therapists, durable medi. equip, doctors, lawyers etc).

> I guess as I type this, I know there is no answer to my problem. I

>love my children with every ounce of my being, I am just tired. I

>just needed to vent. Thanks for being there for me to do this and

>not judging me. I don't know what I would do without you all.

>

> Thanks for letting me ramble! Dawn

>

>

>

>

>Please contact mito-owner with any problems or questions.

>

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Hi Dawn:

No it's ok to ramble and vent. And there are answers to your problems.

I don't know if you would want to do this; but do you have an answering

maching to pick up part of your messages to get a little break and then

answer them later? Sort of like if you have a home business; some times

you let a service pick up the messages if you are too busy. Don't know

if you could afford this being a single mom now; but respite care so you

can get out of the house and just go to the library to unwind. I know I

have a husband so I can get out every now and then without the kids. I

know that is what my walks are for. That 15 to 20 minutes rejuvinates

me to no end. I'm sorry to hear about the abuse. I have a friend who

just got out of a marriage because of control/abuse issues. But her

husband isn't allowed to be at her house when he gets the kids. They

meet at a neutral location. But it sounds like that isn't possible for

you because of what is happening with . I look at it his way of

control. And who cares who it hurts. You must know when he is coming

over; would you feel better having a friend be at the house at the same

time. Not each time, but when you are in a tense mood and don't want to

deal with his pettiness. It sounds like you need a break and it might

not be just calgon. Do you have any family services in your area to

contact for financial help? I'm wondering if some thing could be put in

your divorce agreement about extra money to go toward respite care for

your kids so you can get out? Yeah your ex may blow a fuse; but tough,

he can come and go as he wishes and doesn't have to deal with kids on a

daily basis or what they need medically. I'm sure you will get lots of

support from this group and a few ideas. And that helps for others to

think outside the box for you and to boost you up. Hope you are having

a better day and got a little rest. Thinking of you.

Nerenhausen

mom to Leah

thefiveofus02 wrote:

> As most of you know This has been a long yr. for me. I have -

>4 (bone marrow failure, mito, dysautonomia etc) and Molly-2.7 (food

>senstivities to wheat, peanut, milk and egg, 2 yr. attitude going on

>16) and Drew -13 (mild dysautonomic sx). I, myself have dysautonomia

>(POTS, syncope, neuorpathy, immuno def,migraines, on and on). On top

>of this I have been going through the divorce from ---- for 14

>months.

> I feel as though I have reached the end of my rope. I feel like I

>have just crashed and burned. I have lost all energy and like I am

>in a tunnel. I am exhausted but cannot sleep at night. I am a single

>mom of these three wonderful kids. My mom does help but she is 64

>and these are not her kids. Their dad just doesn't care for them

>right and has numerous times put 's health at risk. He is not

>allowed to take her out of the house, so he visits with her here at

>my home 2 x wk (he was physically abusive to me during our marrige

>so this is not fun for me to have him here)

> I know when I complain I feel horrible. I know there are people

>out there with more problems then mine. I don't like to complain, I

>just don't know what to do. I just want to cry but I don't like to

>feel sorry for myself. It gets you no where. I do not get a break

>and as most of those with young children can relate to, I cannot

>even go to the bathroom by myself. The phone rings off the hook

>(therapists, durable medi. equip, doctors, lawyers etc).

> I guess as I type this, I know there is no answer to my problem. I

>love my children with every ounce of my being, I am just tired. I

>just needed to vent. Thanks for being there for me to do this and

>not judging me. I don't know what I would do without you all.

>

> Thanks for letting me ramble! Dawn

>

>

>

>

>Please contact mito-owner with any problems or questions.

>

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Hi Dawn:

No it's ok to ramble and vent. And there are answers to your problems.

I don't know if you would want to do this; but do you have an answering

maching to pick up part of your messages to get a little break and then

answer them later? Sort of like if you have a home business; some times

you let a service pick up the messages if you are too busy. Don't know

if you could afford this being a single mom now; but respite care so you

can get out of the house and just go to the library to unwind. I know I

have a husband so I can get out every now and then without the kids. I

know that is what my walks are for. That 15 to 20 minutes rejuvinates

me to no end. I'm sorry to hear about the abuse. I have a friend who

just got out of a marriage because of control/abuse issues. But her

husband isn't allowed to be at her house when he gets the kids. They

meet at a neutral location. But it sounds like that isn't possible for

you because of what is happening with . I look at it his way of

control. And who cares who it hurts. You must know when he is coming

over; would you feel better having a friend be at the house at the same

time. Not each time, but when you are in a tense mood and don't want to

deal with his pettiness. It sounds like you need a break and it might

not be just calgon. Do you have any family services in your area to

contact for financial help? I'm wondering if some thing could be put in

your divorce agreement about extra money to go toward respite care for

your kids so you can get out? Yeah your ex may blow a fuse; but tough,

he can come and go as he wishes and doesn't have to deal with kids on a

daily basis or what they need medically. I'm sure you will get lots of

support from this group and a few ideas. And that helps for others to

think outside the box for you and to boost you up. Hope you are having

a better day and got a little rest. Thinking of you.

Nerenhausen

mom to Leah

thefiveofus02 wrote:

> As most of you know This has been a long yr. for me. I have -

>4 (bone marrow failure, mito, dysautonomia etc) and Molly-2.7 (food

>senstivities to wheat, peanut, milk and egg, 2 yr. attitude going on

>16) and Drew -13 (mild dysautonomic sx). I, myself have dysautonomia

>(POTS, syncope, neuorpathy, immuno def,migraines, on and on). On top

>of this I have been going through the divorce from ---- for 14

>months.

> I feel as though I have reached the end of my rope. I feel like I

>have just crashed and burned. I have lost all energy and like I am

>in a tunnel. I am exhausted but cannot sleep at night. I am a single

>mom of these three wonderful kids. My mom does help but she is 64

>and these are not her kids. Their dad just doesn't care for them

>right and has numerous times put 's health at risk. He is not

>allowed to take her out of the house, so he visits with her here at

>my home 2 x wk (he was physically abusive to me during our marrige

>so this is not fun for me to have him here)

> I know when I complain I feel horrible. I know there are people

>out there with more problems then mine. I don't like to complain, I

>just don't know what to do. I just want to cry but I don't like to

>feel sorry for myself. It gets you no where. I do not get a break

>and as most of those with young children can relate to, I cannot

>even go to the bathroom by myself. The phone rings off the hook

>(therapists, durable medi. equip, doctors, lawyers etc).

> I guess as I type this, I know there is no answer to my problem. I

>love my children with every ounce of my being, I am just tired. I

>just needed to vent. Thanks for being there for me to do this and

>not judging me. I don't know what I would do without you all.

>

> Thanks for letting me ramble! Dawn

>

>

>

>

>Please contact mito-owner with any problems or questions.

>

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Guest guest

Dawn,

You have every right to feel exhausted

and frustrated. Being in the situation is very difficult and you have the right

to vent as much as you want. I have felt sorry for myself many times,

especially when I look at other parents who have what I would consider a “DREAM”

with healthy kids, and yet have no clue how blessed they are. I have often

struggled with envy for others who have it so much easier and yet try to not

blame them. It is not their fault we are in our situation. I pray that you find

the strength. We all feel like you do at times(Many times) because we are

humans. It is hard to accept that it is ok for us to be in such a horrible

situation just because others have it worse. I get sick to my stomach when

people tell me that, especially when it comes from the ones that aren’t

worse off. Hang in there. Remember. ONE Day at a time. There is enough on your

platter for today. I will keep you in my prayers. I am so sorry that you have

such an unsupportive husband. That just makes things so much harder. Our

children are enough. Our spouses are supposed to help us, not add to out

problems. Excuse my language, But that “CRAPS” That is not fair,

but then again what is right?

God bless,

Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) &

Leanna with same disease.

Samya's Memorial Site: www.Samya.org

Email:

Suhad1970@...

Alt Email:

Suhad@...

AiM Chat: Suhad1970

From: thefiveofus02

Sent: Friday, March 26, 2004 2:37

PM

To: Mito

Subject: crash and burn/ advice requested

As most of you know This has been a long yr. for

me. I have -

4 (bone marrow failure, mito, dysautonomia etc) and Molly-2.7 (food

senstivities to wheat, peanut, milk and egg, 2 yr.

attitude going on

16) and Drew -13 (mild dysautonomic sx). I, myself

have dysautonomia

(POTS, syncope, neuorpathy, immuno def,migraines,

on and on). On top

of this I have been going through the divorce from

---- for 14

months.

I feel as though I have reached the end of

my rope. I feel like I

have just crashed and burned. I have lost all

energy and like I am

in a tunnel. I am exhausted but cannot sleep at

night. I am a single

mom of these three wonderful kids. My mom does

help but she is 64

and these are not her kids. Their dad just doesn't

care for them

right and has numerous times put 's health

at risk. He is not

allowed to take her out of the house, so he visits

with her here at

my home 2 x wk (he was physically abusive to me

during our marrige

so this is not fun for me to have him here)

I know when I complain I feel horrible. I

know there are people

out there with more problems then mine. I don't

like to complain, I

just don't know what to do. I just want to cry but

I don't like to

feel sorry for myself. It gets you no where. I do

not get a break

and as most of those with young children can

relate to, I cannot

even go to the bathroom by myself. The phone rings

off the hook

(therapists, durable medi. equip, doctors, lawyers

etc).

I guess as I type this, I know there is no

answer to my problem. I

love my children with every ounce of my being, I

am just tired. I

just needed to vent. Thanks for being there for me

to do this and

not judging me. I don't know what I would do

without you all.

Thanks for letting me ramble!

Dawn

Please

contact mito-owner with any problems or questions.

Link to comment
Share on other sites

Guest guest

Dawn,

You have every right to feel exhausted

and frustrated. Being in the situation is very difficult and you have the right

to vent as much as you want. I have felt sorry for myself many times,

especially when I look at other parents who have what I would consider a “DREAM”

with healthy kids, and yet have no clue how blessed they are. I have often

struggled with envy for others who have it so much easier and yet try to not

blame them. It is not their fault we are in our situation. I pray that you find

the strength. We all feel like you do at times(Many times) because we are

humans. It is hard to accept that it is ok for us to be in such a horrible

situation just because others have it worse. I get sick to my stomach when

people tell me that, especially when it comes from the ones that aren’t

worse off. Hang in there. Remember. ONE Day at a time. There is enough on your

platter for today. I will keep you in my prayers. I am so sorry that you have

such an unsupportive husband. That just makes things so much harder. Our

children are enough. Our spouses are supposed to help us, not add to out

problems. Excuse my language, But that “CRAPS” That is not fair,

but then again what is right?

God bless,

Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) &

Leanna with same disease.

Samya's Memorial Site: www.Samya.org

Email:

Suhad1970@...

Alt Email:

Suhad@...

AiM Chat: Suhad1970

From: thefiveofus02

Sent: Friday, March 26, 2004 2:37

PM

To: Mito

Subject: crash and burn/ advice requested

As most of you know This has been a long yr. for

me. I have -

4 (bone marrow failure, mito, dysautonomia etc) and Molly-2.7 (food

senstivities to wheat, peanut, milk and egg, 2 yr.

attitude going on

16) and Drew -13 (mild dysautonomic sx). I, myself

have dysautonomia

(POTS, syncope, neuorpathy, immuno def,migraines,

on and on). On top

of this I have been going through the divorce from

---- for 14

months.

I feel as though I have reached the end of

my rope. I feel like I

have just crashed and burned. I have lost all

energy and like I am

in a tunnel. I am exhausted but cannot sleep at

night. I am a single

mom of these three wonderful kids. My mom does

help but she is 64

and these are not her kids. Their dad just doesn't

care for them

right and has numerous times put 's health

at risk. He is not

allowed to take her out of the house, so he visits

with her here at

my home 2 x wk (he was physically abusive to me

during our marrige

so this is not fun for me to have him here)

I know when I complain I feel horrible. I

know there are people

out there with more problems then mine. I don't

like to complain, I

just don't know what to do. I just want to cry but

I don't like to

feel sorry for myself. It gets you no where. I do

not get a break

and as most of those with young children can

relate to, I cannot

even go to the bathroom by myself. The phone rings

off the hook

(therapists, durable medi. equip, doctors, lawyers

etc).

I guess as I type this, I know there is no

answer to my problem. I

love my children with every ounce of my being, I

am just tired. I

just needed to vent. Thanks for being there for me

to do this and

not judging me. I don't know what I would do

without you all.

Thanks for letting me ramble!

Dawn

Please

contact mito-owner with any problems or questions.

Link to comment
Share on other sites

Guest guest

Sorry to hear you have had such a rough time. I am glad you felt comfortable talking to us about it. There are times when we all feel at the end of our rope and just need a little break. "Calgon" helps, but not enough sometimes. Let us know how you are doing and if there is anything we can do to help ya. We will be praying for you. :) Darla: mommy to Asenath, Zipporrah, and the gang crash and burn/ advice requested As most of you know This has been a long yr. for me. I have -4 (bone marrow failure, mito, dysautonomia etc) and Molly-2.7 (food senstivities to wheat, peanut, milk and egg, 2 yr. attitude going on 16) and Drew -13 (mild dysautonomic sx). I, myself have dysautonomia (POTS, syncope, neuorpathy, immuno def,migraines, on and on). On top of this I have been going through the divorce from ---- for 14 months. I feel as though I have reached the end of my rope. I feel like I have just crashed and burned. I have lost all energy and like I am in a tunnel. I am exhausted but cannot sleep at night. I am a single mom of these three wonderful kids. My mom does help but she is 64 and these are not her kids. Their dad just doesn't care for them right and has numerous times put 's health at risk. He is not allowed to take her out of the house, so he visits with her here at my home 2 x wk (he was physically abusive to me during our marrige so this is not fun for me to have him here) I know when I complain I feel horrible. I know there are people out there with more problems then mine. I don't like to complain, I just don't know what to do. I just want to cry but I don't like to feel sorry for myself. It gets you no where. I do not get a break and as most of those with young children can relate to, I cannot even go to the bathroom by myself. The phone rings off the hook (therapists, durable medi. equip, doctors, lawyers etc). I guess as I type this, I know there is no answer to my problem. I love my children with every ounce of my being, I am just tired. I just needed to vent. Thanks for being there for me to do this and not judging me. I don't know what I would do without you all. Thanks for letting me ramble! Dawn

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