Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 My daughter Lexi has fought the urine retention battle for several years (she's nearly 6 now). She can go up to 48 hrs without any urine output, often strains to get urine out, and won't even go in to try unless reminded. We have had VCUG test done on her bladder last year, where they fill her bladder up using a catheter, then ask her to void, then shoot an ultrasound to see how much is left in the bladder and if any refluxed into the kidneys. They filled her bladder with the cath, she couldn't et ANY out even though she was crying with the pain. Finally i put her on the toilet and she voided until she said she was empty. We shot the ultrasound. She was still completely full. That told us she probably doesn't ever have the sensation of having to go until it's an emergency situation. Her bladder has been stretched out over and over and that eventually it just loses sensitivity to the sensation. We had the best luck with using our mito doc and our general GP to steer us in the right direction. I'm sure there are good urologists out there, but not around here! Hope you can find the answers you need! ruth mom to Mitch and Lexi, both mito affected Quote Link to comment Share on other sites More sharing options...
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