Re: CJD Review Article - NEJM Dec 31, 98.

[Guest guest]

Please, Please Please..if you could, could someone forward the article from

the New England Medical Journal, on CJD to me. I would greatly appreciate it.

I sit here everyday and read all the mail, and I cannot believe how many of us

all feel the same way! You know....as I sit here smoking a cigarette, I think

of how the lobbiest worked keeping the TOBACCO TRUTH from coming out...imagine

what they are doing ( or should I say what the beef industry is doing for

them) to keep the truth from reaching all of us. My dear mother hated the fact

that I was a smoker...now I wonder if I should have yelled at her the way she

yell at me when she bit into a hamburger. it makes me sick..her senseless

death, and I miss her yelling at me about smoking! Suzanne stay strong..and

get everyone you know on the internet to write Brudnoy..at WBZ in Boston

a e-mail..we want a show about this, and EVERYONE, just keep talking about

it..THE SWEEKY WHEEL GETS THE OIL !!!

Peace..nne

[Guest guest]

I will try to get the article tomorrow. Send me your address and I will mail

it to you and anyone else that wants a copy.

Marie

[Guest guest]

I will try to get the article tomorrow. Send me your address and I will mail

it to you and anyone else that wants a copy.

Marie

[Guest guest]

I would also like a copy of that article in the New England Journal of

Medicine (Dec. 31?), if anyone has it!!

[Guest guest]

I would also like a copy of that article in the New England Journal of

Medicine (Dec. 31?), if anyone has it!!

[Guest guest]

Hi Lynette -

I would appreciate a copy of this article. Let me know if you need money

for copying and/or postage.

Shar Weiser

3119 C.R.R

Wiggins, CO 80654

Thanks so much. Shar

----------

>

> To: CJD Voice cjdvoice (AT) onelist (DOT) com>

> Subject: CJD Review Article - NEJM Dec 31, 98.

> Date: Tuesday, January 19, 1999 3:12 AM

>

>

>

> Dear All,

> I lucked in today at the Melbourne University's medical library, with the

> December 31 issue of the New England Journal of Medicine finally

appearing

> on the shelves. As mentioned previously, this issue contains a 12 page

> review article of " Creutzfeldt-Jakob disease and related transmissible

> spongiform encephalopathies " by T. and Clarence J. Gibbs.

> The article claims that CJD has been popularized by the extensive media

> coverage of the BSE epidemic in Britain, and to the author's knowledge

the

> incidence of CJD has not changed in " recent years " . Nonetheless, the

review

> is extremely comprehensive, not overly technical, and an essential

resource

> for those with an active interest in CJD.

> I remember that Debbie, a, and Nancie expressed an interest in

> receiving a hard copy of the article by mail [it is not available on line

> at the NEMJ website], but since I have " misplaced " some of my earlier

> January messages, I would appreciate a reminder from other CJD Voice

> members who expressed a similar interest.

> With kindest regards, Lynette.

>

>

> ------------------------------------------------------------------------

>

[Guest guest]

Hi Lynette -

I would appreciate a copy of this article. Let me know if you need money

for copying and/or postage.

Shar Weiser

3119 C.R.R

Wiggins, CO 80654

Thanks so much. Shar

----------

>

> To: CJD Voice cjdvoice (AT) onelist (DOT) com>

> Subject: CJD Review Article - NEJM Dec 31, 98.

> Date: Tuesday, January 19, 1999 3:12 AM

>

>

>

> Dear All,

> I lucked in today at the Melbourne University's medical library, with the

> December 31 issue of the New England Journal of Medicine finally

appearing

> on the shelves. As mentioned previously, this issue contains a 12 page

> review article of " Creutzfeldt-Jakob disease and related transmissible

> spongiform encephalopathies " by T. and Clarence J. Gibbs.

> The article claims that CJD has been popularized by the extensive media

> coverage of the BSE epidemic in Britain, and to the author's knowledge

the

> incidence of CJD has not changed in " recent years " . Nonetheless, the

review

> is extremely comprehensive, not overly technical, and an essential

resource

> for those with an active interest in CJD.

> I remember that Debbie, a, and Nancie expressed an interest in

> receiving a hard copy of the article by mail [it is not available on line

> at the NEMJ website], but since I have " misplaced " some of my earlier

> January messages, I would appreciate a reminder from other CJD Voice

> members who expressed a similar interest.

> With kindest regards, Lynette.

>

>

> ------------------------------------------------------------------------

>

[Guest guest]

Ok lynette send me your address, and what type of funds you deal in over

their....for the mailings you have sent to me I donate to you. You are my

lifeline to articles I can't get/

Thanks so much

a G.

----------

>

> To: cjdvoice (AT) onelist (DOT) com

> Subject: CJD Review Article - NEJM Dec 31, 98.

> Date: Tuesday, January 19, 1999 7:31 PM

>

>

>

> Dear Shar,

>

> No problem, you have caught me just in time to send your copy with

today's mail out. I don't normally accept payment for distributing

resources, but I've been so overwhelmed with requests for this one, any

donations will be gratefully accepted.

>

> With best wishes etc., Lynette.

>

> At 08:22 PM 1/19/99 -0700, you wrote:

>

> >

>

> >

>

> >Hi Lynette -

>

> >

>

> >I would appreciate a copy of this article. Let me know if you need

money

>

> >for copying and/or postage.

>

> >

>

> >Shar Weiser

>

> >3119 C.R.R

>

> >Wiggins, CO 80654

>

> >

>

> >Thanks so much. Shar

>

> >

>

>

>

>

>

>

>

> Dr. Lynette J. Dumble,

>

> Co-ordinator, Global Sisterhood Network

>

> Senior Research Fellow,

>

> History and Philosophy of Science,

>

> University of Melbourne,

>

> Parkville, Vic., 3052, AUSTRALIA.

>

> Tel: 61-3-9344-6556

>

> Fax: 61-3-9344-7959

>

> email: l.dumble@...

>

>

>

0000,0000,ffffhttp://www.onelist.com/subscribe.cgi/glo

balsisterhood

>

> email: 0000,0000,ffffGSN (AT) onelist (DOT) com

>

> http://home.vicnet.net.au/~globalsn/ [under construction]

>

> ------------------------------------------------------------------------

>

[Guest guest]

Lynette,

I would love a copy of the NEJM article. Is it possible for you to scan it in

and then post it here? Or would faxing it be cheaper? Maybe you could fax it

to one of us and then we could distribute it amongst ourselves here in the

States? If faxing is easy for you, my fax number is 30-655-2452.

My address is 2705 Easthaven Drive, Hudson, Ohio 44236

Let me know.

Vicki Soukup

[Guest guest]

Well, I guess that snail mail wins after all over technology!!! Yes, I would

appreciate a copy. How can I reimburse you?

Thanks,

Vicki

[Guest guest]

In a message dated 1/19/99 10:29:11 PM Central Standard Time, guntah@...

writes:

<< Ok lynette send me your address, and what type of funds you deal in over

their....for the mailings you have sent to me I donate to you. You are my

lifeline to articles I can't get/

Thanks so much

a G.

>>

Dear Lynette,

DITTO! I'd like a copy of the article, too; and I'd very much like to

contribute to the cost. Please send your mailing address and how do I do

this- money order, or what?

Yvette

[Guest guest]

Hi Vicki,

Scanning the article would undoubtedly have been the most economical way of

sending the article to so many, but I don't have access to a scanner [plus

it is 12 pages, and you can probably see the problems with technicalities

like Tables from The Lancet post I have sent to CJD Voice and Blood

tonight]].

Faxing to one in the US and distributing from there would also have been

cheaper. Actually, I did think of that, but no one mentioned their fax

number - so I made 50 copies, 43 of which I have already mailed to the US

and Canada. You are very welcome to one of the 7 remaining copies by mail

or fax, altho 12 pages of fine print takes about 30 minutes to fax from

Australia to the US [about the equivalent of a $50.00 telephone call], so I

think you would be better off choosing the air mail route!

With best wishes etc., Lynette.

At 11:08 AM 1/20/99 -0500, you wrote:

>From: SOUKUPS@...

>

>Lynette,

>

>I would love a copy of the NEJM article. Is it possible for you to scan

it in

>and then post it here? Or would faxing it be cheaper? Maybe you could

fax it

>to one of us and then we could distribute it amongst ourselves here in the

>States? If faxing is easy for you, my fax number is 30-655-2452.

>

>My address is 2705 Easthaven Drive, Hudson, Ohio 44236

>

>Let me know.

>

>Vicki Soukup

>

>------------------------------------------------------------------------

>

[Guest guest]

I will send you a copy. Don't worry about the cost. Will be the beginning of

next week.

Marie

[Guest guest]

Lynnette,

If you need assistance, I would be glad to help with the distribution.

Marie

[Guest guest]

Marie,

Can you send me a copy?...........Pat

Ewanitz

46-03 216th Street

Bayside, NY 11361

[Guest guest]

Hmm... have just mailed the last 6 of 50 copies made on Tuesday [keeping

one to make further copies tomorrow].

How about if I mail one of the new copies to you Marie to continue the

supply of the NEMJ CJD review from the US?

If agreeable, please send me your postal address, or maybe you already have

a copy! I'm reluctant to fax it because of the 30 minutes-plus it takes to

transmit 12 pages of fine print!

Thanks a ton, Lynette.

At 10:50 PM 1/20/99 -0500, you wrote:

>From: Mariek43@...

>

>Lynette,

>

>If you need assistance, I would be glad to help with the distribution.

>

>Marie

>

[Guest guest]

Dear Pat,

I mailed your copy yesterday - airmail from OZ to US usually 5 days.

Apologies if I failed to let you know!

Best wishes etc., Lynette.

At 11:10 PM 1/20/99 -0500, you wrote:

>From: APE826@...

>

>Marie,

>

>Can you send me a copy?...........Pat

>

> Ewanitz

>46-03 216th Street

>Bayside, NY 11361

>

>------------------------------------------------------------------------

>

[Guest guest]

I'd like one too. Liz.

[Guest guest]

Yours mailed yesterday Liz!! Cheers etc., Lynette.

At 06:32 AM 1/21/99 -0500, you wrote:

>From: LArmstr853@...

>

>I'd like one too. Liz.

>

>------------------------------------------------------------------------

>

[Guest guest]

Sure, Wuld be glad to.

Marie

[Guest guest]

Lynnette,

I have a copy and would be glad to help.

Marie

[Guest guest]

Dear Lynette, Just a reminder that I still would like a copy of the medical

journal account about CJD. I will be seeing a new neuroligst soon and

would like to go armed with as much info as possible. So far the drs. have

run into another room and looked it up in Mericks manual 5 min. before they

see me. Please let me pay for any cost involved. My address ia 566

Cherrywood DR. Wheeling, IL. 60090, oh and the last name is Sitman. Take

care, Nancie

[Guest guest]

Dear Nancie,

You are never out of my thoughts - your's was the first copy I mailed.

With every kind wish, Lynette.

At 07:48 PM 1/22/99 -0600, you wrote:

>

>

>Dear Lynette, Just a reminder that I still would like a copy of the medical

>journal account about CJD. I will be seeing a new neuroligst soon and

>would like to go armed with as much info as possible. So far the drs. have

>run into another room and looked it up in Mericks manual 5 min. before they

>see me. Please let me pay for any cost involved. My address ia 566

>Cherrywood DR. Wheeling, IL. 60090, oh and the last name is Sitman. Take

>care, Nancie

>

>

>------------------------------------------------------------------------

>

[Guest guest]

Dear Nancie,

In a few minutes, I will start writing the agency and support the petition.

Although I have not written you before, please know I read your letters and my

thoughts, my heart is with you all the time.

I agree we have some angelsjhere on this site.

I send you much love,

Gloria

[Guest guest]

Dear Lynette, How do you hide your angel wings under your clothes ? You

are all such a source of strenght for me. I don't post as often now as I

used too, sometimes reading all the caretakers stories are a bit much for

me. But I realize how helpful it is for them to express themselves to

ppeople who understand. For them it is a healing, for me it is a view of

things to come. But you are all never far from my thoughts, and as I've

said repeatedly you are all fighting a battle for me and my family,and I

appreciate it more then you can ever know. Love to you all, Nancie