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Re: frontal bossing

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Both of my boys have frontal bossing. I have read that it can be common trait in GAII.

Krystena s

Caden 5.9 yrs GAII

Carsen 10 mths GAII

frontal bossing

has anyone's child developed (not been born with) frontal bossing? This is by definition "an unusually prominent forehead".

In the last 12-18 months we have seen this develop in my youngest. At first we suspected too much growth hormone but his endocrinologist did testing and it seems he is actually somewhat resistant to it after all these years of supplementation and his levels of IGF are actually very low.

When i do a search on it it seems associated with a few genetic syndromes but of course sam does not have those chromosomal abnormalities. anyone else see this DEVELOP in their child?

Annewww.caringbridge.org/wi/zachsamPlease contact mito-owner with any problems or questions.

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