(no subject)

[Guest guest]

10%

[Guest guest]

10%

[Guest guest]

how far are you from your 10%?

From: ADARONE53@... Sent: Thursday, June 23, 2005 6:46 PMTo: gastric-bypass-support-kaiser-patients Subject: (no subject)

I don't know what to do any more.

I want to lose the 10%, but I can't stop eating. And I don't exercise. Am I lazy?

I'm trier all the time. All I do is eat and sleep. I don't feel good. I don't want to go any where, or talk too any one. I'm trier of people seeing me fat.

Then why don't I do any thing about it?

I had orientation, one year ago. And I'm still the same, nothing has changed. What's wrong with me?

I can't even get my self out of the house to go too a meeting.

I Have one more test to take, then I will be done with my lad work.

Please help

Thank you

[Guest guest]

how far are you from your 10%?

From: ADARONE53@... Sent: Thursday, June 23, 2005 6:46 PMTo: gastric-bypass-support-kaiser-patients Subject: (no subject)

I don't know what to do any more.

I want to lose the 10%, but I can't stop eating. And I don't exercise. Am I lazy?

I'm trier all the time. All I do is eat and sleep. I don't feel good. I don't want to go any where, or talk too any one. I'm trier of people seeing me fat.

Then why don't I do any thing about it?

I had orientation, one year ago. And I'm still the same, nothing has changed. What's wrong with me?

I can't even get my self out of the house to go too a meeting.

I Have one more test to take, then I will be done with my lad work.

Please help

Thank you

[Guest guest]

how far are you from your 10%?

From: ADARONE53@... Sent: Thursday, June 23, 2005 6:46 PMTo: gastric-bypass-support-kaiser-patients Subject: (no subject)

I don't know what to do any more.

I want to lose the 10%, but I can't stop eating. And I don't exercise. Am I lazy?

I'm trier all the time. All I do is eat and sleep. I don't feel good. I don't want to go any where, or talk too any one. I'm trier of people seeing me fat.

Then why don't I do any thing about it?

I had orientation, one year ago. And I'm still the same, nothing has changed. What's wrong with me?

I can't even get my self out of the house to go too a meeting.

I Have one more test to take, then I will be done with my lad work.

Please help

Thank you

[Guest guest]

You are not alone. I too am struggling. I get home from work and am

too tired to exercise and often too sore for yardwork. Too tired to

cook right and just plain a grumply old man!

(with an adorable smile and twinkly eyes I've been told...)

I haven't had the epihany...other than it takes a bunch of little

steps to add up to something significant. Keep track of those steps

so you can track your progress and give yourself credit for anything

you can.

I don't think you are lazy...I don't think I am lazy...I think I am

feeling too much physical and emotional pain to fight through it all.

Seems overwhelming at times...so it's easier to sit and eat. Maybe

that is what is happening with you?

Just keep aware at all times that you have the choice to make. That

does help me. When I think about that, I can put down the piece of

garbage that was heading for my mouth. Acknowledge that when you do.

I kiss the back of my hand. That way, if I am in public...it's

subtle enough so no one is the wiser. I tried doing a happy dance

once...but my boss didn't care for that! ; )

PS - stick around...

> I don't know what to do any more.

> I want to lose the 10%, but I can't stop eating. And I don't

exercise. Am I

> lazy?

> I'm trier all the time. All I do is eat and sleep. I don't feel

good. I

> don't want to go any where, or talk too any one. I'm trier of

people seeing me

> fat.

> Then why don't I do any thing about it?

>

> I had orientation, one year ago. And I'm still the same, nothing has

> changed. What's wrong with me?

>

> I can't even get my self out of the house to go too a meeting.

>

> I Have one more test to take, then I will be done with my lad work.

>

> Please help

>

> Thank you

>

[Guest guest]

You are not alone. I too am struggling. I get home from work and am

too tired to exercise and often too sore for yardwork. Too tired to

cook right and just plain a grumply old man!

(with an adorable smile and twinkly eyes I've been told...)

I haven't had the epihany...other than it takes a bunch of little

steps to add up to something significant. Keep track of those steps

so you can track your progress and give yourself credit for anything

you can.

I don't think you are lazy...I don't think I am lazy...I think I am

feeling too much physical and emotional pain to fight through it all.

Seems overwhelming at times...so it's easier to sit and eat. Maybe

that is what is happening with you?

Just keep aware at all times that you have the choice to make. That

does help me. When I think about that, I can put down the piece of

garbage that was heading for my mouth. Acknowledge that when you do.

I kiss the back of my hand. That way, if I am in public...it's

subtle enough so no one is the wiser. I tried doing a happy dance

once...but my boss didn't care for that! ; )

PS - stick around...

> I don't know what to do any more.

> I want to lose the 10%, but I can't stop eating. And I don't

exercise. Am I

> lazy?

> I'm trier all the time. All I do is eat and sleep. I don't feel

good. I

> don't want to go any where, or talk too any one. I'm trier of

people seeing me

> fat.

> Then why don't I do any thing about it?

>

> I had orientation, one year ago. And I'm still the same, nothing has

> changed. What's wrong with me?

>

> I can't even get my self out of the house to go too a meeting.

>

> I Have one more test to take, then I will be done with my lad work.

>

> Please help

>

> Thank you

>

[Guest guest]

You are not alone. I too am struggling. I get home from work and am

too tired to exercise and often too sore for yardwork. Too tired to

cook right and just plain a grumply old man!

(with an adorable smile and twinkly eyes I've been told...)

I haven't had the epihany...other than it takes a bunch of little

steps to add up to something significant. Keep track of those steps

so you can track your progress and give yourself credit for anything

you can.

I don't think you are lazy...I don't think I am lazy...I think I am

feeling too much physical and emotional pain to fight through it all.

Seems overwhelming at times...so it's easier to sit and eat. Maybe

that is what is happening with you?

Just keep aware at all times that you have the choice to make. That

does help me. When I think about that, I can put down the piece of

garbage that was heading for my mouth. Acknowledge that when you do.

I kiss the back of my hand. That way, if I am in public...it's

subtle enough so no one is the wiser. I tried doing a happy dance

once...but my boss didn't care for that! ; )

PS - stick around...

> I don't know what to do any more.

> I want to lose the 10%, but I can't stop eating. And I don't

exercise. Am I

> lazy?

> I'm trier all the time. All I do is eat and sleep. I don't feel

good. I

> don't want to go any where, or talk too any one. I'm trier of

people seeing me

> fat.

> Then why don't I do any thing about it?

>

> I had orientation, one year ago. And I'm still the same, nothing has

> changed. What's wrong with me?

>

> I can't even get my self out of the house to go too a meeting.

>

> I Have one more test to take, then I will be done with my lad work.

>

> Please help

>

> Thank you

>

[Guest guest]

Good Advice !!

Some times, even post op the daily battle wears us out...but we

gotta keep up the good fight. Strive for excellence not perfection!!

We can do this together!!

Huggles

> > I don't know what to do any more.

> > I want to lose the 10%, but I can't stop eating. And I don't

> exercise. Am I

> > lazy?

> > I'm trier all the time. All I do is eat and sleep. I don't feel

> good. I

> > don't want to go any where, or talk too any one. I'm trier of

> people seeing me

> > fat.

> > Then why don't I do any thing about it?

> >

> > I had orientation, one year ago. And I'm still the same,

nothing has

> > changed. What's wrong with me?

> >

> > I can't even get my self out of the house to go too a

meeting.

> >

> > I Have one more test to take, then I will be done with my lad

work.

> >

> > Please help

> >

> > Thank you

> >

[Guest guest]

Hey, -- I hate to be the one to scare the cr**p out of you,

but here's my sister's story.

She never found the strength, or ability or whatever it took to break

out of that cycle. She actually thought she was eating very little,

but she didn't exercise much. She was on oxygen for several

years, and finally slowed down so much she lost control of bodily

functions, was finally hospitalized. Even though she had gone to

orientation at Richmond for WLS and was in the program for the

surgery, she just couldn't loose the weight. They did finally figure

out during the last month of her life that she had an under active

thyroid and tried medicating her for that, but it seemed to be too

late. She finally passed away because of lung damage, kidney damage,

heart damage, and shutdown of other functions, all caused by her

obesity.

I relate the story, not to get sympathy, but because I hope this

worse case scenario and tragic story of my sister's death can

possibly inspire someone to make their life better. It would really

give me great comfort, to bring something good out of a tragedy.

I truly hope and pray you can find the strength to inspire yourself

to do whatever it takes for you to get started to loose the weight.

I don't know if you know it, but it is natural instinct for

living bodies to MAINTAIN its weight, a survival instinct to hold

stores of fuel in the body in case of famine. That is instinct; your

intellect must overcome that! You CAN DO IT!

Find your own inspiration! Do you have family you want to be able to

really share your life with? Children? Spouse? Friends? The hope

of a fuller life?

Find a way to move more. (I have found that exercise actually wakes

me up for a while!) Drink more water. Try very hard to cut back on

your calories, fat & carbs mostly, or follow the recommended diet

faithfully. Again, drinking water between meals can help fill you up

so you don't eat so much. Also, exercise stimulates natural

endorphins (good chemicals in your body) that act as a natural

appetite depressant, so if you get hungry, try going for a walk, that

may help you slow down the extra eating.

I wish you best of luck on this journey. Keep us all informed. We

really do care. Maybe those of us on this group can be part of your

inspiration.

OK, now! End of lecture!

--Sandi H. (5 ft 1 inch tall and 50 years old)

I live in Citrus Heights (Sacramento County)

Dr. Leo – San Diego (Thru Kaiser)

315 at orientation (May '03)

285 at 3 pre-op appointments in San Diego (August 4, 2003)

252 at surgery (6/03/04)

Last weighed at 177.5 (06/18/2005)

Hopefully someday below 140

(yeah, I hope before Oct. 2nd when my daughter gets married!)

sandiantoytrain @ yahoo . com

> I don't know what to do any more.

> I want to lose the 10%, but I can't stop eating. And I don't

exercise. Am I lazy?

> I'm trier all the time. All I do is eat and sleep. I don't feel

good. I don't want to go any where, or talk too any one. I'm trier

of people seeing me fat.

> Then why don't I do any thing about it?

>

> I had orientation, one year ago. And I'm still the same, nothing

has changed. What's wrong with me?

>

> I can't even get my self out of the house to go too a meeting.

>

> I Have one more test to take, then I will be done with my lad work.

>

> Please help

>

> Thank you

>

[Guest guest]

Thanks for sharing this with us. I too lost my little brother in

2001 from obesity. He weighed 500+ pounds and was one of those

stories you see on TV where he only stayed in bed. On the rare

occasions he would venture out he had to take oxygen with him too.

He was only 34 years old. He wanted the surgery but Medicaid would

not cover it. He died in his sleep...basically suffocated

himself...there was fluid around his heart and in his lungs. He was

my motivator for this surgery. He left behind 3 children. My step

mother sent me pictures of his funeral as I couldnt get there in

time..I got there a few days after due to 9-11. The pictures tore my

heart apart. He couldnt fit in a casket...they had him laid out on a

table. I felt so humiliated that his wife would have had him that

way...He was to be cremated and I feel it would have given him more

dignity to not have been viewed in that way. I vowed then that my

husband and children would not have to see me like that. I had my

surgery and owe it to my brother to live my life to the fullest.

wanted this surgery so bad, but because he was dependant on

government assistance he was denied this life saving gift.

Huggles

> > I don't know what to do any more.

> > I want to lose the 10%, but I can't stop eating. And I don't

> exercise. Am I lazy?

> > I'm trier all the time. All I do is eat and sleep. I don't

feel

> good. I don't want to go any where, or talk too any one. I'm

trier

> of people seeing me fat.

> > Then why don't I do any thing about it?

> >

> > I had orientation, one year ago. And I'm still the same,

nothing

> has changed. What's wrong with me?

> >

> > I can't even get my self out of the house to go too a

meeting.

> >

> > I Have one more test to take, then I will be done with my lad

work.

> >

> > Please help

> >

> > Thank you

> >

[Guest guest]

Thanks for sharing this with us. I too lost my little brother in

2001 from obesity. He weighed 500+ pounds and was one of those

stories you see on TV where he only stayed in bed. On the rare

occasions he would venture out he had to take oxygen with him too.

He was only 34 years old. He wanted the surgery but Medicaid would

not cover it. He died in his sleep...basically suffocated

himself...there was fluid around his heart and in his lungs. He was

my motivator for this surgery. He left behind 3 children. My step

mother sent me pictures of his funeral as I couldnt get there in

time..I got there a few days after due to 9-11. The pictures tore my

heart apart. He couldnt fit in a casket...they had him laid out on a

table. I felt so humiliated that his wife would have had him that

way...He was to be cremated and I feel it would have given him more

dignity to not have been viewed in that way. I vowed then that my

husband and children would not have to see me like that. I had my

surgery and owe it to my brother to live my life to the fullest.

wanted this surgery so bad, but because he was dependant on

government assistance he was denied this life saving gift.

Huggles

> > I don't know what to do any more.

> > I want to lose the 10%, but I can't stop eating. And I don't

> exercise. Am I lazy?

> > I'm trier all the time. All I do is eat and sleep. I don't

feel

> good. I don't want to go any where, or talk too any one. I'm

trier

> of people seeing me fat.

> > Then why don't I do any thing about it?

> >

> > I had orientation, one year ago. And I'm still the same,

nothing

> has changed. What's wrong with me?

> >

> > I can't even get my self out of the house to go too a

meeting.

> >

> > I Have one more test to take, then I will be done with my lad

work.

> >

> > Please help

> >

> > Thank you

> >

[Guest guest]

Thanks for sharing this with us. I too lost my little brother in

2001 from obesity. He weighed 500+ pounds and was one of those

stories you see on TV where he only stayed in bed. On the rare

occasions he would venture out he had to take oxygen with him too.

He was only 34 years old. He wanted the surgery but Medicaid would

not cover it. He died in his sleep...basically suffocated

himself...there was fluid around his heart and in his lungs. He was

my motivator for this surgery. He left behind 3 children. My step

mother sent me pictures of his funeral as I couldnt get there in

time..I got there a few days after due to 9-11. The pictures tore my

heart apart. He couldnt fit in a casket...they had him laid out on a

table. I felt so humiliated that his wife would have had him that

way...He was to be cremated and I feel it would have given him more

dignity to not have been viewed in that way. I vowed then that my

husband and children would not have to see me like that. I had my

surgery and owe it to my brother to live my life to the fullest.

wanted this surgery so bad, but because he was dependant on

government assistance he was denied this life saving gift.

Huggles

> > I don't know what to do any more.

> > I want to lose the 10%, but I can't stop eating. And I don't

> exercise. Am I lazy?

> > I'm trier all the time. All I do is eat and sleep. I don't

feel

> good. I don't want to go any where, or talk too any one. I'm

trier

> of people seeing me fat.

> > Then why don't I do any thing about it?

> >

> > I had orientation, one year ago. And I'm still the same,

nothing

> has changed. What's wrong with me?

> >

> > I can't even get my self out of the house to go too a

meeting.

> >

> > I Have one more test to take, then I will be done with my lad

work.

> >

> > Please help

> >

> > Thank you

> >

[Guest guest]

My God, now there are three of us who share the loss of a sibling due to

obesity! Thanks for sharing this with us. Hugs, LaWanda At 08:54 AM

6/24/05, you wrote:

>Thanks for sharing this with us. I too lost my little brother in

>2001 from obesity. He weighed 500+ pounds and was one of those

>stories you see on TV where he only stayed in bed. On the rare

>occasions he would venture out he had to take oxygen with him too.

>He was only 34 years old. He wanted the surgery but Medicaid would

>not cover it. He died in his sleep...basically suffocated

>himself...there was fluid around his heart and in his lungs. He was

>my motivator for this surgery. He left behind 3 children. My step

>mother sent me pictures of his funeral as I couldnt get there in

>time..I got there a few days after due to 9-11. The pictures tore my

>heart apart. He couldnt fit in a casket...they had him laid out on a

>table. I felt so humiliated that his wife would have had him that

>way...He was to be cremated and I feel it would have given him more

>dignity to not have been viewed in that way. I vowed then that my

>husband and children would not have to see me like that. I had my

>surgery and owe it to my brother to live my life to the fullest.

> wanted this surgery so bad, but because he was dependant on

>government assistance he was denied this life saving gift.

>

>Huggles

>

>

>

> > > I don't know what to do any more.

> > > I want to lose the 10%, but I can't stop eating. And I don't

> > exercise. Am I lazy?

> > > I'm trier all the time. All I do is eat and sleep. I don't

>feel

> > good. I don't want to go any where, or talk too any one. I'm

>trier

> > of people seeing me fat.

> > > Then why don't I do any thing about it?

> > >

> > > I had orientation, one year ago. And I'm still the same,

>nothing

> > has changed. What's wrong with me?

> > >

> > > I can't even get my self out of the house to go too a

>meeting.

> > >

> > > I Have one more test to take, then I will be done with my lad

>work.

> > >

> > > Please help

> > >

> > > Thank you

> > >

>

>

>

>

>

>

[Guest guest]

My God, now there are three of us who share the loss of a sibling due to

obesity! Thanks for sharing this with us. Hugs, LaWanda At 08:54 AM

6/24/05, you wrote:

>Thanks for sharing this with us. I too lost my little brother in

>2001 from obesity. He weighed 500+ pounds and was one of those

>stories you see on TV where he only stayed in bed. On the rare

>occasions he would venture out he had to take oxygen with him too.

>He was only 34 years old. He wanted the surgery but Medicaid would

>not cover it. He died in his sleep...basically suffocated

>himself...there was fluid around his heart and in his lungs. He was

>my motivator for this surgery. He left behind 3 children. My step

>mother sent me pictures of his funeral as I couldnt get there in

>time..I got there a few days after due to 9-11. The pictures tore my

>heart apart. He couldnt fit in a casket...they had him laid out on a

>table. I felt so humiliated that his wife would have had him that

>way...He was to be cremated and I feel it would have given him more

>dignity to not have been viewed in that way. I vowed then that my

>husband and children would not have to see me like that. I had my

>surgery and owe it to my brother to live my life to the fullest.

> wanted this surgery so bad, but because he was dependant on

>government assistance he was denied this life saving gift.

>

>Huggles

>

>

>

> > > I don't know what to do any more.

> > > I want to lose the 10%, but I can't stop eating. And I don't

> > exercise. Am I lazy?

> > > I'm trier all the time. All I do is eat and sleep. I don't

>feel

> > good. I don't want to go any where, or talk too any one. I'm

>trier

> > of people seeing me fat.

> > > Then why don't I do any thing about it?

> > >

> > > I had orientation, one year ago. And I'm still the same,

>nothing

> > has changed. What's wrong with me?

> > >

> > > I can't even get my self out of the house to go too a

>meeting.

> > >

> > > I Have one more test to take, then I will be done with my lad

>work.

> > >

> > > Please help

> > >

> > > Thank you

> > >

>

>

>

>

>

>

[Guest guest]

My God, now there are three of us who share the loss of a sibling due to

obesity! Thanks for sharing this with us. Hugs, LaWanda At 08:54 AM

6/24/05, you wrote:

>Thanks for sharing this with us. I too lost my little brother in

>2001 from obesity. He weighed 500+ pounds and was one of those

>stories you see on TV where he only stayed in bed. On the rare

>occasions he would venture out he had to take oxygen with him too.

>He was only 34 years old. He wanted the surgery but Medicaid would

>not cover it. He died in his sleep...basically suffocated

>himself...there was fluid around his heart and in his lungs. He was

>my motivator for this surgery. He left behind 3 children. My step

>mother sent me pictures of his funeral as I couldnt get there in

>time..I got there a few days after due to 9-11. The pictures tore my

>heart apart. He couldnt fit in a casket...they had him laid out on a

>table. I felt so humiliated that his wife would have had him that

>way...He was to be cremated and I feel it would have given him more

>dignity to not have been viewed in that way. I vowed then that my

>husband and children would not have to see me like that. I had my

>surgery and owe it to my brother to live my life to the fullest.

> wanted this surgery so bad, but because he was dependant on

>government assistance he was denied this life saving gift.

>

>Huggles

>

>

>

> > > I don't know what to do any more.

> > > I want to lose the 10%, but I can't stop eating. And I don't

> > exercise. Am I lazy?

> > > I'm trier all the time. All I do is eat and sleep. I don't

>feel

> > good. I don't want to go any where, or talk too any one. I'm

>trier

> > of people seeing me fat.

> > > Then why don't I do any thing about it?

> > >

> > > I had orientation, one year ago. And I'm still the same,

>nothing

> > has changed. What's wrong with me?

> > >

> > > I can't even get my self out of the house to go too a

>meeting.

> > >

> > > I Have one more test to take, then I will be done with my lad

>work.

> > >

> > > Please help

> > >

> > > Thank you

> > >

>

>

>

>

>

>

[Guest guest]

That is wonderful. You sure put it in very heartfelt words. I just

know this will get to people. I hope you are posting this

everywhere!!!!! Ingrid

>

>

> (http://groups.yahoo.com/group/TheSemiColonFriends/)

> One simple test that's all it takes.

> A day out of your

life.

> A little

unpleasant

> preparation.

> A little look at

what's

> behind you

> And colon cancer

will be one

> thing you

> won't have to deal

with.

>

> If cancer is in your family you are

> definitely at

risk. If it is

> not you only

> have LESS risk not

NO risk!

> The scary thing is

no one

> thinks

> it will happen to

them. The

> rest think it

> is something you

can only

> get after 50.

> And doctors often

tell you

> you don't

> need to be tested

until 50.

>

> That's what they

told my

> husband just 1 week before

> he was diagnosed

with a 13

> cm colon tumor and

> multiple liver

tumors.

> He was only 43.

He wasn't

> due for a test

> for 7 YEARS and

suddenly

> his life was

> being talked

about in

> weeks and months

> instead of

years.

>

> Two years later

my huband,

> Phil and I consider

> ourselves

fortunate that

> through good medicine and lots of

> prayer Phil is still here.

>

> But dear friends I'd be lying if I were to tell you that

> it has been

easy. There is

> stress about health of course

> not to mention

the expense

> of cancer treatment

> and medicine to

counter

> everything from nausea and

> regularity, to depression and blood pressure.

> Our lives and

priorities

> will never truly be the same.

>

>

> They say it can

take 5

> years for a colon tumor

> to grow from a

small

> polyp you litterally snip away

> to full blown

cancer and

> maybe even longer to spread.

> That means Phil

may have

> had some sort of colon growth

> since he was in

his 30's

> That's right 3-0.

> A good 15-20

years BEFORE

> the general age for

> cancer testing.

>

> I don't know

the

> statistics for colon cancer before 50

> other than to

tell you it

> is on the rise. I don't know how

> many get it who have NO history of cancer, except that

> like friends

who have

> died of breast cancer w/o a history

> people are

dying of colon

> cancer w/o a history too.

>

> As your friend I

urge you

> DON'T BE ONE OF

THOSE

> STATISTICS!!!!

> Ask your Dr. for a

> colonoscopy.

> Just 1 day of

unpleasantness

> for a lifetime w/o

> colon

cancer.

>

> YOU ARE

WORTH IT!!!

>

>

>

>

> In Honor of my husband

> A. May

> diagnosed Stage 4

> Colo-rectal Cancer

> June 19, 2003

> With All My Love

> ALWAYS

> Narice

> (http://groups.yahoo.com/group/TheSemiColonFriends/)

>

>

>

>

>

[Guest guest]

Hi - Welcome, I'm brand new to this group too and I also live in

NC!! I am over on the coast in a really small rural town called

Sneads Ferry. I was Dx'd in 1994 in New York with NS, I've been sick

since 1989. I have only been living in North Carolina for just over

two years and havent seen any Dr here for the disease-I also havent

taken any medicine for it either in the last 3 or 4 years. I have

good and bad days - but lately the bad is outweighing the good. I

dont want to whine, but I am afraid if I dont get to a doc soon I

will just get to the point of no return.I have financial issues and

really lousy insurance so I have been trying to ignore this for the

last 3 years, but I dont know what to do anymore.I would assume you

have a neurologist here, the closest city to me is ville NC

and I am about an hour north of Wilmington-would you mind telling me

who you see? Irene

>

> Hi,

> My name is . I live in North Carolina.I have a wonderful

husband, twin

> boys that are thirteen. We live in the country on a farm. I love

animals, we

> have four cats and a dog. I am an artist I used to teach art but am

unable

> now due to my disease. We have a pool that I really enjoy. I was

diagnosis

> with neurosarcoidosis in April 1999. I had been sick for along

time. I had a

> cough that would not go away which lead to x-rays and surgery which

gave them

> the diagnosis of sarcoidosis. I also had a MRI of the brain which

showed

> small lessions throughout the brain. They came up with the

diagnosis of

> neursarcoidosis after seeing the MRI and all of my symptoms. I have

really

> been sick but am getting better with help from my Dr. My family is

great they

> really support me and also my Dr. I am on plaquenil, arava,

leukeran and

> prednisone. The combination of these drugs has been helpful

especially the

> arava. My tremors are not as bad and my walking and balance is

improving. I

> also have problems with my speech and that is getting better. I

also have

> sarcoidosis in my eyes, lungs and lymph nodes. Each day is a

challenge

> because I don't know how I will feel. Cannot go or do much anymore

because I

> am so tired and unable to walk much. I thought it would be helpful

to heard

> for others who have the same problem. People don't realize how much

a

> struggle it is to have this disease unless they could live with it

for one

> day. I feel like I am fighting a monster, somedays it wins but most

of the

> days I win.

>

> Your new friend,

>

>

[Guest guest]

Hi - Welcome, I'm brand new to this group too and I also live in

NC!! I am over on the coast in a really small rural town called

Sneads Ferry. I was Dx'd in 1994 in New York with NS, I've been sick

since 1989. I have only been living in North Carolina for just over

two years and havent seen any Dr here for the disease-I also havent

taken any medicine for it either in the last 3 or 4 years. I have

good and bad days - but lately the bad is outweighing the good. I

dont want to whine, but I am afraid if I dont get to a doc soon I

will just get to the point of no return.I have financial issues and

really lousy insurance so I have been trying to ignore this for the

last 3 years, but I dont know what to do anymore.I would assume you

have a neurologist here, the closest city to me is ville NC

and I am about an hour north of Wilmington-would you mind telling me

who you see? Irene

>

> Hi,

> My name is . I live in North Carolina.I have a wonderful

husband, twin

> boys that are thirteen. We live in the country on a farm. I love

animals, we

> have four cats and a dog. I am an artist I used to teach art but am

unable

> now due to my disease. We have a pool that I really enjoy. I was

diagnosis

> with neurosarcoidosis in April 1999. I had been sick for along

time. I had a

> cough that would not go away which lead to x-rays and surgery which

gave them

> the diagnosis of sarcoidosis. I also had a MRI of the brain which

showed

> small lessions throughout the brain. They came up with the

diagnosis of

> neursarcoidosis after seeing the MRI and all of my symptoms. I have

really

> been sick but am getting better with help from my Dr. My family is

great they

> really support me and also my Dr. I am on plaquenil, arava,

leukeran and

> prednisone. The combination of these drugs has been helpful

especially the

> arava. My tremors are not as bad and my walking and balance is

improving. I

> also have problems with my speech and that is getting better. I

also have

> sarcoidosis in my eyes, lungs and lymph nodes. Each day is a

challenge

> because I don't know how I will feel. Cannot go or do much anymore

because I

> am so tired and unable to walk much. I thought it would be helpful

to heard

> for others who have the same problem. People don't realize how much

a

> struggle it is to have this disease unless they could live with it

for one

> day. I feel like I am fighting a monster, somedays it wins but most

of the

> days I win.

>

> Your new friend,

>

>

[Guest guest]

Hi - Welcome, I'm brand new to this group too and I also live in

NC!! I am over on the coast in a really small rural town called

Sneads Ferry. I was Dx'd in 1994 in New York with NS, I've been sick

since 1989. I have only been living in North Carolina for just over

two years and havent seen any Dr here for the disease-I also havent

taken any medicine for it either in the last 3 or 4 years. I have

good and bad days - but lately the bad is outweighing the good. I

dont want to whine, but I am afraid if I dont get to a doc soon I

will just get to the point of no return.I have financial issues and

really lousy insurance so I have been trying to ignore this for the

last 3 years, but I dont know what to do anymore.I would assume you

have a neurologist here, the closest city to me is ville NC

and I am about an hour north of Wilmington-would you mind telling me

who you see? Irene

>

> Hi,

> My name is . I live in North Carolina.I have a wonderful

husband, twin

> boys that are thirteen. We live in the country on a farm. I love

animals, we

> have four cats and a dog. I am an artist I used to teach art but am

unable

> now due to my disease. We have a pool that I really enjoy. I was

diagnosis

> with neurosarcoidosis in April 1999. I had been sick for along

time. I had a

> cough that would not go away which lead to x-rays and surgery which

gave them

> the diagnosis of sarcoidosis. I also had a MRI of the brain which

showed

> small lessions throughout the brain. They came up with the

diagnosis of

> neursarcoidosis after seeing the MRI and all of my symptoms. I have

really

> been sick but am getting better with help from my Dr. My family is

great they

> really support me and also my Dr. I am on plaquenil, arava,

leukeran and

> prednisone. The combination of these drugs has been helpful

especially the

> arava. My tremors are not as bad and my walking and balance is

improving. I

> also have problems with my speech and that is getting better. I

also have

> sarcoidosis in my eyes, lungs and lymph nodes. Each day is a

challenge

> because I don't know how I will feel. Cannot go or do much anymore

because I

> am so tired and unable to walk much. I thought it would be helpful

to heard

> for others who have the same problem. People don't realize how much

a

> struggle it is to have this disease unless they could live with it

for one

> day. I feel like I am fighting a monster, somedays it wins but most

of the

> days I win.

>

> Your new friend,

>

>

[Guest guest]

Please get your child to an emergency room ASAP. Not to give you a scare but

she could be suffering from a bout of cholangitis or some other digestive

problem which is best handled by IV antibiotics. Has there been some invasive

procedure done (ERCP, upper GI, etc.)? She may have gotten a bug from a

non-sterile scope during one of these procedures as some facilities are not up

to good sterilizations standards.

Whatever may be the case, please do not wait until Monday to have someone see

your child.

Blessings for a speedy answer and recovery,

Deb

GERD, UC 1993, cholecystectomy 2004, PSC 2005, colectomy 2005, CKD 2007,

SBO April 2008, one fat and happy golden retriever

[Guest guest]

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