Guest guest Posted April 25, 1999 Report Share Posted April 25, 1999 In a message dated 4/25/99 5:00:20 PM Eastern Daylight Time, lkippes@... writes: << I have resigned myself to the fact that this is genetic. >> I believe genetics has something to do with it, but it may not a foregone conclusion that every child that you have will be afflicted. I have two daughters - the first is perfectly healthy, and the second has EG. The first has no allergies to anything that we can determine - the second has a host of allergies. I can't explain it - and we are working on #3 right now, so I am keeping my fingers crossed. Actually, the ped. allergist indicated that if my wife got pregnant again, that he would strongly recommend severely restricting her diet during pregnancy - to minimize the sensitivity to allergens to the baby. She will call tomorrow to find out what this means. Best Wishes - Ed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 1999 Report Share Posted April 25, 1999 I have two daughters and only one has EG. She is one of the few girls with it on this list. Many of us have other children who have no problems. I think there is a stronger link to more kids who suffered from oxygen deprivation at birth than with definite genetic links. Don't be discouraged. Take it one step at a time. phyllis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 1999 Report Share Posted April 25, 1999 I too have a daughter who is healthy as a horse (thank God) and my son has EG. Our GI said there is really no proof that it is genetic. Dawn phyllis m. zuckerman-frieze wrote: > > > I have two daughters and only one has EG. She is one of the few girls with > it on this list. Many of us have other children who have no problems. I > think there is a stronger link to more kids who suffered from oxygen > deprivation at birth than with definite genetic links. Don't be > discouraged. Take it one step at a time. phyllis > > ------------------------------------------------------------------------ > Looking to expand your world? > http://www.ONElist.com > ONElist has over 115,000 e-mail communities from which to chose! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 1999 Report Share Posted April 26, 1999 In a message dated 4/25/99, 5:00:20 PM, eosinophilic gastroenteritis (AT) onelist (DOT) com writes: << Plus, it has really been upsetting me as I want more children, but, with dh's genes, well, it seems almost a guarantee that the baby will have ESG.>> I understand the fear of having another child. has EE and is 3 1/2 years old. Last year around this time I swore I was done having children. Now I have changed my mind and am planning on trying for number 2 after we go away in October. I would try sooner but I have had trouble with miscarriage and bad pregnancies so we will wait until after we take this trip. Our GI told me that he felt we are at a higher risk for having another child with EE/EG than the average person but that we also may have a perfectly healthy child. Jen ( 11/7/95, EE, food allergies, asthma) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 1999 Report Share Posted April 26, 1999 In a message dated 4/25/99, 9:49:40 PM, eosinophilic gastroenteritis (AT) onelist (DOT) com writes: < > Please post any info you get from the allergist. I would be interested in his/her recommendations. At a recent FAN conference, Dr. Wood of s Hopkins(he is the head of Pediatric Allergy) briefly addressed this issue. He stated that he would not limit intake until the third trimester. Speaking of Dr. Wood, I was curious if anyone has ever taken their child to him. I was very impressed with him at the conference. I was considering trying to get a consultation with him. Jen ( 11/7/95, EE, food allergies, asthma) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 1999 Report Share Posted April 26, 1999 I have 3 boys - none of the other 2 have EG. Cole, CLayton's twin has no allergies and drinks whole milk like it is going out of style. Jake was severely allergic to milk up to the age of three but can now have some processed milk nproducts, but if he gets too much his tummy hurts and he gets t Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 1999 Report Share Posted April 26, 1999 Where is he located? Dawn Jenericm@... wrote: > From: Jenericm@... > > In a message dated 4/25/99, 9:49:40 PM, eosinophilic gastroenteritis (AT) onelist (DOT) com writes: > < that he would strongly recommend severely restricting her diet during > pregnancy - to minimize the sensitivity to allergens to the baby. >> > > Please post any info you get from the allergist. I would be interested in > his/her recommendations. > > At a recent FAN conference, Dr. Wood of s Hopkins(he is the head > of Pediatric Allergy) briefly addressed this issue. He stated that he would > not limit intake until the third trimester. > > Speaking of Dr. Wood, I was curious if anyone has ever taken their child to > him. I was very impressed with him at the conference. I was considering > trying to get a consultation with him. > > Jen > ( 11/7/95, EE, food allergies, asthma) > > ------------------------------------------------------------------------ > Tired of empty chat rooms and out of date bulletin boards? > http://www.ONElist.com > ONElist: Making the Internet Intimate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 1999 Report Share Posted April 27, 1999 , As you can tell from my sig, I have eos esophag and ALL FIVE of my sons have it. WE think my Dad had it too (he died at age 43) We are undergoing a genetic evaluation, they are looking for " markers " of some type. Will keep you updated. (idiopathic eosinophilic esophagitis, GT, former TPN'r) and mom to five boys, all with EE, three with GTs and one on TPN (kody) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 1999 Report Share Posted April 27, 1999 Im reading all these posts and would like you all to realize that it is very, very difficult to see this for what it is and the answer is right in front of you. DENIAL is very strong and sometimes a very necessary evil. Absolutely, positively this IS genetic. The PROOF is there and if you would like to see it in published print, you only need wait until their finished mapping our genes and that of the several other families that have EE/EG throughout. There are at least a dozen that I know about. (idiopathic eosinophilic esophagitis, GT, former TPN'r) and mom to five boys, all with EE, three with GTs and one on TPN (kody) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 1999 Report Share Posted April 27, 1999 Personally, I think the only way to understand this disease is to have tons of patients with it. That pretty much knocks out everyone except and Hugh Sampson. (idiopathic eosinophilic esophagitis, GT, former TPN'r) and mom to five boys, all with EE, three with GTs and one on TPN (kody) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 1999 Report Share Posted April 27, 1999 Add me to the list too. I also have reflus - pretty bad - almost e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 1999 Report Share Posted April 27, 1999 Add me to the list too as I have allergies, reflux (on meds) and almost ended up on TPN while pregnant with the twins. My last endoscopy over 5 years ago was horrible - my esphagus was raw - but nev checked for Eosonphils. I guess I should get one now as my reflux is acting up and my bowel problems are so bad and stomach pains. Oh well. Love, Sharon mommy to Jake (6) and fraternal twins (3/30/97) - Cole -(nda) and Clayton (eosinophilic gastroenteritis, food allergies (milk, soy, eggs, wheat), g-tube, Nissen, latex allergy, mild DD, undiagnosed neuro issues, sleep problems, sensory integration disorder and now tremors and suspected metabolic disorder or genetic disorder, WHEN WILL THIS END) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 1999 Report Share Posted April 27, 1999 ..... Do they have enough subjects or do they need more. I have never been tested but I am positive I have e/e e/g and e/c. [eosinophilic gastroenteritis] Re: Genetic link From: SJHarlow@... Im reading all these posts and would like you all to realize that it is very, very difficult to see this for what it is and the answer is right in front of you. DENIAL is very strong and sometimes a very necessary evil. Absolutely, positively this IS genetic. The PROOF is there and if you would like to see it in published print, you only need wait until their finished mapping our genes and that of the several other families that have EE/EG throughout. There are at least a dozen that I know about. (idiopathic eosinophilic esophagitis, GT, former TPN'r) and mom to five boys, all with EE, three with GTs and one on TPN (kody) ------------------------------------------------------------------------ Looking for the perfect gift for a friend? http://www.ONElist.com Tell them about ONElist's 115,000 free e-mail communities! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 1999 Report Share Posted April 27, 1999 This is me too , I am pretty sure I have EG but I worry so much about BJ that I never really worry too much about myself. Dawn Allred wrote: > > > ..... > > Do they have enough subjects or do they need more. I have never been tested > but I am positive I have e/e e/g and e/c. > > > [eosinophilic gastroenteritis] Re: Genetic link > > From: SJHarlow@... > > Im reading all these posts and would like you all to realize that it is > very, very difficult to see this for what it is and the answer is right > in front of you. DENIAL is very strong and sometimes a very necessary > evil. > > Absolutely, positively this IS genetic. The PROOF is there and if you > would like to see it in published print, you only need wait until their > finished mapping our genes and that of the several other families that > have EE/EG throughout. There are at least a dozen that I know about. > > (idiopathic eosinophilic esophagitis, GT, former TPN'r) and > mom to five boys, all with EE, three with GTs and one on TPN (kody) > > ------------------------------------------------------------------------ > Looking for the perfect gift for a friend? > http://www.ONElist.com > Tell them about ONElist's 115,000 free e-mail communities! > > ------------------------------------------------------------------------ > Show mom you love her. Check out our great Mother's Day Gifts! > 14K Gold and gemstone jewelry, leather and cloth wallets and purses, > gardening, gourmet, kitchen, more! Free Shipping in the US! > http://www.onelist.com/ad/shoptheglobe5 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 1999 Report Share Posted April 29, 1999 In a message dated 4/26/99 8:10:06 AM Eastern Daylight Time, Jenericm@... writes: << At a recent FAN conference, Dr. Wood of s Hopkins(he is the head of Pediatric Allergy) briefly addressed this issue. He stated that he would not limit intake until the third trimester. >> He's the doctor we saw. He didn't mention anything about when he would do the limiting. My wife is now pregnant, and when we called his office for recommendations regarding her diet, they said just stay away from nuts and shellfish. Don't really know if this will change as time goes by, but we indicated that we have a daughter with severe milk allergy, and maybe my wife should stay away from dairy. They said that there was too great a risk of her not getting the proper nutrition for the baby, so they would not stay away from dairy - besides, they said that nuts and shellfish are the kind of allergies that most people do not outgrow, whereas many children outgrow an allergy to milk. We took Robin to see him about 6 months ago. We thought he was very good. His tests pretty much confirmed stuff we already knew, and he did explain a few things a bit more clearly. We have only seen him that one time. Due to go back in a month or so. Ed W. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 1999 Report Share Posted April 29, 1999 In a message dated 4/26/99 8:10:06 AM Eastern Daylight Time, Jenericm@... writes: << At a recent FAN conference, Dr. Wood of s Hopkins(he is the head of Pediatric Allergy) briefly addressed this issue. He stated that he would not limit intake until the third trimester. >> He's the doctor we saw. He didn't mention anything about when he would do the limiting. My wife is now pregnant, and when we called his office for recommendations regarding her diet, they said just stay away from nuts and shellfish. Don't really know if this will change as time goes by, but we indicated that we have a daughter with severe milk allergy, and maybe my wife should stay away from dairy. They said that there was too great a risk of her not getting the proper nutrition for the baby, so they would not stay away from dairy - besides, they said that nuts and shellfish are the kind of allergies that most people do not outgrow, whereas many children outgrow an allergy to milk. We took Robin to see him about 6 months ago. We thought he was very good. His tests pretty much confirmed stuff we already knew, and he did explain a few things a bit more clearly. We have only seen him that one time. Due to go back in a month or so. Ed W. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 1999 Report Share Posted April 29, 1999 In a message dated 4/26/99 7:46:20 PM Eastern Daylight Time, j7160@... writes: << Where is he located? Dawn >> Baltimore, land Ed W. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 1999 Report Share Posted April 29, 1999 In a message dated 4/26/99 7:46:20 PM Eastern Daylight Time, j7160@... writes: << Where is he located? Dawn >> Baltimore, land Ed W. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 1999 Report Share Posted May 1, 1999 really sharon, you should get a repeat EGD specifically for eos. Could make a huge difference. (idiopathic eosinophilic esophagitis, GT, former TPN'r) and mom to five boys, all with EE, three with GTs and one on TPN (kody) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 1999 Report Share Posted May 2, 1999 In a message dated 5/1/99 5:22:35 PM Eastern Daylight Time, SJHarlow@... writes: << eally sharon, you should get a repeat EGD specifically for eos. Could make a huge difference. >> Ste Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 1999 Report Share Posted May 2, 1999 In a message dated 5/1/99 5:22:35 PM Eastern Daylight Time, SJHarlow@... writes: << eally sharon, you should get a repeat EGD specifically for eos. Could make a huge difference. >> : I plan to once I am able to get o a doctor instead of CLayton - probably this summer - after Clayton is out of the hospital - especially since I have been having lots of GI -heartburn pain lately and also severe bowel problems. I will have my GI scope me and then do biopsies for Eos. Love, Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 1999 Report Share Posted May 2, 1999 In a message dated 5/1/99 5:22:35 PM Eastern Daylight Time, SJHarlow@... writes: << eally sharon, you should get a repeat EGD specifically for eos. Could make a huge difference. >> : I plan to once I am able to get o a doctor instead of CLayton - probably this summer - after Clayton is out of the hospital - especially since I have been having lots of GI -heartburn pain lately and also severe bowel problems. I will have my GI scope me and then do biopsies for Eos. Love, Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 1999 Report Share Posted May 2, 1999 In a message dated 5/1/99 5:22:35 PM Eastern Daylight Time, SJHarlow@... writes: << eally sharon, you should get a repeat EGD specifically for eos. Could make a huge difference. >> : I plan to once I am able to get o a doctor instead of CLayton - probably this summer - after Clayton is out of the hospital - especially since I have been having lots of GI -heartburn pain lately and also severe bowel problems. I will have my GI scope me and then do biopsies for Eos. Love, Sharon Quote Link to comment Share on other sites More sharing options...
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