Guest guest Posted April 8, 2004 Report Share Posted April 8, 2004 Exhausted!! I just wanted to let you all know that I arrived safely home this afternoon. It was a very long and hard trip and hospital stay as well. I'm tolerating the lipid free TPN and will start it here at home in the morning. Still waiting on a lot of results and things and will have alot more to share soon. I can't thank you enough for your prayers, kind words on my CB site, calls and cards, gifts ,etc. You all are the best and I love you all. Sorry I'm not answering all the posts/messages personally. I have 900 e/mails! Hugs! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 , I'm sorry that this trip was so hard on you both with the testing and the transportation. It sounds as if you at least came away with some answers and hopefully some treatment that will help. It sounds like it is time for you to rest and recuperate from your ordeal. Hugs! Alice Mom and I flew home commercial today after waiting several days and couldn't get an Angel Flight. It was quite the ordeal with the security search, wait and chaos. I'm really exhausted! I wasn't able to sleep much being away from home and the tests were terrible. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 I'm sorry the testing and trip were so rough. I appreciate your letting us know when you must be exhausted. Please take care of your body and get lots and rest. Hugs, laurie > From: LILQT4U1984@... > Reply-To: > Date: Wed, 13 Oct 2004 18:03:19 EDT > To: tpnsupport , mito , > , Moonchild62579@..., > allyson.l.sisler@..., Utbrn@..., PaddockSwim9098@..., > @..., go.shirl@..., Catbecca83@..., > scosby@..., SheDeKold@..., anne02@..., > Cme4christ@..., Adia003509@..., Traci1175@..., IMJANER2@..., > Utahjo2@..., KateElle@..., kckoch76@..., Malnic2185@..., > Lillian@..., Malilibear@..., davidm0508@..., > Marta608@..., nikkinetgirl@..., bethb48@..., > kodonnell2@..., digby@..., > Wearingxblack@..., roseschussler@..., aaschwenk@..., > Staceyje@..., PJS3067198@..., laurice_stevens@..., > HiyaChica@..., LEMT13@..., JenRWaterman85@... > Subject: Home > > Mom and I flew home commercial today after waiting several days and couldn't > get an Angel Flight. It was quite the ordeal with the security search, wait > and chaos. I'm really exhausted! I wasn't able to sleep much being away from > home and the tests were terrible. I will have to return for the upper > manometry testing as the doc. felt I couldn't handle anymore stress on my body > at > this time. I had an upper endoscopy with biopsies, colonoscopy with biopsy > and > colonic manometry. My colon looked " funny " it was dark and wet looking. It > has some big scary name but the pathology report was benign. The colonic > manometry showed some probs. but before a surgical consult is obtained I will > have > to have the upper manometry. As of now I'm to stay on my current meds and can > take a stimulant as needed. I had my eyes checked by the neuro optho. and > the mito hasn't affected my eyes so that was a praise. I do however have dry > eye > syndrome and am VERY nearsighted with poor tear ducts so he put me on gel > med. for that. I met with my mito doc. and he is sending some muscle to > Columbia for further testing. He is also going to treat my low glutathione > with IV > NAC. My gene test should be done anytime in Atlanta. This was by far one of > my > harder and more painful trips but I still feel that I did make some progress > and hope that the leads will develp into something helpful in the end. Thank > you so much for your prayers! > > > Quote Link to comment Share on other sites More sharing options...
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