Hi again

[Guest guest]

WELL NIKKI GIRL!!!!!!!!

How are you???? Remember me? the gal who was going to room with you at the

convention 2 summers ago???? We had a great time (my mom came) but we

haven't been back since (sigh...had back surgery this summer or I would have

gone!!)

Adam is almost 11 years old now and still small. My daughter just started

high school and Adam and I have transferred to a new school this year.

Glad you are back among the living. Looking forward to catching up with you.

I tried a few times to email you privately but the messages were always

returned.

Debby

Hi again

> Don't know how many will remember us..but my son and I are from

> Nova Scotia, Canada, we were regulars on the emailing list a while

> ago...I've posted two pics on the site but didn't know how to create

> a folder for the rugrat....i'll be checking in when I can to keep up

> with what's going on. still has ongoing concerns with his

> aspects of RS... next endo clinic is in October and that's gonna be a

> big one, is almost 9 but not ready for puberty yet, allthough

> he's hittin it. His growth has slowed down, even tho he's tall for

> an RS child, we were told he could stop at around 4ft5 and right now

> he's about 4'1 " . His weight is still below the 5th percentile...he

> was 45lbs about three months ago and began dropping again. So that's

> it so far..I hope everyone is well and I look forward to catching up

> with you soon. Take Care

>

>

>

>

>

>

[Guest guest]

DEB!!!! yep..still got a pulse. *snikkers*

And of course I remember you..how can I forget my fellow canuck? I

wish I could have made it to the convention but I went everywhere

lookin for sponsers...no one would help out on something they never

heard of before...even though I had all the brochures to show them.

Maybe next year tho *crosses fingers*

Hard to believe how time flies when you have kids huh? 11 and high-

school age.. *buys you stock in calgon* :0) Sorry to hear about your

back hon, hope you're recovering well. Don't ya just love this whole

aging thing? *creaks*

Glad to hear about the move..I hope it's a good one and you and yours

are all doing well. My mail was shut down for awhile as I had no

access for a bit..but i'm back on track at home and trying to keep up

with everyone. It's good to be back again!

> WELL NIKKI GIRL!!!!!!!!

> How are you???? Remember me? the gal who was going to room with you

at the

> convention 2 summers ago???? We had a great time (my mom came) but

we

> haven't been back since (sigh...had back surgery this summer or I

would have

> gone!!)

> Adam is almost 11 years old now and still small. My daughter just

started

> high school and Adam and I have transferred to a new school this

year.

> Glad you are back among the living. Looking forward to catching up

with you.

> I tried a few times to email you privately but the messages were

always

> returned.

>

> Debby

>

>

> Hi again

>

>

> > Don't know how many will remember us..but my son and I are

from

> > Nova Scotia, Canada, we were regulars on the emailing list a while

> > ago...I've posted two pics on the site but didn't know how to

create

> > a folder for the rugrat....i'll be checking in when I can to keep

up

> > with what's going on. still has ongoing concerns with his

> > aspects of RS... next endo clinic is in October and that's gonna

be a

> > big one, is almost 9 but not ready for puberty yet,

allthough

> > he's hittin it. His growth has slowed down, even tho he's tall

for

> > an RS child, we were told he could stop at around 4ft5 and right

now

> > he's about 4'1 " . His weight is still below the 5th

percentile...he

> > was 45lbs about three months ago and began dropping again. So

that's

> > it so far..I hope everyone is well and I look forward to catching

up

> > with you soon. Take Care

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi, I was originally scheduled for surgery in December but it was

then determined that I was not " ready " . My orthodontist then put a

widening arc on my lower teeth (very painful) because the surgeon

thought said there was not enough room to work. Since then I have

experienced an incredible tightness in my jaw and a lot of neck and

lower back pain, I've been to a chiropractor who feels that a lot of

my pain and discomfort is due to my jaw misalignment ( my teeth no

longer fight together). It has gotten so bad that I have missed work.

Does anyone have any experience with this? Does it go away after the

surgery?

Any feedback would be greatly appreciated.

Thanks,

Marsha

Pittsburgh, PA