Guest guest Posted February 14, 2004 Report Share Posted February 14, 2004 The answer to your question is Yes. The technology is amazing and you have me for a resource. You must have been in the seminar I gave in Dallas. Join http://www.groups.yahoo.com/group/cihear The group will be a great support to you as you prepare for this very special child who has been given the advantage of a miracle. The internal components of a CI are warrantied for 10 years.. the external parts are for 3. There are very rare occasions when an implant can need to be replaced but this is a very simple surgery. This is not something you need to worry aboug but if it should happen, insurance pays the cost of an implant and the follow up appointments. Parenting a child with an implnat will give you some new and exciting things to look forward to as you teach the child what sound is all about. How old is she? Also..join us at the Hearing Exchange on Wednesday nights from 9-11PM Eastern where we chat about cochlear implants. I'm the moderator of that chat. http://www.hearingexchange.com and go to chat. It's to bad I didn't know this last week as Betsy Moog was a guest on Thursday night and she is very well know for her work with implanted children. She'll be back. Deb, I'm very excited to read this. Alice > Hi there > > Well, the big news around here is we are trying to adopt a little girl. We > are considering a little girl with Cerebral Palsy , who is also deaf. We just > found out she got a cochlear implant in the last couple months. She is making > much improvement since getting it. Now I got to attend the seminar on > implants at the Mito conference and I remember how they work and where they are > placed and what they look like, but I don't recall how much hearing they restore. > If they ever have to be replaced? Could a previously deaf child speak > normally after getting an implant? Would she still benefit from an Oral school, > signing and learning to lip-read? > > thanks a ton > > deb...mom to three great adopted kids... (07.04.96- 05.26.03) with > Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and > Bliss age 2 with very very mild Cerebral Palsy. > www.HeartLiftersGallery.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2004 Report Share Posted February 14, 2004 The answer to your question is Yes. The technology is amazing and you have me for a resource. You must have been in the seminar I gave in Dallas. Join http://www.groups.yahoo.com/group/cihear The group will be a great support to you as you prepare for this very special child who has been given the advantage of a miracle. The internal components of a CI are warrantied for 10 years.. the external parts are for 3. There are very rare occasions when an implant can need to be replaced but this is a very simple surgery. This is not something you need to worry aboug but if it should happen, insurance pays the cost of an implant and the follow up appointments. Parenting a child with an implnat will give you some new and exciting things to look forward to as you teach the child what sound is all about. How old is she? Also..join us at the Hearing Exchange on Wednesday nights from 9-11PM Eastern where we chat about cochlear implants. I'm the moderator of that chat. http://www.hearingexchange.com and go to chat. It's to bad I didn't know this last week as Betsy Moog was a guest on Thursday night and she is very well know for her work with implanted children. She'll be back. Deb, I'm very excited to read this. Alice > Hi there > > Well, the big news around here is we are trying to adopt a little girl. We > are considering a little girl with Cerebral Palsy , who is also deaf. We just > found out she got a cochlear implant in the last couple months. She is making > much improvement since getting it. Now I got to attend the seminar on > implants at the Mito conference and I remember how they work and where they are > placed and what they look like, but I don't recall how much hearing they restore. > If they ever have to be replaced? Could a previously deaf child speak > normally after getting an implant? Would she still benefit from an Oral school, > signing and learning to lip-read? > > thanks a ton > > deb...mom to three great adopted kids... (07.04.96- 05.26.03) with > Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and > Bliss age 2 with very very mild Cerebral Palsy. > www.HeartLiftersGallery.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2004 Report Share Posted February 14, 2004 The answer to your question is Yes. The technology is amazing and you have me for a resource. You must have been in the seminar I gave in Dallas. Join http://www.groups.yahoo.com/group/cihear The group will be a great support to you as you prepare for this very special child who has been given the advantage of a miracle. The internal components of a CI are warrantied for 10 years.. the external parts are for 3. There are very rare occasions when an implant can need to be replaced but this is a very simple surgery. This is not something you need to worry aboug but if it should happen, insurance pays the cost of an implant and the follow up appointments. Parenting a child with an implnat will give you some new and exciting things to look forward to as you teach the child what sound is all about. How old is she? Also..join us at the Hearing Exchange on Wednesday nights from 9-11PM Eastern where we chat about cochlear implants. I'm the moderator of that chat. http://www.hearingexchange.com and go to chat. It's to bad I didn't know this last week as Betsy Moog was a guest on Thursday night and she is very well know for her work with implanted children. She'll be back. Deb, I'm very excited to read this. Alice > Hi there > > Well, the big news around here is we are trying to adopt a little girl. We > are considering a little girl with Cerebral Palsy , who is also deaf. We just > found out she got a cochlear implant in the last couple months. She is making > much improvement since getting it. Now I got to attend the seminar on > implants at the Mito conference and I remember how they work and where they are > placed and what they look like, but I don't recall how much hearing they restore. > If they ever have to be replaced? Could a previously deaf child speak > normally after getting an implant? Would she still benefit from an Oral school, > signing and learning to lip-read? > > thanks a ton > > deb...mom to three great adopted kids... (07.04.96- 05.26.03) with > Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and > Bliss age 2 with very very mild Cerebral Palsy. > www.HeartLiftersGallery.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2004 Report Share Posted February 14, 2004 Sounds like exciting news for you. I am sure you will be a great mom for her. I think it is great that you are already planning ahead and researching to make her life the best it possibly can be. Best wishes with the adoption. Darla: mommy to Asenath, Zipporrah, and the gang Cochlear Implants Hi there Well, the big news around here is we are trying to adopt a little girl. We are considering a little girl with Cerebral Palsy , who is also deaf. We just found out she got a cochlear implant in the last couple months. She is making much improvement since getting it. Now I got to attend the seminar on implants at the Mito conference and I remember how they work and where they are placed and what they look like, but I don't recall how much hearing they restore. If they ever have to be replaced? Could a previously deaf child speak normally after getting an implant? Would she still benefit from an Oral school, signing and learning to lip-read? thanks a ton deb..mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and Bliss age 2 with very very mild Cerebral Palsy.www.HeartLiftersGallery.comPlease contact mito-owner with any problems or questions. Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2004 Report Share Posted February 14, 2004 Sounds like exciting news for you. I am sure you will be a great mom for her. I think it is great that you are already planning ahead and researching to make her life the best it possibly can be. Best wishes with the adoption. Darla: mommy to Asenath, Zipporrah, and the gang Cochlear Implants Hi there Well, the big news around here is we are trying to adopt a little girl. We are considering a little girl with Cerebral Palsy , who is also deaf. We just found out she got a cochlear implant in the last couple months. She is making much improvement since getting it. Now I got to attend the seminar on implants at the Mito conference and I remember how they work and where they are placed and what they look like, but I don't recall how much hearing they restore. If they ever have to be replaced? Could a previously deaf child speak normally after getting an implant? Would she still benefit from an Oral school, signing and learning to lip-read? thanks a ton deb..mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and Bliss age 2 with very very mild Cerebral Palsy.www.HeartLiftersGallery.comPlease contact mito-owner with any problems or questions. Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2004 Report Share Posted February 14, 2004 Sounds like exciting news for you. I am sure you will be a great mom for her. I think it is great that you are already planning ahead and researching to make her life the best it possibly can be. Best wishes with the adoption. Darla: mommy to Asenath, Zipporrah, and the gang Cochlear Implants Hi there Well, the big news around here is we are trying to adopt a little girl. We are considering a little girl with Cerebral Palsy , who is also deaf. We just found out she got a cochlear implant in the last couple months. She is making much improvement since getting it. Now I got to attend the seminar on implants at the Mito conference and I remember how they work and where they are placed and what they look like, but I don't recall how much hearing they restore. If they ever have to be replaced? Could a previously deaf child speak normally after getting an implant? Would she still benefit from an Oral school, signing and learning to lip-read? thanks a ton deb..mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and Bliss age 2 with very very mild Cerebral Palsy.www.HeartLiftersGallery.comPlease contact mito-owner with any problems or questions. Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 Deb, Those are BIG questions and every deaf child’s parents have there own opinions on what works best. Let me say that the best advice is to use what ever YOU think will work for your family and the child. Now, that said let me expand. Personally, my son received a cochlear implant and was doing wonderfully with it for about a year and we are one of the very few (almost unheard of) where the implant is no longer working for us. (MITO has reared it’s ugly head once again). I have been signing to since birth and do not regret it for one moment and now am very happy that I have because he is now completely deaf – again. With the implant, was able to hear at 40 Db – which would be a mild hearing loss. I work at a Deaf School that has a pre-school class of deaf children (ages 3 to 5) and by age 5 or 6 these kids are speaking SO well that they no longer use sign AND speak so well you would hardly know that they were deaf at all. Not every child has that kind of success – I firmly believe that whatever method the parents believe in is what will work for that family. Good Luck Deb and feel free to e-mail me off-list if you want more personal info – this really sparks debate on the Cochlear Implant Chat Room. Sue Ann Bube Cochlear Implants Hi there Well, the big news around here is we are trying to adopt a little girl. We are considering a little girl with Cerebral Palsy , who is also deaf. We just found out she got a cochlear implant in the last couple months. She is making much improvement since getting it. Now I got to attend the seminar on implants at the Mito conference and I remember how they work and where they are placed and what they look like, but I don't recall how much hearing they restore. If they ever have to be replaced? Could a previously deaf child speak normally after getting an implant? Would she still benefit from an Oral school, signing and learning to lip-read? thanks a ton deb...mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and Bliss age 2 with very very mild Cerebral Palsy. www.HeartLiftersGallery.com Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 Hi Sue, This is an excellent response as I believe all deaf children should be learning signing as a second language. Of course, that's my opinion and could spark some contray comments. Have you had a second opinion on that implant problem? I ask this because I have recently found out that my first implant was surgically implanted wrong and the cause of the problems there. Have they done integrity testing on it to make sure it's not the implant itself? Who told you that this was due to the Mito? The reason I question this is because I've had a recent flurry of e mails with one of the major mito specialists about this and the responses were that Mito can only affect the cochlea and not the nerve. That being the case..since the implant is there to stimulate the nerve - the implant should work. Aside from that - with a central auditory processing disorder, it's not likely that an implant can be helpful. Which CI Chatroom are you discussing this in? Alice > Deb, > > Those are BIG questions and every deaf child's parents have there own > opinions on what works best. Let me say that the best advice is to use > what ever YOU think will work for your family and the child. Now, that > said let me expand. > > Personally, my son received a cochlear implant and was doing wonderfully > with it for about a year and we are one of the very few (almost unheard > of) where the implant is no longer working for us. (MITO has reared it's > ugly head once again). I have been signing to since birth and do > not regret it for one moment and now am very happy that I have because > he is now completely deaf - again. With the implant, was able to > hear at 40 Db - which would be a mild hearing loss. > > I work at a Deaf School that has a pre-school class of deaf children > (ages 3 to 5) and by age 5 or 6 these kids are speaking SO well that > they no longer use sign AND speak so well you would hardly know that > they were deaf at all. Not every child has that kind of success - I > firmly believe that whatever method the parents believe in is what will > work for that family. > > Good Luck Deb and feel free to e-mail me off-list if you want more > personal info - this really sparks debate on the Cochlear Implant Chat > Room. > > Sue Ann Bube > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 Hi Sue, This is an excellent response as I believe all deaf children should be learning signing as a second language. Of course, that's my opinion and could spark some contray comments. Have you had a second opinion on that implant problem? I ask this because I have recently found out that my first implant was surgically implanted wrong and the cause of the problems there. Have they done integrity testing on it to make sure it's not the implant itself? Who told you that this was due to the Mito? The reason I question this is because I've had a recent flurry of e mails with one of the major mito specialists about this and the responses were that Mito can only affect the cochlea and not the nerve. That being the case..since the implant is there to stimulate the nerve - the implant should work. Aside from that - with a central auditory processing disorder, it's not likely that an implant can be helpful. Which CI Chatroom are you discussing this in? Alice > Deb, > > Those are BIG questions and every deaf child's parents have there own > opinions on what works best. Let me say that the best advice is to use > what ever YOU think will work for your family and the child. Now, that > said let me expand. > > Personally, my son received a cochlear implant and was doing wonderfully > with it for about a year and we are one of the very few (almost unheard > of) where the implant is no longer working for us. (MITO has reared it's > ugly head once again). I have been signing to since birth and do > not regret it for one moment and now am very happy that I have because > he is now completely deaf - again. With the implant, was able to > hear at 40 Db - which would be a mild hearing loss. > > I work at a Deaf School that has a pre-school class of deaf children > (ages 3 to 5) and by age 5 or 6 these kids are speaking SO well that > they no longer use sign AND speak so well you would hardly know that > they were deaf at all. Not every child has that kind of success - I > firmly believe that whatever method the parents believe in is what will > work for that family. > > Good Luck Deb and feel free to e-mail me off-list if you want more > personal info - this really sparks debate on the Cochlear Implant Chat > Room. > > Sue Ann Bube > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 Interesting. Why can’t Mito have an effect on the nerve? has had other nerve problems: Cranial Nerve 7 and 5 have recently been affected. The nerve’s have 2,000 mitochondrial per cell where muscle only has 500. Why couldn’t the nerve have stopped working? We are going to meet with the surgeon on Wednesday. The nurse has said that the implant has moved inside the cochlea – now I don’t know if it has moved enough to affect ’s ability to hear. The implant itself is working fine. The Audiologist has shut down 6 of the 12 electrodes due to major facial stem but the implant is still working according to the integrity testing. I have faith in ’s ENT who does the implanting – he was one of the first and has published several major papers on cochlear implants. I am on cicircle – it’s a list serve for parents with implanted children. Sue Ann Bube Re: Cochlear Implants Hi Sue, This is an excellent response as I believe all deaf children should be learning signing as a second language. Of course, that's my opinion and could spark some contray comments. Have you had a second opinion on that implant problem? I ask this because I have recently found out that my first implant was surgically implanted wrong and the cause of the problems there. Have they done integrity testing on it to make sure it's not the implant itself? Who told you that this was due to the Mito? The reason I question this is because I've had a recent flurry of e mails with one of the major mito specialists about this and the responses were that Mito can only affect the cochlea and not the nerve. That being the case..since the implant is there to stimulate the nerve - the implant should work. Aside from that - with a central auditory processing disorder, it's not likely that an implant can be helpful. Which CI Chatroom are you discussing this in? Alice > Deb, > > Those are BIG questions and every deaf child's parents have there own > opinions on what works best. Let me say that the best advice is to use > what ever YOU think will work for your family and the child. Now, that > said let me expand. > > Personally, my son received a cochlear implant and was doing wonderfully > with it for about a year and we are one of the very few (almost unheard > of) where the implant is no longer working for us. (MITO has reared it's > ugly head once again). I have been signing to since birth and do > not regret it for one moment and now am very happy that I have because > he is now completely deaf - again. With the implant, was able to > hear at 40 Db - which would be a mild hearing loss. > > I work at a Deaf School that has a pre-school class of deaf children > (ages 3 to 5) and by age 5 or 6 these kids are speaking SO well that > they no longer use sign AND speak so well you would hardly know that > they were deaf at all. Not every child has that kind of success - I > firmly believe that whatever method the parents believe in is what will > work for that family. > > Good Luck Deb and feel free to e-mail me off-list if you want more > personal info - this really sparks debate on the Cochlear Implant Chat > Room. > > Sue Ann Bube > Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 I don't know. I had the same opinion but this is what I was told. Alice > > Deb, > > > > Those are BIG questions and every deaf child's parents have there > own > > opinions on what works best. Let me say that the best advice is to > use > > what ever YOU think will work for your family and the child. Now, > that > > said let me expand. > > > > Personally, my son received a cochlear implant and was doing > wonderfully > > with it for about a year and we are one of the very few (almost > unheard > > of) where the implant is no longer working for us. (MITO has > reared it's > > ugly head once again). I have been signing to since birth > and do > > not regret it for one moment and now am very happy that I have > because > > he is now completely deaf - again. With the implant, was > able to > > hear at 40 Db - which would be a mild hearing loss. > > > > I work at a Deaf School that has a pre-school class of deaf > children > > (ages 3 to 5) and by age 5 or 6 these kids are speaking SO well > that > > they no longer use sign AND speak so well you would hardly know > that > > they were deaf at all. Not every child has that kind of success - I > > firmly believe that whatever method the parents believe in is what > will > > work for that family. > > > > Good Luck Deb and feel free to e-mail me off-list if you want more > > personal info - this really sparks debate on the Cochlear Implant > Chat > > Room. > > > > Sue Ann Bube > > > > > > > Please contact mito-owner with any problems or > questions. > > > > _____ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 I don't know. I had the same opinion but this is what I was told. Alice > > Deb, > > > > Those are BIG questions and every deaf child's parents have there > own > > opinions on what works best. Let me say that the best advice is to > use > > what ever YOU think will work for your family and the child. Now, > that > > said let me expand. > > > > Personally, my son received a cochlear implant and was doing > wonderfully > > with it for about a year and we are one of the very few (almost > unheard > > of) where the implant is no longer working for us. (MITO has > reared it's > > ugly head once again). I have been signing to since birth > and do > > not regret it for one moment and now am very happy that I have > because > > he is now completely deaf - again. With the implant, was > able to > > hear at 40 Db - which would be a mild hearing loss. > > > > I work at a Deaf School that has a pre-school class of deaf > children > > (ages 3 to 5) and by age 5 or 6 these kids are speaking SO well > that > > they no longer use sign AND speak so well you would hardly know > that > > they were deaf at all. Not every child has that kind of success - I > > firmly believe that whatever method the parents believe in is what > will > > work for that family. > > > > Good Luck Deb and feel free to e-mail me off-list if you want more > > personal info - this really sparks debate on the Cochlear Implant > Chat > > Room. > > > > Sue Ann Bube > > > > > > > Please contact mito-owner with any problems or > questions. > > > > _____ > > Quote Link to comment Share on other sites More sharing options...
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