Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 My name is Jasmine and I have a wonderful little man named, Jaycen. Jaycen will be 5 months on the 16th and was diagnosed with cf April 9th. It came to a complete shock as cf doesn't run in our families. Jaycen was very sickly since birth. I breastfed for the first month constantly. His consumptions were enormous and so were his diapers, lol. Since birth Jaycen had a cough, diariah, and was losing weight. He cried all the time. We finally were admitted into hospital when Jaycen was under the 5th percentile...that was at 4 weeks old. We spent 2 weeks in peds. We tried everything..all different kinds of formulas, finally he seemed to tolerate and gain from Nutramigen..a pre-digested formula. They sent us home only after 2 days. Jaycen quickly started losing weight or maintaining it. We eventually had a sweat test done and Jaycen scored 90. The doctor(if you want to call him that) wanted to retest Jaycen in a week. I put my foot down and enough was enough. He was so sick. I contacted the cf clinic in Calgary, Alberta Canada and off we went. We were admitted the next day. Many more tests were done but we were on the right road. Jaycen is now on cheflax(antibiotic), zantac (rantitdine),coenzymes #4, as well as ADEK(vitamins). I also perform chest physio on him 1-2/day. Jaycen's last ultrasound revealed calcium deposits on his gall bladder(which is common) as well as his liver(don't know why that is). But all in all, Jaycen is so happy now. I just wanted to introduce ourselves and say HI to everyone. I will post a picture of Jaycen. I hope to chat with everyone. Jasmine & Jaycen Quote Link to comment Share on other sites More sharing options...
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