Patty

October 13, 2006

HI PATTY

Saw what you posted and wanted to ask you a few questions. This filtering you

were talking about. How long does it take? I guess

everyones brain is different. What features on the Freedom that you mentioned

is helpful. I was activated middle of August and as

far as I know just have one good program that I lesten to 99% of the time. I am

not sure what Adro, Whisper and Sensitivity does.

My appt with the audi is end of the month. Any info would be most helpful.

a

October 14, 2006

Hi a,

I think I'm the one who wrote about how your brain filters out noises

that you don't need to pay attention to (when you have typical hearing).

How long this process takes depends a great deal on how long you've been

without hearing. In my case, it was about 3 months from the first

activation until I got to hearing the way I do now. But I was only

without hearing for 6 months total. It would take longer if you've been

without hearing for years.

Ask your audiologist about BEAM and ADRO and how they function.

WHISPER is used to raise one voice in a quiet setting. For instance, if

you are in a church and the minister is preaching, and everyone else is

quiet - switch to Whisper, and it will amplify this ONE voice in quiet.

Also good at meetings where one person is speaking at a time. Obviously

NOT the choice for parties where everyone is talking at once!

SENSITIVITY controls how large of an area you hear from. Imagine

dropping a stone in water. As the circles of water get larger, the area

increases. You are the center. Moving sensitivity up increases the area

from where you hear. I use a sensitivity map on my 3G. That means the

volume is always the same, but I can increase how large an area I hear

from. With the Freedom, you can control both the volume and the area

(sensitivity). Since I don't have BEAM or ADRO on my 3G, I can't tell

you how they work. But you should have received a DVD and information

explaining that to you. Or ask your audiologist. I will be getting my

Freedom for N24s mapped next week, so I can start addressing those

questions soon.

Write down any questions you have for the audiologist and ask them at

your appt. It's so easy to forget what we wanted to ask. There are no

stupid questions, just ask to find out what you want to know.

The Original

Fri Oct 13, 2006 8:23 am (PST)

HI PATTY

Saw what you posted and wanted to ask you a few questions. This filtering

you were talking about. How long does it take? I guess

everyones brain is different. What features on the Freedom that you

mentioned is helpful. I was activated middle of August and as

far as I know just have one good program that I lesten to 99% of the

time. I am not sure what Adro, Whisper and Sensitivity does.

My appt with the audi is end of the month. Any info would be most

helpful.

a

July 6, 2007

Patty,

My revision is in a week & a half (July 16 & 23) at Northwestern in

Chicago. I scheduled it way back in March and it seemed so far

off. Now it's almost here, yikes!

I know where Wilmington is

I grew up in Rockford (right where we now are back living). So when

I had to have my original surgery in 1989, the local docs said

they'd refer me to Madison, WI or Chicago. My parents seem to have

a fear of driving in to Chicago, so they chose Madison. We also had

relatives near there, which made it easier for my parents during my

hospital stay.

How is your back doing now?

>

> ,

> I grew up in the little town of Wilmington.....so my dad

hated driving us to Chicago for those visits! Now we live in Iowa.

Since scoliosis is hereditary we tried to figure out where we got

ours. My mom did not show ANY signs of it 'til she was 60, then it

came on severely within months. She's very bent over to the side

and will never be able to have the surgery.

> It was terrible for my parents to deal with 2 of their kids

having such major surgery. Of course they never showed us their

fears or concerns. Now that I look back (I'm 43 now), my dad had 3

heart surgeries (he didn't survive the last one) and gall bladder

surgery, my mom had 3 back surgeries for disk problems, I've had 2

back surgeries, gall bladder surgery and breast cancer, my sister

had the scoliosis surgery and gall bladder surgery.......for fun we

used to add up the inches of scars that we all had!!! I know that

sounds sick, but you just get through things one day at a time and

I'm sure your revision surgery will go great. When is that, or have

you posted that before and I missed the date??

> Patty

>

> ---------------------------------

> Get your own web address.

> Have a HUGE year through Small Business.

>

March 19, 2008

Patty:

What are they saying about Caitlin's MRI? I hope that it is nothing serious.

How are you feeling? Any more heart palpitations?

Are things going well with hubby's job??

I was glad to hear from you and hope that you can give us an update on your

family, and you, too!

Take care.

and Rob 18 JAS

> Caitlin has been complaining of headaches/migraines

> and a recent MRI

> shows a small spot on her brain. >

> > Take care.

> Patty

>

September 9, 2008

Hi :

Thank you for keeping Caitlin in your prayers. Next step is an MRI of her

spine on Sept 15...can't come quick enough for me. Until then, just keeping

an eye on the abdominal issue, head and now spine. She has been home two days

now with a migraine. Hopefully, she will be back in school tomorrow.

How is Rob doing health wise? Is he loving college life and being away from

home?

Take care.

Patty

**************Psssst...Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelist.com/trends?ncid=aolsty00050000000014)

December 31, 2008

Patty everything that goes down your mouth /throat is filtered in your

liver. It could be very possible that the vitamins your Doctor told

you to take could be the problem. I am not a Doctor but have

a lot of my own experience. If you would not mind would you

send an email with the ingredients in your vitamins. The very

worst drug for a liver is my anti-rejection medicine.

I really hope and pray it is the vitamins causing the problem.

Wouldn't that be a wonderful New Year Gift.

I cannot take vitamins for the very reason that they are

toxic to the liver.

Jo Lynne

Re: Happy New Year

happy new year I just read about vitamins, my doc started me on a multi ??????

December 31, 2008

Patty everything that goes down your mouth /throat is filtered in your

liver. It could be very possible that the vitamins your Doctor told

you to take could be the problem. I am not a Doctor but have

a lot of my own experience. If you would not mind would you

send an email with the ingredients in your vitamins. The very

worst drug for a liver is my anti-rejection medicine.

I really hope and pray it is the vitamins causing the problem.

Wouldn't that be a wonderful New Year Gift.

I cannot take vitamins for the very reason that they are

toxic to the liver.

Jo Lynne

Re: Happy New Year

happy new year I just read about vitamins, my doc started me on a multi ??????

December 31, 2008

Patty everything that goes down your mouth /throat is filtered in your

liver. It could be very possible that the vitamins your Doctor told

you to take could be the problem. I am not a Doctor but have

a lot of my own experience. If you would not mind would you

send an email with the ingredients in your vitamins. The very

worst drug for a liver is my anti-rejection medicine.

I really hope and pray it is the vitamins causing the problem.

Wouldn't that be a wonderful New Year Gift.

I cannot take vitamins for the very reason that they are

toxic to the liver.

Jo Lynne

Re: Happy New Year

happy new year I just read about vitamins, my doc started me on a multi ??????

January 1, 2009

Jo, she just started them Iv'e only taken 3 she wanted me to have vitamin d and multi, she also has me going to a lung spec.. now she says the blood came back neg and the other blood has not came back yet. My liver is still swollen she also started me on the meditterian diet...I am confused

From: Jo Lynne <jolynne4@...>Subject: Re: Patty Date: Wednesday, December 31, 2008, 5:47 PM

Patty everything that goes down your mouth /throat is filtered in your

liver. It could be very possible that the vitamins your Doctor told

you to take could be the problem. I am not a Doctor but have

a lot of my own experience. If you would not mind would you

send an email with the ingredients in your vitamins. The very

worst drug for a liver is my anti-rejection medicine.

I really hope and pray it is the vitamins causing the problem.

Wouldn't that be a wonderful New Year Gift.

I cannot take vitamins for the very reason that they are

toxic to the liver.

Jo Lynne

Re: Happy New Year

happy new year I just read about vitamins, my doc started me on a multi ??????

January 1, 2009

Jo, she just started them Iv'e only taken 3 she wanted me to have vitamin d and multi, she also has me going to a lung spec.. now she says the blood came back neg and the other blood has not came back yet. My liver is still swollen she also started me on the meditterian diet...I am confused

From: Jo Lynne <jolynne4@...>Subject: Re: Patty Date: Wednesday, December 31, 2008, 5:47 PM

Patty everything that goes down your mouth /throat is filtered in your

liver. It could be very possible that the vitamins your Doctor told

you to take could be the problem. I am not a Doctor but have

a lot of my own experience. If you would not mind would you

send an email with the ingredients in your vitamins. The very

worst drug for a liver is my anti-rejection medicine.

I really hope and pray it is the vitamins causing the problem.

Wouldn't that be a wonderful New Year Gift.

I cannot take vitamins for the very reason that they are

toxic to the liver.

Jo Lynne

Re: Happy New Year

happy new year I just read about vitamins, my doc started me on a multi ??????

January 1, 2009

Jo, she just started them Iv'e only taken 3 she wanted me to have vitamin d and multi, she also has me going to a lung spec.. now she says the blood came back neg and the other blood has not came back yet. My liver is still swollen she also started me on the meditterian diet...I am confused

From: Jo Lynne <jolynne4@...>Subject: Re: Patty Date: Wednesday, December 31, 2008, 5:47 PM

Patty everything that goes down your mouth /throat is filtered in your

liver. It could be very possible that the vitamins your Doctor told

you to take could be the problem. I am not a Doctor but have

a lot of my own experience. If you would not mind would you

send an email with the ingredients in your vitamins. The very

worst drug for a liver is my anti-rejection medicine.

I really hope and pray it is the vitamins causing the problem.

Wouldn't that be a wonderful New Year Gift.

I cannot take vitamins for the very reason that they are

toxic to the liver.

Jo Lynne

Re: Happy New Year

happy new year I just read about vitamins, my doc started me on a multi ??????

June 12, 2010

Lady Gaga is going to pose for playboy and was recently tested for Lupus

Makes me wonder if she has implants

Sandy~

I just got back from the store....and was flipping through some of those magazines at check out. I was so bummed to see one particular article....can't remember which magazine, but it was titled "The Incredible Shrinking Boob Job".It had pictures of several small breasted actresses who had appeared to have gotten implants....one of my favorites was Kate Hudson! I was so disappointed to see her with an apparent boob job!!!!!! Kidman was also featured and one other actress that I can't remember. I should not be surprised about Kate though...I remember how disappointed I was hearing that Goldie Hawn had gotten a boob job. Come to think of it, what is going on with Goldie Hawn? Never hear about her anymore....Apparently the sizes being requested for implants has gone way down....so the question of whether or not they have had a surgical procedure is not obvious. The sad thing is that illness can strike no matter what size you get. It's too bad. I sure wish the fact that women get ill from implants would become more acknowledged, something we've wished on this group for over a decade now.Patty> > > > > > From: tinakkelman <tinakkelman@>> > Subject: Thinking about Implants> > > > Date: Thursday, June 3, 2010, 7:40 AM> > > > > > > > Good Morning!> > > > Or I thought it was! I stumbled across your website and OMG I am just sitting here with my mouth on the ground! Now I'm more confused than ever. I thought I really wanted implants. Now I don't know. Does every one here have Saline implants only? I thought I had done my research, but it doesn't look like I have. Please help?> >>

June 12, 2010

Hi I will be starting my reconstruction surgery around July 12. Why is everyone so against having this. Will someone try and explain this to me. I have been so exciting after having a mastectomy and breast cancer twice. Now reading some of this I am confused.

Thanks

Robyn

From: Sandy <dusty.com@...>Subject: Patty Cc: "Sandy" <dusty.com@...>Date: Friday, June 11, 2010, 9:47 PM

Lady Gaga is going to pose for playboy and was recently tested for Lupus

Makes me wonder if she has implants

Sandy~

I just got back from the store....and was flipping through some of those magazines at check out. I was so bummed to see one particular article....can' t remember which magazine, but it was titled "The Incredible Shrinking Boob Job".It had pictures of several small breasted actresses who had appeared to have gotten implants.... one of my favorites was Kate Hudson! I was so disappointed to see her with an apparent boob job!!!!!! Kidman was also featured and one other actress that I can't remember. I should not be surprised about Kate though...I remember how disappointed I was hearing that Goldie Hawn had gotten a boob job. Come to think of it, what is going on with Goldie Hawn? Never hear about her anymore....Apparently the sizes being requested for implants has gone way down....so the question of whether or not they have had a surgical procedure is not obvious. The sad thing is that illness can strike no matter what

size you get. It's too bad. I sure wish the fact that women get ill from implants would become more acknowledged, something we've wished on this group for over a decade now.Patty> > > > > > From: tinakkelman <tinakkelman@>> > Subject: Thinking about Implants> > > > Date: Thursday, June 3, 2010, 7:40 AM> > > > > > > > Good Morning!> > > > Or I thought it was! I stumbled across your website and OMG I am just sitting here with my mouth on the ground! Now I'm more confused than ever. I thought I really wanted implants. Now I don't know. Does every one here have Saline implants only? I thought I had done my research, but it doesn't look like I have. Please help?> >>

June 12, 2010

Hi Robyn,

I am so sorry to hear that you had breast cancer twice...that had to have been a

nightmare for you. I can understand your confusion, and your excitement at the

prospect of finally having new breasts after what you have been through.

I respect you for all you have been through and the decisions you have had to

make, and so I hope you won't feel that anything shared is meant to be negative

for you...it is just the reality that I and many other women have had to live

with. It is my hope that if you do in fact get breast implants, you never

experience the horrible health effects that so many of us have.

Not all women who get breast implants get ill, but if you are one of the unlucky

ones who do, it will be another nightmare to live through.

You can read our stories in the files section, plus there are other websites

where women have shared their testimonies of illness following breast

augmentation. Additionally, some of the women have become ill following breast

implants after cancer, and they have struggled with very, very difficult health

issues as well. Two of our women from the group were long time

participants...Lynda Roth and Rogene Schorer, and these women, both breast

cancer survivors, succumbed to cancer once again. For Lynda, it was lung

cancer. For Rogene, it was brain cancer. They both died only a few months ago.

So, why are we against having breast implants inserted into the body? Very

simply, because they can destroy health.

I was an extremely health woman before getting breast implants. My health crash

was devastating to me. I ended up with a diagnosis of Hashimoto's autoimmune

thyroid disease, but that occurred several years into my healing path.

Originally, soon after implants, I was unable to be diagnosed with any

particular disease, but I had an elevated rheumatoid factor and a lowered C3

complement, which all pointed to autoimmunity.

The chronic fatigue was debilitating. My brain function was muddled, cognitive

dysfunction very troubling. I had twitching, vision problems, and other

neurological signs that were scary. And nobody would point to the implants,

though it was the ONLY thing in my life that had changed.

In hindsight now, 12 years after the fact, I can tell you without a doubt that

the implants had devastated my health. It's quite clear, because I was healthy

before them, very ill within 9 months of getting them, and back to fairly good

health again 4 years after explant, and my health has remained good ever since.

I live a very full and active life once again. However, my autoimmunity will

probably always be a factor to be aware of.

My biggest regret in life is in getting implants in the first place. I wish I

had never, ever heard of them. I think they are a miserable medical device.

That is my opinion based on the hundreds of stories of misery I have heard over

the past 12 years, from women of all walks of life and from many different

countries.

I wish there was a better answer. I believe that someday the medical world will

be able to come up with cloning tissue as an answer. Currently in Japan, there

is a procedure that uses stem cells from liposuction to fill out the breasts..I

believe we have the links in our links section.

My aim is not to confuse you, but share that breast implants do indeed carry

risks, and it is my hope that your doctor is sharing those risks with you. He

may downplay them or consider them insignificant. I hope not. They are real.

It is a risk that you have to decide whether or not is worth it. If you DO get

breast implants and experience health consequences, it would be wise for you to

know ahead of time how you will deal with that event. That is where hopefully,

we can offer some insight.

I wish you the very best!

God bless,

Patty

> > >

> > > From: tinakkelman <tinakkelman@>

> > > Subject: Thinking about Implants

> > >

> > > Date: Thursday, June 3, 2010, 7:40 AM

> > >

> > > Good Morning!

> > >

> > > Or I thought it was! I stumbled across your website and OMG I am just

sitting here with my mouth on the ground! Now I'm more confused than ever. I

thought I really wanted implants. Now I don't know. Does every one here have

Saline implants only? I thought I had done my research, but it doesn't look like

I have. Please help?

> > >

> >

>

December 7, 2010

Thanks Patty! My mind is going in circles, I'll read something then forget.

Thanks,,, I am going to go for a consult with Hiatt and I'll let you know how it

goes. Have you gotten better?

> >

> > Hello everyone,

> >

> > Sorry for adding this to this conversation, I was looking for support in

asking again for advice on explant surgeons. I am embarrassed because I am so

confused I asked before and can't find the results. I remember some wonderful

women responding but don't remember and didn't save it, I am scared to death so

I put it out of my mind for a while. I thought I mustered up the strength and

figured out financially how to explant...but then got scared and tried to ignore

it AGAIN.. I am mainly so scared because I am so sick I am afraid I won't make

it through surgery and recovery so chose I guess to let these toxins kill me

slowly.

> >

> > But, now since I have a daughter who is 13 who I live for, I decided to let

her give me a chance at life.. and am asking...

> >

> > Who do you if you do, recommend for explantation near Arizona?

> >

> > Thanks-

> >

> > From: leamary@

> > Date: Sun, 28 Nov 2010 09:25:46 -0700

> > Subject: Re: freaking out!!

> >

> > My Sweet :

> >

> > Thank you for reaching out to the group, because you need plenty of love and

support.

> >

> > When my Asthma started, it was just a mild cough, and I was very short of

breath. As the years went by, it became full-blown Asthma, and I was very sick.

I was on Prednisone, and they had me on a nebulizer for a few years. It took

many years to get to where I am today, and I am in remission. We keep the

nebulizer just in case, and my doctors make sure that I have Ventolin and

Pulmocort...just in case.

> >

> > My doctors used conventional medicines to help to get me well. I had

silicone breast implants, and they were ruptured for so many years. Life is

still a struggle for me; however, if I get plenty of love and no stress, my

quality of life is close to normal. I do have Lupus, and my immune system is

compromised, and the only way for me to get through this is with antibiotics,

and probiotics. Many women do not believe in this treatment; however, it has

worked for me. I have constant infections, and that is probably why the

antibiotics make me better.

> >

> > Honey, I was never cleaned out properly, and that makes my case so

different. I believe that you will get well, but it will take time, and your

family had better step in and help you to get through this.

> >

> > Stay close to us...we love you and will be here for you...always...Lea

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~``

> >

> > freaking out!!

> >

> > Hi ladies,

> > So, yes, I was diagnosed with asthma. I believe this is all steming from my

implants for sure!! I've had this tighness in my chest before when I had the

implants but it went away and always came back except this time it's here or

good. The meds help but I'm still having trouble. After 2 1/2 weeks of being on

the meds, I went back to the asthma specialist. Ofcourse he put me on more

steroids and gave me a breathing treatment. My father and aunt both have asthma

but even they are like, " you should be feeling better by now. " Well, I'm

not...the shortness of breath and chest tightness are are super bad in the

morning. I had to use my inhaler 3 times this morning before it relieved

anything and still my chest was tight. I was reading about connective tissue

disorder and it said as the disease progressed it caused pulmonary hypertension.

I knew it!! I have a auto-immune disease which has now caused me to have further

complications. I'm trying to see a rheumotolog i st but my new (idiot) physician

is laughing at me so I have to see a different doc to refer me. I need to be

diagnosed so my family understands that I'm not getting better soon and my

husband needs to know that, yes, I got sick from my implants. It's ridiculous!!

I've been sick for 2 1/2 years and he still thinks it's not my implants causing

it!! GRRR!! I'm sooo sick of this!!

> >

>

December 7, 2010

,

Yes, please let me know what your experience is with Dr. Hiatt. He treated me

with nothing but kindness and respect the whole time I saw him, so I was

extremely grateful for him. It was at the time I was desperate for some help

because I was so sick. He explanted me correctly.

Have I gotten better? YES!!! It took 4 long and grueling years, but I got my

life totally back. I have continued a lifestyle based on natural therapies and

detoxing, eating well, ( I eat a lot of stuff that I know I shouldn't eat as

well, but I've definitely changed what I eat and how I eat it).

I live a totally normal life, and have energy to do almost anything I want to

do. I say almost because I am no longer able to stay up until 2 AM and not feel

totally wiped out the next day. I do need to get my sleep, so I try to get to

bed by 9-10 PM. If I do stay up late, my brain feels really tired the next day.

Otherwise, I no longer feel any residual effects of my implant nightmare, and

since 2003 have been able to travel overseas (something I had never done before)

to the Dominican Republic, Haiti, India and South Korea.

YOU can get better....don't let anyone tell you otherwise. But you do need to

become aware of what your body needs, and take the necessary steps to get a

proper explant, and then detox your body of everything....

A case in point....

I used water-only fasting in the first few months after explant to rid my body

of toxic wastes. This was under the supervision of a naturopath which I had

requested from him. I saw evidence of toxins coming out of my body in the form

of rashes on my breasts by the 3rd day as well as my lower scalp (I had horrible

brain fog). I did several 3-5 day water only fasts, and then I moved on to

other therapies to try new things, such as chelation therapy. By 18 months post

explant had reached a plateau where nothing was seeming to work and I still felt

very poisoned. So, I went back to fasting (this time on my own, no

supervision), remembering that it was pretty effective. I was so stunned to see

rashes appear on my breasts again by the 3rd day! I was like " what is up with

this rash on my breasts? " So I decided to fast every few weeks for at least 3

days until I could fast and not see that rash appear. I did it for several

months (water only fasting for at least 3 days every other week or so). After

I could fast and see no rash appear, I began to notice slow progress toward good

health again, until finally I realized I was living pretty well again with no

brain fog or any other symptom. My progress was slow and steady, but I began to

really live well, with the exception of some fatigue.

A new doctor here in Vegas diagnosed my Hashimoto's autoimmune thyroid disease

in 2002. He put me on Armour thyroid and I felt really good. I basically

stopped seeing doctors after that. I found internet sites to order my own blood

tests, so I've been pretty independent when it comes to my health care.

I encourage you to keep reading and keep discovering what your body needs to

feel good again. With the right tools, resources and effort, you will find your

way back to good health!

Patty

> > >

> > > Hello everyone,

> > >

> > > Sorry for adding this to this conversation, I was looking for support in

asking again for advice on explant surgeons. I am embarrassed because I am so

confused I asked before and can't find the results. I remember some wonderful

women responding but don't remember and didn't save it, I am scared to death so

I put it out of my mind for a while. I thought I mustered up the strength and

figured out financially how to explant...but then got scared and tried to ignore

it AGAIN.. I am mainly so scared because I am so sick I am afraid I won't make

it through surgery and recovery so chose I guess to let these toxins kill me

slowly.

> > >

> > > But, now since I have a daughter who is 13 who I live for, I decided to

let her give me a chance at life.. and am asking...

> > >

> > > Who do you if you do, recommend for explantation near Arizona?

> > >

> > > Thanks-

> > >

> > > From: leamary@

> > > Date: Sun, 28 Nov 2010 09:25:46 -0700

> > > Subject: Re: freaking out!!

> > >

> > > My Sweet :

> > >

> > > Thank you for reaching out to the group, because you need plenty of love

and support.

> > >

> > > When my Asthma started, it was just a mild cough, and I was very short of

breath. As the years went by, it became full-blown Asthma, and I was very sick.

I was on Prednisone, and they had me on a nebulizer for a few years. It took

many years to get to where I am today, and I am in remission. We keep the

nebulizer just in case, and my doctors make sure that I have Ventolin and

Pulmocort...just in case.

> > >

> > > My doctors used conventional medicines to help to get me well. I had

silicone breast implants, and they were ruptured for so many years. Life is

still a struggle for me; however, if I get plenty of love and no stress, my

quality of life is close to normal. I do have Lupus, and my immune system is

compromised, and the only way for me to get through this is with antibiotics,

and probiotics. Many women do not believe in this treatment; however, it has

worked for me. I have constant infections, and that is probably why the

antibiotics make me better.

> > >

> > > Honey, I was never cleaned out properly, and that makes my case so

different. I believe that you will get well, but it will take time, and your

family had better step in and help you to get through this.

> > >

> > > Stay close to us...we love you and will be here for you...always...Lea

> > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~``

> > >

> > > freaking out!!

> > >

> > > Hi ladies,

> > > So, yes, I was diagnosed with asthma. I believe this is all steming from

my implants for sure!! I've had this tighness in my chest before when I had the