Guest guest Posted March 16, 2004 Report Share Posted March 16, 2004 To , How did you get your daughters drs to approve her getting the g-tube for meds? Mine does not know if that is reason enough for my daughter to get a g-tube? Primarily just for meds. She refuses to take any of her mito meds by mouth and even antibiotics and Tylenol re a joke to get down her. Feel free to privately email me at djvanaman@... thanks in advance for any info. Debbie...mommy to Jaleigh mito affected Re: MCT Oil My daughter uses MCT oil. We get it through our local pharmacy (Rite Aid). I don't think we have ever had a problem getting it. It does require a prescription. We are unable to get insurance to pay for it, they call it a medical food. It is not really too expensive, though. I think we pay about $15 a month for it (our pharmacy divides the bottle to monthly doses). How did they tell you to give it to her? We had alot of problems giving it in food. Grace would refuse the food which the oil was in. Eventually we had to get a g tube for her, primarily for medicines. Also I would start the doses a little slower or divide them up, Grace had upset stomachs from it until she got used to it. The manufacturer is Mead and MCT oil is on the website. Maybe you can find some info on a back order or something. Also I would try going to a hospital pharmacy or a larger national pharmacy, sometimes they ! are able to get a hold of things faster. Best of luck, if you have any more questions feel free to email me. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
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