Re: what this group means to me

[Guest guest]

how nice and how true.

although I do not know any of you personally nor do a post daily, I

do come here for comfort and a sense of friendship. and I try to

read posts on a daily basis. you all are a support system for me

and thank I am thankful.

I keep all of the children and families in my heart.

bethany

mom to brennan 7, palmer & anna grace (leighs) 4

> Hi All:

>

> Well I never realize how well I feel I know everyone in this

group. I

> always felt that I sort of knew who you were but only as an

> acquaintance. I see pictures and still felt that you were some

one I

> corresponded with via email; and I always tell people I have a

support

> group on the internet regarding Leah's disability. Well today was

sort

> of an eye opener for me. I know teach a seventh grade Sunday

School

> class and we were talking about what is God's purpose for me.

Talking

> about traits and talents and how we can use them in our lives.

Gave an

> example of a person they know that was injured and how could they

use

> their talents for that person. Well it came time for a prayer and

I had

> them write on a card a friend or an adult of some one they could

meet

> their needs for with their talents and traits. Well I was

including

> Audrey in my prayer because of the last email Kathy sent and really

> wanted the kids to know we can pray for anyone. Well as I got to

saying

> Audrey's name I started to get all teary eyed and choked up and

the

> kids sort of looked up to me as I was saying the words of my

prayer and

> I believe it was good to see an adult show such emotion in

prayer. So

> you guys mean more to me than I realize. I thank you for this

group and

> the support we all offer each other. Good times and bad times.

This

> type of friendship is neat and we have some thing in common. I

try not

> to look at the common thread being our sick children; but as Ann

said in

> her journal; we have changed our lives because of our children and

look

> at things differently. And our kids who have siblings with this

disease

> learn to care beyond what an average child would care for their

> sibling. Another example of this is, we had a Valentine tea at our

> church. I was the chair person and was doing a reading on poetry

and

> things regarding " Love " and then I was having the kids do a

little play

> on love called Thorn Rose. was taking care of Leah in the

church

> nursery because I knew she would get bored at the tea. Well he

wanted

> to see the play and so brought Leah down in her kidkart and was

watching

> it from the doorway. I didn't see what he was doing; but our

minister

> came up and said he was showing such care and love for his sister

that

> watching him she suddenly realized that became her valentine. It

> touched me that what he was doing with his sister comes so

naturally to

> him. So that our kids and their siblings show a true love and

care to

> us and those around us and yes for that I am glad about Leah

because of

> what she has taught her brothers that I couldn't begin to teach

unless

> it is done by example. May each day be Valentines Day in our

hearts and

> that we show what true love and care is for other people; even

people we

> don't know or haven't met yet. You all are always in my mind no

matter

> where I am in this world I think of my mito friends and what you

have

> given me.

>

> Nerenhausen

> mom to Leah, , and a very wonderful supportive

husband,

>