Re: New to group its long sorry

[Guest guest]

Hi ,

I see what you mean by your life really changing when your grandson became so

ill. You are to be admired for caring for your grandchildren. I heard the

percentage of grandparents caring for grandchildren is growing. How sad.

Where do you live? It sounds like the medical care there is quite poor. One

thing to look into is the nearest university. They usually have a teaching

hospital affiliated with it and are up on the latest procedures. When I lived in

the SF Bay I area I went to Stanford University when I had a breast cancer

scare.

I wish I had more imformation for you. Giving a balanced diet and testing after

eating is the only other thing I can think of.

Vicki

From: laura reynolds

Hi my name is and Iam new to this way of life. In the last

21/2 years my life has been filp turned and everytime I think we are

starting to recover something new pops up. This is going to be long

please be patient and Iam sorry about my spelling and grammer in

advance.

Iam raiseing with the help of my husband and very little from thier

mother 2 of my grandchildren. na is 11 and she is advanced and

is 7 he is also advanced.

My nightmere began 21/2 years ago when I heard odd sounds coming

from his bedroom. who has never had any major problems other

the being a typical boy was having a grand mal seizure. I was

terrified and screamed for my husband thank God he is calm. He

stayed with william while I got an ambulance.

They didnt think he was going to make it to the hospital he has

stopped breathing. We got thier and the hospital said he is

probabily just one of those seizure kids. At the same time the

ambulance driver was trying to tell them he had a bloodsugar of 45

when they got to the hous they gave him a low dose of sugar water

and it shot up to 475 in 15 min. They stopped the sugar water. The

er didnt even take note. Late the next day they did an eeg and said

epileptic and put him on Valporic acid this is a mean nasty medicine

it turned him into an basket case with 5 or more nose bleeds a day.

I made them take him off as he couldnt function. 3 months later he

was acting odd again he was eating alot peeing a lot, crabby,

sweaty, tired just not connected. That night anothere seizure this

time they took his blood sugar and it was 39 took it 5 min later it

was 115 and was coming around took it again at 1 hour it was 180.

Hospital still said give him sugar water iv. They did it went to 500

They said just a seizure kid. They watched him watch tv and

realeased him after 5 hour his blood sugar was 300. I mentioned some

type of sugar problems his nero said kids dont get diabetis. They

put him on lamectal. 4 months later same problem. This time when he

started shaking I caught it at the beginning as he was showing all

the signs I told the dr because I gave him about 4oz orange juice

and it stopped. One day he was at school his teachers father was

there he is diabetic he asked me if william is hypo and I said no as

I new nothing about it. He said you better watch him he is getiing

ready to seize he is showing all the signs. Sure enough I was

summoned to the school the next day william was on the floor in a

full grand mal and had been for 20 min. We gave him diastat to stop

it but it didnt work. He got the sugar Iv and it stopped. The nero

said it was just being a seizure kid they out him in the hospital

for 3 days I asked them to moniter his bloodsugar and they said it

wasnt necessary as he is a seizure kid. So he was still showing

those odd signs his teachers father came up and said snce I was

there evertime william starts to shake hit the button to track the

seizure and give him a drink of juice or a piece of fruit. I did and

each time it stopped immeditally. At the end of 3 days they said he

was jjust imagining the seizures for attention.

THey gave him amirtiptyline to add to the lamectal and said it was

pain med for the headaches. After 5 days I took him off he was a

babbling mess pooping himself.

I found a new nero and she had an a1c I think its called and it was

5.9 she said she wasnt to worried but wanted to have an endo look at

him. The endo did and said he is probabily hypoglacimic with

rebounding sugars and athat the lows were making his highs look

normal. Then he started shaking again they took his booldsugar 1

hour before that and it was 101 now it was 49. He gavehim an odd

look and said seems he has rebounding sugars and that he will

probabily be diabetic soon. They gave him a drink and it stopped.

They told me to watch his diet and In Aug that they will be doing a

5 hour test as he didnt like the results of the 3 hour test.

He told william when he starts getting a headache to let me know so

we can take his bloodsugar or if I see him peeing a lot. He gets

geadaches at 85 he gets cranky at 70 he is peeing at 65He starts

shaking at 60 it drops suddenlt below 50 and if we give him juice it

starts back up and if we add peanut butter crackers it only goes to

125 and holds. He also said no diabetic should ever be given

amitriptyline.

When he is at school we have tracke that he will eat lunch and play

for recess for half an hour and come in and 1 hour later his

bloodsugar is 70.give juice and crackers and he is fine.He hasnt had

a seizure since last Oct.

I did let him splurge and let him have a small hot fudge sundae

that he only ate half of and 2 hours later his blood sugar was 290.

I thought I was wrong so we re washed our hands and used a wipe like

they do in the hospital waite tomake sure it was dry and it was 289.

Has anyone else had this happen what should I do. I limit sugar

with the eception of that sundae I try to make sure he gets what he

needs nutrition wise but should I make sure he gets no sugar or

some. When it gets high is there a way to bring it down? When should

I get worried and call the doctor and should it be the ped,or nero?

He did have an MRI and a Cat scan and they showed no reason for a

seizure disrder and they dont rn in the family. Byt he has diabetis

on bith sides of his family.

Any advice is appriciated. He is a bright happy boy in a 2/3 grade

spilt level class next year for advanced kids.

[Guest guest]

Hi, , and welcome to this group, I am sorry that you had to join us because

of the baby... it is hard enough on a adult, but on a child is even worse, get

your hands on all the information that you can for diabetes, there are thousands

of sites here on the web, by all you have said, it sounds to me like he has

diabetes...and you should be treating him as such... make sure that he gets that

test, and then go from there with his treatment... you can find wonderful

recipes online for treats for him, so that he doesn't feel left out..

Carmen

[alldiabeticinternational] New to group its long sorry

Hi my name is and Iam new to this way of life. In the last

21/2 years my life has been filp turned and everytime I think we are

starting to recover something new pops up. This is going to be long

please be patient and Iam sorry about my spelling and grammer in

advance.

Iam raiseing with the help of my husband and very little from thier

mother 2 of my grandchildren. na is 11 and she is advanced and

is 7 he is also advanced.

My nightmere began 21/2 years ago when I heard odd sounds coming

from his bedroom. who has never had any major problems other

the being a typical boy was having a grand mal seizure. I was

terrified and screamed for my husband thank God he is calm. He

stayed with william while I got an ambulance.

They didnt think he was going to make it to the hospital he has

stopped breathing. We got thier and the hospital said he is

probabily just one of those seizure kids. At the same time the

ambulance driver was trying to tell them he had a bloodsugar of 45

when they got to the hous they gave him a low dose of sugar water

and it shot up to 475 in 15 min. They stopped the sugar water. The

er didnt even take note. Late the next day they did an eeg and said

epileptic and put him on Valporic acid this is a mean nasty medicine

it turned him into an basket case with 5 or more nose bleeds a day.

I made them take him off as he couldnt function. 3 months later he

was acting odd again he was eating alot peeing a lot, crabby,

sweaty, tired just not connected. That night anothere seizure this

time they took his blood sugar and it was 39 took it 5 min later it

was 115 and was coming around took it again at 1 hour it was 180.

Hospital still said give him sugar water iv. They did it went to 500

They said just a seizure kid. They watched him watch tv and

realeased him after 5 hour his blood sugar was 300. I mentioned some

type of sugar problems his nero said kids dont get diabetis. They

put him on lamectal. 4 months later same problem. This time when he

started shaking I caught it at the beginning as he was showing all

the signs I told the dr because I gave him about 4oz orange juice

and it stopped. One day he was at school his teachers father was

there he is diabetic he asked me if william is hypo and I said no as

I new nothing about it. He said you better watch him he is getiing

ready to seize he is showing all the signs. Sure enough I was

summoned to the school the next day william was on the floor in a

full grand mal and had been for 20 min. We gave him diastat to stop

it but it didnt work. He got the sugar Iv and it stopped. The nero

said it was just being a seizure kid they out him in the hospital

for 3 days I asked them to moniter his bloodsugar and they said it

wasnt necessary as he is a seizure kid. So he was still showing

those odd signs his teachers father came up and said snce I was

there evertime william starts to shake hit the button to track the

seizure and give him a drink of juice or a piece of fruit. I did and

each time it stopped immeditally. At the end of 3 days they said he

was jjust imagining the seizures for attention.

THey gave him amirtiptyline to add to the lamectal and said it was

pain med for the headaches. After 5 days I took him off he was a

babbling mess pooping himself.

I found a new nero and she had an a1c I think its called and it was

5.9 she said she wasnt to worried but wanted to have an endo look at

him. The endo did and said he is probabily hypoglacimic with

rebounding sugars and athat the lows were making his highs look

normal. Then he started shaking again they took his booldsugar 1

hour before that and it was 101 now it was 49. He gavehim an odd

look and said seems he has rebounding sugars and that he will

probabily be diabetic soon. They gave him a drink and it stopped.

They told me to watch his diet and In Aug that they will be doing a

5 hour test as he didnt like the results of the 3 hour test.

He told william when he starts getting a headache to let me know so

we can take his bloodsugar or if I see him peeing a lot. He gets

geadaches at 85 he gets cranky at 70 he is peeing at 65He starts

shaking at 60 it drops suddenlt below 50 and if we give him juice it

starts back up and if we add peanut butter crackers it only goes to

125 and holds. He also said no diabetic should ever be given

amitriptyline.

When he is at school we have tracke that he will eat lunch and play

for recess for half an hour and come in and 1 hour later his

bloodsugar is 70.give juice and crackers and he is fine.He hasnt had

a seizure since last Oct.

I did let him splurge and let him have a small hot fudge sundae

that he only ate half of and 2 hours later his blood sugar was 290.

I thought I was wrong so we re washed our hands and used a wipe like

they do in the hospital waite tomake sure it was dry and it was 289.

Has anyone else had this happen what should I do. I limit sugar

with the eception of that sundae I try to make sure he gets what he

needs nutrition wise but should I make sure he gets no sugar or

some. When it gets high is there a way to bring it down? When should

I get worried and call the doctor and should it be the ped,or nero?

He did have an MRI and a Cat scan and they showed no reason for a

seizure disrder and they dont rn in the family. Byt he has diabetis

on bith sides of his family.

Any advice is appriciated. He is a bright happy boy in a 2/3 grade

spilt level class next year for advanced kids.

pancreatitis info

http://health.groups.yahoo.com/group/ThePancreatitisPlace/

diabetic recipes

http://health.groups.yahoo.com/group/diabetic_recipes/

[Guest guest]

hi laura. v. rough. my prayers are with you. this is a nice group.

i'm glad you joined. talking to people, getting more information,

that really helps.

i think you did the right thing - taking control, consulting other

doctors. you do have to be your own doctor in a way. it can be

really hard to get a complete, accurate diagnosis. that happened to

me. took me months to get diagnosed as a type 1 diabetic...four-five

different doctors and experimental tests not yet approved by the

FDA. i ended up at UCSF, where i always do because i'm a metabolic

mess...university hospitals can do and know things others don't...so

i second vicki.

although even so, my high-powered doctor at UCSF made a lot of

assumptions based on one set of labs. i brought in years' worth of

labs to show her such was not the case. so...keep copies of

everything, take notes, look up all drugs prescribed for dangers,

make 'em walk through everything - that is my motto.

i did a search on hypoglycemia and seizures and found this website:

http://www.wrongdiagnosis.com/sym/seizures.htm

it's a lot of information, but worth it. i'd take the list of

possible causes in to the doctors and ask what they'd rule out and

why. double check, see if it really makes sense.

well, ok. don't know if that helps at all. but i'm glad you joined.

rach

p.s. re. sugar - i'd maybe watch all carbs, not just sugar. *liquid

sugar* - like in soda, juice, milkshakes - those are the fastest

acting and hard to bring down, i learned in a class, because of the

way they spike blood glucose. they are good for lows, though.

> Hi my name is and Iam new to this way of life. In the last

> 21/2 years my life has been filp turned and everytime I think we

are

> starting to recover something new pops up. This is going to be

long

> please be patient and Iam sorry about my spelling and grammer in

> advance.

> Iam raiseing with the help of my husband and very little from

thier

> mother 2 of my grandchildren. na is 11 and she is advanced

and

> is 7 he is also advanced.

> My nightmere began 21/2 years ago when I heard odd sounds coming

> from his bedroom. who has never had any major problems

other

> the being a typical boy was having a grand mal seizure.