RE: Re: Size 6 Pampers (Eilleen)

[Guest guest]

I am in Saratoga County I am jsut curious as to which doctors u see for your

mito.

We see Dr. in Albany and Dr. Maton. Although Dr.Maton is recommendnig

that we see

someone in NYC or Boston, however Caeden is to fragile to travel. So she

wants to try to send

info to a doc to look at and give input...

I am hoping ot connect with other ppl in my area.

mom to Caeden 31 mos Mito myop, CP, PVL, FTT, Silent aspiration

Laiken 9 yrs CP, Left hemi, Kidney probs, Neurogenic

bowel and bladder

Josh 15 Epileptic, ADHD

>

>Reply-To: Mito

>To: Mito

>Subject: Re: Size 6 Pampers

>Date: Fri, 16 Apr 2004 18:26:45 -0000

>

>We live in NY, and a waiver program is State Medicaid with it based

>on my Daughter's disability, not our income. We have been getting

>Pull up's and Goodnights free for over 18mo. Becca is 9 1/2 and the

>expense was killing us!

>With the Medicaid Waiver, we also get Service Coordination, which

>also helps tremendously. I've always been a strong advocate for

>her, but it really helps to have a " pro " on your side. I suggest

>that you contact a program near you, i.e., Catholic Charities, or

>ARC, and ask to speak to someone in Family Support regarding getting

>Service Coordination and the Waiver Services, if it's available to

>you. Good luck!! Eileen, mom to , 9 1/2 Mitochondrial

>Depletion Syndrome, Atypical Autism, Microcephally

>

> > What is a waiver program?

> >

> >

> > Re: Size 6 Pampers >Date: Fri,

>9 Apr 2004 01:10:15 EDT > >Hi! >My son Connor wears sz 6 pampers and

>we have a hard time getting them, and >affording them. We live in

>Hamden, Ct. Are they still available? >Thanks, >Nicki

> >

> >

> > -------------------------------------------------------------------

>---------

> > Get rid of annoying pop-up ads with the new MSN Toolbar †"

>FREE!

> >

> > Please contact mito-owner with any problems or

>questions.

> >

> >

> >

> >

> > Please contact mito-owner with any problems or

>questions.

> >

> >

> >

> > -------------------------------------------------------------------

>-----------

> >