Guest guest Posted August 12, 2006 Report Share Posted August 12, 2006 Angie, we're glad you found us, although I wish we had something else in common. Are the doctors who are going to administer the Humira pretty experienced with it? I'm just wondering if you need to take Methotrexate or another immune suppressant along with the Humira like you do with the Remicade, to prevent the formation of antibodies. Did your docs say anything about it? I think that Humira is in the same drug class as Remicade. Tracie, do you know? Anyway, Angie, good luck & keep us posted on how things are going. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: HumiraDate: Sat, 12 Aug 2006 00:29:59 -0000 Hi everyone,My name is Angie and I wrote about a week ago about my neurosarc and trying to get humira paid for by my insurance. Well, they have agreed to pay 55% and I'm responsible for 45% which is still a lot but every little bit helps. It still will cost me $600. a month. Last year, it really helped, so I'm praying it will work this time. I'm starting to get symptoms like numbness on my face and dizziness. I'm 35 years old and have a little boy and a great husband. It scares me to read some of the messages about spouses that have turn their backs. But, I can see how one spouse being sick affects the other spouse, so I pray ours stay strong. Well, I was just reading all of your messages and it seems like you have really good friendships on this site. I'm glad I found it. Angie Got something to buy, sell or swap? Try Windows Live Expo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2006 Report Share Posted August 12, 2006 I'm just wondering if you need to take Methotrexate or another immune suppressant along with the Humira like you do with the Remicade, to prevent the formation of antibodies. Did your docs say anything about it? I think that Humira is in the same drug class as Remicade. Tracie, do you know? Both Humira, Enbrel and Remicade are all BRM's. Biological Response Modifiers, and yes, you do need MTX or Prednisone with it so that you don't build antibodies against the BRM. Also, Folic Acid is necessary to prevent pernicious anemia from developing with all of them. WWW.ARTHRITIS.ORG has a great Drug List in it's annual Jan/Feb issues-- and explains the pro/cons and side effects etc. Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2006 Report Share Posted August 12, 2006 I'm just wondering if you need to take Methotrexate or another immune suppressant along with the Humira like you do with the Remicade, to prevent the formation of antibodies. Did your docs say anything about it? I think that Humira is in the same drug class as Remicade. Tracie, do you know? Both Humira, Enbrel and Remicade are all BRM's. Biological Response Modifiers, and yes, you do need MTX or Prednisone with it so that you don't build antibodies against the BRM. Also, Folic Acid is necessary to prevent pernicious anemia from developing with all of them. WWW.ARTHRITIS.ORG has a great Drug List in it's annual Jan/Feb issues-- and explains the pro/cons and side effects etc. Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2006 Report Share Posted August 13, 2006 Rose, Yes, I take Imuran with the humira. My doc is a specialist in sarcoid and he has been running clinical trials on remicade and so far the drug has been very sucessful with majority of the patients but has not got it FDA approved yet. He thought about giving me remicade but since it is very strong and a high risk of allergic reactions he choose humira. I get a shot every two weeks and a follow-up MRI in three months. He is actually about two hours away from me so humira seemed like the safest choice. I start it tomorrow. Wish me luck actually prayers would be better. Angie --- Rose mamadogrose@...> wrote: --------------------------------- Angie, we're glad you found us, although I wish we had something else in common. Are the doctors who are going to administer the Humira pretty experienced with it? I'm just wondering if you need to take Methotrexate or another immune suppressant along with the Humira like you do with the Remicade, to prevent the formation of antibodies. Did your docs say anything about it? I think that Humira is in the same drug class as Remicade. Tracie, do you know? Anyway, Angie, good luck & keep us posted on how things are going. Ramblin' Rose Moderator --------------------------------- Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Humira Date: Sat, 12 Aug 2006 00:29:59 -0000 Hi everyone, My name is Angie and I wrote about a week ago about my neurosarc and trying to get humira paid for by my insurance. Well, they have agreed to pay 55% and I'm responsible for 45% which is still a lot but every little bit helps. It still will cost me $600. a month. Last year, it really helped, so I'm praying it will work this time. I'm starting to get symptoms like numbness on my face and dizziness. I'm 35 years old and have a little boy and a great husband. It scares me to read some of the messages about spouses that have turn their backs. But, I can see how one spouse being sick affects the other spouse, so I pray ours stay strong. Well, I was just reading all of your messages and it seems like you have really good friendships on this site. I'm glad I found it. Angie --------------------------------- Got something to buy, sell or swap? Try Windows Live Expo __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2006 Report Share Posted August 13, 2006 Rose, Yes, I take Imuran with the humira. My doc is a specialist in sarcoid and he has been running clinical trials on remicade and so far the drug has been very sucessful with majority of the patients but has not got it FDA approved yet. He thought about giving me remicade but since it is very strong and a high risk of allergic reactions he choose humira. I get a shot every two weeks and a follow-up MRI in three months. He is actually about two hours away from me so humira seemed like the safest choice. I start it tomorrow. Wish me luck actually prayers would be better. Angie --- Rose mamadogrose@...> wrote: --------------------------------- Angie, we're glad you found us, although I wish we had something else in common. Are the doctors who are going to administer the Humira pretty experienced with it? I'm just wondering if you need to take Methotrexate or another immune suppressant along with the Humira like you do with the Remicade, to prevent the formation of antibodies. Did your docs say anything about it? I think that Humira is in the same drug class as Remicade. Tracie, do you know? Anyway, Angie, good luck & keep us posted on how things are going. Ramblin' Rose Moderator --------------------------------- Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Humira Date: Sat, 12 Aug 2006 00:29:59 -0000 Hi everyone, My name is Angie and I wrote about a week ago about my neurosarc and trying to get humira paid for by my insurance. Well, they have agreed to pay 55% and I'm responsible for 45% which is still a lot but every little bit helps. It still will cost me $600. a month. Last year, it really helped, so I'm praying it will work this time. I'm starting to get symptoms like numbness on my face and dizziness. I'm 35 years old and have a little boy and a great husband. It scares me to read some of the messages about spouses that have turn their backs. But, I can see how one spouse being sick affects the other spouse, so I pray ours stay strong. Well, I was just reading all of your messages and it seems like you have really good friendships on this site. I'm glad I found it. Angie --------------------------------- Got something to buy, sell or swap? Try Windows Live Expo __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2006 Report Share Posted August 13, 2006 Rose, Yes, I take Imuran with the humira. My doc is a specialist in sarcoid and he has been running clinical trials on remicade and so far the drug has been very sucessful with majority of the patients but has not got it FDA approved yet. He thought about giving me remicade but since it is very strong and a high risk of allergic reactions he choose humira. I get a shot every two weeks and a follow-up MRI in three months. He is actually about two hours away from me so humira seemed like the safest choice. I start it tomorrow. Wish me luck actually prayers would be better. Angie --- Rose mamadogrose@...> wrote: --------------------------------- Angie, we're glad you found us, although I wish we had something else in common. Are the doctors who are going to administer the Humira pretty experienced with it? I'm just wondering if you need to take Methotrexate or another immune suppressant along with the Humira like you do with the Remicade, to prevent the formation of antibodies. Did your docs say anything about it? I think that Humira is in the same drug class as Remicade. Tracie, do you know? Anyway, Angie, good luck & keep us posted on how things are going. Ramblin' Rose Moderator --------------------------------- Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Humira Date: Sat, 12 Aug 2006 00:29:59 -0000 Hi everyone, My name is Angie and I wrote about a week ago about my neurosarc and trying to get humira paid for by my insurance. Well, they have agreed to pay 55% and I'm responsible for 45% which is still a lot but every little bit helps. It still will cost me $600. a month. Last year, it really helped, so I'm praying it will work this time. I'm starting to get symptoms like numbness on my face and dizziness. I'm 35 years old and have a little boy and a great husband. It scares me to read some of the messages about spouses that have turn their backs. But, I can see how one spouse being sick affects the other spouse, so I pray ours stay strong. Well, I was just reading all of your messages and it seems like you have really good friendships on this site. I'm glad I found it. Angie --------------------------------- Got something to buy, sell or swap? Try Windows Live Expo __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2006 Report Share Posted August 13, 2006 Angie, Have you thought about contacting Abbott Laboratories and asking if they would work out a plan where they would accept the 55% that your insurance company pays. They have a patient assistance program, and all they can say is no. And at the risk of sounding like a broken record, if you are working you may be able to get vocational rehabilitation in your state to pay the other 45%. Try not to worry to much where your marriage is concerned. Talk, read, and hold tight to God & each other. Sometimes worrying causes it own problems. Take Care..........Connie --- cytochic tagildow@...> wrote: > Hi everyone, > My name is Angie and I wrote about a week ago > about my neurosarc and > trying to get humira paid for by my insurance. > Well, they have agreed > to pay 55% and I'm responsible for 45% which is > still a lot but every > little bit helps. It still will cost me $600. a > month. Last year, it > really helped, so I'm praying it will work this > time. I'm starting to > get symptoms like numbness on my face and dizziness. > I'm 35 years old > and have a little boy and a great husband. It > scares me to read some > of the messages about spouses that have turn their > backs. But, I can > see how one spouse being sick affects the other > spouse, so I pray ours > stay strong. Well, I was just reading all of your > messages and it > seems like you have really good friendships on this > site. I'm glad I > found it. Angie > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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