Off the topic

[Guest guest]

Hi Everyone

It warmed my heart so much at how nice you all have been to

. He is very big on questions and investagitions.

Someone asked about our dog. We have a cocker spaniel. We got him

at first just because he is cute.We have had him for a few years now

about 31/2. His name is Shiloh. I never understood why he stayed so

close to william but now I know he was senseing something was wrong.

After williams first seizure as I was already up at thetime he will

come and take his paw and hit me in the face if iam sleeping and

william starts to breath differentally.If he auctually starts a

seizurehe will stand over the top of william lay down on him to hold

him in place and he will howl untill someone comes to help. He is my

right hand. We had him certified and nowhe can go with us to hotels

when we go on trips.

Someone also asked how got to talk to the senate auctually

it was the congress. The epilepsy foundation was trying to get some

research funding and william was one of several kids whose stories

were told. When he described wakingin the hospital and seeing that I

had been crying How he knew then something was wrong and how they

had to put in an IV and a cathiter and get the cat scan they looked

so shocked and then when he spoke about the first med and how bad it

made him feel and how the second med was better. He read his own

story. He wanted it told so a kid could understand. He had such a

great vocabulary back then and they were amazed at how well he reads.

He has put up with so much ritacule from school he was in at first

from teachers and students and parents. His first school he was that

seizure kid or numb boy spazzoid many more.

So when stood up before starting the pledge and was

supposto say what his biggest accomplishment in kindergarten was and

he took the micraphone and said

My name is Reynolds and my biggest accomplishment was that I

found out I have seizures and so that means I have epliepsy and I

will be ok. He was 6 then. He is 71/2 now and I couldnt be more

proud. Most parents take reading for granted I am so greatful when

he can read sometimes the med he takes will slow himdown. Some

people assume thier kids will play ikenormal kids Iamso greatful

every day he wants to play. sometimes the med makes him to tired.

Iam so greatful when he can talk sometimes he cant. But he still

holds an a average in school and has more of a open heart then

anykid around.

SO when you all acceptedhim and was so nice I was in tears as this

is something that means the world to him. I pray the nero is right

and we can get him off that med. And it is the mildest med on the

market.

In first grade his teacher was so excited when he got mad or kicked

up a fuss. He had a much better learning team and understood that

when he was down it was the med and even allowed himto doze off for

a few minuets. Wich is a rare thingto happen. Ialso picked his

teacher for this year. She is a diabetic and has children that are

advanced so she knows how to work with william.

She said she has watched william and also said that she was sure he

is more hypoglacimic then epeileptic. She has also seen how he acts

when his sugar drops so she always makes sure to have snacks in her

room. All the teachers this year will be taking seizure training and

the principal wants to have someone from the diabetic place to come

and talk also. I ahve ben bleesed this year and last year with an

excellent school. I have had teachers come up and thankme for

getting the programs started. Isnt it amazing what a small 6 year

old boy can start.

Thanks for listening Iam so blessed to have you in my and

life.

in Virginia