Re: CJD Review Article - NEJM Dec 31, 98.

[Guest guest]

Dear Lynette, How do you hide your angel wings under your clothes ? You

are all such a source of strenght for me. I don't post as often now as I

used too, sometimes reading all the caretakers stories are a bit much for

me. But I realize how helpful it is for them to express themselves to

ppeople who understand. For them it is a healing, for me it is a view of

things to come. But you are all never far from my thoughts, and as I've

said repeatedly you are all fighting a battle for me and my family,and I

appreciate it more then you can ever know. Love to you all, Nancie

[Guest guest]

Dear Nancie,

I am pleased that the medication is helping you with the voices, and that you

are feeling some, even a little, hope with these meds.

None of us know what the future will be and we must try to appreciate each

day. I have trouble and try to think of the gifts I do have right now, and I

always think of Dolly on our site and her deep belief in God and her own

sweetness towards all of us. I know it's extremely difficult for you. Is

there any way you can come to the convention so that we can physicaly surround

you with our caring?

Most sincerely,

Gloria

[Guest guest]

Dear Nancie,

I am pleased that the medication is helping you with the voices, and that you

are feeling some, even a little, hope with these meds.

None of us know what the future will be and we must try to appreciate each

day. I have trouble and try to think of the gifts I do have right now, and I

always think of Dolly on our site and her deep belief in God and her own

sweetness towards all of us. I know it's extremely difficult for you. Is

there any way you can come to the convention so that we can physicaly surround

you with our caring?

Most sincerely,

Gloria

[Guest guest]

Dear Nancie,

I am pleased that the medication is helping you with the voices, and that you

are feeling some, even a little, hope with these meds.

None of us know what the future will be and we must try to appreciate each

day. I have trouble and try to think of the gifts I do have right now, and I

always think of Dolly on our site and her deep belief in God and her own

sweetness towards all of us. I know it's extremely difficult for you. Is

there any way you can come to the convention so that we can physicaly surround

you with our caring?

Most sincerely,

Gloria

[Guest guest]

Dear Gloria, Thanks so much for your kind words, they mean so much to me.

Sorry it took so long to get back to you. It's hard to check the site with

as much regularity as before. I see my future in so many stories. My Dr.

just put me on a new combo of medications that seem to be helping my

symptoms. I'm afarid to get to excited,as the disease could change course

at any moment and I'll be right back where I was. But for now I am

enjoying some peace, for the first time in several months. Does anyone

with a loved one affected by the disease recall them mentioning the

hearing of voices comming from other rooms or behind them,not from inside

there head. Also knowing that the voices were not real but hearing them

any way? Just thought I'd ask since that is one of my most troubling

symptoms that this medication helps. What I'm taking is 150mgs of zoloft

in the a.m. Then 30mg Remeron and 10 mg. Zyprexa at night. Don't know if

this info might help someone else, but it is helping me for now. Again,

thanks to all for all your efforts hopefully it won't all be in vain.

Nancie

[Guest guest]

Marie,

Did you ever get that NEJM article that Lynette referred to?

Sheryl

[Guest guest]

Hi,

Yes, I did. I mailed out several copies to those who requested it. Did you

want a copy? I am have been very busy and sometime forget what I have done.

Marie

[Guest guest]

Dear Sheryl,

I do apologize, but I only mailed your copy [and 12 others] yesterday -

there were so may requests that I had to make another 25 copies [the first

50 just went " nowhere " ], then I was further delayed when my system became

corrupt, and I couldn't access the addresses [one of which was yours] until

I " rebuilt " the Eudora files!!

You should receive your copy by the weekend!!

With best wishes etc., Lynette.

At 06:07 PM 2/8/99 EST, you wrote:

>From: STrai6098@...

>

>Marie,

>

>Did you ever get that NEJM article that Lynette referred to?

>

>Sheryl

>