New to the group

[Guest guest]

OOPS, here is the abstract I wanted to send with my last message.

Torsten

Am J Med 2000 Apr 15;108(6):481-6

Erratum in:

Am J Med 2000 Jun 1;108(8):690

Ursodeoxycholic acid therapy in hepatobiliary disease.

Kowdley KV.

Division of Gastroenterology/Hepatology, University of Washington,

School of Medicine, Seattle, Washington, USA.

Ursodeoxycholic acid is a hydrophilic bile acid that under normal

circumstances represents a small fraction of the bile acid pool in

humans. It is effective in dissolving cholesterol gallstones in

appropriately selected patients. Ursodeoxycholic acid improves serum

alkaline phosphatase and aminotransferase levels in primary biliary

cirrhosis, but its effects on rates of liver transplantation and

death are less certain. Ursodeoxycholic acid has had promising

[corrected] effects in several other cholestatic liver diseases, such

as cystic fibrosis and intrahepatic cholestasis of pregnancy, but

data are too preliminary to make recommendations about its routine

use in these conditions. Its effects are mediated by amelioration of

damage to cell membranes caused by retained toxic bile acids.

Ursodeoxycholic acid improves biliary secretion of bile acids, may

improve bile flow, and it has immunomodulatory properties that may

reduce immune-mediated liver damage. However, its use in the

treatment of cholestatic liver disease remains uncertain pending

additional randomized trials.

Publication Types:

Review

Review, Tutorial

PMID: 10781781 [PubMed - indexed for MEDLINE]

[Guest guest]

Irene posted:

< I couldn't cope without it as my

pain is about a 8 most of the time.>>

Irene, you sound just like me. A great day is when my pain goes down to a

7... I know that a lot of people can't do it, I've discovered that doing a

little Tai Chi helps. I have a video called Tai Chi Healing Dance by

Cao that is wonderful. Yoga is also great, if you can do it. I am limited

in the poses I can do, but every little bit helps.

Jacqui McCallister posted:

<

They say the only things that will help Fibro are anti-depressants,

exercise and getting the proper sleep.>>

Well, maybe you should ask your doctor how people with FMS are supposed to

get the " proper sleep " when we hurt so badly that we can't get comfortable

long enough even to fall asleep, let alone stay that way long enough to wake

up rested? Thank goodness my pain doc doesn't take this attitude!!! I was

in his office, practically in tears, a couple of months ago because I'd been

getting an average of 2 one-hour naps a day for weeks.

He asked why I wasn't able to sleep and I explained that it was the pain, so

he prescribed Kadian for me to take at night, in addition to the Oxycodone I

take during the day. It has helped a great deal. I still hurt, but it

takes the edge off the pain so I can finally fall asleep. I also get 15

Ambien (5 mg) to take a month, on nights that I'm really sleepless, but I

try to horde those like gold...

Jacqui also commented: <

>

My mom has RA and she uses that instead of prescription anti-inflammatory

meds, too, because the cost is prohibitive. She says she gets just as much

relief from that as she ever did from Vioxx and the countless others she

tried...

" Let there be beauty and strength, power and compassion, honor and humility,

mirth and reverence within you, "

-Mareth

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

[Guest guest]

Irene posted:

< I couldn't cope without it as my

pain is about a 8 most of the time.>>

Irene, you sound just like me. A great day is when my pain goes down to a

7... I know that a lot of people can't do it, I've discovered that doing a

little Tai Chi helps. I have a video called Tai Chi Healing Dance by

Cao that is wonderful. Yoga is also great, if you can do it. I am limited

in the poses I can do, but every little bit helps.

Jacqui McCallister posted:

<

They say the only things that will help Fibro are anti-depressants,

exercise and getting the proper sleep.>>

Well, maybe you should ask your doctor how people with FMS are supposed to

get the " proper sleep " when we hurt so badly that we can't get comfortable

long enough even to fall asleep, let alone stay that way long enough to wake

up rested? Thank goodness my pain doc doesn't take this attitude!!! I was

in his office, practically in tears, a couple of months ago because I'd been

getting an average of 2 one-hour naps a day for weeks.

He asked why I wasn't able to sleep and I explained that it was the pain, so

he prescribed Kadian for me to take at night, in addition to the Oxycodone I

take during the day. It has helped a great deal. I still hurt, but it

takes the edge off the pain so I can finally fall asleep. I also get 15

Ambien (5 mg) to take a month, on nights that I'm really sleepless, but I

try to horde those like gold...

Jacqui also commented: <

>

My mom has RA and she uses that instead of prescription anti-inflammatory

meds, too, because the cost is prohibitive. She says she gets just as much

relief from that as she ever did from Vioxx and the countless others she

tried...

" Let there be beauty and strength, power and compassion, honor and humility,

mirth and reverence within you, "

-Mareth

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

[Guest guest]

The doctors who say pain meds don't help fibro take it straight from

the textbook. I'd had them in the past, rotating from codeine to

Darvocet to Vicodin so I wouldn't build up a tolerance to them.

Also, tried oxycontin for a while. Then, 10/01 I was sent on a

consultation and THAT doctor took me off everything! He felt I was

becoming dependent on the pain meds and wanted me to just suck it up

when the pain was bad.

Obviously, he has never had fibro!

> Irene writes:

>

> Pain medication does help fibro. I think that a goodly number of

us on

> > this list do. I know that I do and I couldn't cope without it as

my pain

> > is about a 8 most of the time.

> >

> > Ask your doctor where he got his information from that pain

medications

> > don't help pain. That is what fibro is -- a lot of pain with

many other

> > things thrown in for good measure. I would then go find me a

doctor that

> > understands that you need pain relief and that you have fibro.

>

>

> Take care,

> Irene

>

> My doctors, including my Rheumy believe the same thing. They only

agreed to prescribe Vioxx and Naprosyn after x-rays proved I have

Osteoarthritis too. They say the only things that will help Fibro are

anti-depressants, exercise and getting the proper sleep.

>

> Then Medicaid refused to pay for Vioxx any longer, so I'm just

using 375 mg Naprosyn twice a day. It never stops the pain, but I

guess it's better than nothing.

>

> {{{Hugs}}}

> Jacqui

>

>

>

>

> ---

> Outgoing mail is certified Virus Free.

> Checked by AVG anti-virus system (http://www.grisoft.com).

> Version: 6.0.381 / Virus Database: 214 - Release Date: 8/2/2002

>

>

>

[Guest guest]

The doctors who say pain meds don't help fibro take it straight from

the textbook. I'd had them in the past, rotating from codeine to

Darvocet to Vicodin so I wouldn't build up a tolerance to them.

Also, tried oxycontin for a while. Then, 10/01 I was sent on a

consultation and THAT doctor took me off everything! He felt I was

becoming dependent on the pain meds and wanted me to just suck it up

when the pain was bad.

Obviously, he has never had fibro!

> Irene writes:

>

> Pain medication does help fibro. I think that a goodly number of

us on

> > this list do. I know that I do and I couldn't cope without it as

my pain

> > is about a 8 most of the time.

> >

> > Ask your doctor where he got his information from that pain

medications

> > don't help pain. That is what fibro is -- a lot of pain with

many other

> > things thrown in for good measure. I would then go find me a

doctor that

> > understands that you need pain relief and that you have fibro.

>

>

> Take care,

> Irene

>

> My doctors, including my Rheumy believe the same thing. They only

agreed to prescribe Vioxx and Naprosyn after x-rays proved I have

Osteoarthritis too. They say the only things that will help Fibro are

anti-depressants, exercise and getting the proper sleep.

>

> Then Medicaid refused to pay for Vioxx any longer, so I'm just

using 375 mg Naprosyn twice a day. It never stops the pain, but I

guess it's better than nothing.

>

> {{{Hugs}}}

> Jacqui

>

>

>

>

> ---

> Outgoing mail is certified Virus Free.

> Checked by AVG anti-virus system (http://www.grisoft.com).

> Version: 6.0.381 / Virus Database: 214 - Release Date: 8/2/2002

>

>

>

[Guest guest]

The doctors who say pain meds don't help fibro take it straight from

the textbook. I'd had them in the past, rotating from codeine to

Darvocet to Vicodin so I wouldn't build up a tolerance to them.

Also, tried oxycontin for a while. Then, 10/01 I was sent on a

consultation and THAT doctor took me off everything! He felt I was

becoming dependent on the pain meds and wanted me to just suck it up

when the pain was bad.

Obviously, he has never had fibro!

> Irene writes:

>

> Pain medication does help fibro. I think that a goodly number of

us on

> > this list do. I know that I do and I couldn't cope without it as

my pain

> > is about a 8 most of the time.

> >

> > Ask your doctor where he got his information from that pain

medications

> > don't help pain. That is what fibro is -- a lot of pain with

many other

> > things thrown in for good measure. I would then go find me a

doctor that

> > understands that you need pain relief and that you have fibro.

>

>

> Take care,

> Irene

>

> My doctors, including my Rheumy believe the same thing. They only

agreed to prescribe Vioxx and Naprosyn after x-rays proved I have

Osteoarthritis too. They say the only things that will help Fibro are

anti-depressants, exercise and getting the proper sleep.

>

> Then Medicaid refused to pay for Vioxx any longer, so I'm just

using 375 mg Naprosyn twice a day. It never stops the pain, but I

guess it's better than nothing.

>

> {{{Hugs}}}

> Jacqui

>

>

>

>

> ---

> Outgoing mail is certified Virus Free.

> Checked by AVG anti-virus system (http://www.grisoft.com).

> Version: 6.0.381 / Virus Database: 214 - Release Date: 8/2/2002

>

>

>

[Guest guest]

,

I'm also relatively new- about a month or so. You will find that this group is

wonderful and supportive. I'm glad you found it!

When my problems began, my gallbladder was the first to go. I think that is the

initial diagnosis for many people with the attack symptoms. After they removed

mine, I still had the problems - no relief at all from the pain. I had to change

GI's, because he said he just though I had irritable bowel. The next doc

started off saying the same thing. I was still having attacks left and right,

and he did every test known to man. Then, he said I might have something called

Sphincter of Oddi dysfunction. He referred me to a surgeon at UK, they made an

appointment for my ERCP, and, surely enough, I did have it. They did the

manometry, and said I should be ok.

Well, I wish! It continued on, and I found through people my Mom knew a

wonderful doctor at U of L. I live in KY. He has seen me now for about two

years or so. He has now told me that my pancreas was the reason for my

gallbladder going bad most likely. Enzymes do not control or help the pain or

nausea portion of my disease at all. I have to take phenergen quite often for

nausea, and I take pain meds whenever I feel about of pancreatitis popping up on

me. Once an attack rears its ugly head, those don't help. Only an IV of demrol

and phenergen. Sometimes, that won't even do the job. It's usually based on

how high my counts are - the higher the count, the worse the pain.

I don't know where you live, but, if you are continuing to have pain, you have

to search for an answer - whether it be with your current doc or someone else.

So many people just give up and live with pain. My mom is a lovely example. She

just suffers. I chose to push as hard as I could until someone would quit

telling me I had irritable bowel and that I needed to stop putting so much

stress in my life. My pancreas is diseased, and my problem stems from my

pancreatic duct. I have a nice, little stricture in there that is causing a

world of problems.

As for drinking, I and everyone on this Board will say stop now. I use to be a

drinker, myself. I'm relatively young, so I use to live it up a little in

college. My doc says alcohol had nothing to do with mine, as I was not an

alcoholic or heavy, heavy drinker, and it is my duct that is the culprate. I

stopped drinking over a year and a half ago- totally (I only dabbled a little

here and there for the past several years). I found out the hard way that this

was not the best thing to do. Life has changed alot for me now, and I don't

miss drinking at all. God has replaced all that want and need for it.

Anyways, I am glad you have joined this very wonderful group. It has truly been

a blessing to me. As for pizza, honey, I'm right there with you. Tacos,

cornbread, salads, etc!!!

Have a wonderful and blessed day - hoping they are pain free!

in KY

tuck9906 wrote:Hi!

I'm new to the group and hope I can find others who've had the same

(or close) expereiences to mine. Maybe I won't feel so alone. I've

had my gallbladder out, scphinter of Oddi cut, take Regalin and

enzymes and still have attacks. I have a drink or two now and then

and eat a low fat diet - I MISS pizza! Am I a freak?

[Guest guest]

,

I'm also relatively new- about a month or so. You will find that this group is

wonderful and supportive. I'm glad you found it!

When my problems began, my gallbladder was the first to go. I think that is the

initial diagnosis for many people with the attack symptoms. After they removed

mine, I still had the problems - no relief at all from the pain. I had to change

GI's, because he said he just though I had irritable bowel. The next doc

started off saying the same thing. I was still having attacks left and right,

and he did every test known to man. Then, he said I might have something called

Sphincter of Oddi dysfunction. He referred me to a surgeon at UK, they made an

appointment for my ERCP, and, surely enough, I did have it. They did the

manometry, and said I should be ok.

Well, I wish! It continued on, and I found through people my Mom knew a

wonderful doctor at U of L. I live in KY. He has seen me now for about two

years or so. He has now told me that my pancreas was the reason for my

gallbladder going bad most likely. Enzymes do not control or help the pain or

nausea portion of my disease at all. I have to take phenergen quite often for

nausea, and I take pain meds whenever I feel about of pancreatitis popping up on

me. Once an attack rears its ugly head, those don't help. Only an IV of demrol

and phenergen. Sometimes, that won't even do the job. It's usually based on

how high my counts are - the higher the count, the worse the pain.

I don't know where you live, but, if you are continuing to have pain, you have

to search for an answer - whether it be with your current doc or someone else.

So many people just give up and live with pain. My mom is a lovely example. She

just suffers. I chose to push as hard as I could until someone would quit

telling me I had irritable bowel and that I needed to stop putting so much

stress in my life. My pancreas is diseased, and my problem stems from my

pancreatic duct. I have a nice, little stricture in there that is causing a

world of problems.

As for drinking, I and everyone on this Board will say stop now. I use to be a

drinker, myself. I'm relatively young, so I use to live it up a little in

college. My doc says alcohol had nothing to do with mine, as I was not an

alcoholic or heavy, heavy drinker, and it is my duct that is the culprate. I

stopped drinking over a year and a half ago- totally (I only dabbled a little

here and there for the past several years). I found out the hard way that this

was not the best thing to do. Life has changed alot for me now, and I don't

miss drinking at all. God has replaced all that want and need for it.

Anyways, I am glad you have joined this very wonderful group. It has truly been

a blessing to me. As for pizza, honey, I'm right there with you. Tacos,

cornbread, salads, etc!!!

Have a wonderful and blessed day - hoping they are pain free!

in KY

tuck9906 wrote:Hi!

I'm new to the group and hope I can find others who've had the same

(or close) expereiences to mine. Maybe I won't feel so alone. I've

had my gallbladder out, scphinter of Oddi cut, take Regalin and

enzymes and still have attacks. I have a drink or two now and then

and eat a low fat diet - I MISS pizza! Am I a freak?

[Guest guest]

You are not a freak to miss pizza. You need to stay away from all alcohol

though. don't cook with it, don't drink it and I wouldn't even smell it.

Stay away from it all together. Life is to precious. There is not need to

have it in your life

I hope this finds you and yours well

Mark E. Armstrong

www.top5plus5.com

NW Chapter Rep

Pancreatitis Association, International

new to the group

> Hi!

> I'm new to the group and hope I can find others who've had the same

> (or close) expereiences to mine. Maybe I won't feel so alone. I've

> had my gallbladder out, scphinter of Oddi cut, take Regalin and

> enzymes and still have attacks. I have a drink or two now and then

> and eat a low fat diet - I MISS pizza! Am I a freak?

>

>

>

>

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit & quot;reply & quot; or send an e-mail

to: Pancreatitis (AT) Yahoo

>

>

[Guest guest]

You are not a freak to miss pizza. You need to stay away from all alcohol

though. don't cook with it, don't drink it and I wouldn't even smell it.

Stay away from it all together. Life is to precious. There is not need to

have it in your life

I hope this finds you and yours well

Mark E. Armstrong

www.top5plus5.com

NW Chapter Rep

Pancreatitis Association, International

new to the group

> Hi!

> I'm new to the group and hope I can find others who've had the same

> (or close) expereiences to mine. Maybe I won't feel so alone. I've

> had my gallbladder out, scphinter of Oddi cut, take Regalin and

> enzymes and still have attacks. I have a drink or two now and then

> and eat a low fat diet - I MISS pizza! Am I a freak?

>

>

>

>

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit & quot;reply & quot; or send an e-mail

to: Pancreatitis (AT) Yahoo

>

>

[Guest guest]

>

>Reply-To: pancreatitis

>To: pancreatitis

>Subject: new to the group

>Date: Mon, 19 Aug 2002 15:38:08 -0000

>MIME-Version: 1.0

Hi!

I'm new to the group and hope I can find others who've had the same

(or close) expereiences to mine. Maybe I won't feel so alone. I've

had my gallbladder out, scphinter of Oddi cut, take Regalin and

enzymes and still have attacks. I have a drink or two now and then

and eat a low fat diet - I MISS pizza! Am I a freak?

:

No you are not a freak. several of us have similar stories to you. I am 36

had my GB out, SOD, gastroparesis for which I take Reglan, pancreatic

divisum, with numerous sphicterotomies ans stents placed. You can check out

some of our stories at:

http://www.pancassociation.org/storieshome.html

welcome to PAI.

>

Tuten-SC

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

[Guest guest]

>

>Reply-To: pancreatitis

>To: pancreatitis

>Subject: new to the group

>Date: Mon, 19 Aug 2002 15:38:08 -0000

>MIME-Version: 1.0

Hi!

I'm new to the group and hope I can find others who've had the same

(or close) expereiences to mine. Maybe I won't feel so alone. I've

had my gallbladder out, scphinter of Oddi cut, take Regalin and

enzymes and still have attacks. I have a drink or two now and then

and eat a low fat diet - I MISS pizza! Am I a freak?

:

No you are not a freak. several of us have similar stories to you. I am 36

had my GB out, SOD, gastroparesis for which I take Reglan, pancreatic

divisum, with numerous sphicterotomies ans stents placed. You can check out

some of our stories at:

http://www.pancassociation.org/storieshome.html

welcome to PAI.

>

Tuten-SC

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

[Guest guest]

> Hi!

> I'm new to the group and hope I can find others who've had the

same

> (or close) expereiences to mine. Maybe I won't feel so alone.

I've

> had my gallbladder out, scphinter of Oddi cut, take Regalin and

> enzymes and still have attacks. I have a drink or two now and

then

> and eat a low fat diet - I MISS pizza! Am I a freak?

>

>

,

My experiences aren't quite as close. I still have my gallbladder,

haven't had my sphincter of Oddi cut and have never taken

Regalin. But I have had acute pancreatitis, now have chronic

pancreatitis, and do take enzymes. You can read all about me

at:

http://www.panassociation.org/storieshome.html#Heidi

That drink or two now or then could very well be the fire that feeds

those attacks you speak of. I think you'll find that the

overwhelming majority of us totally abstain from alcohol, for

many valid reasons that are easily researched.

As far as the pizza goes, you can still have it if you make your

own! I do all the time, and our Southwestern Representative,

Mark Armstrong, is the Head Chef of the Pancreatitis Pizza

Lover's Club...ask him for his recipe!

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

hhessgriffeth@...

Southeastern Representative

Pancreatitis Association, Intl.

[Guest guest]

> Hi!

> I'm new to the group and hope I can find others who've had the

same

> (or close) expereiences to mine. Maybe I won't feel so alone.

I've

> had my gallbladder out, scphinter of Oddi cut, take Regalin and

> enzymes and still have attacks. I have a drink or two now and

then

> and eat a low fat diet - I MISS pizza! Am I a freak?

>

>

,

My experiences aren't quite as close. I still have my gallbladder,

haven't had my sphincter of Oddi cut and have never taken

Regalin. But I have had acute pancreatitis, now have chronic

pancreatitis, and do take enzymes. You can read all about me

at:

http://www.panassociation.org/storieshome.html#Heidi

That drink or two now or then could very well be the fire that feeds

those attacks you speak of. I think you'll find that the

overwhelming majority of us totally abstain from alcohol, for

many valid reasons that are easily researched.

As far as the pizza goes, you can still have it if you make your

own! I do all the time, and our Southwestern Representative,

Mark Armstrong, is the Head Chef of the Pancreatitis Pizza

Lover's Club...ask him for his recipe!

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

hhessgriffeth@...

Southeastern Representative

Pancreatitis Association, Intl.

[Guest guest]

,

no you are not a freak. I miss pizza too! You have to stop

even the rare drink. Any alcoholl at all will set the

pancreas off. I'm missing my gallbladder too, though they

tried to reconstruct my ducts instead of having the

sphincter of Oddi cut since my problem is due to pancreatic

divisum (divided ducts) - it's a birth defect.

I'm also on Reglan for my nausea and bowel motility. I eat a

low fat to no fat diet - I usually stay at 6grams or less a

meal. I also have daily pain that is controlled most of the

time with pain meds. They have me on a long lasting one 3

times a day and a short acting one for breakthrough pain.

Haven't been feeling too good today.

You've found the right place. Welcome, feel free to vent,

cry, complaint, laugh, etc. We'll be here to listen, give

advice, etc.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest Representative

Pancreatitis Association, International

[Guest guest]

Tami,

Can you tell us what Transverse Myelitis is?

Thanks,

Donna

brokesouth2 wrote:

> Hi everyone, I was dx with Transverse Myelitis last year. Now they

> think I might have Fibromyalgia. Have had my body gone to swelling

> this past week. I dont know much about this condition. Have had many

> tests, got the bills to prove it. Can anyone shed some light on this

> condition? Thank-you Tamy

>

>

> SEND POST TO: fibromyalgia-cfs

>

> HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html

> LIST OWNER: " Missy " Parrot004@...>

> UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe

>

>

>

>

[Guest guest]

Tami,

Can you tell us what Transverse Myelitis is?

Thanks,

Donna

brokesouth2 wrote:

> Hi everyone, I was dx with Transverse Myelitis last year. Now they

> think I might have Fibromyalgia. Have had my body gone to swelling

> this past week. I dont know much about this condition. Have had many

> tests, got the bills to prove it. Can anyone shed some light on this

> condition? Thank-you Tamy

>

>

> SEND POST TO: fibromyalgia-cfs

>

> HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html

> LIST OWNER: " Missy " Parrot004@...>

> UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe

>

>

>

>

[Guest guest]

Tami,

Can you tell us what Transverse Myelitis is?

Thanks,

Donna

brokesouth2 wrote:

> Hi everyone, I was dx with Transverse Myelitis last year. Now they

> think I might have Fibromyalgia. Have had my body gone to swelling

> this past week. I dont know much about this condition. Have had many

> tests, got the bills to prove it. Can anyone shed some light on this

> condition? Thank-you Tamy

>

>

> SEND POST TO: fibromyalgia-cfs

>

> HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html

> LIST OWNER: " Missy " Parrot004@...>

> UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe

>

>

>

>

[Guest guest]

Tamy, we welcome you to the group. I think that you will like this group. I

do. People in are very loving, caring and supportive. I can't answer your

question but I know someone will or did. Vent if you want to. Most of us

have at one time or another.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman

[Guest guest]

Tamy, we welcome you to the group. I think that you will like this group. I

do. People in are very loving, caring and supportive. I can't answer your

question but I know someone will or did. Vent if you want to. Most of us

have at one time or another.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman

[Guest guest]

Tamy, we welcome you to the group. I think that you will like this group. I

do. People in are very loving, caring and supportive. I can't answer your

question but I know someone will or did. Vent if you want to. Most of us

have at one time or another.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman

[Guest guest]

Well, IMO, you're not eating much at all, but I would suggest cutting out the

protein bar and Carnation Instant Breakfast as they're both high calorie and

not the best protein for us. I know the bars are easy, but why don't you

pick up some " good " protein and make a shake instead. There are many

favorites out there, 2 of the most popular being Proscore 100 or ProBlend 55.

They might also just kill the craving for those crackers.

in NJ

*********************************************

In a message dated 9/20/2002 1:01:16 PM Eastern Daylight Time,

davia_p@... writes:

> I seem to be much more hunger than normal and I

> am eating more frequently. For example: yesturday I had: 16 oz of

> coffee, desigener way protein bar, 24 oz water,1 oz cheese then 1/

> hour later, 1 cup of yougurt,1 hour later 2 cups of cantaloupe,

> 3hours 2 oz of sauteed chicken with 1/2 cup cabbage, 1hour later 16

> oz of coffee, 24 oz of water then 1 snack size bag of wheat thins,

> and when i got home, at 10:20 last night I had 2 slices of cheese

> with 2 slices of bologna and a dab of mustard, then I had 8oz of

> carnation instant breakfast I was still kinda of hungry but went to

> bed instead. DID I EAT TOO MUCH

[Guest guest]

I'm gonna kinda break up your post so it looks more like a listing, OK?

16 oz of

> coffee, desigener way protein bar, 24 oz water,1 oz cheese

********* so, you potentially netted 10g protein here, and lost 8 oz of

water (16 oz coffee needs 32 oz water)

then 1/

> hour later, 1 cup of yougurt,

******* too soon.... 1 hour apart is grazing. Yogurt had how many suagrs?

1 hour later 2 cups of cantaloupe,

******* too soon. How many g of sugar? 2 C sounds like lots to me.

> 3hours 2 oz of sauteed chicken with 1/2 cup cabbage,

*********** this sounds perfect. I wish I could eat cabbage (raw). Love

the stuff, but if I ate it, I'd lose all my freinds. :-(

1hour later 16

> oz of coffee, 24 oz of water then 1 snack size bag of wheat thins,

********* too soon, net loss of 8 oz water. I'm good with the Wheat Thins &

volume

> and when i got home, at 10:20 last night I had 2 slices of cheese

> with 2 slices of bologna and a dab of mustard,

********* net to you, another 10g protein, maybe, top end

then I had 8oz of

> carnation instant breakfast I was still kinda of hungry but went to

> bed instead.

************ net protein to you, maybe 4g? If NSA, you still got a huge

load of sugar. If regular, you'd have been ahead to eat a Milky Way, as I

recall.

********

OK, so that sounds harsh at first read. My (very biased) opinion is that

there is not enough water, not enough protein, too much sugar, and some

grazing. I don't see volume and I see that you are aiming toward the right

things. But just missing 'em. I also don't see any vites or miinerals.

DID I EAT TOO MUCH

[Guest guest]

Hi Lucille,

Welcome to the group. Some people achieve remission on PTU within a few weeks

and for others it takes several years. Most people, however, achieve

remission within 12-18 months. And after the initial 6-8 weeks on meds, most

people can be maintained on 100-150 mg PTU daily. It's important that your

doctor check your FT4 and FT3 levels every 4-6 weeks to make sure that your

PTU dose is too high. The test for TSH can be misleading so be sure to have

the other levels.

And when you are managing well or becoming hypo on a low dose of PTU, it's

important that you have a test for TSI, the antibodies that cause both

hyperthyroidism and eye problems, to make sure that your level is <2 before

just stopping the meds. Otherwise, if you're still producing the antibodies

causing the problem, your symptoms will eventually return.

As you get closer to remission, the many people here with experience using

ATDs can help you. Since you've already experienced problems with ATDs you

probably know how important it is to take charge and become involved in your

treatment. Take care, Elaine

[Guest guest]

Okay guys, I like this idea as well. Anyone know of a good NS in Nashville

TN? I am trying Gaines next week at Vanderbilt. If anyone knows

anything, please let me know.

Thanks again!

New to the group

Hello everyone. I am new to this group and have never been a part of an

online support group.

It's a bit out of my comfort zone. But a friend suggested it couldn't

hurt.

SO here goes.

I was told in July I had mono. But I never seemed to recover from it. I

was

sent to a rheumatologist who poked me in 12

places and said " you have Fibromyalgia, take all these meds and see me

in 6

months. I am also a recovering addict for over

7 years now, so this was not a route I wanted to take. I went back to my

PCP

and asked to keep looking.

Finally I was sent to a neurologist (I think to shut me up). He agreed I

had

Fibro and just to rule out MS he did an MRI.

He also scheduled a nerve study for my arms to rule out carpel tunnel

because I was complaining of the going numb and

tingling on a regular basis.

He did the study and found no C/T, but the MRI showed the Chiari. It is

only

a 1 and it is at 8mm so no big deal....I think.

He said just go home and come back in 3 months unless I start having

black

outs or seizures.

I go on the 31st for a second opinion just in case. I am just not sure

if

mine is " serious enough " to look at.

I have had pain in my joints and muscles, I have back pain, numbness in

my

arms mostly, and sometimes my calves.

I have headaches (not always bad), I have had a small amount of trouble

swallowing recently. And the most recent thing

has been then seeing things out of my left eye (light flashes even

though

it's dark) and the face freeze I had this week again on the left

side of my face. This all sounds minor compared to what I have already

read

and to Chip's Chiari page. I think I am just wondering how any of you

determined okay, now it's serious enough.

Mostly I just want to know now what?

Thanks-