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Re: Asenath's Make-A-Wish/4th B-day!!!

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Hi Darla:

That sounds like a wonderful make a wish; especially if it is hard to

travel and this is a wonderful family get together; especially in the winter.

I can't imgines such a large screen. Do you have a large room to

put it in? I was trying to picture some thing that large in our living

room; because Leah loves tv and her favorite videos are the Baby Einstein

videos. Now, especially the animal ones. Do you have a video

camera so you can view her big birthday next week on the big tv?

I know Leah loves to look at herself and also recognizes her family members

and gets excited to see them on "tv". I hope the birthday party is

a true celebration of being 4. What a milestone for her and your

family. Celebrate loud, wild, and just plain full of fun.

Nerenhausen

mom to Leah

Darla Klein wrote:

This week we got Asenath's

Wish Gift. Because she loves her "Land Before Time" Dinosaur movies,

we were recommended a big screen 57" tv w/ a VCR/DVD and surround sound

home theater system. They also surprised us with about 10 DVD's and

videos. Asenath loved the t-shirt and was so happy about the DVD's

they chose. She has been watching her dinosaur friends on a huge

tv and really enjoying it. We feel the choice was a good one and

she will enjoy it for a long time to come, not to mention the rest of the

family. My older kids think it is awesome! It is almost like

being in a theater. It was great timing too because Asenath's 4th

birthday is next Wednesday, the 3rd, and we are having a big party for

her in our home. She is real excited about it! I just love

to see her smile; i seems like the smiles haven't been as frequent with

all the steroid bloating. Darla: m! ommy to Asenath, Zipporrah, and

the gang

Please contact mito-owner with any problems or questions.

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Hi Darla:

That sounds like a wonderful make a wish; especially if it is hard to

travel and this is a wonderful family get together; especially in the winter.

I can't imgines such a large screen. Do you have a large room to

put it in? I was trying to picture some thing that large in our living

room; because Leah loves tv and her favorite videos are the Baby Einstein

videos. Now, especially the animal ones. Do you have a video

camera so you can view her big birthday next week on the big tv?

I know Leah loves to look at herself and also recognizes her family members

and gets excited to see them on "tv". I hope the birthday party is

a true celebration of being 4. What a milestone for her and your

family. Celebrate loud, wild, and just plain full of fun.

Nerenhausen

mom to Leah

Darla Klein wrote:

This week we got Asenath's

Wish Gift. Because she loves her "Land Before Time" Dinosaur movies,

we were recommended a big screen 57" tv w/ a VCR/DVD and surround sound

home theater system. They also surprised us with about 10 DVD's and

videos. Asenath loved the t-shirt and was so happy about the DVD's

they chose. She has been watching her dinosaur friends on a huge

tv and really enjoying it. We feel the choice was a good one and

she will enjoy it for a long time to come, not to mention the rest of the

family. My older kids think it is awesome! It is almost like

being in a theater. It was great timing too because Asenath's 4th

birthday is next Wednesday, the 3rd, and we are having a big party for

her in our home. She is real excited about it! I just love

to see her smile; i seems like the smiles haven't been as frequent with

all the steroid bloating. Darla: m! ommy to Asenath, Zipporrah, and

the gang

Please contact mito-owner with any problems or questions.

This

message scanned for viruses by Corecomm

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Hi Darla:

That sounds like a wonderful make a wish; especially if it is hard to

travel and this is a wonderful family get together; especially in the winter.

I can't imgines such a large screen. Do you have a large room to

put it in? I was trying to picture some thing that large in our living

room; because Leah loves tv and her favorite videos are the Baby Einstein

videos. Now, especially the animal ones. Do you have a video

camera so you can view her big birthday next week on the big tv?

I know Leah loves to look at herself and also recognizes her family members

and gets excited to see them on "tv". I hope the birthday party is

a true celebration of being 4. What a milestone for her and your

family. Celebrate loud, wild, and just plain full of fun.

Nerenhausen

mom to Leah

Darla Klein wrote:

This week we got Asenath's

Wish Gift. Because she loves her "Land Before Time" Dinosaur movies,

we were recommended a big screen 57" tv w/ a VCR/DVD and surround sound

home theater system. They also surprised us with about 10 DVD's and

videos. Asenath loved the t-shirt and was so happy about the DVD's

they chose. She has been watching her dinosaur friends on a huge

tv and really enjoying it. We feel the choice was a good one and

she will enjoy it for a long time to come, not to mention the rest of the

family. My older kids think it is awesome! It is almost like

being in a theater. It was great timing too because Asenath's 4th

birthday is next Wednesday, the 3rd, and we are having a big party for

her in our home. She is real excited about it! I just love

to see her smile; i seems like the smiles haven't been as frequent with

all the steroid bloating. Darla: m! ommy to Asenath, Zipporrah, and

the gang

Please contact mito-owner with any problems or questions.

This

message scanned for viruses by Corecomm

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I am glad she enjoyed her wish. Zachary is due to have hi speople

meet w/ him for his. Was it odd when u applied for it? like a

reality that something could happen . I guess my mom said she doesnt

see zach as having a life threatening disease but he was in the

hospital on o2 in july for 3 days so i would think that would put

him as life threatening no?

mom to zach 3 ga2 alexis 5

> This week we got Asenath's Wish Gift. Because she loves

her " Land Before Time " Dinosaur movies, we were recommended a big

screen 57 " tv w/ a VCR/DVD and surround sound home theater system.

They also surprised us with about 10 DVD's and videos. Asenath

loved the t-shirt and was so happy about the DVD's they chose. She

has been watching her dinosaur friends on a huge tv and really

enjoying it. We feel the choice was a good one and she will enjoy

it for a long time to come, not to mention the rest of the family.

My older kids think it is awesome! It is almost like being in a

theater. It was great timing too because Asenath's 4th birthday is

next Wednesday, the 3rd, and we are having a big party for her in

our home. She is real excited about it! I just love to see her

smile; i seems like the smiles haven't been as frequent with all the

steroid bloating.

>

> Darla: mommy to Asenath, Zipporrah, and the gangGet more from the

Web. FREE MSN Explorer download : http://explorer.msn.com

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I am glad she enjoyed her wish. Zachary is due to have hi speople

meet w/ him for his. Was it odd when u applied for it? like a

reality that something could happen . I guess my mom said she doesnt

see zach as having a life threatening disease but he was in the

hospital on o2 in july for 3 days so i would think that would put

him as life threatening no?

mom to zach 3 ga2 alexis 5

> This week we got Asenath's Wish Gift. Because she loves

her " Land Before Time " Dinosaur movies, we were recommended a big

screen 57 " tv w/ a VCR/DVD and surround sound home theater system.

They also surprised us with about 10 DVD's and videos. Asenath

loved the t-shirt and was so happy about the DVD's they chose. She

has been watching her dinosaur friends on a huge tv and really

enjoying it. We feel the choice was a good one and she will enjoy

it for a long time to come, not to mention the rest of the family.

My older kids think it is awesome! It is almost like being in a

theater. It was great timing too because Asenath's 4th birthday is

next Wednesday, the 3rd, and we are having a big party for her in

our home. She is real excited about it! I just love to see her

smile; i seems like the smiles haven't been as frequent with all the

steroid bloating.

>

> Darla: mommy to Asenath, Zipporrah, and the gangGet more from the

Web. FREE MSN Explorer download : http://explorer.msn.com

Link to comment
Share on other sites

I am glad she enjoyed her wish. Zachary is due to have hi speople

meet w/ him for his. Was it odd when u applied for it? like a

reality that something could happen . I guess my mom said she doesnt

see zach as having a life threatening disease but he was in the

hospital on o2 in july for 3 days so i would think that would put

him as life threatening no?

mom to zach 3 ga2 alexis 5

> This week we got Asenath's Wish Gift. Because she loves

her " Land Before Time " Dinosaur movies, we were recommended a big

screen 57 " tv w/ a VCR/DVD and surround sound home theater system.

They also surprised us with about 10 DVD's and videos. Asenath

loved the t-shirt and was so happy about the DVD's they chose. She

has been watching her dinosaur friends on a huge tv and really

enjoying it. We feel the choice was a good one and she will enjoy

it for a long time to come, not to mention the rest of the family.

My older kids think it is awesome! It is almost like being in a

theater. It was great timing too because Asenath's 4th birthday is

next Wednesday, the 3rd, and we are having a big party for her in

our home. She is real excited about it! I just love to see her

smile; i seems like the smiles haven't been as frequent with all the

steroid bloating.

>

> Darla: mommy to Asenath, Zipporrah, and the gangGet more from the

Web. FREE MSN Explorer download : http://explorer.msn.com

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Happy Birthday Asenath! Enjoy your new TV, the dinosaurs must seem

like they are right in the house with you.

Geri-Anne and Wyatt, Complex I-

-- In Mito , " Darla Klein "

wrote:

> This week we got Asenath's Wish Gift. Because she loves

her " Land Before Time " Dinosaur movies, we were recommended a big

screen 57 " tv w/ a VCR/DVD and surround sound home theater system.

They also surprised us with about 10 DVD's and videos. Asenath

loved the t-shirt and was so happy about the DVD's they chose. She

has been watching her dinosaur friends on a huge tv and really

enjoying it. We feel the choice was a good one and she will enjoy

it for a long time to come, not to mention the rest of the family.

My older kids think it is awesome! It is almost like being in a

theater. It was great timing too because Asenath's 4th birthday is

next Wednesday, the 3rd, and we are having a big party for her in

our home. She is real excited about it! I just love to see her

smile; i seems like the smiles haven't been as frequent with all the

steroid bloating.

>

> Darla: mommy to Asenath, Zipporrah, and the gangGet more from the

Web. FREE MSN Explorer download : http://explorer.msn.com

Link to comment
Share on other sites

The reason we applied was because we already knew her condition was life threatening. Of course, we have the brain vasculitis on top of the Mito so we could NOT know how serious her condition is. Every day we have with her is a blessing. The possibility of her having a stroke that kills her is always before our eyes. Every time I give her her steroid I know it is her only chance or at least a chance to prolong her life. I think without the vasculitis she might do ok for quite a while, but with the vasculitis, her prognosis is much more grim. Sorry your mom doesn't see Mito in a clear light. We know in this group that Mito can be fatal for our kids. Some have it much more serious than others for sure, but it is still an unknown for each of us. Thanks for the note. Darla Re: Asenath's Make-A-Wish/4th B-day!!! I am glad she enjoyed her wish. Zachary is due to have hi speople meet w/ him for his. Was it odd when u applied for it? like a reality that something could happen . I guess my mom said she doesnt see zach as having a life threatening disease but he was in the hospital on o2 in july for 3 days so i would think that would put him as life threatening no? mom to zach 3 ga2 alexis 5> This week we got Asenath's Wish Gift. Because she loves her "Land Before Time" Dinosaur movies, we were recommended a big screen 57" tv w/ a VCR/DVD and surround sound home theater system. They also surprised us with about 10 DVD's and videos. Asenath loved the t-shirt and was so happy about the DVD's they chose. She has been watching her dinosaur friends on a huge tv and really enjoying it. We feel the choice was a good one and she will enjoy it for a long time to come, not to mention the rest of the family. My older kids think it is awesome! It is almost like being in a theater. It was great timing too because Asenath's 4th birthday is next Wednesday, the 3rd, and we are having a big party for her in our home. She is real excited about it! I just love to see her smile; i seems like the smiles haven't been as frequent with all the steroid bloating.> > Darla: mommy to Asenath, Zipporrah, and the gangGet more from the Web. FREE MSN Explorer download : http://explorer.msn.comPlease contact mito-owner with any problems or questions.

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Share on other sites

The reason we applied was because we already knew her condition was life threatening. Of course, we have the brain vasculitis on top of the Mito so we could NOT know how serious her condition is. Every day we have with her is a blessing. The possibility of her having a stroke that kills her is always before our eyes. Every time I give her her steroid I know it is her only chance or at least a chance to prolong her life. I think without the vasculitis she might do ok for quite a while, but with the vasculitis, her prognosis is much more grim. Sorry your mom doesn't see Mito in a clear light. We know in this group that Mito can be fatal for our kids. Some have it much more serious than others for sure, but it is still an unknown for each of us. Thanks for the note. Darla Re: Asenath's Make-A-Wish/4th B-day!!! I am glad she enjoyed her wish. Zachary is due to have hi speople meet w/ him for his. Was it odd when u applied for it? like a reality that something could happen . I guess my mom said she doesnt see zach as having a life threatening disease but he was in the hospital on o2 in july for 3 days so i would think that would put him as life threatening no? mom to zach 3 ga2 alexis 5> This week we got Asenath's Wish Gift. Because she loves her "Land Before Time" Dinosaur movies, we were recommended a big screen 57" tv w/ a VCR/DVD and surround sound home theater system. They also surprised us with about 10 DVD's and videos. Asenath loved the t-shirt and was so happy about the DVD's they chose. She has been watching her dinosaur friends on a huge tv and really enjoying it. We feel the choice was a good one and she will enjoy it for a long time to come, not to mention the rest of the family. My older kids think it is awesome! It is almost like being in a theater. It was great timing too because Asenath's 4th birthday is next Wednesday, the 3rd, and we are having a big party for her in our home. She is real excited about it! I just love to see her smile; i seems like the smiles haven't been as frequent with all the steroid bloating.> > Darla: mommy to Asenath, Zipporrah, and the gangGet more from the Web. FREE MSN Explorer download : http://explorer.msn.comPlease contact mito-owner with any problems or questions.

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The reason we applied was because we already knew her condition was life threatening. Of course, we have the brain vasculitis on top of the Mito so we could NOT know how serious her condition is. Every day we have with her is a blessing. The possibility of her having a stroke that kills her is always before our eyes. Every time I give her her steroid I know it is her only chance or at least a chance to prolong her life. I think without the vasculitis she might do ok for quite a while, but with the vasculitis, her prognosis is much more grim. Sorry your mom doesn't see Mito in a clear light. We know in this group that Mito can be fatal for our kids. Some have it much more serious than others for sure, but it is still an unknown for each of us. Thanks for the note. Darla Re: Asenath's Make-A-Wish/4th B-day!!! I am glad she enjoyed her wish. Zachary is due to have hi speople meet w/ him for his. Was it odd when u applied for it? like a reality that something could happen . I guess my mom said she doesnt see zach as having a life threatening disease but he was in the hospital on o2 in july for 3 days so i would think that would put him as life threatening no? mom to zach 3 ga2 alexis 5> This week we got Asenath's Wish Gift. Because she loves her "Land Before Time" Dinosaur movies, we were recommended a big screen 57" tv w/ a VCR/DVD and surround sound home theater system. They also surprised us with about 10 DVD's and videos. Asenath loved the t-shirt and was so happy about the DVD's they chose. She has been watching her dinosaur friends on a huge tv and really enjoying it. We feel the choice was a good one and she will enjoy it for a long time to come, not to mention the rest of the family. My older kids think it is awesome! It is almost like being in a theater. It was great timing too because Asenath's 4th birthday is next Wednesday, the 3rd, and we are having a big party for her in our home. She is real excited about it! I just love to see her smile; i seems like the smiles haven't been as frequent with all the steroid bloating.> > Darla: mommy to Asenath, Zipporrah, and the gangGet more from the Web. FREE MSN Explorer download : http://explorer.msn.comPlease contact mito-owner with any problems or questions.

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