MODY

[Guest guest]

Hey yall--

I hope everyone is having a great last month of summer! I'm new to

this group but so far it seems great and I'm glad to be part of it. I

live just outside Washington, DC, but I'm vacationing in Vermont for

the month of August. I was diagnosed with Type I diabetes 2 1/2 years

ago and its been a series of ups and downs since then. After being

first diagnosed, I was hospitalized, etc. However, my diabetes was

not really progressing (which was great news!) and my A1C's were at a

non-diabetic level, so they thought I might have slowly progressing

type I. However, I began to have a series of really bad, unexplained

lows which lasted a few weeks but eventually went away. More recently

I had another unexplained low and had to be hospitalized. I had been

sick much of this year and this just made things worse. About a month

later I had another series of lows. At this point I was really

feeling miserable and so I went to the Joslin Diabetes Center in

Boston. They began doing lots of tests, and eventually through a

place in London, found out that I have MODY (mature onset diabetes in

the young). Not much is known about MODY as it is a rare form of

diabetes which was frustrating. About a month afterwards I was still

feeling very sick, and was diagnosed with Fibromyalgia. This year has

been a real struggle for me in terms of my health, I ended up missing

about 40 days of school. Sorry to ramble on and on... I was

wondering, does anyone else have MODY or know anything about it? I'm

still trying to learn about it and how to best manage it. I hope

everyone else is doing well, sorry this post was so long!!

Best,

PrettyInPink1331@...