Re: Re: Travel to Disney Fast Pass??

[Guest guest]

What is the fast pass? Hailee just got approved for her make a wish and we

are going to disneyland first week in march, i too would appreciate travel

advice, we are going with pump, o2 and o2monitor and gtube pump.

>

>Reply-To: Mito

>To: Mito

>Subject: Re: Travel to Disney

>Date: Wed, 14 Jan 2004 22:08:14 -0000

>

_________________________________________________________________

Check out the new MSN 9 Dial-up — fast & reliable Internet access with prime

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glad to hear about your trip to disney...we went 1 1/2 yrs. ago and

had the best vacation....we are now planning a trip back this spring.

anyway, my 4 yr. old daughter, anna grace, also has been dx with

leighs. she has a gtube and it was the best thing we could have

ever done for her. we feed her approx. 4 times a day...bolus, so it

only takes a few minutes. then at night, she is hooked up to a

feeding machine, usually for a few hours....we turn it off and

unhook before we (my husband and I) go to bed.

please feel free to email me with any specific questions.

bethany

mom to brennan 6, palmer & anna grace (leighs) 4

> We are home after a great trip to Disney. We enjoyed the new

year's eve at

> Epcot. The fireworks were incredible. My daughter saw her loved

caracter who is

> Pooh Bear.

>

> I would like to thanks everybody who sent info before our travel.

All info

> were very useful. The best thing was the fastpass use without a

fastpass.

>

> Seaworld is the only park that is not well prepared to receive

disability

> people.

>

> Returning to real life, I need some info about G-Tube. Our

Brazilian doctor

> is saying that we reached the time that our 11 year-old-daughter

diagnosed with

> Leigh Disease need to have a G-Tube installed. We do not have any

experience

> with this. We are afraid about her life with this type of feeding.

We really

> need info about the use and life with a G-Tube.

>

>

> Thanks!

>

> Edson

Please contact mito-owner with any problems or questions.

[Guest guest]

What is the fast pass? Hailee just got approved for her make a wish and we

are going to disneyland first week in march, i too would appreciate travel

advice, we are going with pump, o2 and o2monitor and gtube pump.

>

>Reply-To: Mito

>To: Mito

>Subject: Re: Travel to Disney

>Date: Wed, 14 Jan 2004 22:08:14 -0000

>

_________________________________________________________________

Check out the new MSN 9 Dial-up — fast & reliable Internet access with prime

features! http://join.msn.com/?pgmarket=en-us&page=dialup/home&ST=1

glad to hear about your trip to disney...we went 1 1/2 yrs. ago and

had the best vacation....we are now planning a trip back this spring.

anyway, my 4 yr. old daughter, anna grace, also has been dx with

leighs. she has a gtube and it was the best thing we could have

ever done for her. we feed her approx. 4 times a day...bolus, so it

only takes a few minutes. then at night, she is hooked up to a

feeding machine, usually for a few hours....we turn it off and

unhook before we (my husband and I) go to bed.

please feel free to email me with any specific questions.

bethany

mom to brennan 6, palmer & anna grace (leighs) 4

> We are home after a great trip to Disney. We enjoyed the new

year's eve at

> Epcot. The fireworks were incredible. My daughter saw her loved

caracter who is

> Pooh Bear.

>

> I would like to thanks everybody who sent info before our travel.

All info

> were very useful. The best thing was the fastpass use without a

fastpass.

>

> Seaworld is the only park that is not well prepared to receive

disability

> people.

>

> Returning to real life, I need some info about G-Tube. Our

Brazilian doctor

> is saying that we reached the time that our 11 year-old-daughter

diagnosed with

> Leigh Disease need to have a G-Tube installed. We do not have any

experience

> with this. We are afraid about her life with this type of feeding.

We really

> need info about the use and life with a G-Tube.

>

>

> Thanks!

>

> Edson

Please contact mito-owner with any problems or questions.

[Guest guest]

What is the fast pass? Hailee just got approved for her make a wish and we

are going to disneyland first week in march, i too would appreciate travel

advice, we are going with pump, o2 and o2monitor and gtube pump.

>

>Reply-To: Mito

>To: Mito

>Subject: Re: Travel to Disney

>Date: Wed, 14 Jan 2004 22:08:14 -0000

>

_________________________________________________________________

Check out the new MSN 9 Dial-up — fast & reliable Internet access with prime

features! http://join.msn.com/?pgmarket=en-us&page=dialup/home&ST=1

glad to hear about your trip to disney...we went 1 1/2 yrs. ago and

had the best vacation....we are now planning a trip back this spring.

anyway, my 4 yr. old daughter, anna grace, also has been dx with

leighs. she has a gtube and it was the best thing we could have

ever done for her. we feed her approx. 4 times a day...bolus, so it

only takes a few minutes. then at night, she is hooked up to a

feeding machine, usually for a few hours....we turn it off and

unhook before we (my husband and I) go to bed.

please feel free to email me with any specific questions.

bethany

mom to brennan 6, palmer & anna grace (leighs) 4

> We are home after a great trip to Disney. We enjoyed the new

year's eve at

> Epcot. The fireworks were incredible. My daughter saw her loved

caracter who is

> Pooh Bear.

>

> I would like to thanks everybody who sent info before our travel.

All info

> were very useful. The best thing was the fastpass use without a

fastpass.

>

> Seaworld is the only park that is not well prepared to receive

disability

> people.

>

> Returning to real life, I need some info about G-Tube. Our

Brazilian doctor

> is saying that we reached the time that our 11 year-old-daughter

diagnosed with

> Leigh Disease need to have a G-Tube installed. We do not have any

experience

> with this. We are afraid about her life with this type of feeding.

We really

> need info about the use and life with a G-Tube.

>

>

> Thanks!

>

> Edson

Please contact mito-owner with any problems or questions.

[Guest guest]

We just got back from Disneyland. The fast pass is only available on certain

popular rides (as if they aren't all popular) like Small World. It is great

for the rides they offer it on. You just go to the ride and stick your park

admission ticket into a machine. The machine gives you tickets back with

a time on it such as 1:10 to 2:10. You can then go do other things and come

back to that ride any time during the designated hour. We used it several

times and just walked by the super long lines.

MELISSA Gillespie wrote:

What is the fast

pass? Hailee just got approved for her make a wish and we

are going to disneyland first week in march, i too would appreciate travel

advice, we are going with pump, o2 and o2monitor and gtube pump.

>

>Reply-To: Mito

>To: Mito

>Subject: Re: Travel to Disney

>Date: Wed, 14 Jan 2004 22:08:14 -0000

>

_________________________________________________________________

Check out the new MSN 9 Dial-up — fast & reliable Internet access with

prime

features! http://join.msn.com/?pgmarket=en-us & page=dialup/home & ST=1

Please contact mito-owner with any problems or questions.

[Guest guest]

For people with disabilities you can get a special permission at guest relations and you can use the fast entance without the pass which is very usefull.

[Guest guest]

For people with disabilities you can get a special permission at guest relations and you can use the fast entance without the pass which is very usefull.

[Guest guest]

For people with disabilities you can get a special permission at guest relations and you can use the fast entance without the pass which is very usefull.

[Guest guest]

, My name is and I tend to monitor the list in silence. However, I saw your message about Disney and wanted to share something with you. When we took our younger daughter, , to Disney last year it was a Make A Wish trip. Apparently they try to use the Give Kids The World village in Orlando for these trips. Give Kids The World has a website you might want to look at. If this is the place that you will be staying at then you're in wonderful hands. They will provide a button for the wish child to wear on his/hear clothing. They also provide passes for major area attractions (Disney, MGM, Animal Kingdom, Epcot, Seaworld, Universal) and all of the attractions understand what the button represents. We never waited in any lines for an attraction. We were instructed to approach the exit/disabled access and notify the attendant of our presence. They were all incredible. If a character was greeting children in the park and saw she was immediately approached for greetings and pictures, regardless of the lines. That was tremendous for us since she tends to wilt quickly. FYI - If you are staying at the village......be prepared! It's kind of a resort all of its own. There's an ice cream shop open early morning until late at night, a buffet style dining area sponsored by Perkins, talking garbage cans, swimming pools, a miniature golf course inside a mountain (sponsored by Universal) and special events or guests daily. The parents are even given the opportunity to have an evening out while childcare is provided. They celebrate Christmas every week The village has a "mayor" that is a rabbit. He'll drive around the "town" at night and come to your villa (if you signed up for it) to tuck your child in. Each family is given a villa to stay in with a private driveway and entrance. The villa is stocked with snacks and beverages when you arrive. All food is free while you are there. Volunteers drive around the village on little carts in the evening and will stop if you're outside to offer you hot cocoa, cookies, etc. Each day they sneak into the villa while you are gone and they leave your child a present, so you might want to take an extra empty duffle bag with you! Make A Wish provided a rental car so that we could come and go at our own discretion. We had concerns about 's wheelchair, feeding pump, walker, etc. - but everything was taken care of. We were contacted by a medical equipment provider in the Orlando area to determine what we would need at the villa. They wanted to know if it was easier to bring the chair, feeding pump, IV stand, etc. or should they have everything provided to us at the villa. All in all it was a truely incredible experience, and I sincerely hope that your visit will be similar. Best Wishes, Re: Travel to Disney>Date: Wed, 14 Jan 2004 22:08:14 -0000>_________________________________________________________________Check out the new MSN 9 Dial-up — fast & reliable Internet access with prime features! http://join.msn.com/?pgmarket=en-us & page=dialup/home & ST=1Please contact mito-owner with any problems or questions.

[Guest guest]

, My name is and I tend to monitor the list in silence. However, I saw your message about Disney and wanted to share something with you. When we took our younger daughter, , to Disney last year it was a Make A Wish trip. Apparently they try to use the Give Kids The World village in Orlando for these trips. Give Kids The World has a website you might want to look at. If this is the place that you will be staying at then you're in wonderful hands. They will provide a button for the wish child to wear on his/hear clothing. They also provide passes for major area attractions (Disney, MGM, Animal Kingdom, Epcot, Seaworld, Universal) and all of the attractions understand what the button represents. We never waited in any lines for an attraction. We were instructed to approach the exit/disabled access and notify the attendant of our presence. They were all incredible. If a character was greeting children in the park and saw she was immediately approached for greetings and pictures, regardless of the lines. That was tremendous for us since she tends to wilt quickly. FYI - If you are staying at the village......be prepared! It's kind of a resort all of its own. There's an ice cream shop open early morning until late at night, a buffet style dining area sponsored by Perkins, talking garbage cans, swimming pools, a miniature golf course inside a mountain (sponsored by Universal) and special events or guests daily. The parents are even given the opportunity to have an evening out while childcare is provided. They celebrate Christmas every week The village has a "mayor" that is a rabbit. He'll drive around the "town" at night and come to your villa (if you signed up for it) to tuck your child in. Each family is given a villa to stay in with a private driveway and entrance. The villa is stocked with snacks and beverages when you arrive. All food is free while you are there. Volunteers drive around the village on little carts in the evening and will stop if you're outside to offer you hot cocoa, cookies, etc. Each day they sneak into the villa while you are gone and they leave your child a present, so you might want to take an extra empty duffle bag with you! Make A Wish provided a rental car so that we could come and go at our own discretion. We had concerns about 's wheelchair, feeding pump, walker, etc. - but everything was taken care of. We were contacted by a medical equipment provider in the Orlando area to determine what we would need at the villa. They wanted to know if it was easier to bring the chair, feeding pump, IV stand, etc. or should they have everything provided to us at the villa. All in all it was a truely incredible experience, and I sincerely hope that your visit will be similar. Best Wishes, Re: Travel to Disney>Date: Wed, 14 Jan 2004 22:08:14 -0000>_________________________________________________________________Check out the new MSN 9 Dial-up — fast & reliable Internet access with prime features! http://join.msn.com/?pgmarket=en-us & page=dialup/home & ST=1Please contact mito-owner with any problems or questions.