Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 , Sorry to hear you are feeling yucky. How long do you have to be off the Imuran? Let me know how the treatment works on your feet. I hope it works for you. Did your Doc tell you what could be causing all the pain? Enjoy your free day tomorrow. Love Ya, Sandy > Hi everyone. Sorry for being soo behind on all my e mail. Have been > feeling pretty yucky and between Rich and I, we have been going to alot of > appts. BUT .....tomorrow is a FREE day.... YEAH !!! > > My PCP told me yesterday to stop the Imuran for a while to see if that was > what was making me so sick. I hate to stop it, but have to start feeling > better. Was either that or pulse my pred to 80mg. Don't even want to go > there. LOL > > I do have a physical therapy appt on Monday for my feet. They are going to > try a cortisone cream therapy for three times. If no improvement after the 3 > times, then they say it won't work. Hope it works... Last resort would be a > nerve block to my feet. Through the Veterans I am going to see a > acupuncturist and just talk to him. What can it hurt to just talk. > > Judee, Dan, Glenda and all the rest, thanks for the jokes and inspirationals. > They are great. > > P. I'm sorry that your eyes are giving you problems. Keep us updated > and let us know how you are. > > Lu, , and the rest, thanks for the great sites. I've marked them > down in my favorites and hope I don't lose them again. > > Sue, Dawn, Marilyn, Angie, , Sandy and all the rest, Please get better > soon. Seems like at a certain time of year, we all start having some sort of > problems at the same time. > > It is really starting to storm here. Made it home just in time. Suppose to > storm all through the weekend. So much for planting those plants. > > Well, I hope everyone has a good rest of the week, and I promise to try to > keep up with the mail more. > > Oh... I see we have another new member today. Welcome Jalwms. Please let us > know your name and a little about yourself. Ask all the questions you want. > Just jump right in. > > Hugs to you all > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 , Sorry to hear you are feeling yucky. How long do you have to be off the Imuran? Let me know how the treatment works on your feet. I hope it works for you. Did your Doc tell you what could be causing all the pain? Enjoy your free day tomorrow. Love Ya, Sandy > Hi everyone. Sorry for being soo behind on all my e mail. Have been > feeling pretty yucky and between Rich and I, we have been going to alot of > appts. BUT .....tomorrow is a FREE day.... YEAH !!! > > My PCP told me yesterday to stop the Imuran for a while to see if that was > what was making me so sick. I hate to stop it, but have to start feeling > better. Was either that or pulse my pred to 80mg. Don't even want to go > there. LOL > > I do have a physical therapy appt on Monday for my feet. They are going to > try a cortisone cream therapy for three times. If no improvement after the 3 > times, then they say it won't work. Hope it works... Last resort would be a > nerve block to my feet. Through the Veterans I am going to see a > acupuncturist and just talk to him. What can it hurt to just talk. > > Judee, Dan, Glenda and all the rest, thanks for the jokes and inspirationals. > They are great. > > P. I'm sorry that your eyes are giving you problems. Keep us updated > and let us know how you are. > > Lu, , and the rest, thanks for the great sites. I've marked them > down in my favorites and hope I don't lose them again. > > Sue, Dawn, Marilyn, Angie, , Sandy and all the rest, Please get better > soon. Seems like at a certain time of year, we all start having some sort of > problems at the same time. > > It is really starting to storm here. Made it home just in time. Suppose to > storm all through the weekend. So much for planting those plants. > > Well, I hope everyone has a good rest of the week, and I promise to try to > keep up with the mail more. > > Oh... I see we have another new member today. Welcome Jalwms. Please let us > know your name and a little about yourself. Ask all the questions you want. > Just jump right in. > > Hugs to you all > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 , Sorry to hear you are feeling yucky. How long do you have to be off the Imuran? Let me know how the treatment works on your feet. I hope it works for you. Did your Doc tell you what could be causing all the pain? Enjoy your free day tomorrow. Love Ya, Sandy > Hi everyone. Sorry for being soo behind on all my e mail. Have been > feeling pretty yucky and between Rich and I, we have been going to alot of > appts. BUT .....tomorrow is a FREE day.... YEAH !!! > > My PCP told me yesterday to stop the Imuran for a while to see if that was > what was making me so sick. I hate to stop it, but have to start feeling > better. Was either that or pulse my pred to 80mg. Don't even want to go > there. LOL > > I do have a physical therapy appt on Monday for my feet. They are going to > try a cortisone cream therapy for three times. If no improvement after the 3 > times, then they say it won't work. Hope it works... Last resort would be a > nerve block to my feet. Through the Veterans I am going to see a > acupuncturist and just talk to him. What can it hurt to just talk. > > Judee, Dan, Glenda and all the rest, thanks for the jokes and inspirationals. > They are great. > > P. I'm sorry that your eyes are giving you problems. Keep us updated > and let us know how you are. > > Lu, , and the rest, thanks for the great sites. I've marked them > down in my favorites and hope I don't lose them again. > > Sue, Dawn, Marilyn, Angie, , Sandy and all the rest, Please get better > soon. Seems like at a certain time of year, we all start having some sort of > problems at the same time. > > It is really starting to storm here. Made it home just in time. Suppose to > storm all through the weekend. So much for planting those plants. > > Well, I hope everyone has a good rest of the week, and I promise to try to > keep up with the mail more. > > Oh... I see we have another new member today. Welcome Jalwms. Please let us > know your name and a little about yourself. Ask all the questions you want. > Just jump right in. > > Hugs to you all > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 In a message dated 4/18/01 7:04:57 PM Pacific Daylight Time, biglou5685@... writes: << How long do you have to be off the Imuran? >> Sandy, that's a good question. LOL I would think that a week would let me know if it was causing it. But I didn't stop yet. LOL I took only 50 mg last nite. I just hate to stop after getting it into my system. I will see what the 50 mg does. I will let you know about the feet therapy. Hope it does the trick. How are you and our family Sandy? I think of you all the time. Hope your flare is subsiding. Let me know. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 In a message dated 4/18/01 7:04:57 PM Pacific Daylight Time, biglou5685@... writes: << How long do you have to be off the Imuran? >> Sandy, that's a good question. LOL I would think that a week would let me know if it was causing it. But I didn't stop yet. LOL I took only 50 mg last nite. I just hate to stop after getting it into my system. I will see what the 50 mg does. I will let you know about the feet therapy. Hope it does the trick. How are you and our family Sandy? I think of you all the time. Hope your flare is subsiding. Let me know. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 Sandy, I sure hope that med kicks in soon. You have been sick WAY too long. Tell I don't think I could pass the memory test either. LOL Give her a big hug from me and know that you are all in my prayers. Also a BIG hug to you too. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 Sandy, I sure hope that med kicks in soon. You have been sick WAY too long. Tell I don't think I could pass the memory test either. LOL Give her a big hug from me and know that you are all in my prayers. Also a BIG hug to you too. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 Sandy, I sure hope that med kicks in soon. You have been sick WAY too long. Tell I don't think I could pass the memory test either. LOL Give her a big hug from me and know that you are all in my prayers. Also a BIG hug to you too. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 In a message dated 04/18/2001 8:44:29 PM Central Daylight Time, RCColloran@... writes: << is really starting to storm here. Made it home just in time. Suppose to storm all through the weekend. So much for planting those plants. >> , I LOVE storms, especially at night when I'm in bed with my honey! Of course, once the thunder starts, the bed also hold the dog! But you cn't have everything! I sure hope you get to feeling better soon, You abd Ruch just have to take care of each other this weekend! Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 In a message dated 04/18/2001 8:44:29 PM Central Daylight Time, RCColloran@... writes: << is really starting to storm here. Made it home just in time. Suppose to storm all through the weekend. So much for planting those plants. >> , I LOVE storms, especially at night when I'm in bed with my honey! Of course, once the thunder starts, the bed also hold the dog! But you cn't have everything! I sure hope you get to feeling better soon, You abd Ruch just have to take care of each other this weekend! Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 In a message dated 04/18/2001 8:44:29 PM Central Daylight Time, RCColloran@... writes: << is really starting to storm here. Made it home just in time. Suppose to storm all through the weekend. So much for planting those plants. >> , I LOVE storms, especially at night when I'm in bed with my honey! Of course, once the thunder starts, the bed also hold the dog! But you cn't have everything! I sure hope you get to feeling better soon, You abd Ruch just have to take care of each other this weekend! Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 In a message dated 04/19/2001 2:30:05 PM Central Daylight Time, biglou5685@... writes: << My family is doing okay. I'm still flaring.I hope when the Doc gets me up to >> Sandy, I pray things will start improving for your family soon! You have HAD ENOUGH this year for, oh, three or four life times! I pray it gets better! Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 In a message dated 04/19/2001 2:30:05 PM Central Daylight Time, biglou5685@... writes: << My family is doing okay. I'm still flaring.I hope when the Doc gets me up to >> Sandy, I pray things will start improving for your family soon! You have HAD ENOUGH this year for, oh, three or four life times! I pray it gets better! Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 In a message dated 04/19/2001 2:30:05 PM Central Daylight Time, biglou5685@... writes: << My family is doing okay. I'm still flaring.I hope when the Doc gets me up to >> Sandy, I pray things will start improving for your family soon! You have HAD ENOUGH this year for, oh, three or four life times! I pray it gets better! Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 , My family is doing okay. I'm still flaring.I hope when the Doc gets me up to 200mg of Cyclosporine a day I see some improvement. is scheduled for an MRI. She had to take a memory test on tuesday but she doe not think she did well. She has to pass it inorder to go back to work. Hugs, Sandy > > I will let you know about the feet therapy. Hope it does the trick. > > How are you and our family Sandy? I think of you all the time. Hope your > flare is subsiding. Let me know. > > hugs > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 , My family is doing okay. I'm still flaring.I hope when the Doc gets me up to 200mg of Cyclosporine a day I see some improvement. is scheduled for an MRI. She had to take a memory test on tuesday but she doe not think she did well. She has to pass it inorder to go back to work. Hugs, Sandy > > I will let you know about the feet therapy. Hope it does the trick. > > How are you and our family Sandy? I think of you all the time. Hope your > flare is subsiding. Let me know. > > hugs > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 , My family is doing okay. I'm still flaring.I hope when the Doc gets me up to 200mg of Cyclosporine a day I see some improvement. is scheduled for an MRI. She had to take a memory test on tuesday but she doe not think she did well. She has to pass it inorder to go back to work. Hugs, Sandy > > I will let you know about the feet therapy. Hope it does the trick. > > How are you and our family Sandy? I think of you all the time. Hope your > flare is subsiding. Let me know. > > hugs > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 In a message dated 4/19/01 3:42:17 PM Pacific Daylight Time, JOstry93@... writes: << , I LOVE storms, especially at night when I'm in bed with my honey! >> JUDY, I LOVE STORMS TOO, WHEN I'M HOME. DON'T LIKE TO BE DRIVING IN THEM. I LOVE TO LEAVE MY WINDOW OPEN JUST A LITTLE SO I CAN HEAR THEM. HUGS CLAUDIA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 In a message dated 4/19/01 3:42:17 PM Pacific Daylight Time, JOstry93@... writes: << , I LOVE storms, especially at night when I'm in bed with my honey! >> JUDY, I LOVE STORMS TOO, WHEN I'M HOME. DON'T LIKE TO BE DRIVING IN THEM. I LOVE TO LEAVE MY WINDOW OPEN JUST A LITTLE SO I CAN HEAR THEM. HUGS CLAUDIA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 In a message dated 4/19/01 3:42:17 PM Pacific Daylight Time, JOstry93@... writes: << , I LOVE storms, especially at night when I'm in bed with my honey! >> JUDY, I LOVE STORMS TOO, WHEN I'M HOME. DON'T LIKE TO BE DRIVING IN THEM. I LOVE TO LEAVE MY WINDOW OPEN JUST A LITTLE SO I CAN HEAR THEM. HUGS CLAUDIA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2001 Report Share Posted April 23, 2001 Sandy, how are you and ? I've been reading my emails and it doesn't sound as if you are improving very much. I think if you get some good news about , that will go a long way towards gettin your flare under control. Tell that I am in the same boat regarding her memory. The last stroke affected my memory, sometimes I know what I am tryilng to say,if it would only come out of my mouth the way I'm thilnking it. I watch Jeopardy a lot to keep from losing any more memory. Even that is frustrating sometimes when I KNOW the answer but it is just out of reach - makes me crazy! I am praying for both of you that something wonderful will happen. Hang in there and keep your chin up, I wish I could do something, anythng to help! Know you're in my thoughts and prayers all the time, hopefully God will get tired of hearing all of us and answer our prayers just to shut us up! Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2001 Report Share Posted April 23, 2001 Hi Judy, is feeling much better. She even has " little fuzzies " on her head where her hair is growing back. She loves the book you sent her, she carries it everywhere. She has about 20 bookmarks in it of her favorites. Thank you so much! You are an Angel!! She passed the memory test well enough to go back to work on a limited basis. I'm doing the same. I see my Rheumy next week, I'll see what he says about these flares. Love Ya Much, Sandy > Sandy, how are you and ? I've been reading my emails and it doesn't > sound as if you are improving very much. I think if you get some good news > about , that will go a long way towards gettin your flare under > control. Tell that I am in the same boat regarding her memory. The > last stroke affected my memory, sometimes I know what I am tryilng to say,if > it would only come out of my mouth the way I'm thilnking it. I watch > Jeopardy a lot to keep from losing any more memory. Even that is frustrating > sometimes when I KNOW the answer but it is just out of reach - makes me > crazy! I am praying for both of you that something wonderful will happen. > Hang in there and keep your chin up, I wish I could do something, anythng to > help! Know you're in my thoughts and prayers all the time, hopefully God > will get tired of hearing all of us and answer our prayers just to shut us > up! Love, Judy > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2001 Report Share Posted April 23, 2001 In a message dated 4/23/01 11:09:42 AM Pacific Daylight Time, JOstry93@... writes: << The last stroke affected my memory, sometimes I know what I am tryilng to say,if it would only come out of my mouth the way I'm thilnking it. >> Judy, I know exactly what you mean..... (and I never had a stroke) The other day I was trying to tell someone to get something out of the Refrigerator....do you think I could say REFRIGERATOR???? Finally I just pointed and said " the big white box " Yes it is really frustrating, not just for me but for everyone else. Good thing my friends are mind reader, familly doesn't do so good though. LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 In a message dated 04/23/2001 11:18:32 PM Central Daylight Time, RCColloran@... writes: << do you think I could say REFRIGERATOR???? >> , my friend says I should stop blaming my strokes and acknowledge that, like everyone else.'m just getting old...er. Gee, I hate to admit that! We all used to laugh when Jim's mom forgot names, e.g. She couldn't remember if she was talking to Jim or Dick, so she just called him " Jick " . At least I'm not that bad, yet! Hang in there, whatever your name is! Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 In a message dated 04/23/2001 11:18:32 PM Central Daylight Time, RCColloran@... writes: << do you think I could say REFRIGERATOR???? >> , my friend says I should stop blaming my strokes and acknowledge that, like everyone else.'m just getting old...er. Gee, I hate to admit that! We all used to laugh when Jim's mom forgot names, e.g. She couldn't remember if she was talking to Jim or Dick, so she just called him " Jick " . At least I'm not that bad, yet! Hang in there, whatever your name is! Love, Judy Quote Link to comment Share on other sites More sharing options...
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