Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 There are other's with this awful disease like Bernie Mac. -- Re: Duffy's book I think it understandable because - just like anyone with this disease, most of us included, sometimes it is just hard to get out of bed. It is hard to answer the phone because you just don't have the energy to talk to someone. Somedays getting dressed is very hard and getting the newspaper a challenge. I have put on two pairs of glasses to then read. I do not agree with her about not speaking up..I am just saying I can understand not having the energy to fight this illness and be a spoksperson too. Duffy has a book ...It is called> > > Model Patient: My Life As an Incureable Wise-Ass > > It is too bad that she does not want to promote research into this > disease....but it is understandable too.> > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community> > NS CHAT:- Has been cancelled for now.> > Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages> > Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 that's true about "most of us" but if she can work and be out promoting her book it's no extra work to bring awareness to the public, besides unlike us she has "people" to help her. Just not understandable to me, it's not she has to do something everyday and every minute as you suggest.olehomepla wrote: I think it understandable because - just like anyone with this disease, most of us included, sometimes it is just hard to get out of bed. It is hard to answer the phone because you just don't have the energy to talk to someone. Somedays getting dressed is very hard and getting the newspaper a challenge. I have put on two pairs of glasses to then read. I do not agree with her about not speaking up..I am just saying I can understand not having the energy to fight this illness and be a spoksperson too. Duffy has a book ...It is called> > > Model Patient: My Life As an Incureable Wise-Ass > > It is too bad that she does not want to promote research into this > disease....but it is understandable too.> > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community> > NS CHAT:- Has been cancelled for now.> > Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages> > Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
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