Guest guest Posted February 11, 2000 Report Share Posted February 11, 2000 Hi Larry, We are also in the Chicagoland area, just across the border in Indiana. amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2000 Report Share Posted February 11, 2000 Hi Larry, We are also in the Chicagoland area, just across the border in Indiana. amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2000 Report Share Posted February 11, 2000 Cathy, The MDA clinic I'm going to is at Hinsdale Hospital, which isn't to far from joliet where I live. The number to call . If you call right away, they may be able to get your son in on Feb. 16, which is the third Wed. of the month. Every other month they see children and the opposite months they see adults. Hope you get in for Feb. and more importantly have some good results. In case you are interested, I thought it might be a good idea to get together with other CMTers in the area just to talk in person. I talked with Amy (Hey Amy, are you reading this!) who is also from northern Indiana and that's when I got the idea. Are you interested? Also anyone else within earshot! E_mail me at LMinella@... Larry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2000 Report Share Posted February 11, 2000 Hello Larry, Cathy here, You say you are in the Chicago area can you tell me where the MDA is where you are going? My daughter lives in Portage Ind and needs to take my Grandson. The Doctor we have at the present has him on zarontin for siezures and he has been on this for almost 2 yrs. She wants to take him off but Dr. doesnt't want to. He has CMT1A and had a focal siezure 1 time and never since but we need other medical opinions on this plus my grandson was put back a grade not so much due to his intellctual ability he is a very smart child, but for being (school says) slow as far as his physical condition(hopping,skipping, hand coordination ability to tie his shoes things in this respect). I personally feel they held him back a grade by discriminating against him. They gave my daughter a hard time about this when she argued with them about it. It was THEIR WAY or NO WAY. She told them about the CMT but they just don't seem to care. We are in Indiana and the School system needs to definatly become more educated here about CMT. I am 46 yrs old and had one heck of a time in school and I don't want to see my grandson go through what I did. Cat CSCluv** http://community.webtv.net/cat926/doc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2000 Report Share Posted February 11, 2000 Hello Larry, Cathy here, You say you are in the Chicago area can you tell me where the MDA is where you are going? My daughter lives in Portage Ind and needs to take my Grandson. The Doctor we have at the present has him on zarontin for siezures and he has been on this for almost 2 yrs. She wants to take him off but Dr. doesnt't want to. He has CMT1A and had a focal siezure 1 time and never since but we need other medical opinions on this plus my grandson was put back a grade not so much due to his intellctual ability he is a very smart child, but for being (school says) slow as far as his physical condition(hopping,skipping, hand coordination ability to tie his shoes things in this respect). I personally feel they held him back a grade by discriminating against him. They gave my daughter a hard time about this when she argued with them about it. It was THEIR WAY or NO WAY. She told them about the CMT but they just don't seem to care. We are in Indiana and the School system needs to definatly become more educated here about CMT. I am 46 yrs old and had one heck of a time in school and I don't want to see my grandson go through what I did. Cat CSCluv** http://community.webtv.net/cat926/doc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2000 Report Share Posted February 12, 2000 Hey Amy, we are in Indian also, how many other Hoosiers do we have on the list. I asked awhile back if any one had experience with the department education and rehabilitation services, well I do now and what a smart move it was to contact them I must say, it looks as though I will be going back to college in the spring/summer for engineering degree, I recommend them to anyone who needs retaining TONY Re: Digest Number 158 >From: amy913@... (Amy) > >Hi Larry, >We are also in the Chicagoland area, just across the border in Indiana. > > >amy > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2000 Report Share Posted February 12, 2000 HI Cathy, not sure where Portage is, but we live in Warsaw and I go to the MD clinic in Fort Wayne, they are great, there must be a MDA clinic around you also, TONY Re: Digest Number 158 >From: cat926@... (cathy Culp) > >Hello Larry, >Cathy here, You say you are in the Chicago area can you tell me where >the MDA is where you are going? My daughter lives in Portage Ind and >needs to take my Grandson. The Doctor we have at the present has him on >zarontin for siezures and he has been on this for almost 2 yrs. She >wants to take him off but Dr. doesnt't want to. He has CMT1A and had a >focal siezure 1 time and never since but we need other medical opinions >on this plus my grandson was put back a grade not so much due to his >intellctual ability he is a very smart child, but for being (school >says) slow as far as his physical condition(hopping,skipping, >hand coordination ability to tie his shoes things in this respect). I >personally feel they held him back a grade by discriminating against >him. They gave my daughter a hard time about this when she argued with >them about it. It was THEIR WAY or NO WAY. She told them about the CMT >but they just don't seem to care. We are in Indiana and the School >system needs to definatly become more educated here about CMT. I am 46 >yrs old and had one heck of a time in school and I don't want to see my >grandson go through what I did. >Cat > > > > CSCluv** > > > >http://community.webtv.net/cat926/doc > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2004 Report Share Posted July 13, 2004 Rach, I live 30 miles north of London. , On the bulletin board above the computer I have the English bs numbers and their American counterparts. It's easier this way. I have an American Accu-chek and an English OneTouch Ultra. When I showed the diabetic nurse today my little log she paled and asked what are these numbers? 156 was one of them, which with the English meter was about 8.4, which was fine. I had to explain that the nasty GP made a mistake with my prescription for testing strips so I had to use my American version. She gasped and said, but you can't use the American ones with the English meters. I explained that I did have an American meter. She hit me. lol Should I get everyone's blood boiling?? My GP inferred that the dawn phenomena that I experience is all my fault due to the junk I eat at night. That upset me. I don't eat after supper! I did get a lecture on how since I am a type 2 I should only test myself once a day. All I could think of was 'yeah right'. I think that she knew what I was thinking. lol So I will try fruit and brown bread and see how it goes. It's almost 11:30pm I bid you all a good night. ___________________________________________________________ALL-NEW Yahoo! Messenger - sooooo many all-new ways to express yourself http://uk.messenger.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2004 Report Share Posted July 13, 2004 > Rach, I live 30 miles north of London. ok, i lie. i've been a little north of london. my mum rented a house in a suburb north of london once. amstead, i think it was. no idea how far out it was, though. am very bad about those things. and in case, child that i was, i kept hopping trains back to sussex to be with my friends...lol! > Should I get everyone's blood boiling?? My GP inferred > that the dawn phenomena that I experience is all my > fault due to the junk I eat at night. That upset me. I > don't eat after supper! that would make me mad too. my endo gave me the funny look and quizzed me for having a bedtime snack, which i do do, but i know what i need. actually, my general practictioner of her own accord is going to write a letter to my specialists because they are pretty arrogant and have made assumptions without looking at my history. don't let 'em get away with it! > I did get a lecture on how since I am a type 2 I > should only test myself once a day. All I could think > of was 'yeah right'. I think that she knew what I was > thinking. lol yeah, and i'd think that too. lol! i'm six months into this whole thing and i know i don't know enough to cut down on the testing. > So I will try fruit and brown bread and see how it > goes. > > It's almost 11:30pm I bid you all a good night. let us know how it goes. cheers! rach Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 Who is Mendosa? , I liked Accucheck a lot, but then my isurance chaged to medisense and since i could get the meter and strips free, I use it now. Is ok. Hi Donna, I need to lose about 60 pounds myself. I tried a diet very close to Adkins and could not maintain my blood sugar. The dietician at has me do 45 grams of carbs breakfast, lunch and dinner, and three small 15 mg snacks. Also to have a small amount of protien with my meals. Her source forthe diet was theAmerican Diabetes Association. It is equivalent to about a 1, 200 calorie diet. Billijo, There are days that my blood sugars follow a cycle similar to what yours are doing? Do you exercise and at what time during the day? Helen in South DAkota Quote Link to comment Share on other sites More sharing options...
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