Guest guest Posted May 26, 2002 Report Share Posted May 26, 2002 In a message dated 5/26/2002 1:45:15 PM Pacific Daylight Time, patzerk@... writes: > > I'm new to the board and just thought I'd introduce myself. I was > officially diagnosed with fibromyalgia this March, although I've been > suffering from symptoms since I was 15 (I'm 23 Hi Kirsten, I'm 24 and my symptoms started when I was 15 too. It made high school a little difficult Welcome to the group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2002 Report Share Posted May 26, 2002 Hi Kirsten, I'm pretty new to this group too. I've been experiencing symptoms since I was 12, but along with the usual " growing pains, " I have scoliosis ( " curavture of the spine). That makes for an interesting adolesence. Now I'm a 23-year-old single mom of an active two year old son and I feel like my inactivity isn't fair to him. He's pretty good about it, though, and my parents are very supportive. I think something that's helped me are my friends from high school. A few of them asked me to help them start a creative studio, online. It's something I can take part in from home, if I need to, and at the same time I have my own creative outlet (I'm an aspiring author). In fact, one of the people involved in our " online creation " has Chronic Fatigue Syndrome. I'm trying to convince him to join this group, but so far have had no luck. Has your Dr. considered giving you any medication exclusively to help you sleep? That seems to help me, but I can't always take them--sometimes I sleep so soundly I don't hear my son calling in the middle of the night. As for swimming, have you tried water therapy? Heated pools and easy stretching exercises help a little, too. Well, in any case, welcome to the group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2002 Report Share Posted May 27, 2002 I am currently on trazadone, which my doctor gave me to help me sleep. It actually works, but if I happen to forget to take the pill because I'm too exhausted to think about it I wake up every half hour. Did that the night before last-- yesterday was no fun. But I'm also wary of being addicted to the sleeping pills-- I'd like to be able to go off them, but everytime I try a night without them I get the same restless sleep. I have not really thought about water therapy-- I'd have to do it on my own since I can't really afford it, and then I'd risk doing it incorrectly. > Hi Kirsten, I'm pretty new to this group too. I've been experiencing symptoms since I was 12, but along with the usual " growing pains, " I have scoliosis ( " curavture of the spine). That makes for an interesting adolesence. Now I'm a 23-year-old single mom of an active two year old son and I feel like my inactivity isn't fair to him. He's pretty good about it, though, and my parents are very supportive. > > I think something that's helped me are my friends from high school. A few of them asked me to help them start a creative studio, online. It's something I can take part in from home, if I need to, and at the same time I have my own creative outlet (I'm an aspiring author). In fact, one of the people involved in our " online creation " has Chronic Fatigue Syndrome. I'm trying to convince him to join this group, but so far have had no luck. > > Has your Dr. considered giving you any medication exclusively to help you sleep? That seems to help me, but I can't always take them--sometimes I sleep so soundly I don't hear my son calling in the middle of the night. As for swimming, have you tried water therapy? Heated pools and easy stretching exercises help a little, too. > > Well, in any case, welcome to the group. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2002 Report Share Posted May 27, 2002 I am currently on trazadone, which my doctor gave me to help me sleep. It actually works, but if I happen to forget to take the pill because I'm too exhausted to think about it I wake up every half hour. Did that the night before last-- yesterday was no fun. But I'm also wary of being addicted to the sleeping pills-- I'd like to be able to go off them, but everytime I try a night without them I get the same restless sleep. I have not really thought about water therapy-- I'd have to do it on my own since I can't really afford it, and then I'd risk doing it incorrectly. > Hi Kirsten, I'm pretty new to this group too. I've been experiencing symptoms since I was 12, but along with the usual " growing pains, " I have scoliosis ( " curavture of the spine). That makes for an interesting adolesence. Now I'm a 23-year-old single mom of an active two year old son and I feel like my inactivity isn't fair to him. He's pretty good about it, though, and my parents are very supportive. > > I think something that's helped me are my friends from high school. A few of them asked me to help them start a creative studio, online. It's something I can take part in from home, if I need to, and at the same time I have my own creative outlet (I'm an aspiring author). In fact, one of the people involved in our " online creation " has Chronic Fatigue Syndrome. I'm trying to convince him to join this group, but so far have had no luck. > > Has your Dr. considered giving you any medication exclusively to help you sleep? That seems to help me, but I can't always take them--sometimes I sleep so soundly I don't hear my son calling in the middle of the night. As for swimming, have you tried water therapy? Heated pools and easy stretching exercises help a little, too. > > Well, in any case, welcome to the group. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2002 Report Share Posted May 27, 2002 I am currently on trazadone, which my doctor gave me to help me sleep. It actually works, but if I happen to forget to take the pill because I'm too exhausted to think about it I wake up every half hour. Did that the night before last-- yesterday was no fun. But I'm also wary of being addicted to the sleeping pills-- I'd like to be able to go off them, but everytime I try a night without them I get the same restless sleep. I have not really thought about water therapy-- I'd have to do it on my own since I can't really afford it, and then I'd risk doing it incorrectly. > Hi Kirsten, I'm pretty new to this group too. I've been experiencing symptoms since I was 12, but along with the usual " growing pains, " I have scoliosis ( " curavture of the spine). That makes for an interesting adolesence. Now I'm a 23-year-old single mom of an active two year old son and I feel like my inactivity isn't fair to him. He's pretty good about it, though, and my parents are very supportive. > > I think something that's helped me are my friends from high school. A few of them asked me to help them start a creative studio, online. It's something I can take part in from home, if I need to, and at the same time I have my own creative outlet (I'm an aspiring author). In fact, one of the people involved in our " online creation " has Chronic Fatigue Syndrome. I'm trying to convince him to join this group, but so far have had no luck. > > Has your Dr. considered giving you any medication exclusively to help you sleep? That seems to help me, but I can't always take them--sometimes I sleep so soundly I don't hear my son calling in the middle of the night. As for swimming, have you tried water therapy? Heated pools and easy stretching exercises help a little, too. > > Well, in any case, welcome to the group. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 Welcome to the group! I am relatively new, and I have received many blessings through the words and stories of the people here. The information that is available is incredible, so I am glad that you, too, have stumbled upon us. I am sorry for all of your troubles, as well as having this disease. It kills me that so many doctors and nurses are so ready to categorize us a drug abusers! It just makes an already horrible visit to the ER or doctor's office even worse. I have told a couple of doctors at the ER " If you'd just open up my records here, you would see that I truly am sick. " They are not interested. They just pop an IV in my hand, throw down the drugs and send me on my way once I wake from my demrol/phenergen induced sleep. I'm not sure if anyone here has CP induced by CF, but I know that the people here will do whatever they can to help you if need be. There are some truly wonderful individuals in this group, and we are blessed to know them in this way. Again, welcome, and I hope you have a pain-free weekend. God bless you, and you are now added to my prayer list. in KY runthefox65 wrote:WOW!!!!! I have been reading some of the messages, and it sounds like my own miserable story. But, I bet not so complicated. I am hoping someone will read this who has cp due to cystic fibrosis. BUT WAIT...Anyone who has cp that is idiopathic, please, please,....your doctor will probably put up a fuss, and many people will ask you why, (as well as other ridiculous questions)PLEASE ASK TO HAVE A GENETIC TEST!!!!!! After 12 years of pain and suffering, being called an alcoholic, a liar, a closet drug user, and other not so lovely things, I finally know why I have cp. And now I am going in the right direction. No more useless surgeries and ct scans and other nonsensical diets and pills and so on.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 Welcome to the group! I am relatively new, and I have received many blessings through the words and stories of the people here. The information that is available is incredible, so I am glad that you, too, have stumbled upon us. I am sorry for all of your troubles, as well as having this disease. It kills me that so many doctors and nurses are so ready to categorize us a drug abusers! It just makes an already horrible visit to the ER or doctor's office even worse. I have told a couple of doctors at the ER " If you'd just open up my records here, you would see that I truly am sick. " They are not interested. They just pop an IV in my hand, throw down the drugs and send me on my way once I wake from my demrol/phenergen induced sleep. I'm not sure if anyone here has CP induced by CF, but I know that the people here will do whatever they can to help you if need be. There are some truly wonderful individuals in this group, and we are blessed to know them in this way. Again, welcome, and I hope you have a pain-free weekend. God bless you, and you are now added to my prayer list. in KY runthefox65 wrote:WOW!!!!! I have been reading some of the messages, and it sounds like my own miserable story. But, I bet not so complicated. I am hoping someone will read this who has cp due to cystic fibrosis. BUT WAIT...Anyone who has cp that is idiopathic, please, please,....your doctor will probably put up a fuss, and many people will ask you why, (as well as other ridiculous questions)PLEASE ASK TO HAVE A GENETIC TEST!!!!!! After 12 years of pain and suffering, being called an alcoholic, a liar, a closet drug user, and other not so lovely things, I finally know why I have cp. And now I am going in the right direction. No more useless surgeries and ct scans and other nonsensical diets and pills and so on.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 Welcome to the group! I am relatively new, and I have received many blessings through the words and stories of the people here. The information that is available is incredible, so I am glad that you, too, have stumbled upon us. I am sorry for all of your troubles, as well as having this disease. It kills me that so many doctors and nurses are so ready to categorize us a drug abusers! It just makes an already horrible visit to the ER or doctor's office even worse. I have told a couple of doctors at the ER " If you'd just open up my records here, you would see that I truly am sick. " They are not interested. They just pop an IV in my hand, throw down the drugs and send me on my way once I wake from my demrol/phenergen induced sleep. I'm not sure if anyone here has CP induced by CF, but I know that the people here will do whatever they can to help you if need be. There are some truly wonderful individuals in this group, and we are blessed to know them in this way. Again, welcome, and I hope you have a pain-free weekend. God bless you, and you are now added to my prayer list. in KY runthefox65 wrote:WOW!!!!! I have been reading some of the messages, and it sounds like my own miserable story. But, I bet not so complicated. I am hoping someone will read this who has cp due to cystic fibrosis. BUT WAIT...Anyone who has cp that is idiopathic, please, please,....your doctor will probably put up a fuss, and many people will ask you why, (as well as other ridiculous questions)PLEASE ASK TO HAVE A GENETIC TEST!!!!!! After 12 years of pain and suffering, being called an alcoholic, a liar, a closet drug user, and other not so lovely things, I finally know why I have cp. And now I am going in the right direction. No more useless surgeries and ct scans and other nonsensical diets and pills and so on.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 Hello and Welcome!!! Thanks for the advice! I'm glad you know the cause for your CP, and hope that you get continually better from there on out! {{{HUGZ}}} --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 Hello and Welcome!!! Thanks for the advice! I'm glad you know the cause for your CP, and hope that you get continually better from there on out! {{{HUGZ}}} --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 Hello and Welcome!!! Thanks for the advice! I'm glad you know the cause for your CP, and hope that you get continually better from there on out! {{{HUGZ}}} --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 Subj: Hi, I'm new Date: 9/1/02 7:32:22 PM Central Daylight Time From: runthefox65@...runthefox65@... Thank you for the information. The Pancreatitis Association International is built on the sharing and caring of each and everyone of the members. We all learn for each other's experiences. Hope you are having a good holiday weekend, Gail West, Indiana Chapter Adm. Asst. Program Development Pancreatitis Association International www.pancassociation.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 Subj: Hi, I'm new Date: 9/1/02 7:32:22 PM Central Daylight Time From: runthefox65@...runthefox65@... Thank you for the information. The Pancreatitis Association International is built on the sharing and caring of each and everyone of the members. We all learn for each other's experiences. Hope you are having a good holiday weekend, Gail West, Indiana Chapter Adm. Asst. Program Development Pancreatitis Association International www.pancassociation.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 Subj: Hi, I'm new Date: 9/1/02 7:32:22 PM Central Daylight Time From: runthefox65@...runthefox65@... Thank you for the information. The Pancreatitis Association International is built on the sharing and caring of each and everyone of the members. We all learn for each other's experiences. Hope you are having a good holiday weekend, Gail West, Indiana Chapter Adm. Asst. Program Development Pancreatitis Association International www.pancassociation.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 In a message dated 5/24/2004 2:32:24 PM Pacific Standard Time, dawndo3@... writes: > My doctor told me to go low-carb, and at the same time my diabetes > nutritionist (who has type 1 diabetes) told me to go " conventional " > and have about 50% of my eating from carbs. I found that I managed > my BG levels better and also eliminated the cravings if I stuck to > the lower-carb way (about 80 a day), as long as I din't overdo the > fats. I also like to do low-carb so I can splurge a little now and > then and not have my total carbs for the day go to high. > Hi Dawn, welcome! I try to stay at 45 per meal or less, and juggle if I want a treat that is a little in excess. I had a piece of strawberry shortcake for my bday and felt decadent! LOL I also do workouts in the pool. They are so much easier on my bad knee. I have water type dumbells. They also add good workouts for my arms! If I see anything else increasing I am going to stop working out for sure! LOL I do love to swim and so do all the kids and grandkids. DH sinks like a rock, so I have to watch him in a pool. Good losses in yiur bg's and your A1c is so much better! Hugs, marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 Hello, I just thought I'd take a minute and introduce myself. I'm Dawn and I live in upstate New York State. I was diagnosed with type 2 about 6 months ago, mainly because I was losing weight (I was never hungry - or I should say I got REALLY full after I had just eaten a small amount) and had lost a lot of weight without really even trying. I still have about 20 more to go. Back when I was diagnosed my fasting BG was over 300 and my HgA1c was over 10! It is slightly above 6 right now, and I am on 1000 mg of Glucophage and a strict exercise regimen. My doctor told me to go low-carb, and at the same time my diabetes nutritionist (who has type 1 diabetes) told me to go " conventional " and have about 50% of my eating from carbs. I found that I managed my BG levels better and also eliminated the cravings if I stuck to the lower-carb way (about 80 a day), as long as I din't overdo the fats. I also like to do low-carb so I can splurge a little now and then and not have my total carbs for the day go to high. In addition to this way of eating, I also swim and/or do something similar to a stairmaster about 4 times a week and do strength- training (weights) 2 times a week. I know I am building up muscle, which I have been told will also burn up glucose more efficiently, so I guess I am doing pretty good with it. And although I was on a plateau, I am starting to lose a little more now. Thanks for inviting me to join this group (!!), and I am looking forward to some good recipes and/or hints, discussions, etc. Glad to be a part of it. Dawn P.S. I also have a site myself (GRS-Low-Carb) here at yahoogroups, and anyone is welcome to join at any time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Hi, I am also rather new so it is nice to meet you. Doctors get about a 15 minute course regarding nutrition so I would listen to the Registered Dietician (Nutritionist) and especially one who is a diabetic. I have been a type 2 diabetic for over 35 years and have never followed any specified diet but did make a life style change and eat what I feel is a good balance meal plan and keep portions small. I have never been a fad diet follower as they do more harm than good. Happy Irishman Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.