Guest guest Posted January 24, 2003 Report Share Posted January 24, 2003 Okay guys, I like this idea as well. Anyone know of a good NS in Nashville TN? I am trying Gaines next week at Vanderbilt. If anyone knows anything, please let me know. Thanks again! New to the group Hello everyone. I am new to this group and have never been a part of an online support group. It's a bit out of my comfort zone. But a friend suggested it couldn't hurt. SO here goes. I was told in July I had mono. But I never seemed to recover from it. I was sent to a rheumatologist who poked me in 12 places and said " you have Fibromyalgia, take all these meds and see me in 6 months. I am also a recovering addict for over 7 years now, so this was not a route I wanted to take. I went back to my PCP and asked to keep looking. Finally I was sent to a neurologist (I think to shut me up). He agreed I had Fibro and just to rule out MS he did an MRI. He also scheduled a nerve study for my arms to rule out carpel tunnel because I was complaining of the going numb and tingling on a regular basis. He did the study and found no C/T, but the MRI showed the Chiari. It is only a 1 and it is at 8mm so no big deal....I think. He said just go home and come back in 3 months unless I start having black outs or seizures. I go on the 31st for a second opinion just in case. I am just not sure if mine is " serious enough " to look at. I have had pain in my joints and muscles, I have back pain, numbness in my arms mostly, and sometimes my calves. I have headaches (not always bad), I have had a small amount of trouble swallowing recently. And the most recent thing has been then seeing things out of my left eye (light flashes even though it's dark) and the face freeze I had this week again on the left side of my face. This all sounds minor compared to what I have already read and to Chip's Chiari page. I think I am just wondering how any of you determined okay, now it's serious enough. Mostly I just want to know now what? Thanks- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2003 Report Share Posted January 27, 2003 Okay guys, I like this idea as well. Anyone know of a good NS in Nashville TN? I am trying Gaines next week at Vanderbilt. If anyone knows anything, please let me know. Thanks again! New to the group Hello everyone. I am new to this group and have never been a part of an online support group. It's a bit out of my comfort zone. But a friend suggested it couldn't hurt. SO here goes. I was told in July I had mono. But I never seemed to recover from it. I was sent to a rheumatologist who poked me in 12 places and said " you have Fibromyalgia, take all these meds and see me in 6 months. I am also a recovering addict for over 7 years now, so this was not a route I wanted to take. I went back to my PCP and asked to keep looking. Finally I was sent to a neurologist (I think to shut me up). He agreed I had Fibro and just to rule out MS he did an MRI. He also scheduled a nerve study for my arms to rule out carpel tunnel because I was complaining of the going numb and tingling on a regular basis. He did the study and found no C/T, but the MRI showed the Chiari. It is only a 1 and it is at 8mm so no big deal....I think. He said just go home and come back in 3 months unless I start having black outs or seizures. I go on the 31st for a second opinion just in case. I am just not sure if mine is " serious enough " to look at. I have had pain in my joints and muscles, I have back pain, numbness in my arms mostly, and sometimes my calves. I have headaches (not always bad), I have had a small amount of trouble swallowing recently. And the most recent thing has been then seeing things out of my left eye (light flashes even though it's dark) and the face freeze I had this week again on the left side of my face. This all sounds minor compared to what I have already read and to Chip's Chiari page. I think I am just wondering how any of you determined okay, now it's serious enough. Mostly I just want to know now what? Thanks- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2003 Report Share Posted January 27, 2003 Okay guys, I like this idea as well. Anyone know of a good NS in Nashville TN? I am trying Gaines next week at Vanderbilt. If anyone knows anything, please let me know. Thanks again! New to the group Hello everyone. I am new to this group and have never been a part of an online support group. It's a bit out of my comfort zone. But a friend suggested it couldn't hurt. SO here goes. I was told in July I had mono. But I never seemed to recover from it. I was sent to a rheumatologist who poked me in 12 places and said " you have Fibromyalgia, take all these meds and see me in 6 months. I am also a recovering addict for over 7 years now, so this was not a route I wanted to take. I went back to my PCP and asked to keep looking. Finally I was sent to a neurologist (I think to shut me up). He agreed I had Fibro and just to rule out MS he did an MRI. He also scheduled a nerve study for my arms to rule out carpel tunnel because I was complaining of the going numb and tingling on a regular basis. He did the study and found no C/T, but the MRI showed the Chiari. It is only a 1 and it is at 8mm so no big deal....I think. He said just go home and come back in 3 months unless I start having black outs or seizures. I go on the 31st for a second opinion just in case. I am just not sure if mine is " serious enough " to look at. I have had pain in my joints and muscles, I have back pain, numbness in my arms mostly, and sometimes my calves. I have headaches (not always bad), I have had a small amount of trouble swallowing recently. And the most recent thing has been then seeing things out of my left eye (light flashes even though it's dark) and the face freeze I had this week again on the left side of my face. This all sounds minor compared to what I have already read and to Chip's Chiari page. I think I am just wondering how any of you determined okay, now it's serious enough. Mostly I just want to know now what? Thanks- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2003 Report Share Posted January 27, 2003 Okay guys, I like this idea as well. Anyone know of a good NS in Nashville TN? I am trying Gaines next week at Vanderbilt. If anyone knows anything, please let me know. Thanks again! New to the group Hello everyone. I am new to this group and have never been a part of an online support group. It's a bit out of my comfort zone. But a friend suggested it couldn't hurt. SO here goes. I was told in July I had mono. But I never seemed to recover from it. I was sent to a rheumatologist who poked me in 12 places and said " you have Fibromyalgia, take all these meds and see me in 6 months. I am also a recovering addict for over 7 years now, so this was not a route I wanted to take. I went back to my PCP and asked to keep looking. Finally I was sent to a neurologist (I think to shut me up). He agreed I had Fibro and just to rule out MS he did an MRI. He also scheduled a nerve study for my arms to rule out carpel tunnel because I was complaining of the going numb and tingling on a regular basis. He did the study and found no C/T, but the MRI showed the Chiari. It is only a 1 and it is at 8mm so no big deal....I think. He said just go home and come back in 3 months unless I start having black outs or seizures. I go on the 31st for a second opinion just in case. I am just not sure if mine is " serious enough " to look at. I have had pain in my joints and muscles, I have back pain, numbness in my arms mostly, and sometimes my calves. I have headaches (not always bad), I have had a small amount of trouble swallowing recently. And the most recent thing has been then seeing things out of my left eye (light flashes even though it's dark) and the face freeze I had this week again on the left side of my face. This all sounds minor compared to what I have already read and to Chip's Chiari page. I think I am just wondering how any of you determined okay, now it's serious enough. Mostly I just want to know now what? Thanks- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2003 Report Share Posted April 2, 2003 >I was wondering if anyone can recommend a site or group I can - this one. > (maybe it's this group) that can tell me if there are any special > diets that can help me deal with this? There must be links in the home page to this question. What else do you plan to do besides diet, and what have family members done for it? (Feel free not to answer if I'm being too nosy ;-) Welcome and take care, Fay ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2003 Report Share Posted April 2, 2003 >I was wondering if anyone can recommend a site or group I can - this one. > (maybe it's this group) that can tell me if there are any special > diets that can help me deal with this? There must be links in the home page to this question. What else do you plan to do besides diet, and what have family members done for it? (Feel free not to answer if I'm being too nosy ;-) Welcome and take care, Fay ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 > Hello everyone, > I have 3 boys 8, 7, and 5 1/2. My oldest is " typical " my middle is > ADHD, and my youngest is PDD-NOS with a mild sezuire disorder. > Libby Welcome Libby, and welcome to the Grammas (I think I missed saying that.) I'm Tina , one of 2 Tina's on the list. I have 3 kids too. My oldest daughter is mentally handicapped and autistic, my middle daughter is NT (neurologically typical) and my youngest? I find out what the neuro-psych thinks on Friday. He also had a seizure disorder from birth to 5 yrs. old. He's been off the seizure meds for almost a year now and while we're seeing some questionable activity it's not enough to put him back on the meds. Welcome to the group. It's very active and I have a hard time keeping up so you'll only see me every now and then. Hope all our new members love it here and I apologize if I've missed welcoming anyone in the past few days. I'm sure all of you understand about life being hectic at times though. ;o) Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 Welcome to the group Libby! Debbie with twins - Jordan (ASD) 2.5yo - (NT) 2.5yo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 Hi Libby and welcome to the group. I know you will find the support, encouragement, acceptance and understanding here that we all so desperately need. Love, prayers and heart hugs, Debbie (GA), Mom to Evan (4.5 y/o with ToF, RBBB, Autism Spectrum Disorder, Asthma); (now a whole year old and HH and NT?); and my 3 angel babies whom I will finally see when God says it's time! 9:1-3 ============================================================ Date: 2003/04/22 Tue PM 12:29:00 EDT To: parenting_autism Subject: New to the group ============================================================ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 Greetings Libby! I am Missy, mom to 5.. (13, ADD), Robby(11, emotional but OK), JB(9, possible ADHD), (7, mild unknown LD) and Ashlyn(almost 3, dx unknown but full of issues..possible HFA)...was homeschooling but now they are back in public since we moved to a small country town from Atlanta(now in Centre, AL)..welcome to the group..these ladies have been nothing but wonderful and supportive since I have been here!!! Missy in AL wife, mother, homesteader, writer, student, teacher, dreamer New to the group Hello everyone, I have 3 boys 8, 7, and 5 1/2. My oldest is " typical " my middle is ADHD, and my youngest is PDD-NOS with a mild sezuire disorder. My dh and I both work full time, and he is attempting to go to night school. We are tired all the time, and is hard playing pass the kids and juggling all the schedules. I am fortunate to have my two younger boys in a private school for kids with ASD along with their typical peers. They are doing well there. I am worried about my 7 year old. He is struggling with reading and it is frustrating to see him try so hard. My youngest son is doing good. He is verbal, but no conversation yet. He is starting to answer small questions and can ask for things he wants. He is finally potty trained during the day, but latley he has been having accidents. I am hoping he is just intersted in what he is doing and forgets. It never happens in the house- always ouside. Anyway..I ramble, sorry. Life is hard sometimes and beautiful others . I look forward to getting to know you all, and hear about your lives and experiances. Take care, Libby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 Welcome Libby. Cecilia from Perú, mom to Dessirée (05/07/99) Lovely husband _____ I've stopped 31 spam messages. You can too! Get your free, safe spam protection at www.cloudmark.com http://www.cloudmark.com/spamnet?v1> http://www.cloudmark.com/> Cloudmark SpamNet - Join the fight against spam! -----Mensaje original----- De: libbyedgal Enviado el: Martes, 22 de Abril de 2003 11:29 a.m. Para: parenting_autism Asunto: New to the group Hello everyone, I have 3 boys 8, 7, and 5 1/2. My oldest is " typical " my middle is ADHD, and my youngest is PDD-NOS with a mild sezuire disorder. My dh and I both work full time, and he is attempting to go to night school. We are tired all the time, and is hard playing pass the kids and juggling all the schedules. I am fortunate to have my two younger boys in a private school for kids with ASD along with their typical peers. They are doing well there. I am worried about my 7 year old. He is struggling with reading and it is frustrating to see him try so hard. My youngest son is doing good. He is verbal, but no conversation yet. He is starting to answer small questions and can ask for things he wants. He is finally potty trained during the day, but latley he has been having accidents. I am hoping he is just intersted in what he is doing and forgets. It never happens in the house- always ouside. Anyway..I ramble, sorry. Life is hard sometimes and beautiful others . I look forward to getting to know you all, and hear about your lives and experiances. Take care, Libby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 Welcome, Libby! My name is , I am a stay at home mom in the Atlanta area to n (3 in July) who we think is moving toward an HFA dx (will find out in Oct), and Phoebe (10 mo today). I don't know how you do it with working, I can't imagine trying to manage the kids and work at the same time. I'm curious about your school for ASD kids ... where are you located and what is the school like? (SAHM in GA) MSN elizabethloht@... n 33, mo, no formal dx Phoebe, 10 wks ----- Original Message ----- > Hello everyone, > I have 3 boys 8, 7, and 5 1/2. My oldest is " typical " my middle is > ADHD, and my youngest is PDD-NOS with a mild sezuire disorder. > My dh and I both work full time, and he is attempting to go to night > school. We are tired all the time, and is hard playing pass the kids > and juggling all the schedules. I am fortunate to have my two younger > boys in a private school for kids with ASD along with their typical > peers. They are doing well there. I am worried about my 7 year old. > He is struggling with reading and it is frustrating to see him try so > hard. My youngest son is doing good. He is verbal, but no > conversation yet. He is starting to answer small questions and can > ask for things he wants. He is finally potty trained during the day, > but latley he has been having accidents. I am hoping he is just > intersted in what he is doing and forgets. It never happens in the > house- always ouside. > Anyway..I ramble, sorry. > Life is hard sometimes and beautiful others . > I look forward to getting to know you all, and hear about your lives > and experiances. > Take care, > Libby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 Welcome, Libby. This is a wonderful place to find support and laughter. I'm glad you found the group. Maggie ________________________________________________________________ The best thing to hit the internet in years - Juno SpeedBand! Surf the web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 Hi Libby! Welcome to the family! I have who is 13, HFA and who is 9 1/2 and aspergers. Both are in public schools, primarily general ed with supports and aides. Some of the help came easy, some I had to really fight for. Math concepts seem to be the hardest for my two, and reading comprehension is also a problem for . Sue in Waterford, MI Wife to Mark Mom to: , HFA, 13 9 1/2, AS/ADD Yahoo IM: smgaska1 Autism, the hardest puzzle to put together. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 Hi Libby I'm wendy mom to who is 3.5. We life in PA near Philadelphia. My daughter isn't trained so I have no wisdom for you. Hope you catch up on sleep! We all need more sleep. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 Welcome Libby! I have two boys 29 months who is ASD and 4 on May 10th (who is NT). This is a great place!! Warm Regards & ASD 11/25/00 in Maine Re: New to the group Welcome, Libby! My name is , I am a stay at home mom in the Atlanta area to n (3 in July) who we think is moving toward an HFA dx (will find out in Oct), and Phoebe (10 mo today). I don't know how you do it with working, I can't imagine trying to manage the kids and work at the same time. I'm curious about your school for ASD kids ... where are you located and what is the school like? (SAHM in GA) MSN elizabethloht@... n 33, mo, no formal dx Phoebe, 10 wks ----- Original Message ----- > Hello everyone, > I have 3 boys 8, 7, and 5 1/2. My oldest is " typical " my middle is > ADHD, and my youngest is PDD-NOS with a mild sezuire disorder. > My dh and I both work full time, and he is attempting to go to night > school. We are tired all the time, and is hard playing pass the kids > and juggling all the schedules. I am fortunate to have my two younger > boys in a private school for kids with ASD along with their typical > peers. They are doing well there. I am worried about my 7 year old. > He is struggling with reading and it is frustrating to see him try so > hard. My youngest son is doing good. He is verbal, but no > conversation yet. He is starting to answer small questions and can > ask for things he wants. He is finally potty trained during the day, > but latley he has been having accidents. I am hoping he is just > intersted in what he is doing and forgets. It never happens in the > house- always ouside. > Anyway..I ramble, sorry. > Life is hard sometimes and beautiful others . > I look forward to getting to know you all, and hear about your lives > and experiances. > Take care, > Libby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 Hi Libby, Welcome to the list. Where are you from? Ramble anytime, hon, that's what we're here for. Tuna ===== mom to: , 8, ASD , 4, NT Normal is just a setting on the washing machine. - Whoopi Goldberg ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 Hi Libby, Welcome to the list! Sissi Garvey Kids' Page http://www.isoa.net/~nitetrax/original.htm Boone's Art Page http://www.isoa.net/~nitetrax/bart.htm Dillon's Music Page http://www.geocities.com/flaremusic " If it doesn't spin, it's broke. " Boone Garvey (not a direct quote -- more like an attitude) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 Hi Libby, Welcome to the list! Sissi Garvey Kids' Page http://www.isoa.net/~nitetrax/original.htm Boone's Art Page http://www.isoa.net/~nitetrax/bart.htm Dillon's Music Page http://www.geocities.com/flaremusic " If it doesn't spin, it's broke. " Boone Garvey (not a direct quote -- more like an attitude) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2003 Report Share Posted April 23, 2003 Hi Libby, Nice to meet you. Welcome to the group. I am , living in Sydney, Australia. We have 5 going on 15 sometimes, NT, and 2.4 yrs ASD. He also is quite verbal but struggles to answer questions and tells us his needs/wants. Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2003 Report Share Posted April 23, 2003 welcome libby! M.G.mum to Sebastian, 11 kinda quirky(NT) Rowan, 6 extra quirky (ASD) married to and living in Northern Ontario Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2003 Report Share Posted April 23, 2003 welcome libby! M.G.mum to Sebastian, 11 kinda quirky(NT) Rowan, 6 extra quirky (ASD) married to and living in Northern Ontario Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2003 Report Share Posted April 23, 2003 welcome libby! M.G.mum to Sebastian, 11 kinda quirky(NT) Rowan, 6 extra quirky (ASD) married to and living in Northern Ontario Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2003 Report Share Posted April 23, 2003 Hi , and thank you for your kind words. I live in central Ohio. My kids go to a school here that is for kids with ASD. The classes, are for the most part, half ASD and half typical. The school is naturalistic ABA. We also have a home program that goes along with it. I love the school, for the most part. Lol We still have our problems, and we are lacking a few things here and there, but it has only been open for a few years. I am intersted to know how your son's diagnoses comes out. I imagine it must be hard having a new baby, and a small child..( I've been there), but I know there are extra challenges when ou child has an ASD. Take care, Libby > > Welcome, Libby! > > My name is , I am a stay at home mom in the Atlanta area to n > (3 in July) who we think is moving toward an HFA dx (will find out in Oct), > and Phoebe (10 mo today). > > I don't know how you do it with working, I can't imagine trying to manage > the kids and work at the same time. I'm curious about your school for ASD > kids ... where are you located and what is the school like? > > (SAHM in GA) > MSN elizabethloht@h... > n 33, mo, no formal dx > Phoebe, 10 wks > > > > ----- Original Message ----- > From: " libbyedgal " > > > > Hello everyone, > > I have 3 boys 8, 7, and 5 1/2. My oldest is " typical " my middle is > > ADHD, and my youngest is PDD-NOS with a mild sezuire disorder. > > My dh and I both work full time, and he is attempting to go to night > > school. We are tired all the time, and is hard playing pass the kids > > and juggling all the schedules. I am fortunate to have my two younger > > boys in a private school for kids with ASD along with their typical > > peers. They are doing well there. I am worried about my 7 year old. > > He is struggling with reading and it is frustrating to see him try so > > hard. My youngest son is doing good. He is verbal, but no > > conversation yet. He is starting to answer small questions and can > > ask for things he wants. He is finally potty trained during the day, > > but latley he has been having accidents. I am hoping he is just > > intersted in what he is doing and forgets. It never happens in the > > house- always ouside. > > Anyway..I ramble, sorry. > > Life is hard sometimes and beautiful others . > > I look forward to getting to know you all, and hear about your lives > > and experiances. > > Take care, > > Libby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2003 Report Share Posted April 23, 2003 Ohio, huh. My brother is a prosecuting attourney in the Springfield area, if you know where that is. He specializes in domestic abuse, so if dh ever gives ya any trouble, lemme know : ) (just kidding, really). Your school sounds wonderful. You are so lucky. As you may have gathered from my recent posts, I am just now getting educated myself on schooling options. If that means relocating to another area, well, I'm open to that. I guess being an American, it seems strange to me that there are no facilities (or very very few) catering to the special needs niche and competing for our business. I will certainly keep you all posted on n's dx if we ever get in to see the specialist. (SAHM in GA) MSN elizabethloht@... n 33, mo, no formal dx Phoebe, 10 wks Re: New to the group > Hi , and thank you for your kind words. > I live in central Ohio. My kids go to a school here that is for kids > with ASD. The classes, are for the most part, half ASD and half > typical. The school is naturalistic ABA. We also have a home program > that goes along with it. I love the school, for the most part. Lol We > still have our problems, and we are lacking a few things here and > there, but it has only been open for a few years. > I am intersted to know how your son's diagnoses comes out. I imagine > it must be hard having a new baby, and a small child..( I've been > there), but I know there are extra challenges when ou child has an > ASD. > Take care, > Libby > > > > > > > > > > Welcome, Libby! > > > > My name is , I am a stay at home mom in the Atlanta area > to n > > (3 in July) who we think is moving toward an HFA dx (will find out > in Oct), > > and Phoebe (10 mo today). > > > > I don't know how you do it with working, I can't imagine trying to > manage > > the kids and work at the same time. I'm curious about your school > for ASD > > kids ... where are you located and what is the school like? > > > > (SAHM in GA) > > MSN elizabethloht@h... > > n 33, mo, no formal dx > > Phoebe, 10 wks > > > > > > > > ----- Original Message ----- > > From: " libbyedgal " > > > > > > > Hello everyone, > > > I have 3 boys 8, 7, and 5 1/2. My oldest is " typical " my middle is > > > ADHD, and my youngest is PDD-NOS with a mild sezuire disorder. > > > My dh and I both work full time, and he is attempting to go to > night > > > school. We are tired all the time, and is hard playing pass the > kids > > > and juggling all the schedules. I am fortunate to have my two > younger > > > boys in a private school for kids with ASD along with their > typical > > > peers. They are doing well there. I am worried about my 7 year > old. > > > He is struggling with reading and it is frustrating to see him > try so > > > hard. My youngest son is doing good. He is verbal, but no > > > conversation yet. He is starting to answer small questions and can > > > ask for things he wants. He is finally potty trained during the > day, > > > but latley he has been having accidents. I am hoping he is just > > > intersted in what he is doing and forgets. It never happens in the > > > house- always ouside. > > > Anyway..I ramble, sorry. > > > Life is hard sometimes and beautiful others . > > > I look forward to getting to know you all, and hear about your > lives > > > and experiances. > > > Take care, > > > Libby > > > Quote Link to comment Share on other sites More sharing options...
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