RE: acidosis??

April 16, 2004

Hi

whenever Colby has Co2 levels that low he has IV therapy, in the hospital. It sounds like she is dehydrated too. I can't believe she isn't in the hospital, I would call your DR, and have the lab work repeated and get some results done if they are abnormal. Colby always has his levels all over the place when he is acidodic.

best of luck

mom to Colby,13,COXIV,LCHAD,ACC,ADHD ,hypothroidism and osteopenia. Chad, 16, healthy, Caleb, 10, also healthy> >Reply-To: Mito >To: Mito >Subject: acidosis?? >Date: Fri, 16 Apr 2004 00:58:56 -0000 > Get rid of annoying pop-up ads with the new MSN Toolbar – FREE!

I took Lea in to the pediatrician yesterday because she has been

doing alot of gagging and throwing up, possibly related to her loss

of oral skills in the past few days. Like any mito child, she has

her cycles of weakness, and right now she seems to be incredibly

weak in her gross motor skills, but her oral skills are completely

lacking as compared to where she was before. OR- I thought maybe the

throwing up was causing her to NOT want to eat... Either way, I knew

she needed medical attention.

Her blood tests came back a little off from what they should have

been. Her total CO2 (I think that's what the ped said on the phone

when I talked to her) was only 17, which is pretty low and should be

22. So she said the word " acidosis " - which I never got a good answer

as to WHAT it was, and what needs to be done to correct it. As far

as I know, it just means that her body isn't elminating acid like it

should be-- but what causes this? Could this be what is causing her

weakness? or is her weakness a symptom of this? What can be done to

fix this?

Also, her blood sugar was a little low. She didn't have any thoughts

on that... although she said she was waiting to hear back from Lea's

dr at mayo to find out what we should do next.

And what is really strange is that even though she hasn't eaten much

in the last few days, she had gained 12oz in 9days!! I wondered if

she could be retaining fluids- the ped said that she didn't look

swollen to her-- but I really wonder. Lea goes through stages where

she just doesn't seem to have many wet diapers- for no apparent

reason.

Any thoughts?

le and baby Lea, 15mos, partial complex 1

Please contact mito-owner with any problems or questions.

April 16, 2004

le,

They told us that acidosis is just the chemical balance in your

body. You can get acidosis from exertion (remember the crying baby

on Andromedea Strain?) When was too acidodic they prescribed

Bicitra or Polycitra. Being acidodic affected him in different

ways. He was never hungry, the enamel on his teeth did not form

correctly, he did not grow or develop with his age group. The meds

did make him throw up but once he started getting them he started

making weight gains and developmental gains. There are two different

test that they do which check for this. The one you had done is not

as accurate according to our doc. The other test is for bicarb.

This is done usually as part of a " blood panel " . If you take the

test more than once on the same person you will get different answers

every time. So we tried to make sure that once he started the meds

we took the test at the sime time after each dosage.

Helpful?

Twana

> So she said the word " acidosis " - which I never got a good answer

> as to WHAT it was, and what needs to be done to correct it...

April 16, 2004