Re: - Asenath's Make-A-Wish/4th B-day!!!

[Guest guest]

We do have a large family room in the basement. It is pretty cool down there now. Almost like a theater. We don't have a video camera but Dean's (my hubby) father had one here for the party and was taping some of it for us. We really want ot borrow/rent a video camera soon to be able to get Asenath singing or playing with her dinosaurs. I know this would be a hard memory but a wonderful one also for later on. I just can't imagine NOT having some videos of her to watch. It would really be hard for me to know I could have had her on tape and not did it. I keep telling my hubby that, but we just haven't done it yet. Now we will have some, but not enough for me. Of course, I hope we have many more years to do it in, but if we don't, I want to do it now. It has been a fun day but also hard because I knew many people came for her party thinking it may be her last. It is hard having to update people over and over again how she is and what her prognosis is also. I had to do that on the phone multiple times this past week. Plus dealing with the wheelchair fitting and OT evaluation for Porrah, plus other stuff I won't get into, made this a very long, tiring week. But the party was so special and Asenath was very happy! Sorry I am going on... Darla Re: Asenath's Make-A-Wish/4th B-day!!! Hi Darla: That sounds like a wonderful make a wish; especially if it is hard to travel and this is a wonderful family get together; especially in the winter. I can't imgines such a large screen. Do you have a large room to put it in? I was trying to picture some thing that large in our living room; because Leah loves tv and her favorite videos are the Baby Einstein videos. Now, especially the animal ones. Do you have a video camera so you can view her big birthday next week on the big tv? I know Leah loves to look at herself and also recognizes her family members and gets excited to see them on "tv". I hope the birthday party is a true celebration of being 4. What a milestone for her and your family. Celebrate loud, wild, and just plain full of fun. Nerenhausen mom to Leah Darla Klein wrote: This week we got Asenath's Wish Gift. Because she loves her "Land Before Time" Dinosaur movies, we were recommended a big screen 57" tv w/ a VCR/DVD and surround sound home theater system. They also surprised us with about 10 DVD's and videos. Asenath loved the t-shirt and was so happy about the DVD's they chose. She has been watching her dinosaur friends on a huge tv and really enjoying it. We feel the choice was a good one and she will enjoy it for a long time to come, not to mention the rest of the family. My older kids think it is awesome! It is almost like being in a theater. It was great timing too because Asenath's 4th birthday is next Wednesday, the 3rd, and we are having a big party for her in our home. She is real excited about it! I just love to see her smile; i seems like the smiles haven't been as frequent with all the steroid bloating. Darla: m! ommy to Asenath, Zipporrah, and the gang Please contact mito-owner with any problems or questions. This message scanned for viruses by Corecomm Get more from the Web. FREE MSN Explorer download : http://explorer.msn.comPlease contact mito-owner with any problems or questions. Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

[Guest guest]

Don't apologize for going on. It was fun to hear about the party.

You just got me thinking that we don't have Leah on video. We've

watched videos when the boys had their birthday parties and to look at

when he was 5 and 2 and what they could do brings a smile

to my face. All mothers can relate looking at pictures when their

"babies" were little and the innoence of life. You know I had to

think of you today because when I saw Good Morning America and they talked

about this mom who adopted 6 girls. Not sure the exact story behind

it. But they called her super mom. A part of me was disappointed

in what they consider super mom and I thought of you and what I would call

a super mom. And all the super moms in this group. What we

do on a daily basis. Yes I'm sure her days are full; but with able

bodied kids they are able to help with getting dressed, feeding themselves,

picking up after themselves. A mom may be running kids to and from

activities; but have you ever been a parent having to run an able bodied

child to an activitity with a child in a wheelchair; or trying to lead

an average life and not be able to do things always as a family because

we can't expose our children to a group of people because of illness; or

that child gets sensory overload because of all that is going on around

them. We are the super moms; super parents. Dealing with fun

parties and having to explain to every one how our child is doing trying

to be positive in the fact of people; but yet going on with life knowing

things can change in a heart beat.

I'm so glad Asenath's party was special. I pray that this isn't

her last and she will have fun looking at herself in the video. We

must borrow a camera real soon and just start recording Leah's life and

the boys too. I'm glad the party was a success; now you need to take

a breather and hopefully let calgon take you away for a few moments.

Nerenhausen

mom to Leah

Darla Klein wrote:

We do have a large

family room in the basement. It is pretty cool down there now.

Almost like a theater. We don't have a video camera but Dean's (my

hubby) father had one here for the party and was taping some of it for

us. We really want ot borrow/rent a video camera soon to be able

to get Asenath singing or playing with her dinosaurs. I know this

would be a hard memory but a wonderful one also for later on. I just

can't imagine NOT having some videos of her to watch. It would really

be hard for me to know I could have had her on tape and not did it.

I keep telling my hubby that, but we just haven't done it yet. Now

we will have some, but not enough for me. Of course, I hope we have

many more years to do it in, but if we don't, I want to do it now.

It has been a fun day but also hard because I knew many people came for

her party thinking it may ! be her last. It is hard having to update

people over and over again how she is and what her prognosis is also.

I had to do that on the phone multiple times this past week. Plus

dealing with the wheelchair fitting and OT evaluation for Porrah,

plus other stuff I won't get into, made this a very long, tiring week.

But the party was so special and Asenath was very happy! Sorry I

am going on... Darla

Re: Asenath's Make-A-Wish/4th

B-day!!!

Hi Darla:

That sounds like a wonderful make a wish; especially if it is hard to

travel and this is a wonderful family get together; especially in the winter.

I can't imgines such a large screen. Do you have a large room to

put it in? I was trying to picture some thing that large in our living

room; because Leah loves tv and her favorite videos are the Baby Einstein

videos. Now, especially the animal ones. Do you have a video

camera so you can view her big birthday next week on the big tv?

I know Leah loves to look at herself and also recognizes her family members

and gets excited to see them on "tv". I hope the birthday party is

a true celebration of being 4. What a milestone for her and your

family. Celebrate loud, wild, and just plain full of fun.

Nerenhausen

mom to Leah

Darla Klein wrote:

This week we got

Asenath's Wish Gift. ! Because she loves her "Land Before Time" Dinosaur

movies, we were recommended a big screen 57" tv w/ a VCR/DVD and surround

sound home theater system. They also surprised us with about 10 DVD's

and videos. Asenath loved the t-shirt and was so happy about the

DVD's they chose. She has been watching her dinosaur friends on a

huge tv and really enjoying it. We feel the choice was a good one

and she will enjoy it for a long time to come, not to mention the rest

of the family. My older kids think it is awesome! It is almost

like being in a theater. It was great timing too because Asenath's

4th birthday is next Wednesday, the 3rd, and we are having a big party

for her in our home. She is real excited about it! I just love

to see her smile; i seems like the smiles haven't been as frequent with

all the steroid bloating. Darla: m! ommy to Asenath, Zipporrah, and the

gang

Please contact mito-owner@yahoogro! ups.com with any problems or

questions.

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[Guest guest]

Don't apologize for going on. It was fun to hear about the party.

You just got me thinking that we don't have Leah on video. We've

watched videos when the boys had their birthday parties and to look at

when he was 5 and 2 and what they could do brings a smile

to my face. All mothers can relate looking at pictures when their

"babies" were little and the innoence of life. You know I had to

think of you today because when I saw Good Morning America and they talked

about this mom who adopted 6 girls. Not sure the exact story behind

it. But they called her super mom. A part of me was disappointed

in what they consider super mom and I thought of you and what I would call

a super mom. And all the super moms in this group. What we

do on a daily basis. Yes I'm sure her days are full; but with able

bodied kids they are able to help with getting dressed, feeding themselves,

picking up after themselves. A mom may be running kids to and from

activities; but have you ever been a parent having to run an able bodied

child to an activitity with a child in a wheelchair; or trying to lead

an average life and not be able to do things always as a family because

we can't expose our children to a group of people because of illness; or

that child gets sensory overload because of all that is going on around

them. We are the super moms; super parents. Dealing with fun

parties and having to explain to every one how our child is doing trying

to be positive in the fact of people; but yet going on with life knowing

things can change in a heart beat.

I'm so glad Asenath's party was special. I pray that this isn't

her last and she will have fun looking at herself in the video. We

must borrow a camera real soon and just start recording Leah's life and

the boys too. I'm glad the party was a success; now you need to take

a breather and hopefully let calgon take you away for a few moments.

Nerenhausen

mom to Leah

Darla Klein wrote:

We do have a large

family room in the basement. It is pretty cool down there now.

Almost like a theater. We don't have a video camera but Dean's (my

hubby) father had one here for the party and was taping some of it for

us. We really want ot borrow/rent a video camera soon to be able

to get Asenath singing or playing with her dinosaurs. I know this

would be a hard memory but a wonderful one also for later on. I just

can't imagine NOT having some videos of her to watch. It would really

be hard for me to know I could have had her on tape and not did it.

I keep telling my hubby that, but we just haven't done it yet. Now

we will have some, but not enough for me. Of course, I hope we have

many more years to do it in, but if we don't, I want to do it now.

It has been a fun day but also hard because I knew many people came for

her party thinking it may ! be her last. It is hard having to update

people over and over again how she is and what her prognosis is also.

I had to do that on the phone multiple times this past week. Plus

dealing with the wheelchair fitting and OT evaluation for Porrah,

plus other stuff I won't get into, made this a very long, tiring week.

But the party was so special and Asenath was very happy! Sorry I

am going on... Darla

Re: Asenath's Make-A-Wish/4th

B-day!!!

Hi Darla:

That sounds like a wonderful make a wish; especially if it is hard to

travel and this is a wonderful family get together; especially in the winter.

I can't imgines such a large screen. Do you have a large room to

put it in? I was trying to picture some thing that large in our living

room; because Leah loves tv and her favorite videos are the Baby Einstein

videos. Now, especially the animal ones. Do you have a video

camera so you can view her big birthday next week on the big tv?

I know Leah loves to look at herself and also recognizes her family members

and gets excited to see them on "tv". I hope the birthday party is

a true celebration of being 4. What a milestone for her and your

family. Celebrate loud, wild, and just plain full of fun.

Nerenhausen

mom to Leah

Darla Klein wrote:

This week we got

Asenath's Wish Gift. ! Because she loves her "Land Before Time" Dinosaur

movies, we were recommended a big screen 57" tv w/ a VCR/DVD and surround

sound home theater system. They also surprised us with about 10 DVD's

and videos. Asenath loved the t-shirt and was so happy about the

DVD's they chose. She has been watching her dinosaur friends on a

huge tv and really enjoying it. We feel the choice was a good one

and she will enjoy it for a long time to come, not to mention the rest

of the family. My older kids think it is awesome! It is almost

like being in a theater. It was great timing too because Asenath's

4th birthday is next Wednesday, the 3rd, and we are having a big party

for her in our home. She is real excited about it! I just love

to see her smile; i seems like the smiles haven't been as frequent with

all the steroid bloating. Darla: m! ommy to Asenath, Zipporrah, and the

gang

Please contact mito-owner@yahoogro! ups.com with any problems or

questions.

This

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Please contact mito-owner with any problems or questions.

Please contact mito-owner with any problems or questions.

This

message scanned for viruses by Corecomm

Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

[Guest guest]

Don't apologize for going on. It was fun to hear about the party.

You just got me thinking that we don't have Leah on video. We've

watched videos when the boys had their birthday parties and to look at

when he was 5 and 2 and what they could do brings a smile

to my face. All mothers can relate looking at pictures when their

"babies" were little and the innoence of life. You know I had to

think of you today because when I saw Good Morning America and they talked

about this mom who adopted 6 girls. Not sure the exact story behind

it. But they called her super mom. A part of me was disappointed

in what they consider super mom and I thought of you and what I would call

a super mom. And all the super moms in this group. What we

do on a daily basis. Yes I'm sure her days are full; but with able

bodied kids they are able to help with getting dressed, feeding themselves,

picking up after themselves. A mom may be running kids to and from

activities; but have you ever been a parent having to run an able bodied

child to an activitity with a child in a wheelchair; or trying to lead

an average life and not be able to do things always as a family because

we can't expose our children to a group of people because of illness; or

that child gets sensory overload because of all that is going on around

them. We are the super moms; super parents. Dealing with fun

parties and having to explain to every one how our child is doing trying

to be positive in the fact of people; but yet going on with life knowing

things can change in a heart beat.

I'm so glad Asenath's party was special. I pray that this isn't

her last and she will have fun looking at herself in the video. We

must borrow a camera real soon and just start recording Leah's life and

the boys too. I'm glad the party was a success; now you need to take

a breather and hopefully let calgon take you away for a few moments.

Nerenhausen

mom to Leah

Darla Klein wrote:

We do have a large

family room in the basement. It is pretty cool down there now.

Almost like a theater. We don't have a video camera but Dean's (my

hubby) father had one here for the party and was taping some of it for

us. We really want ot borrow/rent a video camera soon to be able

to get Asenath singing or playing with her dinosaurs. I know this

would be a hard memory but a wonderful one also for later on. I just

can't imagine NOT having some videos of her to watch. It would really

be hard for me to know I could have had her on tape and not did it.

I keep telling my hubby that, but we just haven't done it yet. Now

we will have some, but not enough for me. Of course, I hope we have

many more years to do it in, but if we don't, I want to do it now.

It has been a fun day but also hard because I knew many people came for

her party thinking it may ! be her last. It is hard having to update

people over and over again how she is and what her prognosis is also.

I had to do that on the phone multiple times this past week. Plus

dealing with the wheelchair fitting and OT evaluation for Porrah,

plus other stuff I won't get into, made this a very long, tiring week.

But the party was so special and Asenath was very happy! Sorry I

am going on... Darla

Re: Asenath's Make-A-Wish/4th

B-day!!!

Hi Darla:

That sounds like a wonderful make a wish; especially if it is hard to

travel and this is a wonderful family get together; especially in the winter.

I can't imgines such a large screen. Do you have a large room to

put it in? I was trying to picture some thing that large in our living

room; because Leah loves tv and her favorite videos are the Baby Einstein

videos. Now, especially the animal ones. Do you have a video

camera so you can view her big birthday next week on the big tv?

I know Leah loves to look at herself and also recognizes her family members

and gets excited to see them on "tv". I hope the birthday party is

a true celebration of being 4. What a milestone for her and your

family. Celebrate loud, wild, and just plain full of fun.

Nerenhausen

mom to Leah

Darla Klein wrote:

This week we got

Asenath's Wish Gift. ! Because she loves her "Land Before Time" Dinosaur

movies, we were recommended a big screen 57" tv w/ a VCR/DVD and surround

sound home theater system. They also surprised us with about 10 DVD's

and videos. Asenath loved the t-shirt and was so happy about the

DVD's they chose. She has been watching her dinosaur friends on a

huge tv and really enjoying it. We feel the choice was a good one

and she will enjoy it for a long time to come, not to mention the rest

of the family. My older kids think it is awesome! It is almost

like being in a theater. It was great timing too because Asenath's

4th birthday is next Wednesday, the 3rd, and we are having a big party

for her in our home. She is real excited about it! I just love

to see her smile; i seems like the smiles haven't been as frequent with

all the steroid bloating. Darla: m! ommy to Asenath, Zipporrah, and the

gang

Please contact mito-owner@yahoogro! ups.com with any problems or

questions.

This

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Please contact mito-owner with any problems or questions.

Please contact mito-owner with any problems or questions.

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