Guest guest Posted May 24, 2006 Report Posted May 24, 2006 The sun doesn't bother you? If I am in the light any length of time I get so sick and weak it isn't funny. It will put an end to whatever I'm doing real quick, and when I do come in out of it I can't stay awake. If I sit down, I conk out///Connie I can handle the sun ok, if I have sunscreen and it's cool out. Add the heat, and I'm screwed. I do find that if I make sure to get the fluids down, I'll tolerate the sun better--hmmm, I think that one is Health 101. LOL! (and it took years for me to catch on) Alot of the meds I'm on do make me more sensitive to sunlight--so I burn easier, and then if I blister--the sarc loves the blistered spot to send the white cells to--and never stop. . So, it's sunscreen, a hat, long sleeve cotton shirt, and plenty of ice tea or water. (Go decaf, as the caffeine adds to dehydration) Quote
Guest guest Posted May 24, 2006 Report Posted May 24, 2006 The sun doesn't bother you? If I am in the light any length of time I get so sick and weak it isn't funny. It will put an end to whatever I'm doing real quick, and when I do come in out of it I can't stay awake. If I sit down, I conk out///Connie I can handle the sun ok, if I have sunscreen and it's cool out. Add the heat, and I'm screwed. I do find that if I make sure to get the fluids down, I'll tolerate the sun better--hmmm, I think that one is Health 101. LOL! (and it took years for me to catch on) Alot of the meds I'm on do make me more sensitive to sunlight--so I burn easier, and then if I blister--the sarc loves the blistered spot to send the white cells to--and never stop. . So, it's sunscreen, a hat, long sleeve cotton shirt, and plenty of ice tea or water. (Go decaf, as the caffeine adds to dehydration) Quote
Guest guest Posted May 25, 2006 Report Posted May 25, 2006 I just read an article in Reader's Digest about sun protection. It mentioned a product that makes your clothes more protective & lasts through like 20 washes. I know just wearing a shirt doesn't do it for me; I can burn right through it. I'll look for the article, but I'm sure the info would be on the RD website. Ramblin' Rose Moderator From: tiodaat@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: sunDate: Thu, 25 May 2006 02:30:21 EDT The sun doesn't bother you? If I am in the light any length of time I get so sick and weak it isn't funny. It will put an end to whatever I'm doing real quick, and when I do come in out of it I can't stay awake. If I sit down, I conk out///ConnieI can handle the sun ok, if I have sunscreen and it's cool out. Add the heat, and I'm screwed.I do find that if I make sure to get the fluids down, I'll tolerate the sun better--hmmm, I think that one is Health 101. LOL! (and it took years for me to catch on)Alot of the meds I'm on do make me more sensitive to sunlight--so I burn easier, and then if I blister--the sarc loves the blistered spot to send the white cells to--and never stop. . So, it's sunscreen, a hat, long sleeve cotton shirt, and plenty of ice tea or water. (Go decaf, as the caffeine adds to dehydration) ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote
Guest guest Posted May 25, 2006 Report Posted May 25, 2006 I just read an article in Reader's Digest about sun protection. It mentioned a product that makes your clothes more protective & lasts through like 20 washes. I know just wearing a shirt doesn't do it for me; I can burn right through it. I'll look for the article, but I'm sure the info would be on the RD website. Ramblin' Rose Moderator From: tiodaat@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: sunDate: Thu, 25 May 2006 02:30:21 EDT The sun doesn't bother you? If I am in the light any length of time I get so sick and weak it isn't funny. It will put an end to whatever I'm doing real quick, and when I do come in out of it I can't stay awake. If I sit down, I conk out///ConnieI can handle the sun ok, if I have sunscreen and it's cool out. Add the heat, and I'm screwed.I do find that if I make sure to get the fluids down, I'll tolerate the sun better--hmmm, I think that one is Health 101. LOL! (and it took years for me to catch on)Alot of the meds I'm on do make me more sensitive to sunlight--so I burn easier, and then if I blister--the sarc loves the blistered spot to send the white cells to--and never stop. . So, it's sunscreen, a hat, long sleeve cotton shirt, and plenty of ice tea or water. (Go decaf, as the caffeine adds to dehydration) ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote
Guest guest Posted May 25, 2006 Report Posted May 25, 2006 I did some research on that last year, and found that sun doesn’t go through silk, so I have a couple of light weight silk long sleeve shirts, that I put over my tank tops when I’m outside and they do work pretty good, I got them through the Chadwick’s of Boston catalog and they were reasonable price. Anyway they work for me. FYI Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Thursday, May 25, 2006 12:59 AM To: Neurosarcoidosis Subject: Re: sun I just read an article in Reader's Digest about sun protection. It mentioned a product that makes your clothes more protective & lasts through like 20 washes. I know just wearing a shirt doesn't do it for me; I can burn right through it. I'll look for the article, but I'm sure the info would be on the RD website. Ramblin' Rose Moderator From: tiodaat@... Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: sun Date: Thu, 25 May 2006 02:30:21 EDT In a message dated 5/24/06 7:17:19 AM Pacific Daylight Time, conaugusta@... writes: The sun doesn't bother you? If I am in the light any length of time I get so sick and weak it isn't funny. It will put an end to whatever I'm doing real quick, and when I do come in out of it I can't stay awake. If I sit down, I conk out///Connie I can handle the sun ok, if I have sunscreen and it's cool out. Add the heat, and I'm screwed. I do find that if I make sure to get the fluids down, I'll tolerate the sun better--hmmm, I think that one is Health 101. LOL! (and it took years for me to catch on) Alot of the meds I'm on do make me more sensitive to sunlight--so I burn easier, and then if I blister--the sarc loves the blistered spot to send the white cells to--and never stop. . So, it's sunscreen, a hat, long sleeve cotton shirt, and plenty of ice tea or water. (Go decaf, as the caffeine adds to dehydration) ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Neurosarcoidosis Community NS CHAT:- Has been cancelled for now. Message Archives:- http://groups.yahoo.com/group/Neurosarcoidosis/messages Members Database:- Listings of locations, phone numbers, and instant messengers. http://groups.yahoo.com/group/Neurosarcoidosis/database Quote
Guest guest Posted May 25, 2006 Report Posted May 25, 2006 I did some research on that last year, and found that sun doesn’t go through silk, so I have a couple of light weight silk long sleeve shirts, that I put over my tank tops when I’m outside and they do work pretty good, I got them through the Chadwick’s of Boston catalog and they were reasonable price. Anyway they work for me. FYI Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Thursday, May 25, 2006 12:59 AM To: Neurosarcoidosis Subject: Re: sun I just read an article in Reader's Digest about sun protection. It mentioned a product that makes your clothes more protective & lasts through like 20 washes. I know just wearing a shirt doesn't do it for me; I can burn right through it. I'll look for the article, but I'm sure the info would be on the RD website. Ramblin' Rose Moderator From: tiodaat@... Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: sun Date: Thu, 25 May 2006 02:30:21 EDT In a message dated 5/24/06 7:17:19 AM Pacific Daylight Time, conaugusta@... writes: The sun doesn't bother you? If I am in the light any length of time I get so sick and weak it isn't funny. It will put an end to whatever I'm doing real quick, and when I do come in out of it I can't stay awake. If I sit down, I conk out///Connie I can handle the sun ok, if I have sunscreen and it's cool out. Add the heat, and I'm screwed. I do find that if I make sure to get the fluids down, I'll tolerate the sun better--hmmm, I think that one is Health 101. LOL! (and it took years for me to catch on) Alot of the meds I'm on do make me more sensitive to sunlight--so I burn easier, and then if I blister--the sarc loves the blistered spot to send the white cells to--and never stop. . So, it's sunscreen, a hat, long sleeve cotton shirt, and plenty of ice tea or water. (Go decaf, as the caffeine adds to dehydration) ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Neurosarcoidosis Community NS CHAT:- Has been cancelled for now. Message Archives:- http://groups.yahoo.com/group/Neurosarcoidosis/messages Members Database:- Listings of locations, phone numbers, and instant messengers. http://groups.yahoo.com/group/Neurosarcoidosis/database Quote
Guest guest Posted May 25, 2006 Report Posted May 25, 2006 I did some research on that last year, and found that sun doesn’t go through silk, so I have a couple of light weight silk long sleeve shirts, that I put over my tank tops when I’m outside and they do work pretty good, I got them through the Chadwick’s of Boston catalog and they were reasonable price. Anyway they work for me. FYI Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Thursday, May 25, 2006 12:59 AM To: Neurosarcoidosis Subject: Re: sun I just read an article in Reader's Digest about sun protection. It mentioned a product that makes your clothes more protective & lasts through like 20 washes. I know just wearing a shirt doesn't do it for me; I can burn right through it. I'll look for the article, but I'm sure the info would be on the RD website. Ramblin' Rose Moderator From: tiodaat@... Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: sun Date: Thu, 25 May 2006 02:30:21 EDT In a message dated 5/24/06 7:17:19 AM Pacific Daylight Time, conaugusta@... writes: The sun doesn't bother you? If I am in the light any length of time I get so sick and weak it isn't funny. It will put an end to whatever I'm doing real quick, and when I do come in out of it I can't stay awake. If I sit down, I conk out///Connie I can handle the sun ok, if I have sunscreen and it's cool out. Add the heat, and I'm screwed. I do find that if I make sure to get the fluids down, I'll tolerate the sun better--hmmm, I think that one is Health 101. LOL! (and it took years for me to catch on) Alot of the meds I'm on do make me more sensitive to sunlight--so I burn easier, and then if I blister--the sarc loves the blistered spot to send the white cells to--and never stop. . So, it's sunscreen, a hat, long sleeve cotton shirt, and plenty of ice tea or water. (Go decaf, as the caffeine adds to dehydration) ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Neurosarcoidosis Community NS CHAT:- Has been cancelled for now. Message Archives:- http://groups.yahoo.com/group/Neurosarcoidosis/messages Members Database:- Listings of locations, phone numbers, and instant messengers. http://groups.yahoo.com/group/Neurosarcoidosis/database Quote
Guest guest Posted May 26, 2006 Report Posted May 26, 2006 If I was in a cheeky mood myself i'd say she had some pretty big ones, hey? yeah, and ask for the name of her plastic surgeon! Ramblin' Rose Moderator With MSN Spaces email straight to your blog. Upload jokes, photos and more. It's free! Quote
Guest guest Posted May 26, 2006 Report Posted May 26, 2006 If I was in a cheeky mood myself i'd say she had some pretty big ones, hey? yeah, and ask for the name of her plastic surgeon! Ramblin' Rose Moderator With MSN Spaces email straight to your blog. Upload jokes, photos and more. It's free! Quote
Guest guest Posted May 26, 2006 Report Posted May 26, 2006 If I was in a cheeky mood myself i'd say she had some pretty big ones, hey? yeah, and ask for the name of her plastic surgeon! Ramblin' Rose Moderator With MSN Spaces email straight to your blog. Upload jokes, photos and more. It's free! Quote
Guest guest Posted May 26, 2006 Report Posted May 26, 2006 Thanks Rose......ConnieRose wrote: I just read an article in Reader's Digest about sun protection. It mentioned a product that makes your clothes more protective & lasts through like 20 washes. I know just wearing a shirt doesn't do it for me; I can burn right through it. I'll look for the article, but I'm sure the info would be on the RD website. Ramblin' Rose Moderator From: tiodaat@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: sunDate: Thu, 25 May 2006 02:30:21 EDT The sun doesn't bother you? If I am in the light any length of time I get so sick and weak it isn't funny. It will put an end to whatever I'm doing real quick, and when I do come in out of it I can't stay awake. If I sit down, I conk out///ConnieI can handle the sun ok, if I have sunscreen and it's cool out. Add the heat, and I'm screwed.I do find that if I make sure to get the fluids down, I'll tolerate the sun better--hmmm, I think that one is Health 101. LOL! (and it took years for me to catch on)Alot of the meds I'm on do make me more sensitive to sunlight--so I burn easier, and then if I blister--the sarc loves the blistered spot to send the white cells to--and never stop. . So, it's sunscreen, a hat, long sleeve cotton shirt, and plenty of ice tea or water. (Go decaf, as the caffeine adds to dehydration) ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote
Guest guest Posted May 26, 2006 Report Posted May 26, 2006 Thanks Rose......ConnieRose wrote: I just read an article in Reader's Digest about sun protection. It mentioned a product that makes your clothes more protective & lasts through like 20 washes. I know just wearing a shirt doesn't do it for me; I can burn right through it. I'll look for the article, but I'm sure the info would be on the RD website. Ramblin' Rose Moderator From: tiodaat@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: sunDate: Thu, 25 May 2006 02:30:21 EDT The sun doesn't bother you? If I am in the light any length of time I get so sick and weak it isn't funny. It will put an end to whatever I'm doing real quick, and when I do come in out of it I can't stay awake. If I sit down, I conk out///ConnieI can handle the sun ok, if I have sunscreen and it's cool out. Add the heat, and I'm screwed.I do find that if I make sure to get the fluids down, I'll tolerate the sun better--hmmm, I think that one is Health 101. LOL! (and it took years for me to catch on)Alot of the meds I'm on do make me more sensitive to sunlight--so I burn easier, and then if I blister--the sarc loves the blistered spot to send the white cells to--and never stop. . So, it's sunscreen, a hat, long sleeve cotton shirt, and plenty of ice tea or water. (Go decaf, as the caffeine adds to dehydration) ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote
Guest guest Posted May 26, 2006 Report Posted May 26, 2006 Last year when the girls and I from the foundation did the ACS Relay for Life, we each received a flyer about a clothing line that is lightweight but impenetrable to the sun's rays. It was VERY interesting. I'll see if I can find it, or if one of my buddies has a copy for me. I'll get you the info, if I can! Hugs, JeannieMarla Bramer wrote: I did some research on that last year, and found that sun doesn’t go through silk, so I have a couple of light weight silk long sleeve shirts, that I put over my tank tops when I’m outside and they do work pretty good, I got them through the Chadwick’s of Boston catalog and they were reasonable price. Anyway they work for me. FYI Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Thursday, May 25, 2006 12:59 AMTo: Neurosarcoidosis Subject: Re: sun I just read an article in Reader's Digest about sun protection. It mentioned a product that makes your clothes more protective & lasts through like 20 washes. I know just wearing a shirt doesn't do it for me; I can burn right through it. I'll look for the article, but I'm sure the info would be on the RD website. Ramblin' Rose Moderator From: tiodaat@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: sunDate: Thu, 25 May 2006 02:30:21 EDT The sun doesn't bother you? If I am in the light any length of time I get so sick and weak it isn't funny. It will put an end to whatever I'm doing real quick, and when I do come in out of it I can't stay awake. If I sit down, I conk out///Connie I can handle the sun ok, if I have sunscreen and it's cool out. Add the heat, and I'm screwed.I do find that if I make sure to get the fluids down, I'll tolerate the sun better--hmmm, I think that one is Health 101. LOL! (and it took years for me to catch on)Alot of the meds I'm on do make me more sensitive to sunlight--so I burn easier, and then if I blister--the sarc loves the blistered spot to send the white cells to--and never stop. . So, it's sunscreen, a hat, long sleeve cotton shirt, and plenty of ice tea or water. (Go decaf, as the caffeine adds to dehydration) ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote
Guest guest Posted May 26, 2006 Report Posted May 26, 2006 Last year when the girls and I from the foundation did the ACS Relay for Life, we each received a flyer about a clothing line that is lightweight but impenetrable to the sun's rays. It was VERY interesting. I'll see if I can find it, or if one of my buddies has a copy for me. I'll get you the info, if I can! Hugs, JeannieMarla Bramer wrote: I did some research on that last year, and found that sun doesn’t go through silk, so I have a couple of light weight silk long sleeve shirts, that I put over my tank tops when I’m outside and they do work pretty good, I got them through the Chadwick’s of Boston catalog and they were reasonable price. Anyway they work for me. FYI Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Thursday, May 25, 2006 12:59 AMTo: Neurosarcoidosis Subject: Re: sun I just read an article in Reader's Digest about sun protection. It mentioned a product that makes your clothes more protective & lasts through like 20 washes. I know just wearing a shirt doesn't do it for me; I can burn right through it. I'll look for the article, but I'm sure the info would be on the RD website. Ramblin' Rose Moderator From: tiodaat@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: sunDate: Thu, 25 May 2006 02:30:21 EDT The sun doesn't bother you? If I am in the light any length of time I get so sick and weak it isn't funny. It will put an end to whatever I'm doing real quick, and when I do come in out of it I can't stay awake. If I sit down, I conk out///Connie I can handle the sun ok, if I have sunscreen and it's cool out. Add the heat, and I'm screwed.I do find that if I make sure to get the fluids down, I'll tolerate the sun better--hmmm, I think that one is Health 101. LOL! (and it took years for me to catch on)Alot of the meds I'm on do make me more sensitive to sunlight--so I burn easier, and then if I blister--the sarc loves the blistered spot to send the white cells to--and never stop. . So, it's sunscreen, a hat, long sleeve cotton shirt, and plenty of ice tea or water. (Go decaf, as the caffeine adds to dehydration) ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote
Guest guest Posted May 26, 2006 Report Posted May 26, 2006 Last year when the girls and I from the foundation did the ACS Relay for Life, we each received a flyer about a clothing line that is lightweight but impenetrable to the sun's rays. It was VERY interesting. I'll see if I can find it, or if one of my buddies has a copy for me. I'll get you the info, if I can! Hugs, JeannieMarla Bramer wrote: I did some research on that last year, and found that sun doesn’t go through silk, so I have a couple of light weight silk long sleeve shirts, that I put over my tank tops when I’m outside and they do work pretty good, I got them through the Chadwick’s of Boston catalog and they were reasonable price. Anyway they work for me. FYI Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose Sent: Thursday, May 25, 2006 12:59 AMTo: Neurosarcoidosis Subject: Re: sun I just read an article in Reader's Digest about sun protection. It mentioned a product that makes your clothes more protective & lasts through like 20 washes. I know just wearing a shirt doesn't do it for me; I can burn right through it. I'll look for the article, but I'm sure the info would be on the RD website. Ramblin' Rose Moderator From: tiodaat@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: sunDate: Thu, 25 May 2006 02:30:21 EDT The sun doesn't bother you? If I am in the light any length of time I get so sick and weak it isn't funny. It will put an end to whatever I'm doing real quick, and when I do come in out of it I can't stay awake. If I sit down, I conk out///Connie I can handle the sun ok, if I have sunscreen and it's cool out. Add the heat, and I'm screwed.I do find that if I make sure to get the fluids down, I'll tolerate the sun better--hmmm, I think that one is Health 101. LOL! (and it took years for me to catch on)Alot of the meds I'm on do make me more sensitive to sunlight--so I burn easier, and then if I blister--the sarc loves the blistered spot to send the white cells to--and never stop. . So, it's sunscreen, a hat, long sleeve cotton shirt, and plenty of ice tea or water. (Go decaf, as the caffeine adds to dehydration) ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote
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