Re: crash and burn/ advice requested

[Guest guest]

Dawn,

You have every right to feel exhausted

and frustrated. Being in the situation is very difficult and you have the right

to vent as much as you want. I have felt sorry for myself many times,

especially when I look at other parents who have what I would consider a “DREAM”

with healthy kids, and yet have no clue how blessed they are. I have often

struggled with envy for others who have it so much easier and yet try to not

blame them. It is not their fault we are in our situation. I pray that you find

the strength. We all feel like you do at times(Many times) because we are

humans. It is hard to accept that it is ok for us to be in such a horrible

situation just because others have it worse. I get sick to my stomach when

people tell me that, especially when it comes from the ones that aren’t

worse off. Hang in there. Remember. ONE Day at a time. There is enough on your

platter for today. I will keep you in my prayers. I am so sorry that you have

such an unsupportive husband. That just makes things so much harder. Our

children are enough. Our spouses are supposed to help us, not add to out

problems. Excuse my language, But that “CRAPS” That is not fair,

but then again what is right?

God bless,

Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) &

Leanna with same disease.

Samya's Memorial Site: www.Samya.org

Email:

Suhad1970@...

Alt Email:

Suhad@...

AiM Chat: Suhad1970

From: thefiveofus02

Sent: Friday, March 26, 2004 2:37

PM

To: Mito

Subject: crash and burn/ advice requested

As most of you know This has been a long yr. for

me. I have -

4 (bone marrow failure, mito, dysautonomia etc) and Molly-2.7 (food

senstivities to wheat, peanut, milk and egg, 2 yr.

attitude going on

16) and Drew -13 (mild dysautonomic sx). I, myself

have dysautonomia

(POTS, syncope, neuorpathy, immuno def,migraines,

on and on). On top

of this I have been going through the divorce from

---- for 14

months.

I feel as though I have reached the end of

my rope. I feel like I

have just crashed and burned. I have lost all

energy and like I am

in a tunnel. I am exhausted but cannot sleep at

night. I am a single

mom of these three wonderful kids. My mom does

help but she is 64

and these are not her kids. Their dad just doesn't

care for them

right and has numerous times put 's health

at risk. He is not

allowed to take her out of the house, so he visits

with her here at

my home 2 x wk (he was physically abusive to me

during our marrige

so this is not fun for me to have him here)

I know when I complain I feel horrible. I

know there are people

out there with more problems then mine. I don't

like to complain, I

just don't know what to do. I just want to cry but

I don't like to

feel sorry for myself. It gets you no where. I do

not get a break

and as most of those with young children can

relate to, I cannot

even go to the bathroom by myself. The phone rings

off the hook

(therapists, durable medi. equip, doctors, lawyers

etc).

I guess as I type this, I know there is no

answer to my problem. I

love my children with every ounce of my being, I

am just tired. I

just needed to vent. Thanks for being there for me

to do this and

not judging me. I don't know what I would do

without you all.

Thanks for letting me ramble!

Dawn

Please

contact mito-owner with any problems or questions.

[Guest guest]

Sorry to hear you have had such a rough time. I am glad you felt comfortable talking to us about it. There are times when we all feel at the end of our rope and just need a little break. "Calgon" helps, but not enough sometimes. Let us know how you are doing and if there is anything we can do to help ya. We will be praying for you. Darla: mommy to Asenath, Zipporrah, and the gang crash and burn/ advice requested As most of you know This has been a long yr. for me. I have -4 (bone marrow failure, mito, dysautonomia etc) and Molly-2.7 (food senstivities to wheat, peanut, milk and egg, 2 yr. attitude going on 16) and Drew -13 (mild dysautonomic sx). I, myself have dysautonomia (POTS, syncope, neuorpathy, immuno def,migraines, on and on). On top of this I have been going through the divorce from ---- for 14 months. I feel as though I have reached the end of my rope. I feel like I have just crashed and burned. I have lost all energy and like I am in a tunnel. I am exhausted but cannot sleep at night. I am a single mom of these three wonderful kids. My mom does help but she is 64 and these are not her kids. Their dad just doesn't care for them right and has numerous times put 's health at risk. He is not allowed to take her out of the house, so he visits with her here at my home 2 x wk (he was physically abusive to me during our marrige so this is not fun for me to have him here) I know when I complain I feel horrible. I know there are people out there with more problems then mine. I don't like to complain, I just don't know what to do. I just want to cry but I don't like to feel sorry for myself. It gets you no where. I do not get a break and as most of those with young children can relate to, I cannot even go to the bathroom by myself. The phone rings off the hook (therapists, durable medi. equip, doctors, lawyers etc). I guess as I type this, I know there is no answer to my problem. I love my children with every ounce of my being, I am just tired. I just needed to vent. Thanks for being there for me to do this and not judging me. I don't know what I would do without you all. Thanks for letting me ramble! Dawn