Guest guest Posted January 30, 2004 Report Share Posted January 30, 2004 hi everyone I dont post much but i read the post everyday. We have a 4 year old with suspected mito,hypotonia and developmental delay(presently at a 3-4 month old level) we have spent 3 years of fighting with insurance companies to get my daughter what she needs for daily living aids. usually when we finally get what we need (wheelchair,stander, bath seat)it is either the wrong size, not what we needed needed more padding or needs some kind of modifications....so my husband has turned his garage into a workshop..he was an art major in college so he is very creative...together we have come up with some great ideas for breana...therapy bench that cost us $40 to make but goes for around $200 from other sources, abducters for her wheelchair that cost $20 instead of $100..outdoor lounge chairs..indoor swings and hammocks...computer desk that adapts to her needs and numerous adapted toys..and we still have ideas left. After much thought we have decided to get patents and try to market some of it to people who have had the same problems as us.If anyone has any ideas on how to do this please let me know. Im sure this is a hard buisness to get into but someone has to do somthing these people(equipment companies)are getting rich off of the children that need them the most. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2004 Report Share Posted February 3, 2004 There is a gentlemen here in Appleton, WI that does exactly what you are doing. He has a company called Enable Design and he makes custom pieces for kids and usually much lower than what a company does. He was an engineer for . He makes beds, corner chairs, tables, chairs, and all out of wood. He comes with the therapist to measure the child so the piece of equipment will be made correctly. We have a beautiful table and chair that Leah got when she was 2 1/2 years old and she still uses it and she is 5 1/2 years old. We had him make it so she would be able to use it for several years. We have taken out some of the padding on the sides as she does not need that support. So continue what you are doing and if you want more information give me your name and I will approach him and ask him if you could ask him questions. I will be seeing him the end of February as he is on our committee that helped design and build an accessible playground here. Nerenhausen mom to Leah mdcaywood wrote: > hi everyone > I dont post much but i read the post everyday. We have a 4 year old > with suspected mito,hypotonia and developmental delay(presently at > a 3-4 month old level) we have spent 3 years of fighting with > insurance companies to get my daughter what she needs for daily > living aids. usually when we finally get what we need > (wheelchair,stander, bath seat)it is either the wrong size, not what > we needed needed more padding or needs some kind of > modifications....so my husband has turned his garage into a > workshop..he was an art major in college so he is very > creative...together we have come up with some great ideas for > breana...therapy bench that cost us $40 to make but goes for around > $200 from other sources, abducters for her wheelchair that cost $20 > instead of $100..outdoor lounge chairs..indoor swings and > hammocks...computer desk that adapts to her needs and numerous > adapted toys..and we still have ideas left. After much thought we > have decided to get patents and try to market some of it to people > who have had the same problems as us.If anyone has any ideas on how > to do this please let me know. Im sure this is a hard buisness to > get into but someone has to do somthing these people(equipment > companies)are getting rich off of the children that need them the > most. > > Please contact mito-owner with any problems or questions. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2004 Report Share Posted February 3, 2004 I don't have any ideas on how to go about it, but I just want to wish you all kinds of luck! I'll bet you've come up with some practical ideas. It would be wonderful to offer alternatives to people that are probably better suited to their needs. The prices of equipment are obscene, to say the least. So, good luck and I'll be rooting for you! mary b Connor's mom - 10 years old - Leigh's/COX adaptive equipment > hi everyone > I dont post much but i read the post everyday. We have a 4 year old > with suspected mito,hypotonia and developmental delay(presently at > a 3-4 month old level) we have spent 3 years of fighting with > insurance companies to get my daughter what she needs for daily > living aids. usually when we finally get what we need > (wheelchair,stander, bath seat)it is either the wrong size, not what > we needed needed more padding or needs some kind of > modifications....so my husband has turned his garage into a > workshop..he was an art major in college so he is very > creative...together we have come up with some great ideas for > breana...therapy bench that cost us $40 to make but goes for around > $200 from other sources, abducters for her wheelchair that cost $20 > instead of $100..outdoor lounge chairs..indoor swings and > hammocks...computer desk that adapts to her needs and numerous > adapted toys..and we still have ideas left. After much thought we > have decided to get patents and try to market some of it to people > who have had the same problems as us.If anyone has any ideas on how > to do this please let me know. Im sure this is a hard buisness to > get into but someone has to do somthing these people(equipment > companies)are getting rich off of the children that need them the > most. > > > > Please contact mito-owner with any problems or questions. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2004 Report Share Posted February 3, 2004 I don't have any ideas on how to go about it, but I just want to wish you all kinds of luck! I'll bet you've come up with some practical ideas. It would be wonderful to offer alternatives to people that are probably better suited to their needs. The prices of equipment are obscene, to say the least. So, good luck and I'll be rooting for you! mary b Connor's mom - 10 years old - Leigh's/COX adaptive equipment > hi everyone > I dont post much but i read the post everyday. We have a 4 year old > with suspected mito,hypotonia and developmental delay(presently at > a 3-4 month old level) we have spent 3 years of fighting with > insurance companies to get my daughter what she needs for daily > living aids. usually when we finally get what we need > (wheelchair,stander, bath seat)it is either the wrong size, not what > we needed needed more padding or needs some kind of > modifications....so my husband has turned his garage into a > workshop..he was an art major in college so he is very > creative...together we have come up with some great ideas for > breana...therapy bench that cost us $40 to make but goes for around > $200 from other sources, abducters for her wheelchair that cost $20 > instead of $100..outdoor lounge chairs..indoor swings and > hammocks...computer desk that adapts to her needs and numerous > adapted toys..and we still have ideas left. After much thought we > have decided to get patents and try to market some of it to people > who have had the same problems as us.If anyone has any ideas on how > to do this please let me know. Im sure this is a hard buisness to > get into but someone has to do somthing these people(equipment > companies)are getting rich off of the children that need them the > most. > > > > Please contact mito-owner with any problems or questions. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2004 Report Share Posted February 3, 2004 I don't have any ideas on how to go about it, but I just want to wish you all kinds of luck! I'll bet you've come up with some practical ideas. It would be wonderful to offer alternatives to people that are probably better suited to their needs. The prices of equipment are obscene, to say the least. So, good luck and I'll be rooting for you! mary b Connor's mom - 10 years old - Leigh's/COX adaptive equipment > hi everyone > I dont post much but i read the post everyday. We have a 4 year old > with suspected mito,hypotonia and developmental delay(presently at > a 3-4 month old level) we have spent 3 years of fighting with > insurance companies to get my daughter what she needs for daily > living aids. usually when we finally get what we need > (wheelchair,stander, bath seat)it is either the wrong size, not what > we needed needed more padding or needs some kind of > modifications....so my husband has turned his garage into a > workshop..he was an art major in college so he is very > creative...together we have come up with some great ideas for > breana...therapy bench that cost us $40 to make but goes for around > $200 from other sources, abducters for her wheelchair that cost $20 > instead of $100..outdoor lounge chairs..indoor swings and > hammocks...computer desk that adapts to her needs and numerous > adapted toys..and we still have ideas left. After much thought we > have decided to get patents and try to market some of it to people > who have had the same problems as us.If anyone has any ideas on how > to do this please let me know. Im sure this is a hard buisness to > get into but someone has to do somthing these people(equipment > companies)are getting rich off of the children that need them the > most. > > > > Please contact mito-owner with any problems or questions. > > Quote Link to comment Share on other sites More sharing options...
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