Re: Another question for Grandma Bev

June 7, 2002

Hi Tamara,

I am not Grandmom Bev, but wanna jump in here.

The discussion about whether dairy products are healthy or not has

flared up several times on Cystic-L and is discussed controversely in

the general population too. In my opinion it (as many other things)

depends on the patient. Some people virtually live on milk while

others do fine without it. I am afraid you have to figure it out for

your stepson. My daughter has lived on baby formula for almost five

years and now that she has weaned herself off the bottle (YEAHH!!),

she drinks a large glass of chocolate milk at least once a day. And

she is as healthy as can be (DOUBLE YEAHH!!).

All enzymes are slightly different. Sometimes those slight

differences can have very positive/negative impact on the patient.

Again it is a case of trial and error.

Hi all,

I'm back (you know you couldn't keep me away with your bitching about

husbands, right) and have finally managed to read through hundreds of

e-maiils that have piled up. I haven't had time to write an update,

but will do so on the weekend.

I found dozens of bouncing member accounts when I returned but don't

know the reason for that. If some of you have been without mail for a

while, I am sorry about that.

Peace

Torsten, dad of Fiona 5wcf and a nice tan

> Hi there. I have been just more of a reader on this group and

trying

> to get all the info I can on CF. My stepson, who is 12 has CF and

> just trying to see if I can find a better diet for him. I have

read

> in a couple of places where people with CF have cut out diary and

it

> helped them to gain weight. Of course the things they lose like

> calcium etc is substitued in vitamins .... I there any truth to

> this? Also is there a difference in the enzymes with each

> pharmacutical company are all they all the same? Currently he is

> taking Creon 20 but saw another one that offers more free shakes

and

> vitamins. Thanks for your help in advance. Of course anyone else

> can answer my questions as well.

> Take care

> Tamara

June 7, 2002

Torsten- Thanks for your input it is appreciated. Take care

Tamara

> > Hi there. I have been just more of a reader on this group and

> trying

> > to get all the info I can on CF. My stepson, who is 12 has CF

and

> > just trying to see if I can find a better diet for him. I have

> read

> > in a couple of places where people with CF have cut out diary and

> it

> > helped them to gain weight. Of course the things they lose like

> > calcium etc is substitued in vitamins .... I there any truth to

> > this? Also is there a difference in the enzymes with each

> > pharmacutical company are all they all the same? Currently he is

> > taking Creon 20 but saw another one that offers more free shakes

> and

> > vitamins. Thanks for your help in advance. Of course anyone

else

> > can answer my questions as well.

> > Take care

> > Tamara

June 7, 2002

Torsten- Thanks for your input it is appreciated. Take care

Tamara

> > Hi there. I have been just more of a reader on this group and

> trying

> > to get all the info I can on CF. My stepson, who is 12 has CF

and

> > just trying to see if I can find a better diet for him. I have

> read

> > in a couple of places where people with CF have cut out diary and

> it

> > helped them to gain weight. Of course the things they lose like

> > calcium etc is substitued in vitamins .... I there any truth to

> > this? Also is there a difference in the enzymes with each

> > pharmacutical company are all they all the same? Currently he is

> > taking Creon 20 but saw another one that offers more free shakes

> and

> > vitamins. Thanks for your help in advance. Of course anyone

else

> > can answer my questions as well.

> > Take care

> > Tamara

June 7, 2002

Torsten- Thanks for your input it is appreciated. Take care

Tamara

> > Hi there. I have been just more of a reader on this group and

> trying

> > to get all the info I can on CF. My stepson, who is 12 has CF

and

> > just trying to see if I can find a better diet for him. I have

> read

> > in a couple of places where people with CF have cut out diary and

> it

> > helped them to gain weight. Of course the things they lose like

> > calcium etc is substitued in vitamins .... I there any truth to

> > this? Also is there a difference in the enzymes with each

> > pharmacutical company are all they all the same? Currently he is

> > taking Creon 20 but saw another one that offers more free shakes

> and

> > vitamins. Thanks for your help in advance. Of course anyone

else

> > can answer my questions as well.

> > Take care

> > Tamara

June 9, 2002

Hi there,

I would just be giving my opinion. I have listened to several seminars

/discussions on this topic.....they generally state that medically it isn't

supposed to cause problems. BUT-------------here is just from me---us-& our

experience. Yes, it doesn't give you more flym,but, it does seem to allow

it to stay around more & congest us. I don't have CF , my granddaughter

does......& we both , as well as two others in family (with asthma /

allergies.). It seems many will tell you they feel more congested after

milk consumption--I do........I love milk & since I am not a pwcf, I drink

it anyway.--actually I love with a passion ice cream too:):).I have had a

few very knowledgeable person in the field who has said that, she too, knows

folks do have problems , but all her " medical " data tells her that isn't the

cause. Many call it an " old wives tale " , YET........not one of the rocket

scientist can change that it does affect folks. I think as Torsten said , it

really depends on the person......The enzymes I am told have no effect on

whether milk/dairy will CAUSE problems.....They are very necessary to help

retain & gain weight from food eaten.........Sorry, I am not more

informative ..Your choice to ask the doctor is good. We all have various

experiences with " MILK " .........best wishes to you & your precious family

(sorry I didn't answer earlier-I have been out of town )

LOVE & HUGS,

grandmomBEV

Re: Another question for Grandma Bev

Torsten- Thanks for your input it is appreciated. Take care

Tamara

> > Hi there. I have been just more of a reader on this group and

> trying

> > to get all the info I can on CF. My stepson, who is 12 has CF

and

> > just trying to see if I can find a better diet for him. I have

> read

> > in a couple of places where people with CF have cut out diary and

> it

> > helped them to gain weight. Of course the things they lose like

> > calcium etc is substitued in vitamins .... I there any truth to

> > this? Also is there a difference in the enzymes with each

> > pharmacutical company are all they all the same? Currently he is

> > taking Creon 20 but saw another one that offers more free shakes

> and

> > vitamins. Thanks for your help in advance. Of course anyone

else

> > can answer my questions as well.

> > Take care

> > Tamara

PLEASE do not post religious emails to the list.

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IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

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June 9, 2002