cjd and physical therapy

[Guest guest]

In a message dated 10/24/1998 8:29:40 PM, you wrote:

<>

When my dad was in the hospital, he had physical therapy--catching and

throwing a ball, balance, walking, etc. They also had therapy for speech and

memory. This lasted only four days because he was mostly comatose at that

point. I hadn't thought about the therapy in a long time ... it really brings

back terrible memories of my strong dad looking and acting so weak.

Don in Atlanta

[Guest guest]

Robin,

I misunderstood and thought you mentioned the person who changed the sheets.

Again, I don't know how to answer as to legalities because for one I am not a

lawyer and secondly, I do not know how her job description reads and how this

would affect liability. We unfortunately live in a very litigous society.

Debbie

<<

This person that we had, I would consider more than housekeeping. If she

was able to give a bath then she should be able to rub some lotion on a

persons arms and legs and feet.

Robin

>>

[Guest guest]

Robin,

I misunderstood and thought you mentioned the person who changed the sheets.

Again, I don't know how to answer as to legalities because for one I am not a

lawyer and secondly, I do not know how her job description reads and how this

would affect liability. We unfortunately live in a very litigous society.

Debbie

<<

This person that we had, I would consider more than housekeeping. If she

was able to give a bath then she should be able to rub some lotion on a

persons arms and legs and feet.

Robin

>>

[Guest guest]

Robin,

I misunderstood and thought you mentioned the person who changed the sheets.

Again, I don't know how to answer as to legalities because for one I am not a

lawyer and secondly, I do not know how her job description reads and how this

would affect liability. We unfortunately live in a very litigous society.

Debbie

<<

This person that we had, I would consider more than housekeeping. If she

was able to give a bath then she should be able to rub some lotion on a

persons arms and legs and feet.

Robin

>>

[Guest guest]

DrJolyn37@... wrote:

>

> From: DrJolyn37@...

>

> My wife started to grab the covers of her bed with her least affected arm

> early in her hospital stay - nurses said to give her something to hold - so a

> relative gave her a small teddy bear-- she would drop it -so we tied it

> loosely to her wrist with soft gauze---she would not look at it but seemed to

> search for it and hold it most of the time--later we gave her a rolled up

> wash cloth for the other hand--it seemed to help having something in both

> hands---we put the bear in with her along with our wedding picture at her

> service as we knew we could never stand to keep and look at that little

> bear---

>

> ------------------------------------------------------------------------

>

[Guest guest]

a,

You are right. A lot IS done to cjd victims before they are properly

diagnosed and not all is benifical. Pain is not always an early symptom.

Lots of times it is loss of funcion, balance, muscle control, eyesight etc.

>From my own experience with my mom, She was hosp. 3 weeks for diagnosis and

as it was 96 there was no test reliable to diagnose cjd. Her neurologist

thought she was psychotic. She had PT twice a day to help her use a walker

as her balance was shot and her strength was going. Theoretically Pt will

strengthen weak muscles, however if it is a control problem, use just makes

them weaker.

Everyone was trying their best. But the Dr. told mom she could go home if

she would walk a certain length down the hall with her walker. As I

realized what was wrong with her the cruelty of that statement, however

well meaning, will never leave my mind and my soul.

Dorothy

[Guest guest]

PAT,

I TOTALLY DISAGREE! MY FATHER HAS BEEN HAVING

PHYSICAL THERAPY EVER SINCE HE HAD HIS FIRST

SYMPTOM AND CONTINUES TO HAVE IT TWICE A WEEK.

HIS BODY GETS SO STIFF AND RIGID AND THE PT IS

GREAT, SHE MASSAGES AND RELAXES HIS MUSCLES

SO HE CAN STRAIGHTEN OUT HIS ARM AND HIS LEGS.

MAYBE THIS IS JUST SOMETHING THAT IS FOR EACH

INDIVIDUAL TO DECIDE, BUT IN OUR CASE IT IS GREAT

AND WE HAVE FOUGHT OUR INSURANCE COMPANY

TOOTH AND NAIL TO KEEPT IT, BECAUSE AS YOU

SHOULD KNOW, ONCE THEY HEAR, FATAL, NO TREATMENT

THEY ARE READY TO WRITE YOU OFF AS IT IS.

SUE

Re: CJD and Physical Therapy

>From: APE826@...

>

>From APE826@...

>

>Physical Therapy for CJD patients is cruel and unusual treatment. It does

not

>help them, it just adds to their pain.......................Pat

>

>------------------------------------------------------------------------

>

[Guest guest]

PAT,

I TOTALLY DISAGREE! MY FATHER HAS BEEN HAVING

PHYSICAL THERAPY EVER SINCE HE HAD HIS FIRST

SYMPTOM AND CONTINUES TO HAVE IT TWICE A WEEK.

HIS BODY GETS SO STIFF AND RIGID AND THE PT IS

GREAT, SHE MASSAGES AND RELAXES HIS MUSCLES

SO HE CAN STRAIGHTEN OUT HIS ARM AND HIS LEGS.

MAYBE THIS IS JUST SOMETHING THAT IS FOR EACH

INDIVIDUAL TO DECIDE, BUT IN OUR CASE IT IS GREAT

AND WE HAVE FOUGHT OUR INSURANCE COMPANY

TOOTH AND NAIL TO KEEPT IT, BECAUSE AS YOU

SHOULD KNOW, ONCE THEY HEAR, FATAL, NO TREATMENT

THEY ARE READY TO WRITE YOU OFF AS IT IS.

SUE

Re: CJD and Physical Therapy

>From: APE826@...

>

>From APE826@...

>

>Physical Therapy for CJD patients is cruel and unusual treatment. It does

not

>help them, it just adds to their pain.......................Pat

>

>------------------------------------------------------------------------

>

[Guest guest]

PAT,

I TOTALLY DISAGREE! MY FATHER HAS BEEN HAVING

PHYSICAL THERAPY EVER SINCE HE HAD HIS FIRST

SYMPTOM AND CONTINUES TO HAVE IT TWICE A WEEK.

HIS BODY GETS SO STIFF AND RIGID AND THE PT IS

GREAT, SHE MASSAGES AND RELAXES HIS MUSCLES

SO HE CAN STRAIGHTEN OUT HIS ARM AND HIS LEGS.

MAYBE THIS IS JUST SOMETHING THAT IS FOR EACH

INDIVIDUAL TO DECIDE, BUT IN OUR CASE IT IS GREAT

AND WE HAVE FOUGHT OUR INSURANCE COMPANY

TOOTH AND NAIL TO KEEPT IT, BECAUSE AS YOU

SHOULD KNOW, ONCE THEY HEAR, FATAL, NO TREATMENT

THEY ARE READY TO WRITE YOU OFF AS IT IS.

SUE

Re: CJD and Physical Therapy

>From: APE826@...

>

>From APE826@...

>

>Physical Therapy for CJD patients is cruel and unusual treatment. It does

not

>help them, it just adds to their pain.......................Pat

>

>------------------------------------------------------------------------

>

[Guest guest]

Sure, but there are also the aids who give the baths and change gowns.

They are perfectly capable of giving arm and leg rubs too, if you ask them.

We had very kind and helpful people who would have taken the time to do

that.

Robin

----------

> From: DebbieOney@...

> To: cjdvoice (AT) onelist (DOT) com

> Subject: Re: CJD and Physical Therapy

> Date: Monday, October 26, 1998 10:27 AM

>

> From: DebbieOney@...

>

> Robin,

>

> Would PT be the profession to provide leg, arm and feet rubs for patients

who,

> unlike you mother, were not fortunate enough to have family members to do

it?

>

> Debbie

>

> << Liz,

>

> I agree 100%. You cannot help people who are destined to keep losing

their

> abilities. I feel that rubdowns and just keeping their muscles as

limber

> as possible is the best therapy after they have gotten through the

startle

> phase of the disease. and I would do leg, arm and feet rubs with

> lotions with Mom. It seemed to soothe her the most. Maybe to just know

> that a loved-one was there with them. When she was at IUMC and wasn't

> speaking just moving her limbs the PT were still coming in. We didn't

> understand why, the doctor should have told them not to bother. He had

> seen CJD before. They gave us cones to put in her hands so that her

> fingernails would not go into her palms. They kept trying to talk to

her,

> " Jean, can you do this? " And her arms would just drop. It was

> heartbreaking and and I would just look at each other in

disbelief!

> They had never seen this disease before. They asked " what can we do for

> her " and we just shook our heads. The PT's definitely need educated.

>

> Robin >>

>

> ------------------------------------------------------------------------

>

[Guest guest]

Sure, but there are also the aids who give the baths and change gowns.

They are perfectly capable of giving arm and leg rubs too, if you ask them.

We had very kind and helpful people who would have taken the time to do

that.

Robin

----------

> From: DebbieOney@...

> To: cjdvoice (AT) onelist (DOT) com

> Subject: Re: CJD and Physical Therapy

> Date: Monday, October 26, 1998 10:27 AM

>

> From: DebbieOney@...

>

> Robin,

>

> Would PT be the profession to provide leg, arm and feet rubs for patients

who,

> unlike you mother, were not fortunate enough to have family members to do

it?

>

> Debbie

>

> << Liz,

>

> I agree 100%. You cannot help people who are destined to keep losing

their

> abilities. I feel that rubdowns and just keeping their muscles as

limber

> as possible is the best therapy after they have gotten through the

startle

> phase of the disease. and I would do leg, arm and feet rubs with

> lotions with Mom. It seemed to soothe her the most. Maybe to just know

> that a loved-one was there with them. When she was at IUMC and wasn't

> speaking just moving her limbs the PT were still coming in. We didn't

> understand why, the doctor should have told them not to bother. He had

> seen CJD before. They gave us cones to put in her hands so that her

> fingernails would not go into her palms. They kept trying to talk to

her,

> " Jean, can you do this? " And her arms would just drop. It was

> heartbreaking and and I would just look at each other in

disbelief!

> They had never seen this disease before. They asked " what can we do for

> her " and we just shook our heads. The PT's definitely need educated.

>

> Robin >>

>

> ------------------------------------------------------------------------

>

[Guest guest]

Sure, but there are also the aids who give the baths and change gowns.

They are perfectly capable of giving arm and leg rubs too, if you ask them.

We had very kind and helpful people who would have taken the time to do

that.

Robin

----------

> From: DebbieOney@...

> To: cjdvoice (AT) onelist (DOT) com

> Subject: Re: CJD and Physical Therapy

> Date: Monday, October 26, 1998 10:27 AM

>

> From: DebbieOney@...

>

> Robin,

>

> Would PT be the profession to provide leg, arm and feet rubs for patients

who,

> unlike you mother, were not fortunate enough to have family members to do

it?

>

> Debbie

>

> << Liz,

>

> I agree 100%. You cannot help people who are destined to keep losing

their

> abilities. I feel that rubdowns and just keeping their muscles as

limber

> as possible is the best therapy after they have gotten through the

startle

> phase of the disease. and I would do leg, arm and feet rubs with

> lotions with Mom. It seemed to soothe her the most. Maybe to just know

> that a loved-one was there with them. When she was at IUMC and wasn't

> speaking just moving her limbs the PT were still coming in. We didn't

> understand why, the doctor should have told them not to bother. He had

> seen CJD before. They gave us cones to put in her hands so that her

> fingernails would not go into her palms. They kept trying to talk to

her,

> " Jean, can you do this? " And her arms would just drop. It was

> heartbreaking and and I would just look at each other in

disbelief!

> They had never seen this disease before. They asked " what can we do for

> her " and we just shook our heads. The PT's definitely need educated.

>

> Robin >>

>

> ------------------------------------------------------------------------

>

[Guest guest]

a,

They may do massages but ours were more interested in rehabilitation.

Probably the more they get educated on it then they will know what to do

for cjd victims.

In the initial stages Mom wasn't in pain, could be others are. Our doctor

said that people are not really in pain with cjd. Maybe others could tell

us if their loved one was? The disease just takes away their abilities.

I know it sounds bad, but sometimes there is nothing to do. They gave her

aspirin also to keep the blood thinner, to help prevent blood clots. It

then helped with the aches too.CJD victims go through a stage that they are

easily startled, very sensitive to light, to sound to touch. Each person

has to be evaluated on what they can stand to have done to them.

Robin

----------

>

> To: cjdvoice (AT) onelist (DOT) com

> Subject: Re: CJD and Physical Therapy

> Date: Monday, October 26, 1998 1:34 PM

>

>

>

> Dear Robin;

>

> Thanks for helping me understand, I was just thinking that PT may be

> helpful in the initial stages to help with the pain. I did not want it

to

> be that you do nothing for them as it is pointless. I thought whatever

> could be done even in CJD's initial stages would be helpful to make

people

> more comfortable, I thought they did do muscle massages and rubs as such.

>

> a G.

>

> ----------

> >

> > To: cjdvoice (AT) onelist (DOT) com

> > Subject: Re: CJD and Physical Therapy

> > Date: Monday, October 26, 1998 7:21 AM

> >

> >

> >

> > The aches and pains that I meant were from laying in bed for a long

> period

> > of time. Like a backache or such. Mom would get put on her side and

she

> > must not have liked that because in no more than 15 minutes time she

> would

> > have herself moved on her back again. She knew what she wanted but was

> > just trapped in that body. Robin

> >

> > ----------

> > >

> > > To: cjdvoice (AT) onelist (DOT) com

> > > Subject: Re: CJD and Physical Therapy

> > > Date: Monday, October 26, 1998 10:10 AM

> > >

> > >

> > >

> > > Hi a,

> > >

> > > I am not sure that people are really in pain in the beginning. They

> are

> > > still walking and moving about. That is the best therapy to just let

> > them

> > > be able to move on their own. That eventually just disappears. One

> > thing

> > > at IU is our Doctor didn't want to give any kind of sedative, just

> asprin

> > > for the aches and pains, because Mom was very active moving her arms

> and

> > > legs and he didn't want to stop that. If the patient is able to move

> > their

> > > limbs then all the better. Robin

> > >

> > > ----------

> > > >

> > > > To: cjdvoice (AT) onelist (DOT) com

> > > > Subject: Re: CJD and Physical Therapy

> > > > Date: Monday, October 26, 1998 1:02 PM

> > > >

> > > >

> > > >

> > > > Pat;

> > > >

> > > > I know what you say may be true but upon reading alot of the case

> > > histories

> > > > it seems alot of people are given PT in the beginning before

> diagnosis

> > to

> > > > help with their muscle tone. I feel alot is done for these people

> > before

> > > > their diagnosis. As we all know some do not get their diagnosis

> until

> > it

> > > > is too late. Couldn't some of the PT be helpful in some of the

> initial

> > > > pains that people go thru? Does anyone have a personal situation

on

> > this

> > > > where it did help in the beginning?

> > > >

> > > > a G.

> > > >

> > > > ----------

> > > > > From: APE826@...

> > > > > To: cjdvoice (AT) onelist (DOT) com

> > > > > Subject: Re: CJD and Physical Therapy

> > > > > Date: Monday, October 26, 1998 6:43 AM

> > > > >

> > > > > From: APE826@...

> > > > >

> > > > > >From APE826@...

> > > > >

> > > > > Physical Therapy for CJD patients is cruel and unusual treatment.

> It

> > > > does not

> > > > > help them, it just adds to their pain.......................Pat

> > > > >

> > > > >

> > >

> ------------------------------------------------------------------------

> > > > >

[Guest guest]

Thats great that your physical therapist does massages. That is what a cjd

victim needs. I think we all have differing ideas of what physical therapy

is.

Robin

----------

>

> To: cjdvoice (AT) onelist (DOT) com

> Subject: Re: CJD and Physical Therapy

> Date: Monday, October 26, 1998 11:57 AM

>

>

>

> PAT,

> I TOTALLY DISAGREE! MY FATHER HAS BEEN HAVING

> PHYSICAL THERAPY EVER SINCE HE HAD HIS FIRST

> SYMPTOM AND CONTINUES TO HAVE IT TWICE A WEEK.

> HIS BODY GETS SO STIFF AND RIGID AND THE PT IS

> GREAT, SHE MASSAGES AND RELAXES HIS MUSCLES

> SO HE CAN STRAIGHTEN OUT HIS ARM AND HIS LEGS.

> MAYBE THIS IS JUST SOMETHING THAT IS FOR EACH

> INDIVIDUAL TO DECIDE, BUT IN OUR CASE IT IS GREAT

> AND WE HAVE FOUGHT OUR INSURANCE COMPANY

> TOOTH AND NAIL TO KEEPT IT, BECAUSE AS YOU

> SHOULD KNOW, ONCE THEY HEAR, FATAL, NO TREATMENT

> THEY ARE READY TO WRITE YOU OFF AS IT IS.

> SUE

>

> Re: CJD and Physical Therapy

>

>

> >From: APE826@...

> >

> >From APE826@...

> >

> >Physical Therapy for CJD patients is cruel and unusual treatment. It

does

> not

> >help them, it just adds to their pain.......................Pat

> >

> >------------------------------------------------------------------------

> >

[Guest guest]

Boy Debbie, I have no answer for this one. Only thing I would think that

the person is covered since they work in the hospital. Surely they would

say something if they were not able to do a massage. I know nurses can do

them too if they have the time too.

Robin

----------

> From: DebbieOney@...

> To: cjdvoice (AT) onelist (DOT) com

> Subject: Re: CJD and Physical Therapy

> Date: Monday, October 26, 1998 12:56 PM

>

> From: DebbieOney@...

>

> Robin,

>

> Your mother and other members of CJD Voice were fortunate to have family

> members and friends who were able to give massages and do the holding

things

> in their hands with them . Often family and friends are unable to do this

for

> one reason or another. Also, some CJD victims may not have families and

> friends. We don't find out about them because they don't have loved ones

who

> would join a group like CJD Voice. They're the victims that we have

trouble

> tracking. Maybe these people need a physical therapist to do the things

> members of CJD Voice mentioned they did for their family members and for

the

> doctor to order this the doctor would have to write an order for a PT or

> whoever the professional is to do this even though other

non-professionals

> could do it. I am not sure about liability but if a person for some

strange

> reason were to get hurt when an aide gave them a massage I don't know

what the

> legal consequences would be. Does anyone know this?

>

> <<

>

> Sure, but there are also the aids who give the baths and change gowns.

> They are perfectly capable of giving arm and leg rubs too, if you ask

them.

>

> We had very kind and helpful people who would have taken the time to do

> that.

>

> Robin >>

>

> ------------------------------------------------------------------------

>

[Guest guest]

When is the last time you heard of a nurse giving a message. I can tell you

that here in RI and southern MASS they do not give messages. If you want

you loved one to get a message you either do it yourself or ask a CNA

Jackie Laplante

ext.309

Re: CJD and Physical Therapy

> Date: Monday, October 26, 1998 12:56 PM

>

> From: DebbieOney@...

>

> Robin,

>

> Your mother and other members of CJD Voice were fortunate to have family

> members and friends who were able to give massages and do the holding

things

> in their hands with them . Often family and friends are unable to do this

for

> one reason or another. Also, some CJD victims may not have families and

> friends. We don't find out about them because they don't have loved ones

who

> would join a group like CJD Voice. They're the victims that we have

trouble

> tracking. Maybe these people need a physical therapist to do the things

> members of CJD Voice mentioned they did for their family members and for

the

> doctor to order this the doctor would have to write an order for a PT or

> whoever the professional is to do this even though other

non-professionals

> could do it. I am not sure about liability but if a person for some

strange

> reason were to get hurt when an aide gave them a massage I don't know

what the

> legal consequences would be. Does anyone know this?

>

> <<

>

> Sure, but there are also the aids who give the baths and change gowns.

> They are perfectly capable of giving arm and leg rubs too, if you ask

them.

>

> We had very kind and helpful people who would have taken the time to do

> that.

>

> Robin >>

>

> ------------------------------------------------------------------------

>

[Guest guest]

We had nurses, especially the night ones who would take the time with Mom

and go out of their way to help her. I don't know if this is the norm, I

am just going by my own experience.

Robin

----------

>

> To: cjdvoice (AT) onelist (DOT) com'

> Subject: Re: CJD and Physical Therapy

> Date: Monday, October 26, 1998 1:30 PM

>

>

>

> When is the last time you heard of a nurse giving a message. I can tell

you

> that here in RI and southern MASS they do not give messages. If you want

> you loved one to get a message you either do it yourself or ask a CNA

>

> Jackie Laplante

> ext.309

>

>

> Re: CJD and Physical Therapy

> > Date: Monday, October 26, 1998 12:56 PM

> >

> > From: DebbieOney@...

> >

> > Robin,

> >

> > Your mother and other members of CJD Voice were fortunate to have

family

> > members and friends who were able to give massages and do the holding

> things

> > in their hands with them . Often family and friends are unable to do

this

> for

> > one reason or another. Also, some CJD victims may not have families

and

> > friends. We don't find out about them because they don't have loved

ones

> who

> > would join a group like CJD Voice. They're the victims that we have

> trouble

> > tracking. Maybe these people need a physical therapist to do the

things

> > members of CJD Voice mentioned they did for their family members and

for

> the

> > doctor to order this the doctor would have to write an order for a PT

or

> > whoever the professional is to do this even though other

> non-professionals

> > could do it. I am not sure about liability but if a person for some

> strange

> > reason were to get hurt when an aide gave them a massage I don't know

> what the

> > legal consequences would be. Does anyone know this?

> >

> > <<

> >

> > Sure, but there are also the aids who give the baths and change gowns.

> > They are perfectly capable of giving arm and leg rubs too, if you ask

> them.

> >

> > We had very kind and helpful people who would have taken the time to

do

> > that.

> >

> > Robin >>

> >

> >

------------------------------------------------------------------------

> >

[Guest guest]

We had nurses, especially the night ones who would take the time with Mom

and go out of their way to help her. I don't know if this is the norm, I

am just going by my own experience.

Robin

----------

>

> To: cjdvoice (AT) onelist (DOT) com'

> Subject: Re: CJD and Physical Therapy

> Date: Monday, October 26, 1998 1:30 PM

>

>

>

> When is the last time you heard of a nurse giving a message. I can tell

you

> that here in RI and southern MASS they do not give messages. If you want

> you loved one to get a message you either do it yourself or ask a CNA

>

> Jackie Laplante

> ext.309

>

>

> Re: CJD and Physical Therapy

> > Date: Monday, October 26, 1998 12:56 PM

> >

> > From: DebbieOney@...

> >

> > Robin,

> >

> > Your mother and other members of CJD Voice were fortunate to have

family

> > members and friends who were able to give massages and do the holding

> things

> > in their hands with them . Often family and friends are unable to do

this

> for

> > one reason or another. Also, some CJD victims may not have families

and

> > friends. We don't find out about them because they don't have loved

ones

> who

> > would join a group like CJD Voice. They're the victims that we have

> trouble

> > tracking. Maybe these people need a physical therapist to do the

things

> > members of CJD Voice mentioned they did for their family members and

for

> the

> > doctor to order this the doctor would have to write an order for a PT

or

> > whoever the professional is to do this even though other

> non-professionals

> > could do it. I am not sure about liability but if a person for some

> strange

> > reason were to get hurt when an aide gave them a massage I don't know

> what the

> > legal consequences would be. Does anyone know this?

> >

> > <<

> >

> > Sure, but there are also the aids who give the baths and change gowns.

> > They are perfectly capable of giving arm and leg rubs too, if you ask

> them.

> >

> > We had very kind and helpful people who would have taken the time to

do

> > that.

> >

> > Robin >>

> >

> >

------------------------------------------------------------------------

> >

[Guest guest]

We had nurses, especially the night ones who would take the time with Mom

and go out of their way to help her. I don't know if this is the norm, I

am just going by my own experience.

Robin

----------

>

> To: cjdvoice (AT) onelist (DOT) com'

> Subject: Re: CJD and Physical Therapy

> Date: Monday, October 26, 1998 1:30 PM

>

>

>

> When is the last time you heard of a nurse giving a message. I can tell

you

> that here in RI and southern MASS they do not give messages. If you want

> you loved one to get a message you either do it yourself or ask a CNA

>

> Jackie Laplante

> ext.309

>

>

> Re: CJD and Physical Therapy

> > Date: Monday, October 26, 1998 12:56 PM

> >

> > From: DebbieOney@...

> >

> > Robin,

> >

> > Your mother and other members of CJD Voice were fortunate to have

family

> > members and friends who were able to give massages and do the holding

> things

> > in their hands with them . Often family and friends are unable to do

this

> for

> > one reason or another. Also, some CJD victims may not have families

and

> > friends. We don't find out about them because they don't have loved

ones

> who

> > would join a group like CJD Voice. They're the victims that we have

> trouble

> > tracking. Maybe these people need a physical therapist to do the

things

> > members of CJD Voice mentioned they did for their family members and

for

> the

> > doctor to order this the doctor would have to write an order for a PT

or

> > whoever the professional is to do this even though other

> non-professionals

> > could do it. I am not sure about liability but if a person for some

> strange

> > reason were to get hurt when an aide gave them a massage I don't know

> what the

> > legal consequences would be. Does anyone know this?

> >

> > <<

> >

> > Sure, but there are also the aids who give the baths and change gowns.

> > They are perfectly capable of giving arm and leg rubs too, if you ask

> them.

> >

> > We had very kind and helpful people who would have taken the time to

do

> > that.

> >

> > Robin >>

> >

> >

------------------------------------------------------------------------

> >

[Guest guest]

This person that we had, I would consider more than housekeeping. If she

was able to give a bath then she should be able to rub some lotion on a

persons arms and legs and feet.

Robin

----------

> From: DebbieOney@...

> To: cjdvoice (AT) onelist (DOT) com

> Subject: Re: CJD and Physical Therapy

> Date: Monday, October 26, 1998 1:30 PM

>

> From: DebbieOney@...

>

> Robin,

>

> I was reading over what Judy said about teaching other staff. I imagine

in

> that case it is covered. I am no expert and am not a lawyer but I do

remember

> covering in a law class about people doing things within their job

description

> affecting how it would be reviewed for malpractice were something to

occur. I

> think what happens in the real world is people don't always think about

their

> job descriptions if they even know them and all is ok unless something

> happens. While a member of the housekeeping staff may do it to be nice,

I

> can't imagine it being part of their job description. Any lawyers here?

>

> <<

>

> Boy Debbie, I have no answer for this one. Only thing I would think

that

> the person is covered since they work in the hospital. Surely they

would

> say something if they were not able to do a massage. I know nurses can

do

> them too if they have the time too.

>

> Robin >>

>

> ------------------------------------------------------------------------

>

[Guest guest]

This person that we had, I would consider more than housekeeping. If she

was able to give a bath then she should be able to rub some lotion on a

persons arms and legs and feet.

Robin

----------

> From: DebbieOney@...

> To: cjdvoice (AT) onelist (DOT) com

> Subject: Re: CJD and Physical Therapy

> Date: Monday, October 26, 1998 1:30 PM

>

> From: DebbieOney@...

>

> Robin,

>

> I was reading over what Judy said about teaching other staff. I imagine

in

> that case it is covered. I am no expert and am not a lawyer but I do

remember

> covering in a law class about people doing things within their job

description

> affecting how it would be reviewed for malpractice were something to

occur. I

> think what happens in the real world is people don't always think about

their

> job descriptions if they even know them and all is ok unless something

> happens. While a member of the housekeeping staff may do it to be nice,

I

> can't imagine it being part of their job description. Any lawyers here?

>

> <<

>

> Boy Debbie, I have no answer for this one. Only thing I would think

that

> the person is covered since they work in the hospital. Surely they

would

> say something if they were not able to do a massage. I know nurses can

do

> them too if they have the time too.

>

> Robin >>

>

> ------------------------------------------------------------------------

>

[Guest guest]

This person that we had, I would consider more than housekeeping. If she

was able to give a bath then she should be able to rub some lotion on a

persons arms and legs and feet.

Robin

----------

> From: DebbieOney@...

> To: cjdvoice (AT) onelist (DOT) com

> Subject: Re: CJD and Physical Therapy

> Date: Monday, October 26, 1998 1:30 PM

>

> From: DebbieOney@...

>

> Robin,

>

> I was reading over what Judy said about teaching other staff. I imagine

in

> that case it is covered. I am no expert and am not a lawyer but I do

remember

> covering in a law class about people doing things within their job

description

> affecting how it would be reviewed for malpractice were something to

occur. I

> think what happens in the real world is people don't always think about

their

> job descriptions if they even know them and all is ok unless something

> happens. While a member of the housekeeping staff may do it to be nice,

I

> can't imagine it being part of their job description. Any lawyers here?

>

> <<

>

> Boy Debbie, I have no answer for this one. Only thing I would think

that

> the person is covered since they work in the hospital. Surely they

would

> say something if they were not able to do a massage. I know nurses can

do

> them too if they have the time too.

>

> Robin >>

>

> ------------------------------------------------------------------------

>

[Guest guest]

Boy this really has opened a kettle of worms. Discussion is good for

the soul and education.

Lotion on the body after a shower or sponge bath is considered part of

shin care so that driness does not occur. If the skin becomes too dry,

there may be a tendency for open areas which then could lead to further

breakdown and many more problems.

Judy

robtom wrote:

>

>

>

> This person that we had, I would consider more than housekeeping. If she

> was able to give a bath then she should be able to rub some lotion on a

> persons arms and legs and feet.

>

> Robin

>

> ----------

> > From: DebbieOney@...

> > To: cjdvoice (AT) onelist (DOT) com

> > Subject: Re: CJD and Physical Therapy

> > Date: Monday, October 26, 1998 1:30 PM

> >

> > From: DebbieOney@...

> >

> > Robin,

> >

> > I was reading over what Judy said about teaching other staff. I imagine

> in

> > that case it is covered. I am no expert and am not a lawyer but I do

> remember

> > covering in a law class about people doing things within their job

> description

> > affecting how it would be reviewed for malpractice were something to

> occur. I

> > think what happens in the real world is people don't always think about

> their

> > job descriptions if they even know them and all is ok unless something

> > happens. While a member of the housekeeping staff may do it to be nice,

> I

> > can't imagine it being part of their job description. Any lawyers here?

> >

> > <<

> >

> > Boy Debbie, I have no answer for this one. Only thing I would think

> that

> > the person is covered since they work in the hospital. Surely they

> would

> > say something if they were not able to do a massage. I know nurses can

> do

> > them too if they have the time too.

> >

> > Robin >>

> >

> > ------------------------------------------------------------------------

> >

[Guest guest]

Judy:

It has opened a good discussion forum as we have seen with many instances

with CJD each person has a varied story of what works and what doesn't. I

have learned alot about it!

a G.

----------

> From: i4jod@...

> To: cjdvoice (AT) onelist (DOT) com

> Subject: Re: CJD and Physical Therapy

> Date: Monday, October 26, 1998 6:15 PM

>

> From: i4jod@...

>

> Boy this really has opened a kettle of worms. Discussion is good for

> the soul and education.

> Lotion on the body after a shower or sponge bath is considered part of

> shin care so that driness does not occur. If the skin becomes too dry,

> there may be a tendency for open areas which then could lead to further

> breakdown and many more problems.

> Judy

>

> robtom wrote:

> >

> >

> >

> > This person that we had, I would consider more than housekeeping. If

she

> > was able to give a bath then she should be able to rub some lotion on a

> > persons arms and legs and feet.

> >

> > Robin

> >

> > ----------

> > > From: DebbieOney@...

> > > To: cjdvoice (AT) onelist (DOT) com

> > > Subject: Re: CJD and Physical Therapy

> > > Date: Monday, October 26, 1998 1:30 PM

> > >

> > > From: DebbieOney@...

> > >

> > > Robin,

> > >

> > > I was reading over what Judy said about teaching other staff. I

imagine

> > in

> > > that case it is covered. I am no expert and am not a lawyer but I do

> > remember

> > > covering in a law class about people doing things within their job

> > description

> > > affecting how it would be reviewed for malpractice were something to

> > occur. I

> > > think what happens in the real world is people don't always think

about

> > their

> > > job descriptions if they even know them and all is ok unless

something

> > > happens. While a member of the housekeeping staff may do it to be

nice,

> > I

> > > can't imagine it being part of their job description. Any lawyers

here?

> > >

> > > <<

> > >

> > > Boy Debbie, I have no answer for this one. Only thing I would think

> > that

> > > the person is covered since they work in the hospital. Surely they

> > would

> > > say something if they were not able to do a massage. I know nurses

can

> > do

> > > them too if they have the time too.

> > >

> > > Robin >>

> > >

> > >

------------------------------------------------------------------------

> > >

[Guest guest]

Sorry for the delay in responding. As some of you know, I have been away

several times in the last two weeks. Physical therapists can help in various

ways depending on the stage of the disease and the extent of the disability. I

recommend that they do any one or all of the following if it seems to help the

patient:

- Gentle stretching of the limbs to reduce the contractures

- Massage of the limbs and body to relax and decrease the myoclonic

movements

- Active or passive exercises to maintain functioning as long as possible

One must always rememmber that the therapy should be adapted to the individual

patient. What is good for one patient may not be beneficial for another.

Marie