Re: Rach Thank You

[Guest guest]

hi laura!

it was such a pleasure to hear from william. pretty cool, indeed

he writes beautifully. (i'm a writer/editor for a living - and let

me tell you, that is sheer talent. there are a lot of professional

writers out there who don't write half as well. lol!)

he's an impressive boy and so are you, gram! the bureaucracies of

this world - schools, health insurance, hospitals - are horrifying.

i'm not ashamed to admit i'm 35 and i run to mommy for help with it

all. it is just too much. horrible. truly a horror.

i sympathize with william re. the MRI. boy do i! i went into the rad

lab for radiation treatment for my thyroid when i was a teenager.

they put me in a paper shift and marched me into this lead box, with

you know, like the 100-ft thick walls. then some person in a space

suit stuck out a little paper cup on a long, long, long stick and

gestured for me to drink this.

i think they're lucky i didn't try to battle my way out. *no big

deal* yeah, right! then how come i'm in a lead room facing down a

man (or woman? who knew) in a lead suit holding that *innocent*

little paper cup with a pole? gads! and me only in paper!

oh yeah, and then they told me not to sit next to pregnant women for

six months or something. makes me laugh now. but honestly. that was

not funny and no simple little cup.

i did a search myself on MRI and blood glucose. are they going to do

another MRI for william? check out his pancreas? william isn't on

any diabetes-type medications right? it occured to me, his b.g.

numbers don't necessarily seem to skyrocket. i was wondering if

maybe he could have a different sort of hyper/hypo-glycemia

situation, where sometimes his pancreas puts out too much insulin.

wouldn't want to wish that on him, but it might be a good thing -

with a good rad lab.

ok. well, william probably doesn't like the ladies fussing over him,

but he's a darlin!

you guys have a good day too.

rach

> Rach

> Thank you for talking to william. I did not know that he had

written

> anything. He asked if he could I was on my way to the bath and I

> said yes. He is afraid they are going to put him in a mri. I keep

> reassureing him but sometimes it helps to hear it from someone

else.

> He went to get the encylopedia and is looking up diabetis and

> insulin.

> That other hospital really scared him more then I thought. He is

> going on a web search later.

> This poor kid has been through so much and he just keeps getting

up

> and starting over. I found his letter. I was so proud when he read

> it to the senate. There wasnt many dry eyes left. It was when they

> were trying to get more funding for epilepsy research. He naraited

> and I typed lots of errors but I knew what it ment and so did the

> senate. You see his seizure meds are over 400 a month and at that

> time we had no insurance his hospital visits in the thousands and

> the meds the awful effects they have on the kids and then he had

to

> deal with a stupid school. Since then I changed schools and

learned

> to pick his teachers carefully.

> I couldnt figure how william had such high bloodsugars the last

few

> mornings I dont think he did I was useing a wipe. Now this am I

used

> warm soap and water and he woke with a headache and a 80 thats

about

> where his headache starts. We got some food into him and the

> headache went away. His bloodsugar is 110 now and he is bounceing

> through the house.

> I feel so blessed to have such wonderful loving children. They

both

> are so bright. They have a lot to give to this world.

> Iam hopeing to have william weaned from the seizure med soon. Then

> he will stop worring about that. I found a kids site related to

> juvinalle diabetis they even have games about good foods Iam going

> to have him look at it.He loves to do research.

> Thanks for being so nice to him he was excited that you replyed.

He

> thought noone would answere him because he is a kid.

> I hope you have a great day

> in Virginia